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Author Topic: The fun never ends  (Read 18821 times)

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Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
The fun never ends
« on: September 16, 2015, 07:30:24 pm »
For about two weeks, I could barely tell I was tx'ing... except for  stupid riba cough...

and then all of a sudden today.... boom!!!! I get that "I want to jump out of my skin feeling!  Just like week 2,3,4,5,..weird.

dm

Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline byebyeC

  • Member
  • Posts: 286
Re: The fun never ends
« Reply #1 on: September 16, 2015, 07:54:09 pm »
No fun Drummerman. I'm sorry to hear that. Hopefully, it'll subside quickly this time.

Did your doc give you anything to help with this last go around with this sx?...
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #2 on: September 16, 2015, 09:09:57 pm »
Quote from: byebyeC on September 16, 2015, 07:54:09 pm
No fun Drummerman. I'm sorry to hear that. Hopefully, it'll subside quickly this time.

Did your doc give you anything to help with this last go around with this sx?...

Yeah,  I have rx for happy pills.

They work.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: The fun never ends
« Reply #3 on: September 16, 2015, 09:59:51 pm »
How much longer DM?
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #4 on: September 17, 2015, 12:52:10 am »
DM,
I get it bad when I do too much physically. Is that the same with you? It tells me to take a rest day the next day. Yuk I hate the feeling. I saw my Gastro today and told him about it and he said I could have valium but only when I really need it. Mmmmm define "really need it" please Doc? Anyway that's the plan and it helps. That and resting. Which I might add is hard to do if you have the riba speeds! Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline DeathtoHep

  • Member
  • Posts: 50
Re: The fun never ends
« Reply #5 on: September 17, 2015, 02:32:19 am »
I had this today (first day of week 7) while I was cleaning around the house. Its really humbling and frustrating that the most basic things are a challenge but Ive learned not to fight it, lay down and rest for 15 and Im good. My friends make fun of me and call me an old man when Im barely 30! Gotta love that moral support.
Logged
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline byebyeC

  • Member
  • Posts: 286
Re: The fun never ends
« Reply #6 on: September 17, 2015, 03:42:54 am »
Hooray for happy pills DM! Glad they're working.

We're all on this crazy train together. It's good to have company. This is the place for that moral support Deathtohep :)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline DeathtoHep

  • Member
  • Posts: 50
Re: The fun never ends
« Reply #7 on: September 17, 2015, 04:41:46 am »
Thanks :P

Wow youre from Alaska? Have I seen you on the history channel?

Also, how did you know your viral load went down in three days? Normally they dont test for that until 3 or 4 weeks out.
Logged
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline byebyeC

  • Member
  • Posts: 286
Re: The fun never ends
« Reply #8 on: September 17, 2015, 05:23:08 am »
Quote from: DeathtoHep on September 17, 2015, 04:41:46 am
Thanks :P

Wow youre from Alaska? Have I seen you on the history channel?

Also, how did you know your viral load went down in three days? Normally they dont test for that until 3 or 4 weeks out.

Oh my LOL Deathtohep! Well of COURSE you've seen me on the HC! Baahaaa :D

As to the early vl, I didn't know I was supposed to get a BOT vl and blood work done before starting. So, I started taking the meds, then called my doc about the ex's I was having. She just about rapped my knuckles with a ruler over the phone, then told me to get the bloodwork done asap. I did, then she compared it to my numbers from late July... I just don't like  to play by the rules apparently :D

See her soon on the History Channel!!!... HepC Dancing and Afraid Alaska! (spoken by the guy from all movie trailers :) )

P.S. I am an actual cornball.

« Last Edit: September 17, 2015, 05:24:39 am by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #9 on: September 17, 2015, 07:05:27 am »
« Last Edit: September 17, 2015, 07:23:14 am by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #10 on: September 17, 2015, 06:31:56 pm »
Hey DeathtoHep,
Where are you? I'm in Australia. I said exactly the same thing to ByebyeC. Alaska! That's polar opposite to me. Yes the drugs let us know when were over doing it. I also find a little rest is the tonic. Sometimes a big one :P Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #11 on: September 17, 2015, 06:35:31 pm »
DM 11 days! Good on you.  You are killing it!
I am very much at day 29 or beginning if week 5, doing a Nemo. "Keep on swimming keep on swimming"  ;D. Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline DeathtoHep

  • Member
  • Posts: 50
Re: The fun never ends
« Reply #12 on: September 17, 2015, 06:36:55 pm »
Im from the Silicon Valley in CA. One of the most expensive places to live. I read the other day you guys cant stream Netflix without a VPN. I feel for you guys  :'(
Logged
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #13 on: September 17, 2015, 06:37:49 pm »
ByebyeC,
You crack me up Chickeebabe! Keep that sense of humour and you'll do just fine. What day you on now? Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #14 on: September 17, 2015, 06:39:08 pm »
DeathtoHep,
Silicon Valley, is that Hollywood? Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #15 on: September 17, 2015, 06:40:27 pm »
And no we need internet to stream it. What is VPN, is that the internet? Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Sookiesue2

  • Member
  • Posts: 14
  • I got this!!
Re: The fun never ends
« Reply #16 on: September 17, 2015, 06:57:33 pm »
@ Deathtohep: I'm in Santa Cruz :) were almost neighbors!
Logged
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #17 on: September 17, 2015, 07:04:29 pm »
It still blows my mind talking to people from across the globe. I'm so lucky to have your support and advice . Thanks everyone , you're all fantastic ;DCal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: The fun never ends
« Reply #18 on: September 17, 2015, 07:07:23 pm »
Quote from: drummerman on September 17, 2015, 07:05:27 am
11 days
dm

Great that you've just got got 11 days to go, DM! I am sure you are counting down the days by now. I certainly was.

best,
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: The fun never ends
« Reply #19 on: September 17, 2015, 07:16:00 pm »
DeathtoHep, some of us have been streaming Netflix with a VPN for ages now <cough>, but Netflix finally released an Aust version this year. It has slightly different programming to NetflixUSA, but you might only work that out if you have previously gone down the VPN path.

Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline byebyeC

  • Member
  • Posts: 286
Re: The fun never ends
« Reply #20 on: September 17, 2015, 07:32:03 pm »
Quote from: Cal on September 17, 2015, 06:35:31 pm
DM 11 days! Good on you.  You are killing it!
I am very much at day 29 or beginning if week 5, doing a Nemo. "Keep on swimming keep on swimming"  ;D. Cal

I like this Cal! Prolly gonna plagiarize ;D And, def keep on swimming! Gotta win this fight of our lives.

Go DM! So excited for you! Each step taking us closer and closer to the prize... 8)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline byebyeC

  • Member
  • Posts: 286
Re: The fun never ends
« Reply #21 on: September 17, 2015, 07:33:38 pm »
Quote from: Cal on September 17, 2015, 06:37:49 pm
ByebyeC,
You crack me up Chickeebabe! Keep that sense of humour and you'll do just fine. What day you on now? Cal  :)

I'm the other side of the curve from DM, 11 days in! Today is a good day! Lots of green tea made this a No headache day! Woo hoo!
« Last Edit: September 17, 2015, 07:35:36 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #22 on: September 17, 2015, 07:58:44 pm »
ByebyeC
11. Days in, good on you friend.  Glad those headaches have abated. Water does the trick, it's magic nectar while your txing. Well anytime really. I had my restriction lifted yesterday, I can have 2 litres per day now. I celebrated with a cup of tea. (Woohoo as Blur once said ) . Keep on Nemoing!  8)Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #23 on: September 17, 2015, 08:02:07 pm »
Phily,
What does VPN stand for? Also how's post tx doing? Do you feel different yet? I know ribas hang around in the plasma for 3 weeks and in other places for up to six. Wondering how you feel? Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #24 on: September 17, 2015, 11:04:18 pm »
Quote from: Cal on September 17, 2015, 12:52:10 am
DM,
I get it bad when I do too much physically. Is that the same with you? It tells me to take a rest day the next day. Yuk I hate the feeling. I saw my Gastro today and told him about it and he said I could have valium but only when I really need it. Mmmmm define "really need it" please Doc? Anyway that's the plan and it helps. That and resting. Which I might add is hard to do if you have the riba speeds! Cal :)

I dunno.... Teaching high school boys, I can never not be physical .... but I do get to take a nap everyday after school and then I teach private lessons, so not much down time.  But I can at least go to bed at about 10 every night, then get up at 5 and do it again.

My original plan was to do this in the summer with no classes to teach.... but of course after a 1 month long fight with the stupid online pharmacy, I got a  late start and went into one of the busiest times of the  year for me.

And valium is less addictive than xanax.... I would try time release valium.  If he will rx it.

  Doctors get real stingy with with valium, xanax, etc.... I know, I know, "you can get addicted"....I'll worry about that after tx.  I've quit alcohol and cigarettes cold turkey... I think I can handle quitting one more thing.  Fortunately my doctor is not stingy and very supportive.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #25 on: September 17, 2015, 11:06:52 pm »
Quote from: KimInTheForest on September 17, 2015, 07:07:23 pm
Great that you've just got got 11 days to go, DM! I am sure you are counting down the days by now. I certainly was.

best,
kim
Thanks Kim.

Still counting down... 10 days to go.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: The fun never ends
« Reply #26 on: September 18, 2015, 02:51:34 am »
DM I'm counting right along with you!  My last pill is next Sunday, yours too?

I asked my infectious disease doc - the one who wrote Harvoni script -  to refill Xanax and ambien (a small prescription I was given by my internist back in January) and he got all indignant.  I would think if a 30 day script has lasted 8 months I'm not abusing it!  I'm so very careful.  And he knows my insomnia issues on treatment. This guy is a piece of work.  He told me to go back to my internist (my champion all the way through - the one who told me about Harvoni) to get a re-fill.  O.k. then I will!!!

A few times when I really can't sleep I have taken one or the other and get almost a good night's sleep and I feel great the next day.

Anyway, I'm excited to be nearing the end and sharing it with a number of us that finish around the same time.  I'm going to start a new thread about it...
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #27 on: September 18, 2015, 02:59:05 am »
Hi DM,
Yeah with a job like yours it would be hard to keep movement to a minimum. I don't know how you do it. I caught  a bus to the hospital today to avoid horrendously expensive parking costs. I am knackered now but it was worth it. You have to still carry o living. Yes they are stingy about valium, but I have a good GP and I'll come off them with her if I have addiction. It's the least of our problems??? Anyway not long now and you'll be off those ribas and your nervous system will abate. This is an exercising in kickin' and gougin' your way through,  but thank goodness there are starting to be up days.

Bummer about the drugs coming through in your busy period. I waited nearly a year for my compassionate grounds drugs. Waiting is what we Heppers seem to do best. ;D >:( :) Cal
 
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline DeathtoHep

  • Member
  • Posts: 50
Re: The fun never ends
« Reply #28 on: September 18, 2015, 03:31:18 am »
Silicon Valley is near San Francisco, Cal. Think Google, Netflix, HP...all have headquarters here so interns move in during the summer and jack the rent up. Watch the show Silicon Valley....its just like that.
Logged
2005 Interferon nonresponder
2015 Approved for Viekira Pak
Pre TX:    8/3/15   AST 36 ALT 64
WK 3 lab: 8/25/15 AST 21 ALT 35
WK 7 lab: 9/25/15 AST 17 ALT 18
EOT   lab:11/1/15  AST 17 ALT 14 Undetected
12WK post treatment: lab 2/10/16 AST 25 ALT 24 Undetected

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #29 on: September 18, 2015, 07:21:44 am »
Quote from: Bree on September 18, 2015, 02:51:34 am
DM I'm counting right along with you!  My last pill is next Sunday, yours too?

I asked my infectious disease doc - the one who wrote Harvoni script -  to refill Xanax and ambien (a small prescription I was given by my internist back in January) and he got all indignant.  I would think if a 30 day script has lasted 8 months I'm not abusing it!  I'm so very careful.  And he knows my insomnia issues on treatment. This guy is a piece of work.  He told me to go back to my internist (my champion all the way through - the one who told me about Harvoni) to get a re-fill.  O.k. then I will!!!

A few times when I really can't sleep I have taken one or the other and get almost a good night's sleep and I feel great the next day.

Anyway, I'm excited to be nearing the end and sharing it with a number of us that finish around the same time.  I'm going to start a new thread about it...

I finish a week from this Sunday.

Yep.  Thats a common occurrence.  I guess they're afraid they will be sued by someone who becomes addicted, but mine had me sign a form saying I understood the risk of addiction.

.my sister in law pharmacist, told me to ask my gp for the xanax rx...not my tx doctor.  I told my tx doctor and he could have cared less.... ya never know.  Some are real jackasses about it , others are not so concerned.

Anyway, there were many days when it was a big help... as the riba makes me real hyper (which doesn't go well with running out of breath every 5 minutes.  It makes me feel like I have downed about 4 energy drinks at once.  Hate it.

Good luck with eot!  gonna be nice not taking these stupid pills!



dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #30 on: September 18, 2015, 05:23:46 pm »
DeathtoHep,
Thanks. I've been to San Francisco, I loved it. I'll goggle. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: The fun never ends
« Reply #31 on: September 18, 2015, 07:02:18 pm »
Cal, VPN is Virtual Private Network.  It's a piece of software that hides your actual location, tricking other computers into thinking your request has come from say the USA or hiding its location altogether. With a VPN, Netflix thinks I live in the US and gives me access to the U.S. programming.

Re how I feel, my last two blog entries have been about that. I feel pretty good and think I am feeling better every day
http://blogs.hepmag.com/gracecampbell/2015/09/
 
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #32 on: September 18, 2015, 07:45:21 pm »
Thanks Phily,
I read your blog post. Your bloods are coming along nicely, you are in recovery mode. The waiting, well it's what we do best isn't it? I waited almost a year for my compassionate access and was told 6-8 weeks so from 8 weeks I was on high alert. Waiting, waiting. Yes you can do it. Feeling better everyday is music to moi's shell likes. Thanks for the VPN explanation, I feel tech savvy one day and then not the next. Confusing world we live in. Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: The fun never ends
« Reply #33 on: September 18, 2015, 09:00:05 pm »
dm, I finish a week from Sunday too (Sept. 28).  Sometimes what comes out of my mouth and typing fingers is not what my brain is trying to say.  Can't even blame it on meds.

I've held back on saying this but my doc has been a bigger challenge than the treatment. It's amazing the advocacy we have to do for ourselves.  In short, hepc'ers are an amazing tribe!
 
I hope you and everyone will join in the EOT - Finishing strong thread.  I'm wanting to psych up so we roll into EOT expecting everything wonderful in the world;).  We deserve it!   
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

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Re: The fun never ends
« Reply #34 on: September 18, 2015, 10:20:24 pm »
Quote from: Bree on September 18, 2015, 09:00:05 pm
dm, I finish a week from Sunday too (Sept. 28).  Sometimes what comes out of my mouth and typing fingers is not what my brain is trying to say.  Can't even blame it on meds.

I've held back on saying this but my doc has been a bigger challenge than the treatment. It's amazing the advocacy we have to do for ourselves.  In short, hepc'ers are an amazing tribe!
 
I hope you and everyone will join in the EOT - Finishing strong thread.  I'm wanting to psych up so we roll into EOT expecting everything wonderful in the world;).  We deserve it!

Yes , we can blame it on the meds.  Some day I will leave a post in its original condition.  It is hilarious.  So i have to go back and change know to now, and today to Tuesday, etc.
We will finish strong and we do reserve it.. i mean deserve it!

dm
« Last Edit: September 18, 2015, 10:46:50 pm by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

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  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #35 on: September 18, 2015, 10:45:35 pm »
Quote from: Bree on September 18, 2015, 09:00:05 pm
dm, I finish a week from Sunday too (Sept. 28).  Sometimes what comes out of my mouth and typing fingers is not what my brain is trying to say.  Can't even blame it on meds.

I've held back on saying this but my doc has been a bigger challenge than the treatment. It's amazing the advocacy we have to do for ourselves.  In short, hepc'ers are an amazing tribe!
 
I hope you and everyone will join in the EOT - Finishing strong thread.  I'm wanting to psych up so we roll into EOT expecting everything wonderful in the world;).  We deserve it!

Some doctors and medical personnel get real weird around hcv patients.  I guess they are scared to death they are going to get invected (infected, sorry it IS the meds)  through a needle stick etc.  At least thats the vibe I get from some.  The way I see it, if thats the way they feel they should have chosen another profession.

I had a hep nurse advise me once that if I was ever in an accident that I should never tell the ambulance staff that  I have hcv.  She seemed to think that some would not be overly enthusiastic about treating me.   That was her take, don't know if that is true or not.   But she was very insistent that I keep my mouth shut in that circumstance.  Probably a good idea.

dm

Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Scoutdoy

  • Member
  • Posts: 452
Re: The fun never ends
« Reply #36 on: September 19, 2015, 02:05:41 am »
Dm doesn't matter anymore for you, you are undetected. You can't infect anyone


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: The fun never ends
« Reply #37 on: September 19, 2015, 07:50:52 am »
Quote from: Scoutdoy on September 19, 2015, 02:05:41 am
Dm doesn't matter anymore for you, you are undetected. You can't infect anyone


Scout
yep.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: The fun never ends
« Reply #38 on: September 19, 2015, 09:22:51 pm »
DM,
So you're not infectious when you're UND? I didn't know that. Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.
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