User

Welcome, Guest. Please login or register.
May 09, 2024, 06:03:09 pm

Login with username, password and session length


Search

Forums Index

Stats

Members
Stats
  • Total Posts: 55126
  • Total Topics: 4851
  • Online Today: 194
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 168
Total: 168

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.
« previous next »
Pages: [1]   Go Down

Author Topic: Feeling somewhat normal..I think..  (Read 12902 times)

0 Members and 1 Guest are viewing this topic.

Offline DeathtoHep

  • Member
  • Posts: 50
Feeling somewhat normal..I think..
« on: September 22, 2015, 10:26:56 pm »
Tody for the first time in 7 weeks of starting Viekira Pak I actually felt normalish. I took this opportunity to get a lot done. I was in a good mood and a lot of the stuff Ive been hung up on lately just went away. I wouldnt say this is an improvement overall but definitely a sign that the effects are getting easier. Now if I can just get to sleep at a decent hour... I get my blood drawn tomorrow but no viral load test which is kindof annoying that I dont get to see whats happening. Five more weeks, then waiting for the word "cure". Ive noticed a lot of new people on VP which is great and I think we will have this beat in no time.
Logged
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #1 on: September 22, 2015, 10:36:43 pm »
Hi Deathtohep,

Glad you're having an up day!

Are you taking ribavirin too? If so,...

I took Philly's advice on another thread, about when to take the ribavirin. It's helped for the last 3 nights. Rather than taking it with the Viekira Pak, I've started taking the afternoon dose about 3 hours earlier. It's the VP that needs to be exactly 12 hours apart. I'm sleeping much better. Don't know if it'll help you, but it's worth a try :)

Many more good days to you,
bye
« Last Edit: September 23, 2015, 12:23:11 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Feeling somewhat normal..I think..
« Reply #2 on: September 23, 2015, 12:13:23 pm »
Sleep is for babies!
Just kidding of course. My life journey with insomnia goes way back before HCV so the riba and viekira treatment just amplified a problem I already had.

Benadryl/diphenhydramine chewable pediatric dose of 12.5 mg each evening seemed to help (OK by my doctor) and when I was stuck in awake mode I used the time to focus on positive imagery of the medication working through every nook and cranny of my body. Visualizing every single cell being washed clean.

Another great option is this forum- open for business 24/7 and truly a blessing for all of us.
« Last Edit: September 23, 2015, 12:24:53 pm by sapphire101 »
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #3 on: September 23, 2015, 12:22:44 pm »
Lol Sapphire :D

A: I am a 50 year old baby... and I want my SLEEP! waaaaaa :D

B:I'm a lifer with insomnia too! Bully for us huh? :P

C: The forum blessing thing is a fact!

A great sense of humor will take us far, especially in this particular season! Keep on laughing! 8) 8) 8)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #4 on: September 23, 2015, 05:16:45 pm »
Hi all,
Well done on a good day now that's worth celebrating?
I'm a life long insomniac I wonder if it's HCV related? I have been taking Temazepam and phenergan occasionally, I try not yo take it if I can. I wake up several times a night and think about my house renovations! Oh what we do to get through the night. Visualisation is a great idea I like the virus being eaten up!

I love this forum. I have somewhere to come when I need to be understood. I can have a whinge without everyone looking at me with the " get over it" look! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Feeling somewhat normal..I think..
« Reply #5 on: September 23, 2015, 05:29:22 pm »
Sleeping is my biggest issue.  It was hard before treatment and I used to drink SleepyTime Tea, loaded with herbs, but while on treatment, I am abstaining from herbs of all kinds, so can't drink it.  Very, very cautious with sleeping pills and tranquilizers although I wish I took one last night as I had 4 hours sleep. 

I listen to sleep meditations on youtube on my phone but didn't last night.  duh.  Visualizing is a great one...
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #6 on: September 23, 2015, 05:43:48 pm »
Hi bree,
I have some mindfulness meditations on my phone and use them, if it's just getting ridiculous. It doesn't always work though, if you're not going to sleep, then nothing will work. Damn it :'( cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Feeling somewhat normal..I think..
« Reply #7 on: September 23, 2015, 05:48:13 pm »
Insomnia is not an issue for me generally, but those nights when I didny get enough sleep made for terrible days following. It felt like my nerve endings were raw and I had no buffer against the outside world. If I had a meltdown it was on a day without sleep the night before.

I feel for you guys with sleep issues.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Feeling somewhat normal..I think..
« Reply #8 on: September 23, 2015, 05:52:27 pm »
I just started getting the 4:00 a.m., awake-for-no-reason Harvoni alarm clock.  Or maybe it's not the Harvoni - who knows.  I do diaphragmatic breathing (in deep for the count of 3, hold for 7, exhale for 8, etc.).  I'm not sure if it's the breathing or the boredom of counting that puts me back to sleep. 
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Feeling somewhat normal..I think..
« Reply #9 on: September 23, 2015, 05:54:27 pm »
Yep, that was me last night.  Went to sleep at midnight and then at 4:30, bing... wide awake until time to get up.  I didn't want to take anything thinking I would sleep again.  I have clients today so need to perk up and use some concealer under my eyes. ha.  At least I'm functioning... wow... amazed every day by that.
What am I grateful for today?  Concealer for under my eyes!  And, of course, the fact that I get to wake up!

And, Philly... I was rude to two different retail clerks in town a few days ago... I was embarrassed as I try not to act like a fool.  It was from not being rested.  More lessons... I haven't arrived yet!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #10 on: September 23, 2015, 08:38:49 pm »
Hi Bree,
Would you take something if your Doctor said it was ok? Not always just when you really need. It amplifies all the sxs the next day if you don't sleep. I'm like Phily I have the nerve endings feeling electric when I am tired. Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #11 on: September 23, 2015, 10:49:35 pm »
It's a good time girl club we belong to huh, Bree and Cal???

So happy to be able to turn on my laptop and see what y'all are up to heehee! :D

That's what I get for saying "Insomnia's a side effect! No biggie, I already have that!"... Whoopsie daisy! Lol  :o

I did take Philly's advice and started taking the 2nd dose of ribas about 3 hours before 2nd dose of VP and it has helped me with sleep for the last 3 nights. Didn't get up till 6! My neighbors have made fun of me for years for being reliably asleep till 10am before tx. For y'all overachievers for whom 6 am is running late, you may collectively roll your eyes :D...

And, Bree! Halleluia! and Amen! to the concealer! + sleep, teehee :D What would we do without it??? Now we need to find cranky from tx concealer, lol  ;D

See ya at (hopefully) 6 am ladies and gents :D

<3 bye
« Last Edit: September 24, 2015, 02:49:11 am by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #12 on: September 24, 2015, 02:40:46 am »
I'm waking up about 5-6am now. Don't mind I get on here and then bring breakfast to bed and take my pills. It's all about the pills 8) I too love to see what everyone has said overnight. I look forward to it. Life is pretty narrow right now so it's good to have some contact. Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #13 on: September 24, 2015, 03:03:18 am »
Cal!

It SO IS ALL ABOUT THE PILLS, lol!

Orange pills, brown pill, blue pills 3
Then a white pill, oh, you see.
Watch the clock, my phone, my app
3 More blue pills in my lap.
What to do now? Wait wait wait,
Another brown pill, can't be late :)

Philly, please don't give me an F! Pretty please??? I'm on crazy hepc drugs and it's all their fault!!! :D
« Last Edit: September 24, 2015, 11:39:55 am by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #14 on: September 24, 2015, 04:38:43 pm »
Byebyec,
Spontaneous creativity. I winder if that's a sxs? Hehe. Lively poem. I.d give you an A. I'm sure Phily will too.

Life revolves around these pills for sure. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Feeling somewhat normal..I think..
« Reply #15 on: September 24, 2015, 05:57:17 pm »
I'm not sure if I am damning you with faint praise when I say it's better than anything my kids could do! Lol
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #16 on: September 24, 2015, 06:02:20 pm »
Lol Cal and PHEW Philly! Lol
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Feeling somewhat normal..I think..
« Reply #17 on: September 24, 2015, 08:00:33 pm »
Hi Yall,  back online... had no power (and by that I mean electricity)!  Thanks for the comments re sleep.  I took half an ambien last night, probably could have slept without it but I just needed to be sure.  Woke up a couple of times - bing - but managed to go back to sleep.  Still, I'm so happy just because...!  I appreciate everyone and how we support each other. 
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #18 on: September 24, 2015, 09:09:29 pm »
Bree,
I'm so glad you got some sleep at last. Yes it's nice to belong to a nice group who actually do care. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Feeling somewhat normal..I think..
« Reply #19 on: September 25, 2015, 01:22:40 pm »
 Crazy I tell You , You are all crazy!!! Surely I am not the only sane person here. No your not!!! Yes You are---------
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #20 on: September 25, 2015, 07:20:02 pm »
Tommy,
You really are a scream. Cal 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #21 on: September 26, 2015, 07:15:17 pm »
Indeed Cal!

Now me and my imaginary twin Percival are going to go count our pills again...  :o
« Last Edit: September 26, 2015, 07:25:36 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Feeling somewhat normal..I think..
« Reply #22 on: September 26, 2015, 07:18:42 pm »
Now Percival welcome to the forum. Cal :-*
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Feeling somewhat normal..I think..
« Reply #23 on: September 26, 2015, 07:26:18 pm »
Bahaa Cal! Percival thanks you! 8)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected
Pages: [1]   Go Up
« previous next »
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.