Welcome, Guest. Please login or register.
March 29, 2024, 10:58:51 am

Login with username, password and session length


Members
  • Total Members: 6307
  • Latest: golfer
Stats
  • Total Posts: 55125
  • Total Topics: 4851
  • Online Today: 157
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 110
Total: 110

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Finishing Harvoni: 7 day countdown  (Read 33902 times)

0 Members and 1 Guest are viewing this topic.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Finishing Harvoni: 7 day countdown
« on: November 30, 2015, 12:06:01 pm »
I have so much to be grateful for!  My 12 week treatment with Harvoni has, for the most part, been nothing but good.  Okay, the occasional headache.  But even those were easily addressed with lots and lots of water, a mug of coffee and maybe the occasional aspirin. 

I've slept better than I have in years during treatment, so insomnia wasn't a side-effect for me at all.  Vivid dreams for the first week or two but those bordered on entertaining.  :)

I was "virus non-detected" by week 4, normal liver function tests at week 8, so am anticipating the same for my EOT labs a week from now.

What's improved?  Everything!  The grinding fatigue that had run my life for years is gone. Joint pain, gone.  "Brain fog", gone.  It's unfortunate that that last one doesn't have a proper explanation.  No, it wasn't hepatic encephalopathy but it was debilitating just the same.  And really frustrating that since it wasn't HE, it was treated as nothing at all.  The improvement in cognitive function and clarity has been stunning and life-changing. 

The peripheral neuropathy that had been progressing this year at a frightening pace stopped progressing upon starting treatment.  After almost three months on Harvoni, feeling has returned to my left toes.  The outcome of nerve damage is hard to predict, but I'm feeling upbeat that my right foot will improve as well with more time.  Was the neuropathy caused by HCV infection?  Considering its response to Harvoni treatment, that would appear to be the case.  I hope more research will substantiate the reality of extra-hepatic symptoms caused by HCV.

So to all considering or fighting for treatment - do it!  Don't give up.  Appeal, appeal, and appeal again!!!  It's worth it.  ;D

I am feeling slightly anxious about these last 7 pills.  Like I'm having a security blanket snatched away.  But since I was "treatment-naive" (never took medication for HCV infection before) and did not have cirrhosis (had only mild to moderate liver scarring) 12 weeks is considered an appropriate length of time for treatment.  **Big sigh**  Here's hoping the Harvoni scoured my system for any last remaining viruses.



F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Finishing Harvoni: 7 day countdown
« Reply #1 on: November 30, 2015, 12:24:23 pm »
Fantastic Else! It's great that you have been able to notice such immediate improvement in your health - and even before EOT.

At four months post-treatment, I can certainly say I am feeling more energetic and mentally functional... more my "old self" (going back many years for that). But in my case I think it has more to do with increasing my blood iron levels (through diet and supplements) from my prolonged period of iron deficiency that I only became aware of post-tx, than from clearing the HCV. Still, I am VERY glad to no longer have HCV chewing away at me! And I believe, over time, that the consequences of finally being free of HCV will improve my health and quality of life in all sorts of ways.

best to you on this last leg of your treatment journey,
kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Finishing Harvoni: 7 day countdown
« Reply #2 on: November 30, 2015, 08:21:01 pm »
Else, what a wonderful testimonial -- SO glad you are reaping so many benefits. I hope the adjustment to no more pills goes smoothly for you. I missed the "Harvoni High" and had episodes of needing a lot of sleep, but now, 2 months after the last pill, I'd rate my energy level as very nearly as good as while on Harvoni (certainly WAY better than before treatment).

Here's to your SVR12 and 24 -- you're certainly on your way there.

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #3 on: December 01, 2015, 03:40:06 am »
Seven Harvoni's swimming......
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline bricksnsticks

  • Member
  • Posts: 10
Re: Finishing Harvoni: 7 day countdown
« Reply #4 on: December 01, 2015, 07:39:27 am »
Awesome! Good for you! Yea, Yea, Yea!!!   ;D ;D ;D

Just had my first blood draw since starting Harvoni October 23rd. This is what the outcome is just a little over a month into treatment.

I am Geno 1a
had it since 1992
No previous treatments

Dear​ xxxxxxxxxx

I​ ​hope​ ​this​ ​letter​ ​finds​ ​you​ ​well.

The​ ​hepatitis​ ​C​ ​level​ ​is​ ​almost​ ​zero​ ​so​ ​significant​ ​improvement,​ ​hopefully​ ​on​ ​the​ ​next​ ​lab​ ​test,​ ​it​ ​will​ ​be​ ​undetectable.

Thank​ ​you.​ ​

Sincerely,​ ​
xxxxxxxxxxxxxxx
I have so much to be grateful for!  My 12 week treatment with Harvoni has, for the most part, been nothing but good.  Okay, the occasional headache.  But even those were easily addressed with lots and lots of water, a mug of coffee and maybe the occasional aspirin. 

I've slept better than I have in years during treatment, so insomnia wasn't a side-effect for me at all.  Vivid dreams for the first week or two but those bordered on entertaining.  :)

I was "virus non-detected" by week 4, normal liver function tests at week 8, so am anticipating the same for my EOT labs a week from now.

What's improved?  Everything!  The grinding fatigue that had run my life for years is gone. Joint pain, gone.  "Brain fog", gone.  It's unfortunate that that last one doesn't have a proper explanation.  No, it wasn't hepatic encephalopathy but it was debilitating just the same.  And really frustrating that since it wasn't HE, it was treated as nothing at all.  The improvement in cognitive function and clarity has been stunning and life-changing. 

The peripheral neuropathy that had been progressing this year at a frightening pace stopped progressing upon starting treatment.  After almost three months on Harvoni, feeling has returned to my left toes.  The outcome of nerve damage is hard to predict, but I'm feeling upbeat that my right foot will improve as well with more time.  Was the neuropathy caused by HCV infection?  Considering its response to Harvoni treatment, that would appear to be the case.  I hope more research will substantiate the reality of extra-hepatic symptoms caused by HCV.

So to all considering or fighting for treatment - do it!  Don't give up.  Appeal, appeal, and appeal again!!!  It's worth it.  ;D

I am feeling slightly anxious about these last 7 pills.  Like I'm having a security blanket snatched away.  But since I was "treatment-naive" (never took medication for HCV infection before) and did not have cirrhosis (had only mild to moderate liver scarring) 12 weeks is considered an appropriate length of time for treatment.  **Big sigh**  Here's hoping the Harvoni scoured my system for any last remaining viruses.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #5 on: December 01, 2015, 12:10:33 pm »
Congratulations to you, Bricks!!!

Seven Harvoni's swimming......

Six Corgis praying...

(oh yeah, I'll be keeping this up everyday!  ;D)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Finishing Harvoni: 7 day countdown
« Reply #6 on: December 01, 2015, 02:52:06 pm »
So close, Else. So very close. :)
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #7 on: December 01, 2015, 05:54:26 pm »
Wow Elee,
We've been on this journey together and now you finish about 6 days before me. We andd it gal!

My neuropathy got a little worse during tx, with new symptoms but I think it was the ribas effects in the CNS. It seems to be getting better and I have high hopes. So glad for you, it's definitely HCV related and there are many publications on it. The brain fog is so debilitating, I believe it should be grounds to tx immediately. I became disabled because of it. I was told I had brain damage from HCV and it helped me to access tx. It has improved incredibly. I am reading a book for the first time in 4 years. One if my favourites Brideshead revisited. I am a published writer so have obviously not been able to write. I am trying again but it's not flowing the way it used to YET!

Else them benefits from this will just increase exponentially. It is exciting.

Congrats my friend. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #8 on: December 02, 2015, 03:36:29 am »
Five orange diamonds!!!!!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Finishing Harvoni: 7 day countdown
« Reply #9 on: December 02, 2015, 04:40:48 am »
Ground control to major Lynn
Ground control to major Lynn
Take your Harvoni pills and put your helmet on

Ground control to major Lynn
Commencing countdown, engines on
Check ignition and may Hep's forums love be with you

Ten, nine, eight, seven, six, five, four, three, two, one, liftoff

This is ground control to major Lynn
You've really made the grade
And the papers want to know whose Pills you took
Now it's time to leave this stage of life behind
This is major Lynn to ground control
I'm stepping through the door
And I'm floating in a most peculiar way
And the stars look very different today
For I am out of Pill's I've taken every day
 :D :D :D
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #10 on: December 02, 2015, 04:44:06 am »
Counting down for Else I was just singing along :)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Finishing Harvoni: 7 day countdown
« Reply #11 on: December 02, 2015, 05:08:41 am »
 :-[ :-[ :-[ :-[ :-[ :-[ :-[ :-[
Well I guess I am not completely free of my sx, that mental fogginess is still there but not as bad. Lynn, I was looking at your sig and was wondering HMMMM. but didn't connect dot to dot, just started scribbling all over the page. lol. anybody got some white out??
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline I fightis thetitis

  • Member
  • Posts: 129
Re: Finishing Harvoni: 7 day countdown
« Reply #12 on: December 02, 2015, 06:29:13 am »
Congradts Elise!

Giving us hope.
Greg
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #13 on: December 02, 2015, 10:11:14 am »
Ground control to major Lynn
Ground control to major Lynn
Take your Harvoni pills and put your helmet on

Ground control to major Lynn
Commencing countdown, engines on
Check ignition and may Hep's forums love be with you

Ten, nine, eight, seven, six, five, four, three, two, one, liftoff

This is ground control to major Lynn
You've really made the grade
And the papers want to know whose Pills you took
Now it's time to leave this stage of life behind
This is major Lynn to ground control
I'm stepping through the door
And I'm floating in a most peculiar way
And the stars look very different today
For I am out of Pill's I've taken every day
 :D :D :D

Most excellent, Chuck!   ;D  I was singing that as I read it.  Perfect for Lynn!!!

There ya go, Highflyer... "planet earth is blue and there's nothing I can't do.."   ;D ;D ;D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #14 on: December 03, 2015, 01:26:42 am »
Yet another song for the virtual conga line! Good on you Chuck 8) Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Finishing Harvoni: 7 day countdown
« Reply #15 on: December 03, 2015, 08:43:36 am »
You're getting real close now Else.I think it's safe to exhale now. :) I'm loving the news from both of you Bricks and Chuck.I know the new year is going to be the best one I've all had in a long time. :)
« Last Edit: December 03, 2015, 08:50:02 am by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #16 on: December 03, 2015, 08:55:41 am »
made my appointment for labs ( 12 wks). Where did the time go? I have been busy getting back to my "to do" list that was quite dusty actually!My thumb shock! works perfectly again & the knee numbness is almost gone...rash disappeared. I think I may just have to wait awhile longer for my brain to completely defog but feeling hopeful at this time of the year my blessings are staggering. I never thought I would live long enough to see a cure...then when it was in sight I was denied . You ,my friends, pushed me to the finish line with all the uplifting posts. Grateful for the widom, songs, funny scribbles & joy @ SVR's. Happy Holidays  All!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline BillT

  • Member
  • Posts: 573
Re: Finishing Harvoni: 7 day countdown
« Reply #17 on: December 03, 2015, 09:07:08 am »
I'm happy for you Rosie,
                                  Congratulations on getting to week 12.I start week 8 tomorrow and get those labs done next Tuesday,and next Friday pick up my last batch of meds.Time really has flown,I can't believe I'll be 2/3's of the way through this.I'm glad for everyone here to.You people have really made this easier for me.Back in the interferon days I would have hated to talked to anyone on the treatment as bad as it effected us.I got a call yesterday to see how I was doing and remind me of my appointment.I told them I wore out my dancing shoes and needed a new pair for Christmas. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #18 on: December 03, 2015, 10:54:31 am »
You are sailing through too!YEAH!! I thought it was gonna be so hard & drag but it was like a dream with all the support. Get mildly nervous as this lab will be the last till febuary & if I am still undetected I will be floating through the holidays. I am an 8 wker so this is an important milestone. Bill, great that the medical team is proactive too.Have a great day now !! 
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #19 on: December 03, 2015, 07:35:01 pm »
Rosie,
AN 8 weeker? You mean txing? No you can't you;ve had you
re 8 week bloods? No understand. Deerr... Cal :o
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #20 on: December 03, 2015, 08:33:11 pm »
Five orange diamonds!!!!!

Four singing nerds...

Told you I would keep this up.  ;D

F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #21 on: December 04, 2015, 12:44:29 am »
hey Cal...I was saying I'm an 8 weeker as most on here are 12 so this upcoming lab is 12 weeks .I havn't had Harvoni since beginning nov. It will calm me for the next big wait (feb.) if I am still undetected .sleepy time!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #22 on: December 04, 2015, 08:44:18 am »
Best of luck with your upcoming labs, Rosie!!!  Mine are on this coming Tuesday.  :o
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #23 on: December 04, 2015, 10:48:21 pm »
Else, we be labbin' next week! Here's to perfection for both of us!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline BillT

  • Member
  • Posts: 573
Re: Finishing Harvoni: 7 day countdown
« Reply #24 on: December 05, 2015, 03:18:45 am »
Don't forget me y'all.I'm having my 8 week labs done on Tuesday also Else,and will have my results by Friday.The Veterans Administration has it set up so we can just walk in and have them done when we want before our appointments.I start week 8 tomorrow.I don't know what I was thinking on my last post when I said I would start yesterday.I'm sure we'll all be just fine.Btw I can't sing Else so I'm just going to hum along with you. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #25 on: December 05, 2015, 07:24:15 pm »
Rosie, Else and Bill,
Drum roll......and the winner is...it's a 3 way tie. All UND!!! Cal ;D ;D ;D ;D ;D
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #26 on: December 05, 2015, 08:01:32 pm »
OK Bill we meet back here next week for the great news for us all!yeah!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Otto BT

  • Newbie
  • Posts: 2
Re: Finishing Harvoni: 7 day countdown
« Reply #27 on: December 06, 2015, 08:25:37 am »
Hello to all,
I just took my first Harvoni pill this morning for a 12 week course. I have read a lot of bad side effects from others. I figured that those with bad side effects would be more vocal about it and post more. I was hoping to find some other posts about the sides being negligible. Thanks for reassuring me that I was worried for no reason. Side effects will be whatever they will be so I can only hope for the best and prepare for the worst.

And away we go!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Finishing Harvoni: 7 day countdown
« Reply #28 on: December 06, 2015, 08:32:15 am »
All the best Otto BT! You might want to consider putting some basic info in your sig so we don't endlessly ask you your genotype, fibrosis score etc. :)
This is a great time for treatment.
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Otto BT

  • Newbie
  • Posts: 2
Re: Finishing Harvoni: 7 day countdown
« Reply #29 on: December 06, 2015, 08:59:25 am »
Not sure what all that is.
I will ask my doctor.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #30 on: December 06, 2015, 01:49:00 pm »
Congratulations Otto!  Don't sweat the side-effects.  Maybe a headache here and there.  Or maybe not.  Plenty of water will take you a long way in avoiding these.  Other than that, I just had tons more energy.  Piece of cake treatment!   :)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #31 on: December 06, 2015, 02:09:47 pm »
Hey Otto! I wonder how the  bad side effects got so scary...we must have really complained & scared everyone to death! I think I was just scared at first because I don't take perscriptions or even  aspirin & since it was new I felt like I was jumping down a rabbit hole. All of that was a bunch of needless worry. Relax & think about all that nasty poisen being killed off by Harvoni in the first few weeks! I has almost no sides from this miracle drug & it was gone completely by week 4 ...then still gone week 8... now we are getting the labs for week 12 & I feel like Christmas will be just a little more special this year when I no longer have to fear Hepc ...it has taken up too much of my psych for too many years & the weight of it is lifted. I hope you will be able to feel free very soon. all the best!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #32 on: December 06, 2015, 02:31:16 pm »
Wow, only one Harvoni left for tomorrow and then that's it.   :o   I have a minor, silly concern about a bruise I have on my arm.  I have no idea how I got it but it showed up a week or so before I started treatment.  Horrific looking thing, but it faded - going through all the normal color changes that a healing bruise goes thru.

But!  You can still see it.   :(  My concern is that what is visible is still blood under the skin that is taking forever to go away.  And that blood is pre-treatment blood.  I.e., contains virus.  Stupid concern, I know.  And there's nothing I can do about it so, oh well.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Finishing Harvoni: 7 day countdown
« Reply #33 on: December 06, 2015, 03:04:26 pm »
Hi Else,
Only 1 pill tomorrow, that's wonderful!
I am glad for you. I keep reading how you are doing without Harvoni.
And about the bruise, when the virus has gone, then is is not in your blood anymore I think, the blood is getting refreshed in the vains I think?
 I ask tomorrow my college, she is a doctor and will know this.
The final countdown almost .....
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #34 on: December 06, 2015, 03:16:07 pm »
Thank you so much!

Yes, I would think that having my system inundated with Harvoni for three straight months (minus 1 day! ;))  would have circulated the DAA throughout my system many, many times. All bruise debris aside, I'm sure I'm still non-dectected.  Just over-thinking things.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #35 on: December 06, 2015, 03:25:08 pm »
One Harvoni to go Ms Else, one Harvoni to go.

 Sittin downtown in a railway station one Harvoni to go!

Congrats on making it EOT! Onward to SVR!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Finishing Harvoni: 7 day countdown
« Reply #36 on: December 06, 2015, 03:39:22 pm »
Else, all recognition  :)
I am over thinking 24/7  :-* during this treatment. You name it and I am or was thinking about is   :o
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline BillT

  • Member
  • Posts: 573
Re: Finishing Harvoni: 7 day countdown
« Reply #37 on: December 06, 2015, 03:56:12 pm »
I happy for you Else.The only thing you should be over thinking right now is to how to get time to move faster so you can take that last damn pill. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #38 on: December 06, 2015, 04:13:42 pm »
One Harvoni to go Ms Else, one Harvoni to go.

 Sittin downtown in a railway station one Harvoni to go!

Congrats on making it EOT! Onward to SVR!

 ;D LOL  ;D  Really, Lynn?  "One Toke Over the Line"?  Signs of a misspent youth, I'd say.  ;)  Or just lots of am radio.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #39 on: December 06, 2015, 04:14:52 pm »
Both although I prefer to think of it as well spent ;)
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Finishing Harvoni: 7 day countdown
« Reply #40 on: December 06, 2015, 04:16:41 pm »
 Lol BillT  :) :) :)
You always make me laugh out loud  :) :)
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline nxs450

  • Member
  • Posts: 10
Re: Finishing Harvoni: 7 day countdown
« Reply #41 on: December 06, 2015, 07:35:37 pm »
Wow Else that is great. I hope things continue to go good for you! I hope I have the same results as you, especially when it comes to problems with fatigue and brain fog.
Hep-C, geno type 1b
failed Interferon/Ribavirin tx 6/23/2000
start Harvoni 12/6/15

Offline mrl914

  • Member
  • Posts: 16
Re: Finishing Harvoni: 7 day countdown
« Reply #42 on: December 06, 2015, 08:22:33 pm »
Else (and many others) has given me more confidence that it probably won't be that bad. I will begin on Tuesday and as an interferon non-responder I viewed Harvoni as beneficial but with a good deal of dread (emotional memory of the worst 6 months of mu life). Thank you all.
M/68 yr
Genotype1b
1985 Diagnosed acute non a/non b
1992 Diagnosed chronic HCV
1993 Interferon monotherapy failed
June 2015 ALT 73 (0-44)
June 2015 AST 94 (0-40)
June 2015 HCV RNA 3.1 million
Nov 2015 ALT 76 (12-72)
Nov 2015 AST 113 (19-55)
Nov 2015 HCV RNA 1.2 million
Fibroscan 10 (F2-3)
Harvoni 12 wks - start date 12/08/15
Jan 2016 ALT 18 (19-72)
Jan 2016 AST 33 (19-55)
Jan 2016 HCV RNA No Virus Detected
March 2016 ALT 22 (19-72)
March 2016 AST 31 (19-55)
March 2016 HCV RNA No Virus Detected

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #43 on: December 06, 2015, 09:38:48 pm »
Hi mrl914

I can definitely relate to your concerns about interferon. I also treated with interferon and was a null responder.

I know some have had a harder time with the new meds but most have had an easy go of it especially those of us who treated before with interferon Harvoni even for 24 weeks for me was a walk in the park in comparison.

Next Tuesday will be your first step to freedom from hep c

Good luck with treatment
Lynn



Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Finishing Harvoni: 7 day countdown
« Reply #44 on: December 07, 2015, 12:48:58 am »
So happy for you Else - almost there!
You can see paradise in the dashboard light!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #45 on: December 07, 2015, 02:02:11 am »
I'm also an ifn relapser so know where you're coming from baby! Anything is easy after that crap! Bye bye ifn hello Harvoni (and in my case Viekira) Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #46 on: December 07, 2015, 02:03:45 am »
Else,
You finish today, hooray hooray. You made it kiddo! I finish 17 weeks in 6 days. Just coming u behind you my friend! Cal 8)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #47 on: December 07, 2015, 10:07:41 am »
So happy for you Else - almost there!
You can see paradise in the dashboard light!

 ;D ;D "Let me sleep on it, baby, baby - let me sleep on it."  Mornings with Meatloaf! Nice.

Yeah Cal, today's the day.  Just took my last Harvoni a few minutes ago.  Labs tmrw.  Yikes.  What a strange feeling.  :o

Really?  Today's just another easy Harvoni-walk-in-the-park day.  Tomorrow is no meds for the first time since September 15.  Someone's snatching my "non-detected blankey".  Oy.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #48 on: December 07, 2015, 10:44:00 am »
 It's a beautiful day in the neighborhood :) :) :) :) Great feeling HUH? Time to break on through to the other side ;) :D :D :D
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Tom1952

  • Member
  • Posts: 29
Re: Finishing Harvoni: 7 day countdown
« Reply #49 on: December 07, 2015, 10:59:22 am »
;D ;D "Let me sleep on it, baby, baby - let me sleep on it."  Mornings with Meatloaf! Nice.

Yeah Cal, today's the day.  Just took my last Harvoni a few minutes ago.  Labs tmrw.  Yikes.  What a strange feeling.  :o

Really?  Today's just another easy Harvoni-walk-in-the-park day.  Tomorrow is no meds for the first time since September 15.  Someone's snatching my "non-detected blankey".  Oy.


First Congratulations!  It is so good to read about another person being cured and feeling good.

I just took my last pill and hour ago with gratitude and amazement.  I had the same easy course of treatment and the return of  mental acuity and significant increase in physical energy.  I have not felt this good in years.

Good luck to all those waiting for treatment and in treatment. 

Gotta go to the gym now:)


Infected - Best guess hospital 1984
2004 - Diagnosed Geno 1a
2015 - Viral 3.250.000

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #50 on: December 07, 2015, 11:17:20 am »
Congratulations to you, Tom!  8)  Same here with I haven't felt this good in years!  ;D

Bwaaaa, Tommy - I've crossed over to the other side.  It's weird.  What a year! 
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #51 on: December 07, 2015, 11:23:32 am »
 Great that You guys are feeling so good. It's amazing as well as a little daunting at the same time. Wish I could say the same. Still way out of sorts with My usual abnormal self. But, not bad over all. It's nice to see You guys that sail through with few sides Happy for You Guys.
 Hey Else, have You heard from ByeByeC lately?
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #52 on: December 07, 2015, 11:34:49 am »
I haven't heard from Marianne.  :(  Miss her presence here on the boards VERY much.

Have you tried the BRAT diet yet?  What do you think is the holdover issue from treatment?

It really has been smooth sailing.  I am looking forward to NOT having any more Harvoni headaches, but it's worth mentioning they were few and far between.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #53 on: December 07, 2015, 11:47:16 am »
 Yea, BRAT works for 5-7 days then right back where I started. My G.I. & I think it is an anomaly that has killed off to much of the good bacteria in the gut. Started Yogurt with live cultures and watching what I am eating. Checking out Probiotic supplements to help improve good bacteria & rectify the problem. Headaches have diminished in frequency & severity. Still have some bad tinnitus & body/muscle aches & pains but they are manageable.
  SURE WISH I COULD GET ME SOME ALASKAN SUNSHINE HERE MARIANNE!
Do You think that was loud enough :-\ :P ::) ??? :o :D 8) 8) 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #54 on: December 07, 2015, 12:00:59 pm »
Here's a recipe that you might want to try - plain whole milk yogurt, frozen blueberries and maple syrup to taste.  It sounds bizarre but it's awesome!!!  And especially, right before bed, though anytime is fine.

Can you handle Kim Chee?  Best probiotic there is, IMHO!  There's some great non-msg, fresh Kim Chee available in the produce section at my market.  Then again, big Korean community up here so maybe not so much in Texas? 

I prefer to make it myself, but everyone in the house has to be on-board.  Otherwise the drama about the smell just isn't worth it.  :-\ 
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #55 on: December 07, 2015, 12:21:03 pm »
 That is the problem around the home front. Seems no one is on board. Trying to look up an old buddy of mine that I used to work with. His wife made Kim Chee all of the time. Also, there used to be a Kosher Deli that I used to get Sauerkraut & knackwurst from if they are still in business.
 Been eating greek yogurt with live cultures and blueberries this week.
   It seems to Me there was a Korean Market on the outskirts of town or just outside. Trying to get a location on that also.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Finishing Harvoni: 7 day countdown
« Reply #56 on: December 07, 2015, 01:45:54 pm »
Congrats Else on taking your last Harvoni !!!  8)

Tommy, Miso is also a good source of probiotics - 1 tsp or 1 tbsp in a mug of warm water makes miso soup. It's a fermented grain. I buy organic fermented brown rice miso. But barley miso is also good. Keeps forever in fridge.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #57 on: December 07, 2015, 04:25:39 pm »
Congrats Else and everyone else recently done.

For me it was so weird to not think to remember to take my pill took a few days for the mental alarm to quiet



Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #58 on: December 07, 2015, 05:54:45 pm »
Hi  Tommy,
I am going on a strong probiotic as soon as I finish, so Monday morning. We've been on really heavy drugs and I had anti biotics a lot on tx.  I  think our guts are really out of sorts. I already have the post RIBA sxs of pain in the muscles and weakness. I feel like crap. But am eager to get on with repair. I started exercising and was a bit premptive . Now gave Pulled muscles everywhere! Neve mind. Can't wait to cross over, very John Edwards.  :o

I spoke to Marianne on Skype. She's finished and was having her EOT bloods. She's ok, but still struggling with sxs. But better in herself. Ill let you know any other news when I speak to her.  Cal  :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #59 on: December 07, 2015, 05:56:01 pm »
Hi Else,
I expect you to have a cup of tea ready for me when I cross over on Monday! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Rosie13

  • Member
  • Posts: 297
Re: Finishing Harvoni: 7 day countdown
« Reply #60 on: December 07, 2015, 06:50:12 pm »
Reading my forum buddies posts here gave me a warm feeling.could completely relate to "losing my blankey" after 2 months instead of 3.feel strong & so so grateful for the whole process .Tommy we are going to conga,soon ready?We'll wait till you pop the probiotic so you can hang!!!!Tomorrow labs Else,Rosie & Bill !! We be labbin'!!!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #61 on: December 08, 2015, 08:44:39 am »
 Cal, a cuppa & a bickie right. Glad to know Marianne is O.K.! Keep us posted as You speak to her. Tell her we miss her and wish her all the best.
 Rosie, Yea, need to get the lower G.I. thing under control before any strenuous dancing. LOL! Warm fuzzies are always nice.
 Kim, Funny You should mention Miso. I was just reading about it. Think I might try a simple Miso veggie soup.
 Else, I'll be waiting on the new horizon!

 GOOD LUCK ON YOUR LABS AND EOT EVERYBODY! WE ALL USED TO BE WORTH A FORTUNE WITH THE MEDS IN US. NOW WE ARE JUST RICH FOLKS FROM THE EXPERIENCE AND A SECOND CHANCE ON LIFE. VERY REWARDING , YET DAUNTING.
OUR FUTURE IS SO BRIGHT , WE GOTTA WEAR SHADES 8) 8) 8) 8) 8) 8) 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #62 on: December 08, 2015, 09:52:28 am »
To the future!!!   8) 8) 8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #63 on: December 08, 2015, 09:59:40 am »
 To infinity and beyond! :D
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline mrl914

  • Member
  • Posts: 16
Re: Finishing Harvoni: 7 day countdown
« Reply #64 on: December 08, 2015, 10:03:58 am »
Just got my $30k package from UPS.

"Tonight's the night - gonna be alright."

Nervous as hell but "the future's so bright I gotta wear shades."

M/68 yr
Genotype1b
1985 Diagnosed acute non a/non b
1992 Diagnosed chronic HCV
1993 Interferon monotherapy failed
June 2015 ALT 73 (0-44)
June 2015 AST 94 (0-40)
June 2015 HCV RNA 3.1 million
Nov 2015 ALT 76 (12-72)
Nov 2015 AST 113 (19-55)
Nov 2015 HCV RNA 1.2 million
Fibroscan 10 (F2-3)
Harvoni 12 wks - start date 12/08/15
Jan 2016 ALT 18 (19-72)
Jan 2016 AST 33 (19-55)
Jan 2016 HCV RNA No Virus Detected
March 2016 ALT 22 (19-72)
March 2016 AST 31 (19-55)
March 2016 HCV RNA No Virus Detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #65 on: December 08, 2015, 10:32:55 am »
 Hard to fathom all that money in that little bottle will be inside of You. Kind of like an overhaul in a bottle!LOL :D
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Finishing Harvoni: 7 day countdown
« Reply #66 on: December 08, 2015, 11:29:04 am »
and as an added bonus, we have very expensive pee
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #67 on: December 08, 2015, 12:30:58 pm »
Just got my $30k package from UPS.

"Tonight's the night - gonna be alright."

Nervous as hell but "the future's so bright I gotta wear shades."

Don't be!  :)  I just finished 12 weeks, no problem.  That famous "Harvoni high" is rather nice.  Barely noticeable, but nice.  Mine only lasted the first few weeks.  A positive side-effect, for sure.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #68 on: December 08, 2015, 12:59:05 pm »
 Else, have You jumped the fence yet? The grass isn't always greener on the other side. Sometime its the same color.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #69 on: December 08, 2015, 11:22:34 pm »
Tommy,
Yes cuppa and a bikkie would be lovely. I'll be there Sunday. I just counted my pills I finish Saturday night not Sunday! Cool. Cal 8) (I'm wearing shades)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #70 on: December 09, 2015, 01:06:16 am »
"It's the final count down!"

Congrats to all finishing treatment with visions of SVR dancing in your heads!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #71 on: December 09, 2015, 07:58:49 pm »
Hi Lynn,
Yes les than 4 days to go!!!! 8) 8) 8) 8) Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline BillT

  • Member
  • Posts: 573
Re: Finishing Harvoni: 7 day countdown
« Reply #72 on: December 09, 2015, 08:11:14 pm »
I have to slow things down.I'm missing everyones EOT.Well done Else and congratulations.The list keeps getting longer and it's wonderful to see. :)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #73 on: December 09, 2015, 09:02:12 pm »
This just in - the first of EOT labs:

ALT 11, AST 15.   ;D  All other labs normal and still waiting for viral load one.  8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline mrl914

  • Member
  • Posts: 16
Re: Finishing Harvoni: 7 day countdown
« Reply #74 on: December 09, 2015, 09:06:26 pm »
Congrats!

I just took my 2nd dose (82 to go). Minor side effects, a little achy and sore,
nothing to complain much about.
M/68 yr
Genotype1b
1985 Diagnosed acute non a/non b
1992 Diagnosed chronic HCV
1993 Interferon monotherapy failed
June 2015 ALT 73 (0-44)
June 2015 AST 94 (0-40)
June 2015 HCV RNA 3.1 million
Nov 2015 ALT 76 (12-72)
Nov 2015 AST 113 (19-55)
Nov 2015 HCV RNA 1.2 million
Fibroscan 10 (F2-3)
Harvoni 12 wks - start date 12/08/15
Jan 2016 ALT 18 (19-72)
Jan 2016 AST 33 (19-55)
Jan 2016 HCV RNA No Virus Detected
March 2016 ALT 22 (19-72)
March 2016 AST 31 (19-55)
March 2016 HCV RNA No Virus Detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #75 on: December 10, 2015, 04:14:23 pm »
 ELSE, Bitchin numbers ;D . Still can't get mine that low.

 MRL, Good luck and Happy Trails! Hope it stays that way for You :)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Finishing Harvoni: 7 day countdown
« Reply #76 on: December 10, 2015, 04:25:54 pm »
So this is where everyone is hanging out!  Congrats Else...with those low LFT, I'm sure the VL will be great too.

Re: pro-biotics - I don't know if you have a Costco nearby but in my Costco they sell these tiny little bottles of pro-biotics, in the cold section, next to teas, juices, etc.  I buy them from time to time.

Yep, I gotta put on my shades now :) 8) 8) 8)   
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #77 on: December 10, 2015, 06:54:42 pm »
Else,
Dead jealous of those numbers, you're shoe in Lovey! Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #78 on: December 10, 2015, 07:02:22 pm »
Hi Bree,
Good idea on the probiotics. I am going to take them too. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Finishing Harvoni: 7 day countdown
« Reply #79 on: December 14, 2015, 05:24:45 pm »
 Else,
Hoeraaaaaa!!!
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: Finishing Harvoni: 7 day countdown
« Reply #80 on: December 14, 2015, 05:26:54 pm »
I did attach some funny emoticons from my Iphone but they dont show,up....
Can I insert a nice picture of something in a post?
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Finishing Harvoni: 7 day countdown
« Reply #81 on: December 15, 2015, 04:33:08 pm »
I've had holiday company staying with me.  Last labs on the way to the airport to pick-up my favorite niece.  8)  No computer time at all, but this just in -

EOT HCV not detected.  8) 8) 8)

 ;D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Finishing Harvoni: 7 day countdown
« Reply #82 on: December 15, 2015, 04:36:17 pm »
I've had holiday company staying with me.  Last labs on the way to the airport to pick-up my favorite niece.  8)  No computer time at all, but this just in -

EOT HCV not detected.  8) 8) 8)

 ;D

BRAVA, Else!!    :D  :D

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Finishing Harvoni: 7 day countdown
« Reply #83 on: December 15, 2015, 06:55:49 pm »
hotziggitydog! Great news Else
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Finishing Harvoni: 7 day countdown
« Reply #84 on: December 15, 2015, 07:17:06 pm »
HIP HIP HOORAY!!!! 8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline mrl914

  • Member
  • Posts: 16
Re: Finishing Harvoni: 7 day countdown
« Reply #85 on: December 15, 2015, 07:24:45 pm »
Congrats!!
M/68 yr
Genotype1b
1985 Diagnosed acute non a/non b
1992 Diagnosed chronic HCV
1993 Interferon monotherapy failed
June 2015 ALT 73 (0-44)
June 2015 AST 94 (0-40)
June 2015 HCV RNA 3.1 million
Nov 2015 ALT 76 (12-72)
Nov 2015 AST 113 (19-55)
Nov 2015 HCV RNA 1.2 million
Fibroscan 10 (F2-3)
Harvoni 12 wks - start date 12/08/15
Jan 2016 ALT 18 (19-72)
Jan 2016 AST 33 (19-55)
Jan 2016 HCV RNA No Virus Detected
March 2016 ALT 22 (19-72)
March 2016 AST 31 (19-55)
March 2016 HCV RNA No Virus Detected

Offline haunted

  • Member
  • Posts: 4
Re: Finishing Harvoni: 7 day countdown
« Reply #86 on: December 15, 2015, 09:40:29 pm »
Santa's bringing everyone a shiny clean liver for the holidays!
F/49
Diagnosed 1995
Exposed probably 1985
Genotype 1A

10/13/15:
Fibrosis score .83
Fibrosis Stage F4
Viral Load 1,693,768
AST 95
ALT 151
Bilirubin 0.9
Treatment naive
400 mg Harvoni started 11/11/15

After 5 weeks

12/10/15:
Fibrosis score ?
Fibrosis Stage ?
RNA TMA      <15
RNA bDNA     <1.18
AST 09
ALT 22
Bilirubin Total   0.4 mg/dL
Bilirubin Direct   0.1

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,543
  • Get tested, get treated, get cured, fight Hep c!
Re: Finishing Harvoni: 7 day countdown
« Reply #87 on: December 15, 2015, 11:02:43 pm »
Awesome congrats Else!

What a great Christmas present!
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Finishing Harvoni: 7 day countdown
« Reply #88 on: December 16, 2015, 02:00:05 am »
Else,
You're my hero! Cool bananas! 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) 8) Cal
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Finishing Harvoni: 7 day countdown
« Reply #89 on: December 16, 2015, 05:59:52 am »
big congrats Else!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #90 on: December 16, 2015, 08:28:24 am »
 Cookies for  8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Finishing Harvoni: 7 day countdown
« Reply #91 on: December 16, 2015, 08:29:13 am »
OOPS! COOKIES FOR EVERYONE ;D 8) 8) 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Rubi

  • Member
  • Posts: 29
Re: Finishing Harvoni: 7 day countdown
« Reply #92 on: December 16, 2015, 09:48:55 am »
Else: That is such wonderful news!  To a happy and healthy life! Cheers!

Rubi
F 59
GT 2
Started treatment 9-28-15
Solvaldi/Ribavirin for 12 weeks
ALT/AST was 74/48; now 17/17
VL 5.6 million down to 42

 


© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.