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Author Topic: mouth sores  (Read 7285 times)

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Offline db

  • Newbie
  • Posts: 2
mouth sores
« on: April 16, 2015, 04:48:21 pm »
going to be starting treatment next week Ive read the side affects for ribavirin are mouth sores. How bad do they get? Are they like cold sores? and is there something I can take to prevent them? I have to work and Im trying to prevent time off.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: mouth sores
« Reply #1 on: April 19, 2015, 02:41:06 am »
I have been on Harvoni for 22 weeks and on Ribavirin for 13 weeks now. My only side is feeling a little run down and tired because of anemia from the Riba.

Here is a link to the prescribing info the form of riba I am taking Ribasphere it includes side effects and the box warning about not getting pregnant while taking riba or for 6 months after treating with riba.

http://kadmon.com/files/ribasphere-tablets-pi.pdf

I wouldn't worry about sides unless you experience them why invite trouble?
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Gittin Cured

  • Member
  • Posts: 7
  • Start Harovni April 7, 2015
Re: mouth sores
« Reply #2 on: April 22, 2015, 01:18:25 pm »
db,

I was Riba twice and both times suffered very bad mouth sores which have never completely gone away.  Ask you doctor fo miracle mouthwash, it hlps a lot, it is made up by the pharmacist.  use only gentle toothpaste and mouth wash, getting tough on the sores does not work.

I did find something that helped, it was a bacteria that you washed your mouth with, I will try to find the name and share with you, it is at my house somewhere, right now I am at work.

The sores do show up less often now, but when you are downing some spicy crawfish they can ruin your day!

Good Luck.
Diagnosed October 2006, contracted approx. 1972
1st treatment PEG Interferon and Riba Feb 2007 FAIL
2nd Treatment PEG Interferon and Riba April 2009
Relapsed from second round
Start Harvoni April 2015
Geno Type 1b, current viral load - 8.3MM

Harvoni - finished 8 wks, HCV und, AST, ALT, GGT all in range, very exciting!  First time in 40 years!

 


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