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Author Topic: Harvoni and Fibromyalgia - PLEASE SHARE YOUR EXPERIENCES  (Read 6501 times)

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Offline elizabethfaraone

  • Member
  • Posts: 56
  • happy and in love with Michael Sofia
Harvoni and Fibromyalgia - PLEASE SHARE YOUR EXPERIENCES
« on: July 25, 2016, 05:06:31 pm »
I am 18 months post Harvoni treatment and am still virus free!  BUT ...

Today, I went to a fibromyalgia specialist and he ordered tests to make sure I don't have something other than fibromyalgia.  My symptoms indicate fibromyalgia.  He pressed on trigger points that were tender or painful.  His treatment plan for me is:

1.  Trigger point physical therapy with a therapist who is well practiced in the technique developed by Janet Travell, M.D.

2.  Cymbalta (or, if I don't tolerate it, Flexeril)

3.  Excercise only to a level that does not wipe me out

4.  Find out from other patients their experiences with hepatitis C, Harvoni and fibromyalgia.  Looks for studies that have been done.

PLEASE POST HERE IF YOU HAVE FIBROMYALGIA.  Give me lots of details.
Infected in 1987 in China when MD administered acupuncture with reused needle
Diagnosed 2001
Genotype 1a w/ Q80K polymorphism
Attempted treatment with Interferon/Ribavirin 2003 and stopped immediately
2014 fibroscan no fibrosis
2014 abdominal ultrasound normal
Found gastroenterologist to advocate for me upon Harvoni approval by FDA
Began treatment w/ Harvoni December 2014
Undetected at four weeks
Completed 12 week treatment February 2015
Blood tests normal
ElizabethFaraone@yahoo.com

Offline morab

  • Member
  • Posts: 232
  • Lives in the woods
Re: Harvoni and Fibromyalgia - PLEASE SHARE YOUR EXPERIENCES
« Reply #1 on: August 10, 2016, 09:54:25 am »
liz
There seem to be a few of us who have symptoms similar to fibromyalgia during and after treatment. I have had many joint pain issues during and since tx. I am 4 weeks past end of tx and still have more joint pain than I have ever had.
Did you symptoms start after tx? Good luck and keep us posted as I am wondering if Harvoni  treatment has anything to do with so many of us feeling like this after.
morab
3/2016 G 1a
Alt 84
Ast 62
Fibrosis score lab 0.66
quantitation 894,670
4/23/16 day 6, naive Harvoni 12 week treatment
5/27/16 week 4 lab results UNDETECTED AST 23 ALT17

 


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