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Author Topic: Generic Harvoni day 1 tomorrow 4/14  (Read 5776 times)

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Offline Suze

  • Member
  • Posts: 7
  • If at first...........
Generic Harvoni day 1 tomorrow 4/14
« on: April 13, 2016, 10:40:57 pm »
Well I've lurked long enough! I'm starting generic Harvoni tomorrow and I've been reading all of your posts and trying to decide what time of day I will take it. I'm leaning towards morning because I see some people have trouble sleeping. Can anyone chime in about when you take it?
I've had much more fatigue the last couple of years and lots of GI symptoms.
I was turned down by insurance 2 years in a row, "too healthy"  >:( done the appeals and then discovered Greg Jefferys. Now I'm excited to start and hope I'm one of the lucky 95%!
I welcome tips and fellowship!
Logged
61 yo female genotype 1a
DX 2003
INTERFERON & RIBA 2003 non responder followed by
INFERGEN daily for 30 days - 2003 non responder
BOCEPRIVIR trial 2005 almost cleared..... But not!!
Start Generic Harvoni 4/14/16
Pre Generic Harvoni VL 2,500,000
2 week VL (7)

Offline kimlav

  • Member
  • Posts: 24
Re: Generic Harvoni day 1 tomorrow 4/14
« Reply #1 on: April 13, 2016, 11:25:02 pm »
Hi Suze,

I took it at 9:00 am every morning with a smoothie and oatmeal or Red River.

I didn't have many side effects to speak of but did on occasion have the odd dizzy second and I was bloated and puffy a lot to the point of about 5 lbs.

Good luck with treatment and I am glad to see that you were finally able to receive it.

Kim
Logged
52 year old female
Geno 1a
Contracted in the 80's
Tx naive
vl 657,000 in Nov/15
No liver damage
ALT prior to tx: 107, 91 - 41 at 2 wks, 38 at 4 wks
AST prior to tx: 59,72 - 45 at 2 wks, 37 at 4 wks
started 8 wks Harvoni on Jan 21/16
EOT vl <12 detected
4.5 wk EOT vl - target not detected! RNA Not detected!
12 wk EOT vl - target not detected! (Will never get tired of typing that)
24 wk EOT vl -  not detected

Offline Suze

  • Member
  • Posts: 7
  • If at first...........
Re: Generic Harvoni day 1 tomorrow 4/14
« Reply #2 on: April 13, 2016, 11:50:27 pm »
Thank you Kim,
I feel very fortunate to have learned of the generics from India. I would not be starting tx without the kindness of strangers from across the world! What is Red River?
Logged
61 yo female genotype 1a
DX 2003
INTERFERON & RIBA 2003 non responder followed by
INFERGEN daily for 30 days - 2003 non responder
BOCEPRIVIR trial 2005 almost cleared..... But not!!
Start Generic Harvoni 4/14/16
Pre Generic Harvoni VL 2,500,000
2 week VL (7)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Generic Harvoni day 1 tomorrow 4/14
« Reply #3 on: April 14, 2016, 02:38:40 am »
All the best Suze - these new drugs are quite amazing.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline brie41

  • Member
  • Posts: 191
Re: Generic Harvoni day 1 tomorrow 4/14
« Reply #4 on: April 14, 2016, 10:06:48 am »
Hi Suze,

  A close friend of mine just started Zepatier last night.  I will call her later to see how she is doing.  I am on my 5th week of Harvoni and I take it right after dinner at 6:30pm.  It has worked very well for me.  My Doctor thought is was a good idea to take it with a meal to avoid any nausea that might happen.  Only had to drink a little bit of ginger ale so far for an upset stomach.  It did the trick.  I usually sleep well but have had a few nights here and there when I only sleep a few hours.  Overall I have felt good especially the last few weeks.  Hang in there!  Brie

Did they test you for resistance before starting?  My friend didn't check to make sure and didn't seemed too concerned if they did or didn't?   
Logged
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline kimlav

  • Member
  • Posts: 24
Re: Generic Harvoni day 1 tomorrow 4/14
« Reply #5 on: April 14, 2016, 11:07:57 am »
Hi Suze,

Red river must be a Canadian thing. It originated in Manitoba's Red River valley and is a combination of wheat, rye and flax. You cook it like oatmeal or steel cut oats and I like it the best of any oat meals.

After treatment, I missed my little ritual of taking the pill and my oatmeal isn't the same without it - until I learn of my fate in 2 months that is.
Logged
52 year old female
Geno 1a
Contracted in the 80's
Tx naive
vl 657,000 in Nov/15
No liver damage
ALT prior to tx: 107, 91 - 41 at 2 wks, 38 at 4 wks
AST prior to tx: 59,72 - 45 at 2 wks, 37 at 4 wks
started 8 wks Harvoni on Jan 21/16
EOT vl <12 detected
4.5 wk EOT vl - target not detected! RNA Not detected!
12 wk EOT vl - target not detected! (Will never get tired of typing that)
24 wk EOT vl -  not detected
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