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Author Topic: Welcome to my Coming Out Party and Book!  (Read 35026 times)

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Offline KimInTheForest

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Welcome to my Coming Out Party and Book!
« on: January 29, 2016, 02:06:51 am »
Welcome to my Coming Out Party
and Book!


:D  :D  :D

For anyone who has been wondering who the heck is @KimInTheForest… My full name is Kim Goldberg. And I am a freelance writer, poet and author in Nanaimo, BC, on Vancouver Island. I had Hepatitis C for about 45 years before being cured in 2015. I was lucky enough to land a seat in a clinical trial of Harvoni/ribavirin at the LAIR Centre in Vancouver, BC.

I blog about my Hep C story here:
https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

I have supported myself as a writer for nearly 40 years, winning awards for my investigative journalism, poetry and spoken-word performances. In that time, I have authored seven books of nonfiction and poetry, as well as science fiction stories, essays, and a couple thousand articles for newspapers and magazines.

I spent my 12 weeks of treatment writing a book about my Hep C journey. I hope to use my new book, Undetectable, to raise public awareness about Hepatitis C and the politics of withholding the cure from so many who need it. The book is dedicated to all who are still waiting.

Not trying to sell books here. Just wanted to offer another example of how each of us can find a way to use our Hep C story to raise awareness and erase stigma.

I wrote Undetectable in a Japanese literary style called haibun, which is a travel diary paired with haiku. Matsuo Basho, Japan’s most famous and revered poet, launched haibun in the 17th century with his Narrow Road to the Interior and other travel diaries of his foot journeys. Basho made the journeys in the final decade of his life, often in failing health, after he had lost or given away what little he owned. I could relate!

After just one week of treatment, I was saying “Hello, brain! Long time no see!” That’s how quickly these new drugs work. After my first seven days of treatment, my viral load had dropped from four million to 130. After four weeks, I was undetected. I have remained undetected ever since.

I would encourage everyone affected by Hepatitis C to find a way to speak up and speak out when the time is right for you. Some of you are way ahead of me on that! :)

The more that Hepatitis C is openly discussed, the sooner the stigma and misconceptions will fade, and the sooner everyone will get tested, treated and cured.

Wellness to all,
Kim Goldberg

(My book cover really depicts the way I now feel as I embrace my NEW LIFE, free of HCV. So I wanted to share it to inspire others. But if it is deemed too promotional, my feelings won't be hurt if moderators find it necessary to remove it. Peace out. :) )


« Last Edit: January 29, 2016, 02:52:52 am by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

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Re: Welcome to my Coming Out Party and Book!
« Reply #1 on: January 29, 2016, 02:47:09 am »
Your book cover makes me smile
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Bree

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  • "Today is a good day for a great day!"
Re: Welcome to my Coming Out Party and Book!
« Reply #2 on: January 29, 2016, 02:47:28 am »
Nice way to pay it forward and carry the torch and shine the light for others to join us!!! Way to go!  Bree
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

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Re: Welcome to my Coming Out Party and Book!
« Reply #3 on: January 29, 2016, 05:10:02 am »
What Bree said. To me, what you are promoting fits the "HCV Awareness and Activism" forum's goal. Big congrats on the book and the SVR24.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline MaryC

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  • Life is not a sprint; it's a marathon.
Re: Welcome to my Coming Out Party and Book!
« Reply #4 on: January 29, 2016, 02:05:44 pm »
Thank you Kim for (coming out and) speaking out on HCV awareness in an eloquent manner! 
Mary
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline Flaco

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Re: Welcome to my Coming Out Party and Book!
« Reply #5 on: January 29, 2016, 08:59:51 pm »
Having just having received a nice Clairefontaine "Back to Basics 1951" notebook and two bottles of ink in the mail this week, I am inspired today by your post. Whether I had (subconsciously) planned to keep a journal of my treatment or my purchase of these writing supplies at this juncture is sheer coincidence, it certainly is timely. I will be starting treatment very soon - I've just had my first appointment with my new doctor today.

Funny thing is that I'm no writer (mainly what I do is jot down things). I just simply enjoy everything to do with fountain pens. I'm already keeping another journal recording my progress with diabetes (which is not interesting reading, by the way  :o), so I figured, "Why not?" Why not record whatever comes to me with respect to my eradication of this evil thing inside me? This monster which has caused me so much misery for so many years?

So, interesting reading or not - I'm doing this! Thanks for the very nice nudge.

Best,
Jon
« Last Edit: January 29, 2016, 09:02:12 pm by Flaco »
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #6 on: January 29, 2016, 09:02:48 pm »
Glad to hear it, Jon. You never know where it might lead. I am a big believer in the transformative power of creative expression. :)

And that's GREAT that you will be starting treatment soon!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline HazelAustralia

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Re: Welcome to my Coming Out Party and Book!
« Reply #7 on: January 29, 2016, 09:12:28 pm »
Hi Flaco,
The handwritten account of treatment is such a good idea!
I am big Clairefontaine fan. I also love Herbin, Visconti and Noodlers ink. I think Herbin is my fave but I prefer the waterproof colours. Which pens do you like? I am a straight up Lamy writer. I am awaiting the release of this year's special colour Al-Star. I do have enough, but I buy them for presents now.
Best wishes,
Hazel
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Flaco

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Re: Welcome to my Coming Out Party and Book!
« Reply #8 on: January 29, 2016, 10:41:38 pm »
Thanks for the inspiration, Kim. I've bookmarked your blog, and btw love the "Uninstalling Hepatitis" graphic. :D

Hi, Hazel. Geez, I don't even know how many pens I have. At present I'm using my all-sterling Grifos pen I got off of eBay. Also among my faves are my Waterman 52, some pens I made, and I've been meaning to ink up my old yellow Safari that has black metal parts. I guess you're awaiting the neon green Lamy.

For inks I mostly use Pelikan 4001 Konigsblau and the R&K iron gall ones - Salix and Scabiosa.

Oops now I've gotten on a roll; I'd better return this thread to its rightful owner and subject matter.  ;)

Best to both of y'all,
Jon
Best Regards,
Jack

Diag 2001
Failed PEG-int/Riba 2002, 48 wks.
2015-16:
F4 compensated
VL 14.7 million
GT 1A
Alkaline Phosphatase(37-127 U/L): 12/23/15 216; 1/14/16 152; 1/29/16 103; 3/18/16 68; 4/1/16 70
SGPT (ALT) (15-78 U/L) 12/23/15 862; 1/15/16 753; 1/29/16 518; 3/18/16 48; 4/1/16 28
SGOT (AST) (9-44 U/L) 12/23/15 283; 1/15/16 226; 1/29/16 165; 3/18/16 24; 4/1/16 19
Start Harv 24 wks. 3/4/16
Undetected 2 weeks into Tx
Liver&metabolic nos. steadily improving since start TX
EOT 8/18/16

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #9 on: January 30, 2016, 02:29:15 pm »
No problem, Jon. I am an admirer of fountain pens too! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Mugwump

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Re: Welcome to my Coming Out Party and Book!
« Reply #10 on: January 30, 2016, 08:01:29 pm »
Kim have you ever thought about libretto composition around a stage set musical framework? Shoot me a pm if you are interested.
Eric
Just south of your locale. :)
PS I do more than just play classical music.
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline sapphire101

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Re: Welcome to my Coming Out Party and Book!
« Reply #11 on: January 30, 2016, 11:14:26 pm »
Wow Kim!
So happy for you. You are one brave lady.
I am smiling right now.
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #12 on: January 31, 2016, 12:50:08 am »
Kim have you ever thought about libretto composition around a stage set musical framework? Shoot me a pm if you are interested.
Eric
Just south of your locale. :)
PS I do more than just play classical music.

Great idea, Eric. I just PM'ed you. :)

I just sent out my press release about my new book yesterday, and already I have 3 radio stations eager to interview me! My hope with this book is to use it to raise public awareness about Hepatitis C. And it looks like it's working! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Philadelphia

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Re: Welcome to my Coming Out Party and Book!
« Reply #13 on: January 31, 2016, 12:41:44 pm »
Awesome Kim! Can't wait to read it!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline FutureThinker

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  • Onward and upward!
Re: Welcome to my Coming Out Party and Book!
« Reply #14 on: January 31, 2016, 01:38:32 pm »
It's a wonderful day that we can be reading such success! I am so grateful that research has finally come to this point........ so many of us have been waiting for safer, more effective drugs to kill this virus and it's so good to be reading about all the success stories.  Thanks for your contribution and I, too, have been thinking about how I can help others when I have a normal energy level again.  I do believe this will be my year for success, too.  FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline HCV_FIGHTER

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Re: Welcome to my Coming Out Party and Book!
« Reply #15 on: January 31, 2016, 02:24:11 pm »
Best wishes, can't wait to read ur book Kim although I'm from Saudi Arabia (very far) but I'll find way to get ur great book . One more thing I'm going to write my dairy once I start the treatment day by day and publish it here after 12 weeks  ;)

This Too Shall Pass

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #16 on: February 01, 2016, 01:55:57 am »
Best wishes, can't wait to read ur book Kim although I'm from Saudi Arabia (very far) but I'll find way to get ur great book . One more thing I'm going to write my dairy once I start the treatment day by day and publish it here after 12 weeks  ;)

I am glad to hear you are going to write a diary when you start treatment, HCV_fighter. The more voices and pens doing this the better! Good luck :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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Re: Welcome to my Coming Out Party and Book!
« Reply #17 on: February 01, 2016, 11:07:00 am »
Sweet!!!!!!!!! Nothing feels better than undetectable, but publishing a book is a close second, and to have both must be heavenly.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #18 on: February 01, 2016, 12:58:55 pm »
Thank you Lucinda and all of you who have sent good wishes my way over my new book (and CURE!) :) I have really enjoyed, and continue to enjoy, the friendly and supportive environment here.

kim  8)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

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  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Welcome to my Coming Out Party and Book!
« Reply #19 on: February 01, 2016, 07:46:22 pm »
This is such great news!!!  Thank you for helping those that are still waiting. 

Your book cover is so joyful!!!  ;D

Not so far south of you either.  Would drive up there in a heartbeat to see a collaboration between and Eric.  Just...wow!  8)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

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Re: Welcome to my Coming Out Party and Book!
« Reply #20 on: February 03, 2016, 12:51:24 am »
Congratulations on the book and the cure Kim,and I hope the book reaches as many people as possible.I think every one of us that has lived with Hep C and been cured have become activists in our own way.I've never been shy about the fact that I have/had it or about the journey to get rid of it.I'm always willing to impart a bit of knowledge about both the disease and the cure to anyone that will listen and I always will.Anyway congratulations again.Cheers
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline AussieRosa

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Re: Welcome to my Coming Out Party and Book!
« Reply #21 on: February 03, 2016, 03:28:47 am »
What an awesome achievement on both fronts! Congratulations, Kim. I know this book will  bring some more good into the world. Best of luck with the promotion of it and the radio interviews.
Rosa
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline slats1056

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  • SVR to all and to all a good life!
Re: Welcome to my Coming Out Party and Book!
« Reply #22 on: February 03, 2016, 08:32:41 am »
 Can't believe I went right passed this post! CONGRATULIONS and Well done! Knock 'em out. CONTROL -ALT-DELETE HCV 8) 8) 8) 8)
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Rosie13

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Re: Welcome to my Coming Out Party and Book!
« Reply #23 on: February 06, 2016, 11:45:05 am »
Kim,  throughout my efforts to get Harvoni & then finally taking the journey ...you were always there .  Inspiring with the right words to calm the torrent of emotions & struggle that this tight group was experiencing. It's hard to put in words so you can imagine my joy that you have done it for us! I will be honored to read & keep your book close to my heart. Congrats for this great effort.
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Bree

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Re: Welcome to my Coming Out Party and Book!
« Reply #24 on: February 06, 2016, 01:57:44 pm »
Kim,  throughout my efforts to get Harvoni & then finally taking the journey ...you were always there .  Inspiring with the right words to calm the torrent of emotions & struggle that this tight group was experiencing. It's hard to put in words so you can imagine my joy that you have done it for us! I will be honored to read & keep your book close to my heart. Congrats for this great effort.

Rosie, your words are so true and beautiful also! :)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #25 on: February 06, 2016, 03:38:19 pm »
Thank you all so much for your supportive words as I usher my new book into the world and 'out' myself.  :D :D :D

So far that has all gone better than anticipated (even though my book and self-outing are only 1 week old). I have not been peppered with inappropriate or ignorant questions or remarks by the world at large. And I have outed myself pretty widely at this point on Facebook, where I have about 2,000 friends, and on twitter where I have 6,000 followers. I have had nothing but supportive feedback and comments there (except for one which I deleted from my timeline).

Anyone who wants to friend me on Facebook (or just look at my timeline) can do so here:
https://www.facebook.com/kim.goldberg.71

I will be launching my new book with a talk and reading in Nanaimo on Feb 27, and in Ladysmith, BC, in May. I am working with the organization HepC-BC to arrange a Victoria book launch that will be part of a larger Hep C event including a screening of the film "Deal With It."

I gave an hour-long interview to Boil The Frog Slowly Radio in Ohio 2 days ago. That will air on Feb 20 (I think). I will post the link to the podcast once it is available so you can all critique me. Haha! ;) And I have 2 Nanaimo radio interviews happening later this month, plus some other media stuff.

Many of you have expressed eagerness to read my new book. That's great! I love you all and would give you all free copies, if I could. But I went into debt to publish this book, and am paying off that loan with interest. All I can say without violating forum rules about no commercial advertising is that I fill orders as they come in, and I ship anywhere in the world, and I give free shipping anywhere in North America. I do not sell my books through Amazon or bookstores or as eBooks. I sell them in person (at talks, readings, festivals, events, etc.) and directly off my website (Pig Squash Press).

I have not posted the link for ordering because I really respect this forum and its rule about no commercial links to sell products. But for those of you interested in my book, if you can find your way to my Pig Squash Press website (shown in my sig below), you will find the "Books & Ordering" tab up top. (Or you can message me here.)

Peace out & big love to all,
kim
« Last Edit: February 06, 2016, 03:57:23 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline beto

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  • "no risk it, no biscuit"
Re: Welcome to my Coming Out Party and Book!
« Reply #26 on: February 06, 2016, 04:30:07 pm »
I think Gilead should buy us all free copies
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #27 on: February 06, 2016, 04:34:59 pm »
I think Gilead should buy us all free copies

Hahaha! I like that idea. ;)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rosie13

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  • Posts: 297
Re: Welcome to my Coming Out Party and Book!
« Reply #28 on: February 06, 2016, 05:18:05 pm »
Kim, thanks for that info.glad I didn't need to search amazon!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

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Re: Welcome to my Coming Out Party and Book!
« Reply #29 on: February 06, 2016, 06:27:34 pm »
Kim, thanks for that info.glad I didn't need to search amazon!

LOVED not using Amazon!  Kudos to you on that, Kim.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Else

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Re: Welcome to my Coming Out Party and Book!
« Reply #30 on: February 12, 2016, 10:25:16 pm »
This book is extraordinary.  And I've only gotten to Day 42.  To anyone considering or on treatment, this book would be a helpful and soothing companion.  Honest, informative, stark and heart-wrenchingly beautiful.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #31 on: February 12, 2016, 10:50:50 pm »
This book is extraordinary.  And I've only gotten to Day 42.  To anyone considering or on treatment, this book would be a helpful and soothing companion.  Honest, informative, stark and heart-wrenchingly beautiful.

Thank you very much, Else! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #32 on: February 13, 2016, 10:41:10 pm »
LOVED not using Amazon!  Kudos to you on that, Kim.

Thanks, Else. I resist corporate entanglement as much as possible in my life. I believe in authentic connection with other beings on this planet, not algorithm-driven faux connection governed by a cyber monopoly. I support "maker" culture, self-reliance, small is beautiful and everything D-I-Y. The dominant culture has left us so detached - from the planet, from our food sources, from each other, from ourselves. Doing my best to kick the dominant culture in the arse from my little corner of Vancouver Island... ;)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rosie13

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  • Posts: 297
Re: Welcome to my Coming Out Party and Book!
« Reply #33 on: February 14, 2016, 09:56:30 am »
You go girl!!!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #34 on: February 14, 2016, 01:50:55 pm »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

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Re: Welcome to my Coming Out Party and Book!
« Reply #35 on: February 14, 2016, 03:35:08 pm »
And yet another quote that you brought to mind:
Quote
You can resolve to live your life with integrity. Let your credo be this: Let the lie come into the world, let it even triumph. But not through me.
- Solzhenitsyn
 :)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #36 on: February 14, 2016, 06:27:20 pm »
Great Solzhenitsyn quote, Else!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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    • LucindaPorterRN
Re: Welcome to my Coming Out Party and Book!
« Reply #37 on: February 18, 2016, 02:24:29 pm »
Hi,
I just saw that HEP posted info about Kim's book. https://www.hepmag.com/article/poet-kim-goldberg-pens-book-hepatitis-c-journey

I am set to review it on my blog, probably Monday. Preview: I LOVE this book. Really, really love it. I am not saying this because she is a forum member. This is an achingly beautiful book.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #38 on: February 18, 2016, 02:37:43 pm »
Hi,
I just saw that HEP posted info about Kim's book. https://www.hepmag.com/article/poet-kim-goldberg-pens-book-hepatitis-c-journey

I am set to review it on my blog, probably Monday. Preview: I LOVE this book. Really, really love it. I am not saying this because she is a forum member. This is an achingly beautiful book.

Thank you so much, Lucinda!!! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rosie13

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  • Posts: 297
Re: Welcome to my Coming Out Party and Book!
« Reply #39 on: February 19, 2016, 10:39:28 pm »
Kim, I got "Undetected"  today & started reading immediatly. Every page is profound & full of thought provoking gems. What a gift you have for putting in beautiful words the journey we all have been on! Thanks so much, rosie13
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #40 on: February 19, 2016, 11:11:01 pm »
Kim, I got "Undetected"  today & started reading immediately. Every page is profound & full of thought provoking gems. What a gift you have for putting in beautiful words the journey we all have been on! Thanks so much, rosie13

Thank you so much, Rosie! :)

kim

Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Welcome to my Coming Out Party and Book!
« Reply #41 on: February 20, 2016, 04:54:27 pm »
I know - I love this book! And it keeps getting better. I will be reviewing it in my Monday blog. I loved it so much I ordered Red Zone.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #42 on: February 22, 2016, 11:53:04 am »
I know - I love this book! And it keeps getting better. I will be reviewing it in my Monday blog. I loved it so much I ordered Red Zone.

Thank you, Lucinda! :) And much gratitude to you for your review of my book today on your blog. It is the first review to come out. It actually moved me to tears.

https://www.hepmag.com/blog/hepatitis-c-book-review-undetectable-kim-goldberg

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rosie13

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Re: Welcome to my Coming Out Party and Book!
« Reply #43 on: February 22, 2016, 12:04:19 pm »
Lucinda, you said it all in your description of "Undetectable"
What can you say about that mind blowing poetry...and all written while on treatment. I want my sister to read as she writes childhood cancer books but she can't  have my copy! I'm ordering another for her....she will be as blown away as us...that quote you used "note to self ...adjust paradym " was so me !!!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Else

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  • Appeal, appeal, and appeal again!
Re: Welcome to my Coming Out Party and Book!
« Reply #44 on: February 22, 2016, 12:09:42 pm »
 ;D ;D ;D  This thread makes me so happy!  ;D
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline lporterrn

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    • LucindaPorterRN
Re: Welcome to my Coming Out Party and Book!
« Reply #45 on: February 22, 2016, 12:13:07 pm »
Rosie - yes the poetry was tight and evocative. I am writing reviews for 2 other publications and I will be mentioning that too. I wrote so many notes about things that blew me away, but I didn't want to spoil it for anyone else. I loved the part about preparing for treatment. It was so me, but my version played out differently. And then page 100 - an entire memoir on one page

 
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Rosie13

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Re: Welcome to my Coming Out Party and Book!
« Reply #46 on: February 22, 2016, 12:53:37 pm »
Page 100 gave me chills. I don't want to ruin it for others either so we will just have to wait till more have experienced the book for the feedback to come flowing in . I think I had posted in my early forum experience that having hepc intervention was hard for me to accept as I had always mistrusted Doctors & pills to cover up the syptoms & not solve problems. This was my first experience taking a miracle pill that cured the problem so I definitely needed to adjust my paradym ...in a big way!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline HazelAustralia

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Re: Welcome to my Coming Out Party and Book!
« Reply #47 on: February 22, 2016, 02:48:14 pm »
Dear Kim,
I don't know, but I missed this. Congratulations on the book.
I just spent some very good time reading your blog. thanks.
H.
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Bree

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  • "Today is a good day for a great day!"
Re: Welcome to my Coming Out Party and Book!
« Reply #48 on: February 22, 2016, 03:47:39 pm »
Wow Kim, you told me in a private message during treatment that you were writing a book.... you really were (not that I didn't believe you but there is "writing a book" and writing a book iukwim)!  Can't wait to get my copy as we are all kindred spirits here.   

Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #49 on: February 27, 2016, 09:06:51 pm »
My book launch is now behind me. It went well, and there were LOTS of audience questions, which really pleased me. People want to know about Hepatitis C. In fact, they seemed starved for information.

A few photos are here:
https://pigsquash.wordpress.com/2016/02/27/undetectable-nanaimo-launch-photos/

I have more talks/readings coming up in Vancouver, Victoria, Gabriola Island and Ladysmith from March through May. Am working with a BC non-profit, HepCBC, to line up public education nights in Vancouver and Victoria, where the film "Deal With It" will be shown, and I'll read/speak.

kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline gnatcatcher

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Re: Welcome to my Coming Out Party and Book!
« Reply #50 on: February 27, 2016, 09:19:12 pm »
Kim, you're doing first-class advocacy! The photos are great, too -- in the second one, the way your collar echoes your open book which resembles a flying bird's wings, it looks like you and the book are soaring.
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #51 on: February 27, 2016, 09:30:08 pm »
Kim, you're doing first-class advocacy! The photos are great, too -- in the second one, the way your collar echoes your open book which resembles a flying bird's wings, it looks like you and the book are soaring.

Thanks Gnatty! I felt like I was soaring today :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Else

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Re: Welcome to my Coming Out Party and Book!
« Reply #52 on: February 27, 2016, 10:01:26 pm »
Kim, you are amazing.

And Gnatty, you have a hell of an eye for composition.  ;)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline CureSeeker

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  • Virus Free! Happy Dance Time!
Re: Welcome to my Coming Out Party and Book!
« Reply #53 on: March 02, 2016, 09:22:52 pm »
This is so wonderful Kim!!!

First and foremost, congratulations on beating the dragon!!

Your bravery shines on, and you are truly an inspiration for those of us who for some stupid reason are still keeping it in the closet - including myself. 

Best wishes for your continued virus free life; and here's wishing your book much success as well!

You go girl!  *hugs* 



Once you eliminate the impossible, whatever remains, no matter how improbable, must be the truth.

~ Arthur Conan Doyle


Genotype 3a, F 0-1
Sovaldi & Ribavirin x 24 weeks

2/23/16 - UNDETECTED!  SVR12 achieved.  :D
6/21/17 - UNDETECTED!  1.5 years post treatment.
July 2018 - UNDETECTED!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #54 on: March 02, 2016, 09:29:52 pm »
This is so wonderful Kim!!!

First and foremost, congratulations on beating the dragon!!

Your bravery shines on, and you are truly an inspiration for those of us who for some stupid reason are still keeping it in the closet - including myself. 

Best wishes for your continued virus free life; and here's wishing your book much success as well!

You go girl!  *hugs*

Thanks so much, CureSeeker! :) The audio from my book launch (talk & reading) will be on the radio tomorrow. And by Friday I will have a link to the podcast of it, which I will share here.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Rosie13

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  • Posts: 297
Re: Welcome to my Coming Out Party and Book!
« Reply #55 on: March 03, 2016, 01:38:05 am »
Kim, eager to listen to the podcast! It will be a big deal for the listeners I am sure!
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #56 on: March 03, 2016, 07:53:30 pm »
Here is the podcast of the edited version of my book launch that took place last Saturday in Nanaimo. It aired today on People First Radio, CHLY FM:

http://www.vancouverislandmentalhealthsociety.org/wp-content/uploads/2016/03/678_kim-goldberg_undetectable_march_03_2016_40.mp3
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

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Re: Welcome to my Coming Out Party and Book!
« Reply #57 on: March 04, 2016, 01:09:57 am »
Way to go Kim!  8)
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #58 on: March 04, 2016, 08:02:50 pm »
Way to go Kim!  8)

Thanks Bree! Rock on!  8)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline lporterrn

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Re: Welcome to my Coming Out Party and Book!
« Reply #59 on: March 14, 2016, 11:05:05 pm »
Hi Kim,
Here is my review of your book in the HCV Advocate: http://hcvadvocate.org/news/NewsUpdates_pdf/Advocate_2016/advocate0316_mid.pdf#Undetectable
I am having fun!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #60 on: March 14, 2016, 11:16:54 pm »
Hi Kim,
Here is my review of your book in the HCV Advocate: http://hcvadvocate.org/news/NewsUpdates_pdf/Advocate_2016/advocate0316_mid.pdf#Undetectable
I am having fun!

Thanks Lucinda! I love it. I'm going to spread the link around. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Forest dweller

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Re: Welcome to my Coming Out Party and Book!
« Reply #61 on: April 02, 2016, 07:51:37 pm »
Hey there!!!
I'll play flute if you need one.. Classical... Am also getting my chops back!!!...but have just done 4 week blood test.  Do t know results yet..keep fingers crossed!!!!!

Forest dweller
1b
Contacted 1992ish
Over 6 million
F2-3
Started Harvoni March first

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #62 on: April 02, 2016, 08:08:19 pm »
I'll play flute if you need one.. Classical... Am also getting my chops back!!!...but have just done 4 week blood test.  Do t know results yet..keep fingers crossed!!!!!

I would love to do a reading from this book, accompanied by classical flute. It could be a performance by KimintheForest + ForestDweller. Seems very appropriate! :)

Good luck on your labwork.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline gnatcatcher

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Re: Welcome to my Coming Out Party and Book!
« Reply #63 on: April 02, 2016, 09:00:01 pm »
Forest dweller, maybe you can borrow the flute's Japanese relative, the shakuhachi, for the performance? That would go really well with Kim's haibun.

Yes, good luck on your lab work. I expect you'll be thrilled!

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #64 on: May 06, 2016, 06:25:04 pm »
My book Undetectable just received a great review in the Vancouver Sun by poet Mary Ann Moore:

http://vancouversun.com/entertainment/books/review-undetectable

Let's hope it does some good in terms of raising public awareness about Hep C and erasing stigma! The review can be read online now and will appear in the print edition of the Saturday Sun - just in time for Hepatitis C Awareness Month!

kim
« Last Edit: May 06, 2016, 08:22:23 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline FutureThinker

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Re: Welcome to my Coming Out Party and Book!
« Reply #65 on: May 06, 2016, 08:55:46 pm »
Thanks for sharing, enjoyed reading the review! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #66 on: May 06, 2016, 08:59:53 pm »
Thanks for sharing, enjoyed reading the review! FT

Lucinda wrote some wonderful reviews too. :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline morab

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Re: Welcome to my Coming Out Party and Book!
« Reply #67 on: May 10, 2016, 08:47:27 pm »
Kim
How do I get a hard copy of your book!
Congratulations and I can't wait to read it.
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline morab

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Re: Welcome to my Coming Out Party and Book!
« Reply #68 on: May 10, 2016, 08:52:43 pm »
OK Kim I found a place to send you a check, do I need to send more money to ship to the US?
I am so excited.
Also day 23 for me on Harvoni and feeling better!
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #69 on: May 10, 2016, 09:29:43 pm »
OK Kim I found a place to send you a check, do I need to send more money to ship to the US?
I am so excited.
Also day 23 for me on Harvoni and feeling better!
Morab

Hi Morab. I give free shipping in North America. So no, you don't need to send more money than the price of the book. And congrats on being at day 23! :)

(I don't want to violate any forum rules about not conducting commercial business on the forums. I hope I have not done so in this post.)

kim
« Last Edit: May 10, 2016, 09:31:42 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline morab

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Re: Welcome to my Coming Out Party and Book!
« Reply #70 on: May 11, 2016, 08:32:25 am »
I look forward to getting my hands on your wonderful book,
Thank you so much for all the support you offer to others
Morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

Offline malou

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Re: Welcome to my Coming Out Party and Book!
« Reply #71 on: May 18, 2016, 05:03:34 pm »
Can't wait to get this.  I don't know how I missed this forum, but found it today, the post tx group.  Your book looks like great inspiration Kim.  Thank you.
HCV 1996- Work Exposure ER nurse
GT 1a
Non-responder to Interferon in 1997
ALT 73 AST 21 F1-2
Applied to Insurance for Harvoni 12-15
Denied 12-3-15  Told I would never qualify for Harvoni because I was not 'ill'.
Started Twinvir (Bengladesh Harvoni) on 1/1/16

After 4 weeks ALT 23, AST 15, HCV-RNA UNDETECTED
After 8 weeks:AST 23, AST 11, HCV RNA UNDETECTED
6 weeks post treatment, undetected.

Offline KimInTheForest

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Re: Welcome to my Coming Out Party and Book!
« Reply #72 on: May 18, 2016, 05:24:27 pm »
Can't wait to get this.  I don't know how I missed this forum, but found it today, the post tx group.  Your book looks like great inspiration Kim.  Thank you.

Thanks Malou! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

 


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