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Author Topic: Starting Harvoni-day or night?  (Read 16980 times)

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Offline coastal girl

  • Member
  • Posts: 36
Starting Harvoni-day or night?
« on: September 02, 2015, 12:13:35 pm »
Hello everyone,  I've been viewing your posts for a few months now to get a feel for what the real side effects may be.  I am confident I can do this with a positive attitude thanks to all of you!!!  I am starting treatment today.  I'm hesitant to take my first pill!  The Doc says I need to pick a time and stick to it..the pharmacist says I can change times but do it slowly over a few days in 3 hour intervals.                     My other concern is...If I have an appointment and have to leave the house a couple hours before dosing do I really have to take the whole bottle with me, I'm a rule follower, makes me nervous to carry around a ridiculously expensive and life saving  bottle of pills with me.
So the question is..day or night to start..(probably up to me, right) and can I just take with me the dose for the day or 2 in a secure air tight container.  Gosh that sounds like a ridiculous question but with serious meds like this I want to make no mistakes!!!!  Thanks for your input :)
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting Harvoni-day or night?
« Reply #1 on: September 02, 2015, 12:19:46 pm »
Hi Coastal Girl. Welcome to the forums and to the Harvoni journey! You are on your way to being cured. :)

I have seen split opinion here on the day/night question with Harvoni. Some of us (me for example) found Harvoni to be very energizing. It would have kept me awake at night, whereas I benefitted from the 6 hour boost it gave me each day after I took it each morning at 9:00 am. Other people found the reverse - that it made them tired and lethargic. So it was useful for them to take it at night.

As for being away from home at pill-taking time, I would definitely take 1 or 2 pills with you in an airtight/watertight pill container. Don't take the whole bottle with you if you just need access to 1 or 2 pills. Who wants to worry about losing or damaging a $30,000 pill bottle?

Good luck! I hope it goes smoothly for you. And keep us posted on your progress. :)

best,
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lou66

  • Member
  • Posts: 18
Re: Starting Harvoni-day or night?
« Reply #2 on: September 02, 2015, 01:50:12 pm »
For my personal experience is better in the morning, if you have a little problem with Morfeo, because before one week, when i had bad side effects, the body accustom to new guest, and i have boost of energy in the morning.
I take my pill at 6 am.
Logged
Hcv since 1986
2003 peg inf.+ riba nullrespond.
Genotype 1a
Fibroscan 18,1  F4
Viral load 3800000
Start Harvoni 24 weeks 24 aug. 2015

Offline Michael0543

  • Member
  • Posts: 5
Re: Starting Harvoni-day or night?
« Reply #3 on: September 02, 2015, 11:29:17 pm »
I take it everyday at 7:00 A.M. on an empty stomach with a lot of water to get it out of the way before my day starts. It has worked out great so far with no side effects. I take day 10 of 84 in the morning.
Logged
Contracted Dec 2014
Diagnosed June 2015
VL 650,000. GT 1a
Treatment naive
Started Harvoni 8/25/15 for 12 weeks
9/22/15 HCV Not Detected; ALT 13; AST 24
11/16/15 Finished Harvoni
2/10/16 HCV Not Detected: ALT 13; AST 25

Offline coastal girl

  • Member
  • Posts: 36
Re: Starting Harvoni-day or night?
« Reply #4 on: September 03, 2015, 05:59:18 pm »
I took my first pill today!  Boy am I happy I decided to take it in the morning, I feel like I took some speed of some sort.  Hope that calms down just a wee bit, I am a high energy person already...My poor husband :)  I am so grateful for this treatment and have very positive thoughts flowing thru my mind with a few aggressive ones telling the Harvoni to go ahead and kick that viruses a......:)  1 down 83 to go!!!!
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Starting Harvoni-day or night?
« Reply #5 on: September 03, 2015, 06:10:31 pm »
When I started on bottle #2 I saved bottle #1 for transport so I would not have to carry around $30,000.00 plus of meds but still carry in original container. Just a thought.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline sugarfree

  • Member
  • Posts: 13
Re: Starting Harvoni-day or night?
« Reply #6 on: September 09, 2015, 08:23:27 pm »
  I was told  to pick my time and stick with it.  I  set an alarm for 9 am.  I took it faithfully.  I am now non detectable!!  I have no idea if that is why but it worked.  Good luck and hope all goes well
Logged

Offline annajustanna

  • Member
  • Posts: 17
  • I cannot direct the wind but I can adjust my sails
Re: Starting Harvoni-day or night?
« Reply #7 on: September 09, 2015, 08:58:55 pm »
I started at around 5 PM but brought this down to 900 am in 4 days at about 2 hr increments. I much prefer it in AM. I took it early today though because I saw MD and it is a 2 hr ride.
Logged
75" Diagnosed non A/B
96" Treated Interferon/Ribaviron
responder with relapse after stopping treatment AMA
8/11/15 Harvoni 12 weeks
8/01/15 VL at start 9110000 
treatment ended 11/3/15
11/5/15    UNDETECTED!!!!! YEA!!!!
12 weeks post treatment
1/27/16 - UNDETECTED!!

Offline lin44

  • Member
  • Posts: 15
Re: Starting Harvoni-day or night?
« Reply #8 on: September 09, 2015, 10:43:09 pm »
I just started on the 8th and decided in the morning. 
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Offline coastal girl

  • Member
  • Posts: 36
Re: Starting Harvoni-day or night?
« Reply #9 on: September 15, 2015, 12:56:28 am »
I picked the morning to take my pill,  I'm happy I did because I have been side effect free except for increased energy...very speedy about 2 hours after dosing and then energetic all day.  No loss of appetite or headaches, nausea...I feel blessed !!  I do realize this could change any day but I am keeping positive thoughts and I don't let any small aches and pains get to me...I'm 55 and I work with heavy weight in my business so I'm used to aches and pains at a moderate level.
Before starting tx I had a problem with my eyes which ended up being caused from a blocked carotid artery for which I had to have surgery.  I was so glad that it happened before Tx because I so would have blamed it on my choice to try Harvoni!!!  I have resisted Tx for years because of the sides that came with it.  I changed my diet and supplemented which kept me feeling pretty good for years..I still supplement even during Tx, I want to keep my body strong!! 
For those of you who are suffering through this I feel for you and hope the sides fade away...I feel a little guilty for posting that I do not have bad sides but I think it is important for all the people who are considering treatment to know that not all suffer and go ahead and jump on the train...wishing everybody SVR!!!
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline annajustanna

  • Member
  • Posts: 17
  • I cannot direct the wind but I can adjust my sails
Re: Starting Harvoni-day or night?
« Reply #10 on: September 15, 2015, 08:29:40 am »
thanks coastal girl!! I too have been relatively side free with exception of headaches. This is very tolerable. I am 55 too and also have the aches and pains from my work and life at this age. I too feel blessed that it was also relatively easy to get approved. I just really want to achieve SVR and stay there because my only fear is resistance if I don't. I was only approved for 12 weeks and MD is saying maybe thinking about extending it. I am afraid if I cant because insurance wont pay then I will have to stop and possibly achieve SVR only to relapse in month. This is what happened last time. I achieved SVR and stopped to soon - at 5 month of treatment with interferon and riba - uuuggghh
now fear is resistance to this new antivirals that stop the replication process
Logged
75" Diagnosed non A/B
96" Treated Interferon/Ribaviron
responder with relapse after stopping treatment AMA
8/11/15 Harvoni 12 weeks
8/01/15 VL at start 9110000 
treatment ended 11/3/15
11/5/15    UNDETECTED!!!!! YEA!!!!
12 weeks post treatment
1/27/16 - UNDETECTED!!

Offline Hep Forum Moderators

  • Administrator
  • Member
  • Posts: 33
Re: Starting Harvoni-day or night?
« Reply #11 on: November 24, 2015, 11:13:03 am »
Robert Gish, MD of the medical consulting firm Robert G. Gish Consultants LLC replied via Twitter....

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