Hepatitis Forums
Hepatitis C Main Forums => On Hepatitis C Treatment => Topic started by: mustmove on February 13, 2014, 06:00:28 pm
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just starting dual sovoldi and olysio.No Peg, No Riboviron. they are claiming 93-100% cure rate for geno 1
its approximately $150,000 total for both drugs for 12 weeks and I cant believe my insurance is paying. My question is can anyone on the same protocal describe the side effects?
Headache,skin rash, fatigue are said to be the main ones. I did furon 3 times since 1980, enough of that
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i am on sovaldi and ribavarin and interferon for 12 weeks, just started a week ago like you said excellent recovery percentage. I hope it works cause im so sick
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Wow, I am so excited to hear both of your successful treatment stories in a few months! How far we have come! Good luck and do post updates about your treatment and lab tests for the group. Best wishes for an easy & successful treatment. -jack
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Cynthia - are you feeling sick from the meds or were you referring to being sick prior to starting them? I am interested in hearing patients experiences on these two drugs. Thanks.
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I am refering to since I started, on shot day and the next day I am really sick,fever,chills,back and neck pain and nausea but the next few days are alot better
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Cynthia, typical interferon fun! The good news is that it is only 12 weeks, so effects will be minimized, such as hair and weight loss. With interferon your best friends, especially 48 after each shot, are ibuprofen and liquids - and rest. I am sure 12 weeks doesn't seem short to you, but only a few years' ago it was 48, with about 40% success rates.
I am curious about Mustmove's treatment side effects - as it does not involve interferon. Rumor has it that it will be minimal - and I hope that is true.
-jack
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I'm currently completing my 9th week of triple therapy - SOL+PEG+RIBV. The side effects aren't as bad as when I did 48 weeks of PEG+RIBV - which was horrible!
I've had some fatigue and minor headaches - but manly fatigue. It seems to have gone by pretty fast, and I've been able to work.
I was undetectable at week 4 and hope to stay that way. My VL baseline was 9 million/ml, which is high. Geneotype 1a with grade 2 fibrosis.
Make sure you drink plenty of water, as it helps with the flu-like symptoms and muscle aches. Tylenol works well managing the headaches and so forth.
Hang in there, the weeks really go fast and the SOL is a game changer!
Best wishes, Mike
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thx mike, glad to hear it, feel a little better now. I will rise to the occasion. i,m genotype 1 early stage,no liver problems so game on. thx for feedback
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The new treatments are really amazing. I've been dealing with Hep-C for 15 years (had it for 30 years) and was part of the PEG+RIBV clinical trials back in 2000. Although it didn't work for me, the trials were beneficial for many, paving the way for once a week INTF (PEG) shots.
Still, it was 48 weeks of grueling treatment and it was just terrible - I really feel for the folks who did shots everyday or so prior to the introduction of PEG.
Fast forward 14 years and the treatments are down to 12 weeks, and it looks like the PEG will be a thing of past. The results are amazing! 90% chance of full clearance - whereas, it was 30% for genotype 1a with high viral loads in 2000.
Hang in there, Cynthia - there's a lot of hope now. And with the new generation antivirals - it will soon be a 100% cure rate.
Take it one week at a time and before you know it - 12 weeks are gone and it's over. The side effects are manageable. Just remember - drink a lot of water, get your rest and Tylenol really works (I use extra strength and take 2 as needed. No more then 4 in one day). If you get a little dry skin, body lotion is the cure.
Best wishes and know you have a lot of hope for a cure! Mike
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Cynthia, I am week 5 into Sovaldi, ribavirin, Pegasys treatment. I have had similar side effects, especially the back pain along the top of the shoulders and down the right side of my back. I am actually happy to hear that someone else is having the same experience, my Dr.s said they had not heard that from anyone else. As with you it is bad the few days following the shot and then it gets a little better. I alternate between Ibuprofen and Tylenol and it seems to help, I also have been doing yoga stretches for the back.
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now on week three, doc gave me nausea pills,and pain pills with acedeminephen so yesterdays shot problems were much more tolerable see ya when we are all hep free. HOPEFULLY 12 WEEKS CINDY
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Good news, and yes, hopefully just 9 more weeks! The interferon is a bit more tolerable because your mind and body are more prepared. Not a routine to get used to, but you will sail through the next couple months and report good news here 3 months post treatment! Keep smiling! -jack
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Week 4 test results came in yesterday...Hep C went from 9,250,000 viral load to UNDETECTABLE!! This really is a miracle drug!
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That is great news! Especially compared to your results the 1st time around. You geno 1? How many weeks are you scheduled for? I cried my eyes out when I came back UD after 4 weeks with the Incivek triple therapy - my 1st time it took me 24 weeks to get UD - so yes, these are breakthrough drugs. Now, stay UD from now on and we can all celebrate your success! Good luck, and let us know. -jack
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way to go marysee i,m waiting another week to do my first test hoping for the same
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Congratulations Marysee!
That's a big thing worthy of a celebration!!! It's good to hear news like this.
Hope you have a great weekend - you should have a big smile on your face and a glad breath in your heart, Mike
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Fantastic news!
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Thank you everyone for the support! I did walk around with a big smile on my face all weekend, and my family is soo happy too.
Jack, l am geno 1a, on a 12 week program almost 6 weeks through, having a pretty painful week so far and very tired. Dr. Decreased my RIBA from 6 a day to 4 a day b/c RBC dropped, hopefully that will help.
Cynthia, hoping for the same results fo you too, but this is what my Dr. Said...it doesn't matter what the interim results say, everyone responds differently and the only results that matter are the ones at the end....and then he said and yours are going to be zero! I loved him at that moment. Let us know.
Lucinda, thank you thank you thank you for starting this site and for staying active on it. I can't tell you how helpful it has been for me.
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You go girl! This time will fly by. Cheering for you, jack
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I've been on Sovaldi and Olysio since January 21, and I have not experienced any side effects whatsoever. My most recent test results went from 928,778 to NOT DETECTED! Just 23 days more and I'm done. I am sooo blessed! WhooHoo!!
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Wow - this is just amazing. Thank you for sharing what is possible!
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AwsomeMe, you seem to be the only one I find besides myself who only takes Solvoldi+Olysio (no other drugs ) I am NO Virus Detected after 4 weeks with zero side effects. This combination is apparently "not" FDA approved, but my liver doc got my insurance to pay nearly $150,000 for 12 weeks.Blows my mind when I take those two pills everyday that cost more than $1000. All my liver panel readings are back within normal range for the first time in 35 years. This is giving me a shot at having some grandkids to take fishing.
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Hey Move On,
Now you have found a third person which is me. I started one week ago and the only symptom I have is some major itchiness. It could be because I am allergic to sulfa drugs, which is supposed to be a contraindication to treatment.
My first set of labs will be this Wednesday. I joined this forum specifically to post to this thread because I can't find much else on the internet about double antiviral treatment without interferon.
I am a liver transplant recipient of 14 years. My second liver is cirrhotic now due to HCV (genotype 1 of course). I am a two time loser with interferon based treatment. I NEED this treatment to work very badly because now I need another transplant - post gastric varice bleed that just about killed me.
Nice to meet you :)
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Hoozdo,
Wow, good luck! You show us, just in case anyone needs reminding, how awful this virus is, and at the same time how far we have come! Best wishes for a quick & permanent UD! Let us know... -jack
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Thanks Jack for both the welcome and the cordial manners. Will post my first lab reports later this week.
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Hi, have been on sovaldi & olysio for 4 weeks, no side real side effects, maybe a little more fatigue. Warning for everyone on this combo, stay out of the sun. I live in Chicago, temps have been in the 50's. I got really bad sun burn in just 10 minutes, even driving in my car the sun coming through my side window burned my face. Use a high level sunblock and cover up :o
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I just got the call from the pharmacy handling my sovaldi and olysio. I will be starting them this coming week and I'm very excited. I was on peg and ribo a of few years ago and had a terrible time of them. I am 1A, I don't have cirrhosis but I have scarring and inflammation of my liver. I put up black out curtains in Our bedroom and bought dark sunglasses that are readers.....I am putting my ducks in a row.....hoping for the best....I'm so glad there are others on this forum taking the same meds I'll be taking, going to start the new journey of the rest of my life.....
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I agree with the sun sensitivity warning...I had a minor rash on my chest, but as soon as I sat out and back in the sunshine a couple of weeks ago every bit of skin that was exposed was rashed.
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I have been on this treatment for 4 weeks and went undetectable at 4 weeks. I don't go in the sun, so can't report sun sensitivity. My only side is extreme itchiness and skin coming off by thin layers.
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UD at 4 weeks! That puts you over 90% chance of cure if you complete! When I got that news in June 2013 I cried my eyes out because I knew how huge it was.... Keep it up because you are on the road to cure! -jack
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That's great to hear, Hoozdo!
Another dragon bites the dust! ♪♫♪ ♪
8 more weeks and done!
Best wishes, Mike
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just starting dual sovoldi and olysio.No Peg, No Riboviron. they are claiming 93-100% cure rate for geno 1
its approximately $150,000 total for both drugs for 12 weeks and I cant believe my insurance is paying. My question is can anyone on the same protocal describe the side effects?
Headache,skin rash, fatigue are said to be the main ones. I did furon 3 times since 1980, enough of that
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I just started on the sovaldi and olysio also 9 days ago, after 2 days i changed from taking it in the morning to the evening because i felt so tired/sleepy during the day. the headaches where mild and short for the first 3 days, i was itching also for a few days but that has stopped so far. dont have a problem sleeping as this knocks me out at night. so thats good because i was a terrible insomniac. hope this works for me as my hep c was almost undetectable. i hope the next 10 weeks go as smooth.
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I just want to say, I feel great. Day 5. My energy level is Off the charts. I wake up at 5 and lie in bed thinking, this is too early to get up and then I start thinking of what I want to do today. I pop up and get more done between 5 and 10 am then I have done all day for 20 years. I want to get started with my strength level but I keep telling myself that my body is working hard and I just need to work on that and not push to much.....my strength will come later.... I feel really sharp and even though my skin felt prickly for the first few days...nothing now. I get a mild headache around 8 pm, but I'm tired and sleep fine. I can feel my body healing.....it's weird but I am so amazed at how well I feel.
Hope all is well with all the other warriors here......solvaldi is a wonder drug.
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Thanks for posting Mpetrecz - I appreciate hearing real-world feedback from people trying the new meds.
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I'm glad to find this! I started Sovaldi and Olysio combination for geno 1 4 weeks ago. I understand it's considered off label and I pay a $35 a month co-pay for both pills. I received co pay cards when I started. I was in disbelief considering how much this medicine costs. My viral load was 4,800,000 and after 4 weeks it was 'undetectable'. I can barely believe it. I have hardly any side effects except a slight headache and insomnia. I am losing weight too which I did not see on the list of side effects I've read. I'm eating more than I usually do! I know this makes no sense and I'm hoping that beyond the miracle of a real 'cure', I get skinny!! Oh, I got hep c from a blood transfusion in 1975 at age 16 so I am more than ready to get this out of my body and my life!
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What a feel good message! Thank you for your story Sasumo.
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I will start this Monday on Olysio/Sovaldi this Monday (9th). Have had Hep C for 40 years, started with Interferon, years later Inter. with Ribro. And lastly peg inter with Ribro. All of them kicked my butt into mud. Told them I would not try it again. Now here I go. If the side events are as stated in this forum I won't have a problem. Might cut back on my fishing and will have to be careful at grand children's ball games but can live with that. Have enjoyed reading this forum and seeing so many positive statements. I don't understand why some still take with Interferon? So far dealing with insurance has gone well and really pleased with what they are paying. Maybe. After 40 years this will not be a problem. Good luck to all of you
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John,
40 years is enough! Time to get cured! I had Hep C for 36 years, but only relapsed from one 48 week treatment of the interferon/ribavirin dual therapy in 2004. Is this a 12 week treatment? You are Geno 1? They were keeping interferon in the mix for Geno 1 until very recently. Now it looks like interferon will soon not bother Hep C patients again... hard to believe, as it was the 'breakthrough' in the 80's that gave you a 20-40% chance of cure if you could survive the damn treatment!
Good luck and do report your progress and your lab results.
jack
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Yes Jack this is 12 week treatment and I am geno 1. Believe I can do this standing on my head compared to what I went thru before. Luckie my wife didn't hurt me as I was not "fun" to live with. Amazing drug.
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Geotype 1a here, MELD 19, I was noticing the same thing, not many people are on it, since they seem to be trying to give it to patients who cannot tolerate Peg-interferon.
I started both a little over a week ago, i have a 24 weeks treatment due to my decompensated liver, but this treatment is SO MUCH BETTER, i can't even begin. not only is it easier, the side effects are more manageable.
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Hi I am on my third week of solvaldi and olysio. At third weeks my doctors order a viral load count and am happy to say that it was undetected. My side effects have been very minor. A little itchy, I haven't had an insomnia. And headaches a few but very minor. I have noticed that I go to the bathroom after eating a meal. No diarrhea normal but do go to the bathroom a few times more than usual. Other than this has been a walk in the park. I have this disease since 1973 thru blood transfusions. I am genotype 1b and do have cirrhosis of the liver. I did the interferon and Pegasus twice with no luck, had to be taken off it due to the anemia and bilirubin going off the charts. Hopefully at the end of the 3 months I will be cured God willing. I will keep everyone posted and my treatmentends August 23.
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Started solvadi and olysio 10 days ago and was anyone having joint and musle pain
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I started 12 days ago on same and no joint or any pain other than what I always have in my joints. I take Advil and no problem. Hope yours gets better. Good luck to all of us.
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Joyce did you have joint and muscle pain before? I've heard the hep can cause joint and muscle pain,,....I'm on week 6 S/O and feel pretty great. No side effects, except for the light sensitivity.....which will give me a mild headache that goes away when I close my eyes for a little while....o o o. I do have a new side effect,...my skin looks great and my wrinkles are almost gone,,,,...loving that side effect. Energy is high and brain feels clear and very sharp.
I'm 1a and at 4 weeks was undetectable. All the blood work was perfect. I had a vl of 1,300,000 and am F3
Good luck all!
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Dang. If it makes my brain feel clear I may want to stay on it. This all is looking good. Amazing.
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I told my docs the same thing John.,,,...I'm almost finished my 6th week....alls good.
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Two weeks. Too easy. Waiting on something to jump up and bite me in butt. So far I have had no problems and very thankful as I did the old interferon three different times and was sick, lost twenty five pounds (needed to lose 15) and swore I would never try it again. Wife said she would take me out if I did it again. So this has been a very welcomed change.
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It's not getting any harder,,,...this is a piece of cake....I feel fine...no problems,,,..no side effects.....
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Hi, I'm so glad to hear everyone seems to be doing good on these new drugs (solvadi n olysio). I started 10 days ago and noticed headaches off and on. I seem to be having more joint pains, but i used to have some mild before, but now its on both sides. I've had hep for 35 yrs. They tried me on that horrible interferon n ribaroin. That put me in the hospital. This so far seems pretty good, except for mild sides. Please if anyone has any problems please post. God bless everyone :)
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I am so grateful for this forum. I am on day 11 of solvaldi/olysio. I have 1a , I have had HCV for at least 30 years and have not been willing to try any other treatment. I have witnessed the trials, successes and endless side effects of all the treatments out there since 1992. I am experiencing virtually nothing compared to what I have seen before. I too have mild headaches every so often, no insomnia and gladly no sun sensitivity. I get to play outside with my granddaughter and look forward to clearing the virus. Please keep posting! It was this forum that helped me make the decision to do this protocol.
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Well I swore I would never go on treatment again because at my age I was not willing to take a year out of my life. Dr. Gitlin and his PA Cathey convinced me the side effects were not bad. 13 days and no problems proves them correct up to this point. Not giving them a pass yet but getting excited. Everyone keep it in road. I might be getting a little too brave (careless) with sun but have had no problems.
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One month post Peg/Rib/SOV treatment...I did have sun sensitivity and my Dr said it was from the Ribavirin, so mb those of you who don't have to take that will be fine. I also had a great deal of back pain, which is finally starting to subside. Good luck to all, I am so happy these new drugs are helping so many of us :)
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i recently got approved to join your forum and am quite anxious, i started s/o treatment 6/19 for 12 weeks. im being treate thru Lahey specialize clinic for liver in Massachusetts.
i was diagnosed 9/11 w/ hep C due to blood transfusion in late 1988, and went on a trial including rib/int & something else. nearly killed me, all organs shut down.
just awful. hallucinations and brain swelling were the worse. didnt think id ever do a trial again until last week when i heard the wonderful success rate and slight side effects.
my doc downplayed the light exposure, yet i hear from you folks its quite an issue-and i was going to my daughters opening night as a headliner in Vegas in July, guess I'll need to rethink that. can anyone tell me if strong sunscreen, sunglasses & a brim hat would help?
i previously had severe leg cramps but they subsided when i stopped my spiractalone as my feet swelling stopped, so i havent had any cramps til the night i began my protocol 6/19 & often since. lots of water to keep hydrated.
after reading this forum im really excited. tumors have now been observed in 3/14 but growing at a miniscule rate. but because of this a transplant is mandatory eventually-but id rather go into that transplant with no Hep C to infect the new liver!
you folks have all given me hope and i hope all of you have great news and good luck from your doc's too! i will anxiously be watching your progressions as i hope you feel free to offer me input as well
thanks
Ellen from NH
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I think the light sensitivity is an individual thing. Been on s/o for two weeks and initially put on sunscreen, floppy hat and long sleeves and long pants for first week and went on my morning three mile walk. About burned up here in Ga. Started scaling back and now no sunscreen, short pants Long sleeve shirt I keep rolled up unless in direct sunlight. Maybe ought be little more cautious but have had no problem. Always wear hat if outdoor. Each person reacts differently. Just figure out what your body can do. Be careful. Good luck
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Hi all , i started Sovaldi/olysio 34 days ago , I already have normal blood work , Yay,I did the interferon back in 2004 omg i thought i was going to die, I did it for 3 weeks short of a year and i broke out in a real bad rash, Doctor stopped treatment , my viral load back then was 12 million and even though i got rid of it at the 2 month mark it came back. I am hoping i will be cured this time,
Anyways i went out in the sun the other day forgetting its one of the side effects and i got a small rash on my arms and bumps on my face, I won't do that anymore, My skin has always been real tough an di healed fast always but i can guarantee u and am sure everyone is different , but u will get the rash if u go straight in sun, I have blue cross PPO and my insurance also approved to pay for my 3 month treatment, Good luck to all and if u have any questions please don't hesitate to ask, George
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Welcome Ellen from NH. I am excited for you - just knowing the cure is within reach. Personally, I think seeing your daughter headlining in Vegas is worth the risk. In addition to sunscreen, hat, and sleeves, I'd add the following:
1) An umbrella
2) Clothes with sun-protection materials
3) Just try to stay out of the sun
4) Splurge on really good sun block - my personal favorites are VaniCream and Solar. They are very expensive and I get them on the Internet. I have a sun allergy and would otherwise be a dermatological mess without them
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I have 8 days left!!! thank you God. I I was diagnosed with HCV 1ain late 2008 and it was traced back to 1985 when I would have acquired the virus. I tried the peg ribavirin but did not a good outcome. I decided not to do a second run 48 weeks with plenty I was anemic and just sick of all the time. some of the side effects from the olysio is photosensitivity and I do have that I work outdoors and I get blisters from prolonged sun. my lips get it the worst they hurt so bad. I still get tired easy and I'm hoping that is the medicine either the sovaldi or the off all day or the olysio. dry skin I have really really bad splits in my skin on my hands but other than those it is way better than the peg ribaviribavirin. I don't take anything for the muscle pain I still have because I think one of the contraindicated drugs are nsaids. it has been wonderful to read on here other people's experience.
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I have known I had Hep C for 3 years--I gave blood and received a registered letter a month later telling me I had it. I have been searching for an answer since then. I have ADHD and take Vyvanse, so I really was not a good candidate for the interferon treatment. I am 56 and non cirrhotic, but I have a lot of issues stemming from the immune system being in overdrive--sudden joint aches, super fatigue and lately insulin resistance along with a tremendous brain fog that has made me very anxious and stuck in a terrible rut. I'm just going to say what I have noticed I don't know if it's the meds, why they would affect me in these ways, or if it's the big feeling of relief that I am experiencing, or the fact that I'm off for the summer
You can be the judge of that.
I started tx with SOVALDI and simeprivir on June 2, this year. I am 3 weeks into a 12 week regimen.
The first think I noticed - within about an hour was that my vision had cleared- I was amazed by the clarity with which I was able to see details- for example the curtains in the kitchen which have an crocheted edge I could see every stitch and before I couldn't.
I feel so much better-the general malaise that I have suffered from is gone.
Especially the stomachache that I would often get in the afternoon
I can sleep all through the night and wake up rested.
I am hungry a lot and I eat a lot, but I haven't gained weight.
I used to get this "syndrome" I called it where,after I showered in the am; I would start to sweat, get super dry mouth, become anxious, have trouble dealing with simple things like texting, become irritable. The sweating was profuse and would make my first period class a nightmare. This all would subside by about 9am: it usually lasted about 3 hours. It was worse when I was tired, better when I wasn't tired.No one I've ever told has been able to say what it was-- and it has lessened to the point that now nothing happens.
And energy! I have energy! I still sleep- and I treat myself like a recovering person so if I feel the need to go to bed, I do. But I wake up with energy!
Affects on brainfog- I noticed my memory is better for example for the first time in many years I showed up on time, even a few minutes early, to an appointment; I remembered a recipe after making it; little things that make me go hmmm.
Like, I can plan ahead and remember where to turn.
Bad affects:
I have had some minor side effects, usually after I was in the sun ( I of course use all the proscribed remedies like sunblock, hat, long sleeves, etc and I drink a lot of water.
The first was a really really bad headache and swollen eyes, that lasted a day and it was in the first week, the6th day to be exact.
Next I've had a few minor hives We are having class at HZES, right? I need a favor from you, can you pick me up at ELHS? Or on 72 at the place where you turn--or close to your house or your house idk but I need a ride part way ok?an a very light rash- which normally I wouldn't even notice probably-
The last thing is that every couple of days I'll get a small scaly welt about the size of a dime it itches a little but not much usually only when I'm not doing anything else.
And that's all (so far)
I get my blood tested on July 1 I'll let y'all know when the results come back. I started at between 4 to 6 million. I'll let you know more about that when I have th info in front of me so I can be very specific.
Thank you for your posts. It makes it so much easier when you know you're not alone!
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A big oops on the last part of my last post i should have read it over. There is something that pasted from a message I was sending to a colleague please disregard and forgive any inconvenience it may have cause you.
Thanks :)
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Well amocuatli...whew what a tough name,,,,my sp ck keeps changing it as I type,,,anyway..woot woo!
I am the exact same....no skin dryness....but I feel great...brain went sharp within 2 weeks and my energy is sky high,,,and I sleep like a baby,,,,I eat well and am losing weight,,,I can't say enough good thing,,,o an my skin is beautiful...my wrinkles are disappearing,,,OMG! I love this. I do stay out of the sun as much as possible...even just he brightness and not being out bothers my eyes...and makes me very drained. I love my dark bedroom during the day....but by evening I'm out and doing things outside,,,,,
So you are not alone,,,I feel badly when I talk about hw good I feel...so many are having some issues,,,but not me. I feel great!
I'm 1a and on S/O in my 7th week....undectected at 4 weeks....from a viral load of 1,300,000. Alls good here....hoping for continued well being for all of us!
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You can call me amo!
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I have Hep C 30 years now. Liver stage 3. Issues are low platelets and high ammonia level in blood. Am starting 3rd week of Sovaldi/Olysio and have not had any side effects to date. Will see what the sun does to me.
Good luck to you!
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Be careful. Starting my third week and have been little careless and in sun just little Sat and blistered my lips. Dump ass me.
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I started Peg,Rib & Sovaldi took for 3 weeks developed Dress syndrome on day 2 of treatment. Today I stop Peg & Rib and will take Savoldi & Olysio along with the Dress Syndrome meds.
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I do believe we are entering a new era in Hep C and I wish a speedy relief for all of my fellow sufferers. I'm on the Olysio/SOVALDI combination
For the last two days I've noticed small welts some are itchy one itchy enough to make me wake up. Today I'm slow and my tongue is a little swollen --but nothing awful or earth shattering!
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I started taking the Solvaldi & Olysio last Friday, Saturday I was very nauseated and slept most of the day, but Sunday felt great and so far today also. Can this really be a cure??? I am 1b and have done pegalated interferon and riba twice before and relapsed. Good luck to all. :D
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Three weeks in and like you wondering if this can really be a cure. I've actually had no side effects. YET. I was in interferon/Rib. Three times and relapsed. Just feel like this is going too easy. Yet that is what everyone is saying. Good luck to you and to us all. Time will tell!!!
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Hello everyone. My brother is type 1a with cirrhosis and MELD 20; treatment naive and started Sovaldi/olysio a few weeks ago. About a week later he had eruption of multiple blisters on hands/feet/face. After reading through this thread I am now more convinced the blisters were a result of photosensitivity. He has since been taken off the meds and will follow up with transplant program next week. I am hopeful that he can go back on the meds with extreme sun precautions. He would sit outside to warm up as he is often cold but not longer than 10 mins or so. Complicating matters is he has vitiligo where he has lost pigment in several areas of skin.......not surprisingly it was the unpigmented areas that blistered! I appreciate being able to read first hand experiences as this is fairly new treatment and as a previous poster mentioned this combo is not yet FDA approved.
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Thanks God for this forum. Have had hepC for more than 30 years. Have try every combination of drugs that have come to the market, sometimes felt like a guinea pig. But thru my Doctor and the insurance company BCBC they are providing me with the sovaldi/olysio combination :) for $100 a month. Started 5 days ago and the only side effect has been headaches!! Nothing compare to the one's in prior treatments.
Was thinking about going to the beach but since reading your comments that is out of the question. I pray that this time I can get rid of this horrible nightmare!!
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I'm praying for you, too, MMMaimi,
The new generation of drugs have been real game changers (and, since you're not taking INTF+RIBV the side effects should be very manageable.
Make sure you're careful while in the sun (screen block, long sleeves, hat and sun glasses) as the Olysio makes you very photosensitive.
Best wishes and let us know how it goes,
Mike
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I started Olysio and Solvadi on June 4th. Have had a few headaches, little nausea. My main issues would be the fatigue I experience and sun exposure . Other than that I am doing ok. After 2 weeks viral load went from 1,300,000 to 40. Doc says this is a great sign treatment will work for me. I sure hope so.
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I'm down to four more weeks left on the S/O combo. I feel great. I was cleared at 4 weeks. My blood work is beautiful with no issues, my head aches were on bright days...photo sensitivity thing. I had pain in my side but that's gone now too...I've even figured out the sun thing. If I don't hang out...I'm fine...I stay in the shade if I'm out. Eating great....sleeping great...brain is fast and true....alls good. Hang in there everyone....the first week was the hardest....body adjusting thing,...
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I've been on solvaldi/olysio for about two weeks. No side effects. Too soon to know results. Stay out of sun I wear a hat to cover my bald head
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Sovaldi/Olysio:
Began Hep C Treatment: Sovaldi/Olysio April 23, 2014
Zero at 40 days into 3 month treatment for type 1b.
Beginning Viral Load = 4,200,000
No prior interferon treatment.
Viral load march = 2.5 million, 4.6 million last year
Viral load june = ZERO!
Sovaldi is amazing!!
Notes:
I felt a difference as early as 2 weeks...I noticed "that enlarged liver" feeling GONE Thank God!!
Side FX: tired - nothing I can't handle, insomnia, minimal infrequent nausea
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Side effects continued...
My urine has fluctuated from very yellow to clear...almost feel like my body is flushing itself. I try to keep drinking water as much as I can tolerate. I recommend "True Lemon" packets which comes in packets meant to be added to standard water bottle size.
I'm on my last 2 weeks and I also feel like my body is flushing itself...because of the often yellow urine.
Energy level is off the charts and insomnia is getting worse.
The occasional dull minor headaches have pretty much subsided since starting into my last month.
Hang in there...it gets better!
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Hi
Im from Sweden so forgive for my poor english and spellin.
Im Female 53 years old. Got Hep 1978 without knowing. Found out 2010 and start an Interferon treatment. Had to stop because it didnt work. 2011-11-11 i did a livertransplant. New try with interferon last spring 2013' had to stop that too because of a huge and dangerous rejection.
Now im on my 16:th day of Olysio and Sovaldi. Took the first bloodtest monday two days ago. They will call me tomorrow. I have 23 milion virus. First time i "only" had 2.3 milion.
So far i feel great, small pain in the head. I feel like a fast car thats perfect with flat tires if you understand what i mean. I didnt know it took so fast to feel different but i do.
Here in Sweden we are about 50 people ho can take this medicin, it was released in may, so there is noone to talk about experience and questions, so i found this forum and it makes me so happy to read what you all have been thru. I come back i tell you what the bloodtest say, i hope its good news.
I got the Hep from a blodtransfusion i did in the hospital :(
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Got the call from nurse. I had 23 milion 2 weeks ago, today i have 2430 thousend. Im so happy and i even feel better today, its small changing each day. I feel clear inside my head in a strange way.
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Had 4th checkup after 2 full weeks of Solvaldi and Olysio. Started with viral load of 4,700,000. After one week it was 1,440! Feeling better. No side effects. 10 more weeks to go. This whole experience is unbelievable. I'm in a drug trial. They pay for it all. In South Carolina, USA.
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Annette-- great to hear about your good results.
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Man that Sovaldi is amazing. Great news!
Mike
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hey ANETTE, WELCOME, I WAS IN FRANKFURT GERMANY AWHILE BACK AND WAS DATING A SWEEDISH LADY. I HAD A CHOICE AT ONE POINT,DESERT FROM MILATARY AND GO TO SWEEDEN TO LIVE OR CARRYON SPITSHINING MY BOOTS.BY THE WAY MY ENGLISH ISNT TO GOOD EITHER AND IM FROM USA LOL ANYWAY YOUR ENGLISH WAS FINE AND THIS IS A GREAT FORUM AND BEST OF LUCK TO YOU. WILLIE G
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Thank you Willie. Its a pity you dint choose Sweden, great country. My treatment are sort of free. You pay 140 $ and after that you have a free year at any hospital! surgery, everything that is about your health. When 1 year pass, you pay another 140$ and there you go, a new year of everything free.
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Wondering how you are doing Sasumo hope all is going well!
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Mustmove, Day 42 out of 84 today for me. Yep half way today. Sovaldi and Olysio is a piece of cake.. I was on the Peg and Rib in 2001 and that almost killed me. If you keep yourself busy and nap if your tired the days will fly by. I get up real early and have a small breakfast take my pills and what little side effects these drugs have are gone by noon. After 3 weeks my HEP C RNA my test came back as not being detected. I hope that means its gone and the drugs are not just masking the disease from the lab testing for the HEP C. After living with this MONSTER for 43 years and having tried every plant, grass, herb, and tree in ten countries LOL not counting the PEG/RIB I have high hopes this combination... good luck and welcome to the forum... Sincerely Jim
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I am dong great thanks! My bloodwork has continually come back with the virus as 'undetectable'. I was advised that if the virus is to return, it will probably be within the first 4 weeks after treatment. My last pills will be July 15th....then the blood tests in August will be very critical! I am very grateful so far.
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Sasumo, i cross my fingers for you. It will be fine, im sure of that after i only had read fairytells stories about this medicin. The medicine seems that it all is a dream. To good to be true. And it is all true. :)
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I just took my first dose a few minutes ago. Here's hoping I am on my way to a cure!
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Sasumo,
I will also take my last sovaldi 7/15! Feeling great thank God!
Fri 7/11 I get bloodwork...I will post results as soon as I get them.
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I just started the 12 week olysio / sovaldi treatment. So far no bad side effects except the photosensitivity. I went outside for twenty minutes with long pants and sleeves and lots of SPF 50. However I did not wear sunglasses. My eyes felt as if they had been flash burned by a welder and watered profusely the rest of the day. So be warned - cover up and wear sunglasses with good UV protection. Fatigue is slightly increased but I have been feeling that way for 5 or 6 years anyway.
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Doug, I had photo sensitivity for the first few weeks....now I just wear sunglasses. I go outside dressed for summer, but I don't hang in the sun....I'm fine...but in the beginning my skin felt prickly,,,,now...not so much.
I have 3 and a half weeks left on the S/O....and I saw my docs for the last time for 6 months,,,,I guess I'm done,... A few more blood tests...12 weeks..6 months....I cleared at 4 weeks and feel great....no side efffects anymore,,,,
It feels uneventful, it feels like I should have a big party...or something to start the beginning of my new life,,,...and no...I'm not planning on relapsing,,,..I feel cured and it's finally over, a few years ago I thought this day would ever come,,,,but it has.
Wow.....
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Hi again. I have one questin. Does anyone of you notice a different on weight? Did you in that case increase in weight or lose weight? I can feel that i have more water inside, i feel a little swollen. Maybe because its very hot here now in Sweden.
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I started with a viral load that was fluctuating between 6 and 4 million after 4 wks of SOVALDI and Olysio it has gone down to 15 million. Is there still hope for a viral response? Is this normal?
I want so badly for this to work!
My doctor doesn't have any experience with these meds she's not sure!!
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Anette,
I have put on some weight & can feel that i have more water inside but, no swollen feeling. After second week of treatment I lost that "enlarged liver feeling"...
7/15 is my last pill day.
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has anyone noticed a difference in taste? it is only day 4 for me and it seems like everything I eat tastes bland and kind of nasty. if anyone experienced this did it pass? I think if this persists I will surely loose some weight. I have lost about 30 pounds of muscle mass already and can not afford to loose any more.
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Amos, I don't know what to say, please let me know what thoe doc says.....this would concern me too,
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I noticed it - but I was on SOL+INTF+RIBV.
When I was treated in 2001 with 48 weeks of INTF+RIBV I didn't notice any new taste - though Ribvirin is know to cause a metallic taste for some.
The taste I noticed when on Solvaldi, seemed to be "peppery" type taste; however it could have been caused by the RIBV.
It's hard to separate this out - since I didn't have the taste in 2001.
Best wishes, Mike
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Im on day 19 now. I have not noticed anything with the taste, what i do now is that i have a rinnning nose directly after a meal. It stays only a couple of minutes, then its gone. Anyone else?
Once again...i feel clearer and clearen i my head each day. So fantastic, its hard to catch up the feeling, everything went so fast. I feel happy inside, i cant remember when i had this feelings before. :)
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it's not a bad taste in my mouth. it's just that whatever I do eat tastes the same-- tastesless, and bland like a rice cake.
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That is a common side effect from many medications and supplements, not just hep C ones. I tried varying my food, and found myself eating foods I previously disliked. Also, I focused on textures, esp. crisp foods.
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For the first 2 weeks no matter what I ate it left a bad taste in my mouth. I could taste everything but it was kinda nasty after taste. If I brushed my teeth or chewed peppermint gum it helped. It went away after a couple weeks. Same with the itchiness and headaches. I'm just starting my 6th week Sovaldi and Olysio, there really isn't much left for side effects. If I get to hot and sweaty I feel queasy. If I go to long without eating I get the same feeling. A little more lack of stamina maybe. I have no problem eating anything spicy or not. It really is so easy compared to the Interferon and Ribaviron. My 4 week blood work said all my liver functions, alt, ast, etc. Are normal. My viral load has not come back yet but I'm expecting good news. I'm thinking the only reason they are still prescribing Interferon is ignorance or $$$..
Jim
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Hey everyone life is so so so good on these new drugs.. Day 45 on S/O and I swear I m in Disney Land. LOL with hopes of taking my Grand Babies once these drugs kill this MONSTER that has been attacking my liver for 43 years. After going thru the PEG/RIBV study in 2001 this is nothing short of miracle drugs sent from the Heavens. I have to laugh a little reading these reply s about what food tastes like, runny noses for a few minutes , a slight itch problem etc , OH if only you knew what side effects were on the previous treatments you would be saving your time instead of talking about such little things. To the Guy thinking they continue this treatment for money could not be more in the wrong. The HEP C is not in your blood if you texts come back UNDECTACBLE but it is still in the liver so that's why we all are to take the drugs for the 84 days. I thought the same until a very smart lady set me straight. To all my HEP C WARRIORs friends on here good luck and spread the word " We will be cured" So Head up , shoulders back, crank up some good tunes and look forward to life without HEP C... Jim
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I had a runny nose in the first couple of weeks-in the am then it would stop. I have been eating better than ever, no taste change, I do feel a little "swollen", but I have been eating a lot! (And staying inside a lot due to the photosensitivity issue).
Also, I was wondering--on the first blood test out did anyone have elevated white blood counts?
If you want to know, the reason I ask is that I have been having pain in my back which "felt" like an infection, but my doctor said it was due to constipation--I found that a little difficult to swallow as the constipation only lasted about a week and the pain has persisted all the way until now As a matter of fact, it got really bad when I started the Olysio and Sovaldi, (right around the time I took the blood test)but for the last week or so it has leveled off (this is week 5 for me).
One of the reasons my doctor gave me for not thinking my back problem was an infection was because my blood results came back pretty normal-no elevation for wbc's--until, as I mentioned earlier, I got the one for the first week back and noticed that it was flagged in several places for high white blood cell count. When I asked my doc he said it was probably due to the Hep C meds--but I haven't read anywhere about change in wbc count being an effect. As a matter of fact I have read the opposite that blood counts tend to be normal.
All this because if I do have a lingering infection I would like to get rid of it.
So if you would let me know about your blood results normal for wbc or not--I might make a decision to pursue the matter with my doc; or not
Thanks for reading this
And thank you all for your posts I feel so much less alone and connected with a group of people who are going through the same thing I am. Most of my friends do not have a clue about Hep C and my children think I'm being a hypochondriac! Hahaha
So my wish for you is the strenght and fortitude to Fight the good fight! And carry on!
Amo
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Hi Jim and all you others!
First of all congrats of your new feeling you have, i have the same. Its a beautiful world i live in now.
The topic of this subject is sideeffects, that why i told about my rinnning nose, i think its a sideeffect of this medicine, i have never had that before.
And i also agree about the PEG/RIBV. i did 2 times with not good resault. The last time i almost die because im livertransplant and after 3 month with PEG/RIBV i got a huge rejection. Beside that i was sooooo sick of the sideeffect. So i was quit scary to try this combo. It took a while before the sideeffect start to show of PEG/RIBV for me, so im curios to hear about it more of ppl that has started this new with Olysio and Sovaldi.
Take care!
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Oh ok so I need to ask did anyone else have the side effect of white blood count going up in their first week, or any other week for that matter?
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ok, now I feel silly for complaining about a bland tasting taco after knowing what all of you who have had to endure interferon have been through. 3 days later it seems better now. how about depression, anyone? is this treatment going to make a difference in quality of life? will I notice any difference? I am wondering if this was the right decision to try treatment at all. even if the hep C is cured 100% it won't undo the chirrosis etc. am I being ungrateful? I don't know
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I hope that no one thinks that I am complaining about the treatment. I am so thankful and grateful that it exists at all! I have waited a long time for it, maybe not as long as others and no, I didn't do the interferon treatment- my doc told me I shouldn't because of other meds I take (ADHD), also because I am a single working mother and there wouldn't have been any way for me to take care of the bills or my kids! But I have read all about the interferon treatments and I feel sad for the many people here and other places did not get a cure for all their trouble.
So when I am talking about side effects with this medicine I'm really letting ms Porter know ANYTHING at all in case it is helpful to other dragon warriors.
On Saturdays I normally work all day outside in the grueling Alabama heat i have gotten side effects which with the help of this forum I recognize as probably being related to photo sensitivity-I get itchy isolated bumps, my eyes swell up and I'm super fatigued the next day. I wear sunblock a hat sun glasses with a long sleeved shirt and long pants. Ever couple of days I get a little queasy stomach and I get headaches not too severe except on the first day after being in the sun. I was getting super hungry and eating like crazy but that has subsided; I was diagnosed with insulin resistance this year and that was one of the reasons -- ravenous hunger. Also as I mentioned earlier my first week blood test the white blood cell count was very high, much higher than the one previous when I wasn't on the meds.
Good effects my BP which was just hovering on the high range has settled down to an average of 117/76 which is excellent. I was really foggy headed and having lots of trouble with remembering simple tasks I am a teacher I have to remember things-so now I notice a marked difference in that ability. I was startled at how much my vision has improved from within 30 minutes of my first dose.
Well that's all I know for right now. As I said I'm not complaining - I'm ecstatic, but since we were asked to comment, I am commenting. My heart goes out to those of you who hVe suffered or are suffering from the interferon treatments, and I wish everyone well. My life certainly has other areas where I have not been so fortunate as I feel that I have been with this tx.
I am a 56 year woman and my 4 week test came back with a reduction from a high of anywhere from 15million to 6 million to 1.5 million.
Maybe the next forum could be on detailed experiences of those of you who have undetectable blood results to see if there is any kind of correlation to be found like did you all stay completely out of the sun?
Y'all have a blessed day!
amo
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Thanks everyone for this info. Amo - I am going to message you with some questions. I sure appreciate hearing peoples' experiences.
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The photosensitivity has decreased significantly for me, I'm near seven weeks in, and it's a shadow of it's former self.
I just got my zero yesterday, and my fight with the sun has been aided by umbrellas, lots of water, sunscreen, near blackout sunglasses, rest and wearing mostly workout clothes.
Amo,
Also, you don't need to be concerned about complaining, treatments are rough. This virus is rough, let off what emotional steam you can.
The measure of our struggles is not by events or the fires within it, but by our perpetual existence, our defiance and ultimately our resilience. We share our troubles so that we may find common ground and grow and fight together :)
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Today is the day 25 of treatment. I have felt sad all day today. do not know if it's because the drugs because I have no reason to feel like this
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Anette, and fellow HEP C warrior so sorry for the sad day but being on the best two drugs ever made to fight this liver killer is a time to reflect on the fact that life will be the best you and I have had once the disease is gone... Put on some good tunes and crank it up. Shut your eyes and dance . good luck Jimmy t
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Day 2 of sadness. I know I have nothing to be sad about but feel like this anyway. what do you think, is it the medication that causes it to me?
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hi, I FINALLY RECIEVED MY PACA IN THE MAIL TOOK MY FIRST SOLVADI AND OYLISIO AT 9;30 SO I WILL KEEP YAS POSTED. LESS WORRYING NOW ABOUT WHOLE DEAL. THX EVERYBODY AND ILL GIVE YOU A DAILY UPDATE/ 9;30 AM TODAY 150K TO GET MEDS GENO 1 1200000 7.1 IU WILLE G
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That's great news, Willie. Your sword arrived and you're read to slay this dragon!
Best wishes, Mike
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Good luck Willie to your journey to become virusfree!!!!!
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thanyou Annette and mike, the journey has begun, I took med s 930am 1047 I felt queasy and I drank a half of a liter of flavored water with it, I got real tired, crashed till around 830 pm at 6pm I ate healthy kinda crashed from my meds at 830 pm I kinda crashed till 10pm now I am up cant sleep and have that pain in my right side and a little hyper,plus I have a pulsing pain in left side up by breast, drinking again and here I am, I had those symptoms before plus more like itching in feet area and arms. no itching as of yet which is cool are solvadi and olysio considered like a form of chemo only oral. its a nucleate right which is used in chemo right. I don't think I spelled that right. thx again and that constant itching before is now so far a relief. willie g
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sorry to hear about that depression Annette,that's a tough one because I have been on depression meds for quite awhile, the Zoloft and clonazepam together has always done well for me plus I take temazepam for sleep for quite awhile and also lamictal plus my pain meds from severe trauma and many injuries which is oxcicotin, its funny when you take opiates for the right reason instead for a buzz I have never abused it.in old days my riding buddies use to take what we called "trailmix' ,we take whatever the girls brought back from quack drs. most controlled drugs and then we would smoke up get on our Harleys and off wed go! crazy I know and as the commercial says DONT TRY THIS AT HOME! LOL, I WISH I WASNT ON ANTIDEPREESENTS AND I HAVE TRIED TO GET OFF THEM BUT THATS A BAD RIDE IN ITSELF. I DONT KNOW IF WEED IS LEGAL IN SWEEDEN BUT IT SURE WORKS WITH DEPRESSION. I NORMALLY DONT SMOKEIT ANYMORE BUT BET YOUR ASS I HAVE SOME NOW JUST IN CASE. I KNOW ILL BE APPROVED FOR IT ONCE IT GOES THRU CHANNELS. CUOMO [GOVENOR[ HAS SAID ITS AGO BUT IT WILL BE ONLY IN PILL AND LIQUID FORM . I THINK THAT IS THE LESSER EVIL THAN ANTIDEPPRESSANTS AND YOUR 59 SO YOUR A BIG GIRL TO MAKE THAT DECIDION. ANYONE OUT THERE THATS TRUTHFUL AND WANT TO SHARE IF YOUR DOING WEED OR NOT/? IT SURE MAKES YOU LAUGH AND IF YOUR LOSING WEIGHT IT GIVES YOU THE MUNCHIES WHICH IS ANOTHER PLUS. STICK AROUND POSITIVE FUNNY PEOPLE, AND IF YOU WERE SOCIAL BEFORE GET BACK OUT THERE AND BOOGIE. DONT LET THIS THING WE HAVE MAKE YOU FEEL ANY LESS THAN OTHERS. FRIG EM IF THEY DO! WE SHOULD ALL HAVE A HEP COOKOUT, SEE I MADE YOU SMILE. NO BOOZE THOUGH BUT WE COULD TOKE UP A LITTLE! LOL DONT TRY THIS AT HOME LOL NITE.GOODMORNING, AND GOOD DAY. WILLIE G
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I AM PRAYING TO MY CREATOR RIGHT NOW FOR YOU. PRAYER WORKS, JUST START ASKING AND TALIKING LIKE YOU WOULD NORMALLY TALK TO ANYONE. HES BEEN MY BEST FRIEND THRU LIFE AND THE CREATOR HAS NEVER LET ME DOWN. BURN SOME NICE INCENSE AND A NICE CANDLE OR BOTH PRAY, TALK AWAY AND ENJOY YOUR SPIRIT BEING ENERGISED. LATER SWEEDEN AND YOUR RIGHT AT TIMES I WISH I HAD MADE THAT DECISION TO MOVE THERE, BUT ILL BE BACK! AS ARNOLD SWISHINIGLER SAYS! MAN DID I SCREW HIS LAST NAME UP! LOL WILLIE G
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Willie.....ARNOLD SWISHINIGLER....there you got me, i really laugh out loud. Thank you for that!!!! Its morning here now in Sweden i i woke up normal...that means i feel no sadness at all. And no Willie, marijuana is not allowed here. You cant even buy alcohol anywhere you want. The goverment decide that we must buy it under controlled forms. Specialstores only open 09.00-18.00 Sunday closed.
Hang in there Willie and please uppdaterad your story. Together we all here are stronger. Its good to have feedback.
Edit i dont take drugs or drink alcohol.
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good for you about booze and drugs and im so glad you woke up happy, after I got offlime 130 am I tried sleep no luck and then about a half hour later itching and not comfortable in my own skin, its been a rough day but its only day 2 so ill and my body will need to get use to this,ive been drinking a lot of good stuff and im up and down and up and down to bathroom,its my bathroom workout lol willie g
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Willie...i hate taht, when the body itch. I had a huge rejection last year and my Bilirubin went up to 150. Back then i thought i loose my mind, couldnt sleep itching til blood came on my legs and feet.
I have small tips. 1. Fill small plasticbags with water, put in a fridge, let them be really really cold. Then nighttime if your feet itch, put the bags in big socks and put on. The cold makes the itch fade a way for a while and are you lucky you fell asleep.
2. I bought horseliniment....im not joking. When i put that on my body it went so cold and nice and i could relax from the itch in about 30 minutes or so.3 Put water in a bucket and alot of ice inside, put your feet hands whatever inside and sit so until you cant stand it. The bodyparts will be numb for a while and you can relax. If it itch on other parts i took the plasticbags with cold water and put them over the itchingarea.
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Hello everyone. My brother is type 1a with cirrhosis and MELD 20; treatment naive and started Sovaldi/olysio a few weeks ago. About a week later he had eruption of multiple blisters on hands/feet/face. After reading through this thread I am now more convinced the blisters were a result of photosensitivity. He has since been taken off the meds and will follow up with transplant program next week. I am hopeful that he can go back on the meds with extreme sun precautions. He would sit outside to warm up as he is often cold but not longer than 10 mins or so. Complicating matters is he has vitiligo where he has lost pigment in several areas of skin.......not surprisingly it was the unpigmented areas that blistered! I appreciate being able to read first hand experiences as this is fairly new treatment and as a previous poster mentioned this combo is not yet FDA approved.
Hello all,
Just wanted to update as I am amazed.....I know it may be short lived but at this point will take any positive news. My brother was on S/O for a total of one week and had to discontinue b/c of the above. Two weeks later the he had his RNA checked and it went from 60,000 to less than 15!!! :o We know this may be short lived but to see such tremendous response after just one week gives so much hope and that his levels were still low even two weeks after discontinuation! Thanks again for sharing your stories it helps to know that he is not alone!
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That is fantastic lilsis - I've seen a couple of these persist against all odds. Hope for a miracle or that he can go back on the meds.
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HEY FOLKS, DAY 4 SOLVADI ,OYLISIO, GOOD DAY OTHER THAN STILL NO PATTERN FOR SLEEPING, EACH DAY IS DIFFERENT, BUT I CAN HANDLE IT, IF YOU CANT SLEEP HAVE A GLASS OF MILK AND RAEADING IN DIM LIGHT HELPS, YOUR EYES FALL AND YOUR OFF TO 40 MINUTES TO 80 BEFORE WAKING,BUT COME 3 DAYS OF THAT YOU CRASH LIKE I DID FOR 3 AND HALF HOURS,THAT WAS GREAT! LITTLE ITCHING, LITTLE BITCHING, GOODDAY, MAN AM I LUCKY. LITTLE CONSTIPATION BUT EVERYTHING COMES OUT ALRIGHT. SO ANYONE WAITING FOR THESE TWO PILL COMBO WAIT! ITS WORTH IT. I WAS GOING TO JUMP RIGHT INTO INTERFERON TREATMENT.WELL I WAS ADVISED WILL JUST HANG ON SO I DID AND WITHIN 6 WEEKS I STARTED[SOMERWHERE IN THAT TIME PERIOD.I HAD TO MAKE SOME CALLS AND ONE WASNT SO PLEASENT ON MY END BUT A FEW FREAKY THINGS HAPPENED WHICH DELAYED IT. THX EVERYONE, I HOPE THIS HELPED A LITTLE, 2 HOURS ILL BE ON DAY 5, GENO 1 7.1 IU 12000000 MILILION VIRAL LOAD, MEDS TAKEN AT 9;30 AM EVERY DAY ;) WILLIE G
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THANKS ANETTE,SOUNDS GREAT FOR MY FEET IM ON IT BUT IM HAVING A LOT OF ITCHING ON MY UNDERCARRIAGE TOO, ILL HAVE TO FIND A GOOD SISZE SOCK FOR THAT LOL AND YES :MY WHOLE UNDECSRRIAGE NOT JUST GROIN AREA ETC,LOLO PILLOW CASE? HE HE THANKS, WILLIE G
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I have been on the combo for almost 2 weeks and the only side effect so far was itching all over but only for week one and the sun knocks me out when I am in it for a while.
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Thanks for sharing Steve. Please be careful of that photosensitivity, as it can get quite serious and difficult to get under control. Here is a blog I wrote about it, but honestly, staying out of the sun is the best measure. http://blogs.hepmag.com/lucindakporter/2014/06/hepatitis_c_treatmen_1.html (http://blogs.hepmag.com/lucindakporter/2014/06/hepatitis_c_treatmen_1.html)
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Hi fellow, and "fellowette", Hep C fighters! I have a question, and realize that there are probably a bunch of different answers, but that's all good as far as I'm concerned! I have gotten my rejections from my Insurance Company, which my Hepatology Team, seems to think is not such a bad thing, since it is so prevalent, with many of the new policies! They seem to feel that the sooner one receives their rejections, the sooner they are able to ask the other sources, such as Sovaldi's "My Path", as well as other patient assistance groups. I understand this, but am curious what sort of situations, others have had in securing their medication. My story is probably not any more remarkable than anyone else. I failed treatment for IA, Hep C, with Interferon, and Ribavirin, about 11 years ago! Like many others, it was horrendous, and made me consider suicide several times, but somehow got through the course of treatment (48 weeks) Yes, I also had about three years of side effects, and to this day, don't really know how much is from the original treatment, or my liver which was stage 2, eleven years ago. But now to happier thoughts! I am so excited by the prospect of these new drugs, but find that the wait is so rough. You would think after being diagnosed in 2002, and going through a failed treatment, that this would be an easy wait! Not so, because the anticipation of feeling like a human being again,(how ever that feels) is making me crazy! Feels like a kid waiting for the last day of school before summer vacation begins!
So, please tell me your stories! How long it took you to secure drugs, after you were rejected by your insurance companies, or how long it took, for those who had no insurance policies! I feel that the wait is no doubt, worth whatever it takes, but when a person is so sick for so long, waiting becomes most difficult! I'm just looking for the truth, and so happy to hear all the wonderful stories! Can't wait to help others to feel good after hearing my success story, when ever it is that it happens! Anything helpful clues to help me reach my dream would be most appreciated! And I know that there is always the chance of failure again, but I would be standing in line to any Casino that gave me a 90% chance of winning! Beat the Hell out of the fifty/fifty crap shoot I took back in 2003! Thanks all of you brave souls!
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Hang in there Roger. I was rejected by my insurance company back in February 2014 but my doctor and his office staff were right on top of it . They got J & J to supply me with Olysio first and after a few letters back and forth with Gilead I was accepted to their path program and have been on the meds over 2 weeks now. Hope this helps you and good luck
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I started Solvaldi and Olysio July 10th, no real side effects so far. I thought maybe a mild headache but now believe it is my sinus/allergies. I feel good and workout most everyday. I was diagnosed in 1993 I think. I have never done any other treatment than this. I get my first bloodwork done next week and see the Doc the following week for the results. I have just turned this over to my higher power, because otherwise I will go insane with my thoughts of impending doom :). I really believe my attitude is better as I have read other people say also. My opinion, other people in my life may not think so.. I hope this really is a cure, I have lived under a cloud of fear for so long, but I really feel this is my time to smiley..
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Good Morning
I am on week six with all three meds. I can say that the side effects are noticeable and changing. I have days of intensity and other days that I find it hard to stay awake. The sun issue is very big but with a lot of sun screen and a new larger hat I have solved that issue.That being said my liver functions are normal after my first round of testing. Did not test for viral load. All said it seem to be working and I can't wait to finish.
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I have been on them for eight weeks, after four weeks I had my blood work done the hep C Virus was undetectable!
The side effects are very minimal, I have red hair and use two types of sun screen both SPF 50. This keeps me from any over exposure from the sun.
I do get head acks, one Tylenol 50 mg is all I need.
I was on interferon and ribavirin three different times it was very bad to say the lest.
If you are lucky enough to get on Sovaldi and Olysio do it, I have four weeks to go and i feel great. Good Luck
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What a coincidence Kschaff, your story could be mine. We have done the same things and have the same side effect and kept on as long I can be snotty immediately after a meal, but that's all.
Sorry for my english, im from Sweden
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My story same. Been on S and O for 8 weeks and virus non detectable. Side effects even sun have not been a problem. After three times on interferon this scares me it has been so easy. Actually going fishing this afternoon. Should not say that as now it's sure to bite me in ass. Good luck to all of you.
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began SOV/Olysio 12 days ago, No side effects; am Gen 1a. Cried the day my ins. called and said they were covering, all I pay is total of $85 co-pay. Did interferon but quit as I wanted to croak. I am 57 yo female (nurse) dx in '91. Praise God for this cure! Also, I take these meds in evening, which I think helps. Best of luck to you all, and again, Glory to God!!
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My significant other is on fourth week of sovaldi abd olysio and ribaverin. first two weeks were great now the fatigue has been terrible and the last four days she's had like seizures not grand mall but last about 30seconds. has anyone else experienced this.she's like stage 4 level 3 and has a lit of confusion due to ammonia in her blood.any help ?
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Starting week 3 today and got my second what I assume to be anxiety attack today for no reason. Has anyone else gotten these which for me consisted of sweats,increased blood pressure , hyperventilating?
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Dear Steve,
Before I started tx I saw my PCP and he gave me Rx for alprazolam (anxiety-which I haven't needed yet) and zolpidem (Ambien) which I do use. I had read from previous folks tx that insomnia and anxiety might result. I am very careful about taking things. I also told him about poss. rashes that have occurred w/some people and told him to be on "standby" if I need something for that. I am just a proactive (a/k/a OCD) nurse so wanted to have my ducks in a row...LOL
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Steve,
Oops, I would be remiss if I didn't advise you to contact your PCP re: the high blood pressure, since that is never anything to ignore. I don't remember reading about that being a significant side effect so better to check it out. :)
Karen
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Thanks Karen.. I went to the er last week when it happened but after ekg and 2 hours at 130/74 they sent me home. I wasn't sure if I was getting Anxiety attacks all of a sudden or the meds caused them
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I need to retract something in my first post.my partner Carol has had hep c for many years. she was a RN for 28 years and was exposed as a nurse.she's been really sick for the past year. she has encephalopathy and has a problem with ammonia in her blood .we have had a difficult year . about. 5 months ago her gastro dr. told us that her liver would never stand the meds and that there was nothing they could do. basically just monitor her until the disease killed her...then about 2 weeks later we got a call from the dr. and they wanted to try her on the new meds sovaldi olysio and ribavirin. i started researching and was excited it was about 4 months getting approval so here we are friday will complete her 4th week .i thought other day she was having seizures but now i realized it was low BP when she would stand to walk she would collapse jerking . she was dehydrated after i have poured the gatorade to her she's doing better
she's taking lactulose to help with ammonia so i have to be careful with hydration .but we again have hope. thanks for all sharing your struggles it really helps good luck all
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I went through clinical trials of interferon in 97 did not work .tried again with riberveron in 2010 did not work. could not work , wiped me out. have been on sovaldi & olysio for 12 days this so far is easy. like many of you I am taking my meds at night. I got up the next morning feeling as if I had more energy. so far no rash or headaches. I have felt a bit more tired this week than last. believe me if this is as bad as I will feel this will be a breeze. good luck to all even if it does not work for me, I will be pulling for YOU!!!!!!!!
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relicman, believe me when I say that with almost 99% certainty say that it will work for you too. because the odds are bad, I dare not bet! :)
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I had to bring Carol to the hospital ER yesterday today completes 4 weeks of S and O she really got weak could barely walk . after seeing the e r dr. he said she was very anemic so she's had 3 pints of blood. I know that's a side effect. but has anyone else had to have blood after 4 weeks. ? Just curious . don't know if I'm doing this right I haven't had anyone respond to my posts
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Sorry but it sounds like Carol has a much advanced case. I have had HepC for almost forty years. I went thru Interfuron and Riv 3 different times and my blood dropped so low last time I had to come off. Is Carol on anything besides S and O? I'm 9 weeks into S and O with very little side effects. Hopefully Carol will pull out of this and she will recover.
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drady4,
It does sound like Carol has a more advanced disease; however, I would have thought that her physician would have ordered standard blood test (CBC, liver panel) after 2 weeks of treatment, again at 4 weeks, etc, particularly given her history. These meds have to be powerful enough to kill and keep the virus from replicating, therefore, a person without advanced liver disease and other co-morbidities will probably experience less side effects and issues than someone with advanced disease. When they indicated there was nothing else to do, had they never talked about a transplant or was she not a candidate??
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Draydy4 - I am confused as to why Carol is on ribavirin - most of those who are taking Olysio+Sovaldi have advanced disease and can't handle ifn/ribavirin, thus they are taking O+S. Ribavirin has lots of side effects.
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My doctor has me taking blood test every two weeks? Do not understand that not being for everyone at least for the first six weeks. I am not taking anything but S and O. Riv is terrible.
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Hi guys so glad someone replied to try and answer questions Carol is advanced we were told she was stage 4 level 3 she's had hep c for 30 plus years and has never before had any treatment she's taking sovaldi olysio and ribavirin i don't know why she's on ribavirin.could that be why she lost so much blood ? We have been doing blood work every week.at the end of third week her viral count went from 1.3 million to 86,000 today is end of fourth week but something is really kicking her butt. she's been afraid they may take her off meds. we were supposed to see gastro dr. today but she's here in hospital . they had at one point told us there was nothing they could.do without mention of transplant she is 58 and has used alcohol but she's been quit for over 3 years without any relapse I'm si proud of her.let me know what you all think or if i didn't answer any questions. and thanks guys
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The Riv is probably what is causing most of problems. Believe that was what my problem was. Her Count has come down that much I would think they would take chance and leave her on her current meds. Good luck and hang in there
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Thanks JohnJ i tend to agree that they should leave her on. I rescheduled her appt. with gastro. dr. for Tuesday so guess we'll know then. another thing that has me concerned is her liver is decompensated if we get rid of the virus will her liver get any better ? Maybe lporterrn you might shed some light on this. they kept carol at hospital another night because of the ammonia level is 70 and they want it lower. so do i but we have struggled with ammonia for almost a year and all they're doing is giving lactulose we do that at home. the blood has really made her better . this is a terrible disease and i pray that this medicine will heal all you guys and defeat hep c forever .until then we will fight the good fight..
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Hi all I started S/O treatment on 7/31/14 so far have had no side effects, but must stay out of the Sun other people have warned me of Severe burns on this treatment This is a walk in the park compared to Interferon ribavarin by the way I would like to tell everyone there is another drug which will be available shortly which is ledipsavir combined with Sovaldi which will make treatment even shorter Don't know why doctors r still using S/O with ribavarin but that's not my call will keep you posted
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I'm certainly not a doctor but the liver will regenerate itself if there is not too much damage. If S and O can cure the Hep C and the liver has time to regenerate, it could be your answer. Right now she has to fight thru current issues. Will keep you and Carol both in our thoughts. Keep charging. No retreat.
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Thanks JohnJ i understand we aren't dr.s but i feel the same that's what we're praying for.and yes we will fight this beast .i do appreciate your concern we also be thinking and praying for you and all on this forum . i have read about all posts and it has been helpful.have a great day JohnJ
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Thought we had missed our chance to go home from hospital but we're soon to be released .The dr. told me that he believed the ribivirin was kill her red cells . so I'm waiting to see what gastro. dr. has to say Tuesday . if anyone has had this issue let me know . Knowledge is power. Carols feeling much better .God is good.
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Exactly what Riv did to me last time I was on that treatment and had to stop after two months. Only on S and O now and no problem. I would think if continues they could take her off Riv and just continue with S and O? Just keep putting one foot in front of other. She can do this.
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Ribavirin has a 12 day half life, which means 1200units turns into 600 in 12 days.
So it remains that long. Then 12 days into 300 units. So if taking 1200 units a day then it builds up to a tremendous amount. Be educated, I am on this regimen now
and am monitoring my symptoms closely, as I will not see my Doctor till 9 weeks into
treatment, he is in Italy. The rash is first, then strong fatigue with sweating and shortness of breath. If this happens don't wait for your doctor to return to the office.
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Carol was experiencing the strong fatigue and shortness of breath .of course blood being 3 pints low would cause this I'm sure. one thing I want all to know while she was experiencing these problems for 3 or 4 days before I finally said enough we're going to the hospital . we were trying to make it to the gastro drs. appointment which was supposed to be friday and we went to ER on Thursday .Point being I shouldn't have waited around . If something like thiss is happening get to the dr. the hospital dr. told me today before releasing her he felt the ribavirin was causing the anemia. thing is Carol has been doing blood work every week and i thought if blood work was that bad someone should have called us in to dr. I'm not going to blame the dr. but kinda feel someone dropped the ball.take care rainbowray. and have you had your blood checked ?
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Hi Dray,
Thanks, I will get a blood draw for liver panel and metabolic panel Wednesday. My 2 week draw showed good numbers so I am always watching. It is not easy but a necessity to be on the watch tower so to speak. Keep an eye on hemocrit and hemoglobin numbers. Platlets is important. Albium is a key number.
I might be over vigilant but better than not being prepared. I am the type of person to here what the doctor says, and then look up all the info myself cause I need an assurance. Many times in my past did I walk out of a Doctors office and seek another
because I did not like what I was told. But that is me, if you talk to your doctor and he gives a valid point and listens then you judge the situation.
HepC is not a straight up deal, everyone reacts in different ways, even if genotypes are the same sometimes other factors are involved.
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"I have five weeks left on Sovaldi & Olysio only. My doctor doesn't use Ribiviran or Interferon any longer. According to the latest studies Ribiviran only increases the cure rate by around 5% and prescribing just the two alone is considered off label. The clinic I attend is at a very large teaching hospital that is heavily involved in clinical trials. At 4 weeks I was UD and I had my first normal liver panel in 23 years."
I had previously posted the above in my introduction post to the forum. I am in a F4 state of fibrosis but in much better shape than a lot of people who turn up at my clinic because they handle the worst cases in my state. Since Ribiviran is hard on red blood cells and Interferion is a platelet killer and both can have terrible sides, is the reason my Dr. now only uses S&O when she can get a patients insurance to pay for it. She told me that if I am one of the 5-7% that fail to clear it that several new meds are coming out in the late fall with a 99% cure.
As for my own side effects, I have had a minor few but nothing to even consider stopping. I switched to taking my meds at night with a snack because they make me sleepy. Also, and this one has me puzzled, as my mind is very clear and without the fog some describe, I am having trouble with spelling and typing. It is almost like I am dyslexic. When I type some words come out backwards or completely misspelled. I have to spellcheck everything I post so people want think that I am an idiot. I still speak correctly and can do complicated math equations without any problem so my Dr. has ruled out a stroke or some kind of dementia problem.
On the positive side, my GI system is working great without any problems. I stay hungry and I have been eating like a hog. I have already gained 8 lbs
in 7 weeks.
Bucky....not Becky
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Bucky,
I wish all Doctors were like the one you have, sounds caring. I'm on Sol/rib and watching symptoms closely since day one.
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The last experiment with rib / interferon was summer 2013 to avoid anemia, I received a so-called blood doping in the form of a syringe. do you have it in the United States as well? The same doping as is common in skiers.
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Bucky,
I wish all Doctors were like the one you have, sounds caring. I'm on Sol/rib and watching symptoms closely since day one.
Hello rainbowray,
Yes, I really lucked up when I was assigned to her all those years ago. She had just come to the hospital from Colombia, South America and her English wasn't that great but now she has a lovely Southern / Latino accent. She has been heavily involved in research trials for both HIV & HepC medications and is one smart person. She told me about DDAs several years ago when the first trial started.
Bucky
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MMMIAMI, like to know what Dr. you are with in Miami. Thanks
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Error he is not a transplant surgeon
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Hi Everyone,
I am moving a few of the most recent posts, so if you are wondering where your post is, you will see that it is now a new topic. I want to be sure your issues get the attention they deserve. Sometime they get lost in these long posts.
Thank you all for your participation in this forum. I have been in many online hep C groups since 1997, and this is by far the nicest, most supportive group I've encountered.
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I'm going on my 4th week of s/o. Side effects are changing, I had more energy for the first couple of weeks, now I feel more fatigue but not overwhelming. I am, however, experiencing super hot flashes, and my hands are hot. The weather is very hot but I have never felt it this much. Also, my feet burn. I haven't spoken to my Dr. about this. Maybe someone else has experienced this? I feel like the virus is burning out of me.
Will be tested in 2 days, hope to be "undetected". I am extremely grateful to every one involved in creating this cure and making it available. What a miracle!!
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Roger,
I got denied my first attempt. My situation is probably different than most though...
I pushed my doc to resubmit stressing the fact that my platlet counts were averaging 70,000 because I have Lymphoma.
Truthfully I thought that desperate excuse would surely result in a second denial! I figured they would not want to approve a new drug with my other complications. Shockingly my insurance called 4 days after my doc resubmitted!
My liver condition was chronic, ammonia issues / encephalopathy, cirrhosis... I take Xifaxan, Pantaprozal & was taking Lactulose too. I had Hep-C for 30 years but, never had issues until the last 5 yrs.
Now the good news!
I get my next viral load test in October. That will mark 3 months after completing Sovaldi + Olysio. I am virus free & all my liver panels are NORMAL! Praise God!
I feel great, my thinking is crystal clear, my acid reflex has subsided, no more liver swollen feeling, bowel movement issues are almost perfect...
I'll let you all know my results in October...
I pray all have similar results!
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does anyone know how effective these meds. are on geno type 1a
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My understanding is 90 plus percent. Pretty good odds
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hi relicman, I am Genoa 1 twentyfive million ,7.1 geno 1 and I have been in treatment for four weeks, just started a new bottle two days ago, I get itchy, have headache here and there , not a lot of steady sleep, and sensitive to sun and I get a flair up still on my liver and still have that golf ball feeling there but not as much. I am on solv. oylisio and I am on other meds besides that for other stuff, my
palms itch once in awhile[so I am still waiting for a winning lottery ticket lol] so things come and go just like this disease I hope. but if your not comfortable in your own skin, and really having a hard time then heck ya, give the doc. a call. cant hurt and you may have an allergy towards it or something else your taking. drink good fluids, eat well, I now have healthy snacks during the day. that stuff has really helped for me, hang in there,,,,,, willie g
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I have been on sovaldi & olysio for 18 days, saw my doctor this week for first time since starting, no results yet on blood work. he told me not to get my hopes too high. that there is a possibility this may not work. so far I haven t had any side effects . I am also on other meds for lower back pain, herniated disc. also watching me for lyme disease, I tested positive for lyme antibodies.
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I have been on sovaldi & olysio for 18 days, saw my doctor this week for first time since starting, no results yet on blood work. he told me not to get my hopes too high. that there is a possibility this may not work. so far I haven t had any side effects . I am also on other meds for lower back pain, herniated disc. also watching me for lyme disease, I tested positive for lyme antibodies.
relicman, It sounds like you have a pessimistic doctor. Without knowing him/her personally I shouldn't judge, but a 90-93% cure rate has my doctor and me very excited since the old Interferon & Ribiviren treatment had a cure rate of less than 50%. That is almost double the old treatment! This forum has many members who failed or relapsed after treatment using I&R and have cleared the virus using S&O.
Do you think that your Dr. made the comment because of the lyme antibodies? There are people successively being cure who are HIV+ with less than perfect immune systems. And on the outside chance you are one of the 7-10% there are other meds coming out this fall with an even higher success rate.
Please post your results from your blood work if you feel comfortable doing that.
Bucky
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he did say that if its working we should see a significant decrease in viral count. have no problem letting you know what blood work tells. I also went through I & r twice, once Int. only next time both. this so far has been very easy.
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he did say that if its working we should see a significant decrease in viral count. have no problem letting you know what blood work tells. I also went through I & r twice, once Int. only next time both. this so far has been very easy.
You certainly have my respect and admiration for your past attempts to treat your C. I wouldn't do it because of the low success rate and side effects of I&R. I waited several years for these drugs since I knew they were in trials.
My Dr. told me that a very large percentage of people go from a high VL to UD in the first month and she sees a lot of patients in clinic. The very few who didn't were rechecked at two months and were UD.
Bucky
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Hi KC56,
I am fairly new at this moderating, and in a moment of trying to be helpful, I thought I'd move your post and start a new topic so it can get the attention it deserves. I moved Bucky's response to it - It's under "New on dual Sovaldi and Olysio" - I moved Bucky's reply, so be sure to see that.
Hope you get more feedback. Good luck on your treatment.
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Eighteen days ago I started Sovaldi and Olysio. The first 5 days, I felt horrible. I couldn't understand why I felt like the last 2 treatments. I found out I had strep throat.
Today is day 18. I felt horrible again. I was working on a ladder today for work and the joint pain was crippling.
It is important to me to be grateful. Today it was difficult to feel gratitude.
It seems most people don't experience the sides that I am experiencing.
I'm 1a, CT Il28B, no Q80Kpolymorphism. 1.3 million viral load. Maybe tomorrow will be better. I am not usually on a ladder for work, but it is necessary to paint a mural.
I have noticed the joint pain is worse.
It makes me happy to see so many people cured!
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And I am 62 year old female
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We'll my second day on sovadi and olysio and feel bad. Sinuses are burning bad. Sinus headache. Any one else? Seems we have extreme high pressure system and dry hot air right now in Houston, sure is coincidental though. Feels like winter in my head. Was hoping to be non eventful, but I am very thankful for this opportunity.
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Kc,
I am sorry you don't good, but I appreciate your share. It makes me feel less crazy. I bet you'll better soon!
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well folks, I got the results of my blood work from last week. at the time of testing I had been on S & O for 16 days. I had told my wife that ( it may be in my head but I feel as if I have more energy) now I know it was not. hep-c is undetectable gone , no more, by by old buddy, hot damn! I do know 6 months after treatment ends will be the real test , but at least it gives you hope. thanks so much to the R & D people for trying to help us all. GOOD LUCK EVERYONE!!!!!!!!
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Congratulations, relicman! Ain't it grand! I just got my undetected yesterday and yeah, it's a wonderful life! Good work!!
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Nice!
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Wow relicman - that was fast and powerful!
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relicman.....both tumbs up from Sweden. I know the feeling. Its great!
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well folks, I got the results of my blood work from last week. at the time of testing I had been on S & O for 16 days. I had told my wife that ( it may be in my head but I feel as if I have more energy) now I know it was not. hep-c is undetectable gone , no more, by by old buddy, hot damn! I do know 6 months after treatment ends will be the real test , but at least it gives you hope. thanks so much to the R & D people for trying to help us all. GOOD LUCK EVERYONE!!!!!!!!
Relicman, Really great news!!! My Dr. had me wait a month before the first vampire attack, and I was UD then. Some of your feeling are in your head but in a good way. The fact that there is finally a good effective treatment with a 90%+ cure rate was enough to make me cry when approval came though for me to get S&O.
Going from thinking that I would die from liver failure to possibly receiving a cure lifted what seemed like a 1000lbs off my shoulders and really put a spring in my step. That alone gave me incentive to plan some long range projects. I really believe that the cloud that lifted off of me was the cloud of depression, dispare and impending doom. I had considered myself to be terminal.... but not any longer!
When your energy level is high take advantage of it. When you have an off day then rest. I really do have a couple days week where I feel a little more tired, but it generally follows a day where I worked really hard at something.
Bucky
Only 3 weeks & 3days left on meds
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I know we all have a way to go, but after all is clear it would be nice if some how we could all get together . who really knows how this has worried us but us. good luck everyone ,we have got to pull for each other,
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Sounds good to me! How about Hawaii? Good place to meet!
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10-4 on that, wife would love it
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Hawaii sounds great, hang out in the beach all day and get lots of sun.
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going to the doctor Thursday the 28th for my 4 week check up . still no side effects. will post results later. hope everyone is doing well , or better.
.
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Congratulations to all of you with your good news! I started treatment last Monday, August 18, I haven't felt this good in a long time until I starting treatment! No side effects. Ive been in spine therapy for 8 weeks prior to starting S/O treatment and the very next day after my first dose of S/O my neck and spine pain practically left and is still gone unless I overdo it, plus I have more energy. Praise God for this miracle treatment and thanks to the medical researchers for receiving the knowledge and getting it to us. I get my first viral load check at 4th week, can't wait! Hoping and praying for all of us to feel better and better and to be cured real soon! Keep drinking plenty of water, that does seem to help.
Sharon
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Starting next week s/o. In training for squash trials. Hope i can maintain stamina.
New to board. Anyone know how Daclastavir is in combo with Solvaldi compared to simeprevir?
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I'm in my third week of sol/oly combination feeling tired I don't feel like getting up in the a.m. my appetite is so so some foods smell intolerable, I do get headaches and muscle and joint aches. I do live in FL so I do stay out of the sun. The heat in the summer down here never bothered me until now. Is there any good food supplements I can take?
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Hi Aldora,
I am sure you'll do fine on the new treatment, but I'm sorry I am not familiar with daclastavir, I'm on my second week of Sovaldi and Olysio combo, virtually no side effects! It's been so much easier than the past two times I treated with interferon/ribaviron. I read somewhere that we should prepare for the treatment as though we are preparing for a marathon, so that's what I did, spiritually, physically and mentally, you'll be a winner!
Sending all positives your way,,,!
Sharon
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I have declined treatment with Olsio and have decided to wait it out for daclastavir. Cosmos being the only one to cover company is suspect given their history. Also, the clinical trials for O/S without interferon and ribavarin are ongoing nad not yet approved. For me given all the research i have done it is clear that S/O combo is an inferior treatment. Just me and my liver's 2 cents.
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Don't mean to be negative, it has been a tough choice as I need to be treated sooner than later. Over 30 years of chronic C g1 and never having been treated before I just want to do it right. I was supposed to originally be treated with Daclastavir, but it's not available right away and i was told i would begin tuesday next week O/S combo without interferon and Riba. Doc's say O/S combo works in the end. Fact is, I am in Florida most of the time taking care of a boat. Photosensitivity issue was huge for me. I prefer to wait. It's all good..question of nuance and which of new meds suits each individual person. Enjoy. Aldora
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Aldora, wordforthewise1, Anette and 3 Guests are viewing this topic.
Excuse me!!
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Don't mean to be negative, it has been a tough choice as I need to be treated sooner than later. Over 30 years of chronic C g1 and never having been treated before I just want to do it right. I was supposed to originally be treated with Daclastavir, but it's not available right away and i was told i would begin tuesday next week O/S combo without interferon and Riba. Doc's say O/S combo works in the end. Fact is, I am in Florida most of the time taking care of a boat. Photosensitivity issue was huge for me. I prefer to wait. It's all good..question of nuance and which of new meds suits each individual person. Enjoy. Aldora
Aldora, S&O are not in clinical trials and both have been approved. They are prescribed off label together which is an entirely different thing. I think that maybe you were referring to the use or not of ribivirin with S&O. Using ribivirin did not increase the cure rate but a very small percentage which is why now S&O is being prescribed without ribivirin. The problem has been with insurance companies paying for the off label use of the two together.
If you have private insurance, S&O both have excellent patient assistance programs and I only pay $30 per month total copay for both.
There are a lot of people that will disagree with you that S&O is an inferior treatment because it has cured them or has them well on the way, myself included.
Bucky
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The research I've read is very, very positive for S/O treatment. Also, it's great that so many on this site are posting their successes and challenges while treating with O/S.
Aldora I can relate to the sun sensitivity issue, I live in the Midwest so this is our prime "sun time," which I love. It's not easy giving those things up but it's only for 11 more weeks. I'll really enjoy being outside after it's over, I might even enjoy being out in the snow on a sun shining day once this is over, lol. Having had hep C for half of my life (31 years), I am so looking forward to it being a thing of my past. But you will know when the time is right for you.
This forum was extremely helpful in my deciding to treat with S/O.
Oldmarco,have you tried protein & fruit smoothies as a meal supplement? I struggle to eat a healthy breakfast so I'll have a protein smoothie with lots of fruit in it as a meal replacement. Hope that can help and hope you get more energy soon. Sending best to all"
Sharon
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Been on Sovaldi and Olysio since Saturday and the only side effects that I have had is mill headaches. I've been going outside in shorts and tee-shirts but I put on Walgreen Broad Spectrum SPF 90 UVA/UVB protection around about 11:00 am. I walk each morning and be outside between 6:00 am and 8:00 am without any sunscreen. I'm a transplant recipient eight years out with no problems except the virus.
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Wilieford47, hoping the best for you with S/O treatment. But do be careful about being out in the sun. I 'm on week two of S/O and I have had no sun sensitivity until today when I went out without a sun hat nor dark enough sunglasses, I had an umbrella only and sunscreen on my face. What a mistake and now I'm paying for it. I was out for about 4 hours this afternoon, my husband was driving but the sun rays came right through the car window. My eyes have been burning, my head aches, my right shoulder and right arm hurts and I'm nauseated. Ibuprofen is helping some. I felt so good this morning so I thought I could lighten-up on my cover-ups for sun protection. I was wrong.
Just be careful, don't want what happened to me happen to you. Otherwise, smooth sailing.
Sharon
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Been on Sovaldi and Olysio since Saturday and the only side effects that I have had is mill headaches. I've been going outside in shorts and tee-shirts but I put on Walgreen Broad Spectrum SPF 90 UVA/UVB protection around about 11:00 am. I walk each morning and be outside between 6:00 am and 8:00 am without any sunscreen. I'm a transplant recipient eight years out with no problems except the virus.
Willieford47, I see that this was your first post so welcome! It is wonderful to hear that you are eight years post transplant. I can remember when LTs were first being preformed five years was about as long as anyone survived. Now I read about people living many many years with new parts. I only know one person who had a transplant and he died three months post op. Hep C did not destroy his liver, he had hemochromatosis (iron overload). My last biopsy was preformed to check that I did not have this or any other problems in preparation to begin treatment.
Two weeks & two days left on S&O.....yes I am counting down!
Bucky
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Hi guys ,just wanted to update Carols progress she's now starting week 7 we've struggled through. week 5-6 she's taking S&O and ribavirin . she's one of the few having problems with anemia .during week 5&6 she's had 6 units of blood and I'm sure before week 12 she's gonna have more. she was undetected at 4 weeks and her confusion has improved. yesterday at her family dr. labs were very good all her enzymes but 2 were right on the mark and the 2 weren't far off. her dr. said in 6 years she's treated her they have never been this good . she said the meds were working . great !!! Mind you she was told there was nothing more they could do for her until S&O was approved by FDA . so hang in there guys there's hope . good luck to all and fight the good fight ...
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Hi Drayd4, great news about Carol's progress, she's on her way to being cured! Sorry about the anemia though it seems like it was probably the ribaviron causing it, the same happened to me last time I was on it. My doc told me anemia is main side effect for ribaviron, so no more of that for me. Hopefully the 6 units will keep Carol's blood levels in normal range. As for me, I'm about to start week 3 of S/O, have only had a couple of bad days due to over exposure in the sun, feeling better now! Take care, thanks for sharing Carol's good news.
Sharon (wordforthewise1@yahoo.com)
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Drayd4, Hi, When I went on riba treatment here in Sweden I received a drug in the form of a surenge called Aranesp. A sort of form of blood doping. And my anemia just disapered, is it a chanse that Carol also can have that,? it helps alot, belive me!
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I was on OLYSIO SOVALDI for three months--very few side effects, headache, hungry all the time, sun sensitivity; ( which was nothing compared to the clearheadedness and cleared up vision that I was also experiencing) at 4 weeks my blood test was detectable, but less than 15; at 8 weeks nondetectable; at 12 weeks nondetectable. I'm off the meds now for almost a week and I feel really really good-- if that's inferior, I'll take it!!
Hope this helps :)
Amo
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I have ( can't say I'm cured until 3 more months and another test with results of undetectable ) Genome 1a/ no cirrhosis that being said I've had it for at least 20 years probably much longer and was beginning to have side effects.
Amo
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I sure hope you are cured!! For your sake and mine as well. I'm half way through S/O treatment, am undetected as well, and am hoping for the magic "CURED" word too! So if you're cured, seems like a better chance I will be! I hope we all make it! If not, there are enough new drugs coming out that I know something will work.
Damn, it's the waiting that is the hardest part. It's good to stay busy and grateful!
Have a beautiful day! Jane
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Happy Hepper, Amo,
it's so encouraging to hear your good news! Thanks for sharing!
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Meant ask you guys... Does / did anyone on S/O treatment get shortness of breath with some anxiety? I've been on Lorazapam fo several years mainly to help me sleep, but for about 3 times I've had to take a small dose during the day to help me breath better and calm the anxiety feeling. Just wondering if this will pass. Hoping and praying it will. Thanks,
Sharon
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Took my last pills Saturday night and now it's a wait and see. Have had very little side effects and am very thankful for that. Was undetected at end of two weeks so hopefully will remain that way. Guess now it is just waiting for 12 weeks and see what happens. Everyone hang tough.
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I just got confirmation from the specialty pharmacy today that I have been approved for Sovaldi/Olysio at no cost to me. I wasn't sure that was going to happen, so I didn't really research the side effects of these drugs, especially since my hepatologist said there really weren't any, maybe headaches the first couple weeks. He did, however, mention the sensitivity to sun. All I can say is I am glad that summer here in Texas is winding down or I would be in BIG trouble! I was encouraged by reading the posts here, especially from people who are only on these two drugs and who said that there are minimal side effects EXCEPT for the sun sensitivity. I am at Stage 1 with normal ALT/AST and not a very high viral load, but I am glad that I am going to be able to get rid of Hep C and not have to worry about it.
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I just got confirmation from the specialty pharmacy today that I have been approved for Sovaldi/Olysio at no cost to me. I wasn't sure that was going to happen, so I didn't really research the side effects of these drugs, especially since my hepatologist said there really weren't any, maybe headaches the first couple weeks. He did, however, mention the sensitivity to sun. All I can say is I am glad that summer here in Texas is winding down or I would be in BIG trouble! I was encouraged by reading the posts here, especially from people who are only on these two drugs and who said that there are minimal side effects EXCEPT for the sun sensitivity. I am at Stage 1 with normal ALT/AST and not a very high viral load, but I am glad that I am going to be able to get rid of Hep C and not have to worry about it.
texashon, First I am glad you were approved with you having minimal damage. This signals the fact that insurance companies are realizing that it cheaper to kill the virus than pay for years of observation. Score one for the HepC warriors!
I haven't had many side effects to speak of. Sometimes I get a little tired, but I am nearly 60 so I take a nap and all is well after that. I really can't tolerated the heat. It is not just the sun, I just can't take the heat. This is not normal for me so I just go out at night to shop.
You will be fine.
Bucky
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Thanks for your reply. I am 66 and a retired teacher, but I substitute to supplement my income. I told my doctor that I have to work, and he assured me that I should be able to. Headaches I can deal with; I get a lot of headaches anyway. However, naps would be hard to take at school, so I guess it might be a lot of going to bed early. By the way, if people are cleared of the virus before the 12 weeks are up, do they still continue treatment for the whole 12 weeks?
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texashon Well at the moment you have to do the whole 12 weeks. I hope it will pass fairly quickly for you. I only have a week left until I do the "Happy Dance". The meds made me sleepy so I started taking them about two hours before I went to bed. You need to eat something with some good fat to help with absorption of the Olysio. I eat cereal and some yogurt or a PBJ sandwich.
I have never had a headache while on these meds, just a problem with the heat. I am an outdoors person but this summer was spent mostly inside because of it.
Bucky
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Those are really good tips! I have a problem sleeping anyway, so if the pills make me tired, that would be great! I will also plan on having some peanut butter and yogurt around.
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still undetectable after 42 days of treatment , no significant side effects, a couple of mornings awoke with mild headache. not eating well, but have never been a big eater. being careful with sun exposure. I just want a BEER. HA-HA. GOOD LUCK EVERYONE!!!!!!!!!!!!!!!!!
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First months blood-work came back undetectable I'll have more info when I see my DR. on Wed. Someone I have a high protein shake for breakfast which has been helpful. Appetite better, less headaches, still sensitive to sunlight and heat also as I live in Fla. so if you live in Fla you might want to take it starting in the fall. Everything seems to be ok.
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hello everybody, i would like to tell you my story.
i'm from holland so excuse me for my english.
i'm 55 years of age and was using heroine and cocaïne until i was 20.
now, years later, i'm happy married and have two beautifull daughters from 7 and 9.
last year my doctor discovered strange lab results in my blood and yes, i was positif on hep-c......
only posibility is, that i used a needle from a friesnd in my young years and i have the disease for 35 years now, without any complains!
they checked my liver and i have some fibrose, they wanted me to start with peginterferon en ribavirine and told me about the horrible side-effects from that medicins.
i told them that i suffered a few psychoses and depressions, so i was not really positif to start with the pills.
the doctor, told me to wait en stop alcohol totaly and wait for new medicins.
i did not stop alcohol totaly, but was drinking about 2 or tree bottles bear a day.
last week i got a phonecall that i can do a test with the new meds, for free!
12 weeks 1 pil a day without side effects they said.
so i stopped drinking immideately (that was a condition to join the project)and start next wednesday with the cure.
me and my wife are very happy.
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welcome Holland, I was there in 1973 , i was stationed at rein mien [my spelling is bad] in Frankfurt when I decided to take a bus tour to your beautiful country. FLOWERS FLOWERS FLOWERS unreal, I bought a pair of nice clogs while I was there,, off red,kinda cool, back then people in the states didn't know much about clogs at all so when I went out on the town[farm town] and the folks saw them they asked ''willie, what the hell you wearing''? ''clogs'' I replied, and of course every cowboy boot wearing ass in the place loved the color too! lol but I'm telling you they were so comfortable,, made out of leather and wood and cool soles, now every Dr. housewife, and cowboys where them rubber ones,, he he oh those were the days, sucking on German beer and smoking tons of hash. anyway my friend welcome,i like this site and they haven't kicked me off yet lol I am on my 3rd bottle [tues] of solvadi and oylisio,, great stuff [even though it hasn't helped my love life, wink, wink,lol anyone else experianceing those side effects?] I am geno 1 25 million etc. and I was at my docs. a week or so ago and I was undetectable. that was my half way point and that seems to be quite common with this combo, so HEY welcome, and I am so glad to hear you will be on new drugs too. you will get a lot of good info on this site so ask away and please come back and follow our journey as we join yours. willie g
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by the way I asked my 1st wife to send me the other clog, she threw one at me and kept the other,,, nice lady from Jacksonville Arkansas , 33 years later I still have the ONE, still waiting willie g
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week 9 here, I can't really say i have any side effects. I have been areful to follow suggestions. I take both pills about 2 hours after a good supper which includes fat. I take a zyrtec. I take a 25 mg dose of sertraline in case of mood swings. I avoided sun the first 4 weeks and have been careful to get no more than late evening or early morning sun since. For me, this is a walk in the park. Be sure to follow your Doctors suggestions. This is just waht has worked for me.
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Hi All.
I'm new to this site. In fact this is my first blog that I've ever participated in.
I'll be starting S/O in 2 days, no Peg or Ribavirin. I'm GT 1b with advanced (Stage 4) cirrhosis. Currrent viral load is log10 = 6.133. Rest of my numbers look pretty good. Not yet decompensating.
Did Peg/Riba for 5 months in 2011. Dr. stopped therapy because viral load did not decrease enough. Benefits did not outweigh risks.
Had some fears about the side effects of S/O, particularly the photosentivity and rash. Already have skin issues. Lichen planus of oral mucosa - a chronic, recurrent lower lip ulcer that blisters, fills with blood, scabs over, skin gets necrotic, scab falls off, and cycle starts over. Very painful. Only thing that helps is Prednisone pills, 50 mg a day for a week, then 40 mg a day for a week, etc. till dose completed. Over the past year, have needed to be on Prednisone more than off. Does anyone out there have any info about how Prednisone might impact the effectiveness of the S/O? The only other symptoms I now have, prior to treatment are some serious swelling of feet, ankles and lower legs. And pretty bad arthritis of both knees. Also very painful. (the Prednisone really helps that pain). Also have hard time sleeping at night. Sleep during the day very well. This could be a blessing for the next 12 weeks.
Was feeling a little apprehensive about starting therapy because of the skin side effects. After reading so much positive input, am feeling so much better.
Thanks all for your shares and all of your info and support.
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I'm on week 9 of Sovaldi and Olysio treatment. I have had severe muscle and joint pain and inflammation after week 5. I work 12 hr shifts on my feet 2 nights a week. I have discovered my pain is exacerbated by working, to the point of not being able to walk. My husband has to physically carry me in the house when my joints become inflamed and swollen. I also have had flu like symptoms, fever body aches, weakness. I can't wait to be off this medication.Hoping these side effects are not long term.
Three weeks into treatment, hcv was not detectable in my blood. Yay! This is a miracle drug.
I'm scared of losingomy job if I can't work my two nights the remainder of my 3 weeks of treatment.
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2Blave,
welcome to this site, glad to learn you are about to start the S/O combo treatment. When I took interferon/ribaviron treatment in 2006, doctors put me on IV prednisone (had to be hospitalized due to severe anemia) then prednisone by pills, I was in week 42 of 48, of treatment, treatment was stopped at that point, but the virus had been undetectable from around week 12. The hep C virus came back within 1 month off treatment, my doctors said the prednisone probably acted like booster, which boosted any small amount of virus left. I would for sure talk to your doctor about taking prednisone while on treatment, S/O is a miracle cure, know you don't want to take any chances once your cure starts. As for me, I am now in week 4 of S/O, having sun sensitivity issues and joint/muscle pains. Got my 2 week labs today, liver tests all in range now, praise God! But my platelets dropped a little. I'm expecting a miracle! Will get my viral load check next week. Wishing you the best,
Sharon
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Hi HopefulAries (like your name:)), welcome to the site,
I am in week 4 of S/O treatment, started having joint/muscle pains (in left hip and hands) around my second week. Kind of hard to use my hands right now but can take it in exchange for a CURE from HepC. Ibuprofen helps me but sounds like your pain is much more severe. Have you talked to your doctor about it, there may be something safe that can help? Sorry you are in pain making it difficult to walk, hope your doctor can help with it and pray your job will be understanding. You're so close to finish line, hang in there. Praying for the best,
Sharon
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Hi Wordforthewise1,
Thanks for your reply. I have also had hip, hand, and arm pain. Mostly knees, legs, ankles, and bottom of my feet. My ankles have swollen up twice in the past 3 weeks, a jont at the end of my finger on palm of my hand has swollen twice in the same time frame. I'm taking ibuprofen and tramadol, have taken a steroid dose pack. Once I go to work and stand on my feet for 13 hrs, then my symptoms flare up again.
Hope your pain gets better. I'm glad the ibuprofen is helping you. Goodluck with the cure! Hang in there, we can do this!
Teresa
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1. Ending week 3 on S/O. Sleeping like a baby.
2. Viral load at start of TX was 6MM (doc will have my VL at week 4) Geno 1a.
3. Late stage with portal hypertension and varices. Treatment naiive before this. Lived with this disease for at least 35 years. Contracted by giving Plasma. Had several bleed-outs so far in the very recent past and some close calls. Discovered I had HCV Nov 2010.
4. NO SIDES on S/O miracle drug. I suspect it's because I'm careful with what I ingest.
5. No pill popping of anything what-so-ever. Hey, I don't want sides from reactions and I don't want to fail treatment. I'm not taking any chances with even Tylenol etc. (I never take it anyway as it's bad for the liver)
6. The slight changes experienced during the 1st week have disappeared. i.e. headache, low appetite. I'm drinking water at the slightest sign of a headache and eating something if my stomach feels weird. But those signs are gone now.
7. I'm wearing long sleeved summer shirts and wearing long summer pants, hat and sun glasses faithfully and using the shade as much as possible. No rash or sun sensitivity now even though I have super sensitive skin. Avoiding sunscreen as it is loaded with chemicals and bad for my liver.
8. No drinking Alcohol or eating junk food.
9 Had all my dental treatment done in anticipation of this new drug treatment. All done.
10. Skin problems from cirrhosis clearing on this S/O treatment.
11. no more swelling of the legs and feet.
Criteria to receive the approval on the first request:
1. No drinking Alcohol (for 6 months prior they say)
2. Must be late stage with varices and portal hypertension.
3. Must or should be treatment naiive.
4. Must be Geno 1a with stage 3 or 4 liver disease.
5. Must have low platelet count or it's a dead deal.
6. You fit the criteria then have your doc make the order for you. Tell doc you are ready.
1-2-3 any arguments of what I'm saying will be ignored.
I feel happy and hopeful on S/O.
Symptoms of liver disease for me w/o tx:
Severe weakness
cloudy memory
low appetite
Itchy skin
Hair falling out
bloated
legs and feet swelling
depression
hopeless feeling
nose bleeds
loss of mobility (traveling or driving is iffy)
Bleed-outs and ICU hospitalizations up to 6 days at a time.
Adult onset acne.
Comment: For water retention overall- Drinking more water relieves water retention. The body holds onto it if it feels dehydrated. A symptom of liver issues is dehydration. From it come lots of other symptoms.
Disclaimer:
My report and my experience only. I am not a doctor although I have experience with this disease and am pro-active in my personal health while not leaving it up to the medical doctors only. Self care is the key. Doc monitors.
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Forgot to mention the time I take the medicine.
12 noon. That way it gets circulated around and noon is auspicious.
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PS-I'm not working and am avoiding all stress. I want this to work.
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Welcome Riavishingru!
Sounds like you have really prepared for the treatment, know you will do well, and get your Cure also! This is my 3rd time taking treatment, 3's a charm - right! The other times were the old treatment drugs, didn't work. I am genotype 1a, stage 3-4, viral load prior to starting was 1,300,000's. I will have my first viral load check on next Tuesday, can't wait! My biggest problems since starting treatment has issues related to sun exposure, also some joint and muscle aches, now constipation which I struggle with prior to treatment but it's worse now. anyway, hoping and praying for the best for you and keep us updated.
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So today I picked up the 56 very expensive S/O pills. Bucky said that they made him sleepy, so he takes them at night. Ok, I don't sleep well, so that sounded good. Then my doctor said some of his patients said the pills kept them from sleeping--not good. So could I get a concensus? Sleepy or not sleepy? I have to work, so I have to be awake in the daytime and be able to sleep at night. It is very important for me to decide the best time to take these pills. Thanks if you can help!
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Just finished up 12 weeks of S/O and I always took mine right after dinner and had no problem sleeping. Also took Ambiem every night. Actually had little/no problem of any kind all twelve weeks. Have been "non-detected" after second week. Now have to make it thru next 12/24? weeks to be pronounced "CURED". Have had this Hep. C for 38 years, been they Interfuron and Riv. three times. Time to put this in "been there done that" catagory. Good luck to all of you.
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relicman ,wow 42 days, really appreciate the update, it is good for all to share their after treatment effects , it is really inspiring to hear the good news! keep on trucking and i know that voice in your head is saying Beer, Beer, it rings in mine too my friend but is it worth it? boy my cravings have sometimes drove me nuts over the years. i found and find when they kick in i have a big glass of choclate milk and it really works, when i go to any parts that was a tuff one but a friend suggested >hey Willie next time your at one and someone asks you want a beer ?just say no thanks i have had enough" they do not know what you really mean in your head, they just figure Hey,he has had enough today'' especially when you don't want to explain this and that cause that can be a pain in the butt. in today's world you can say ''but ill have some water[not like we havent had enough of that ,BLAH, ,,, DURING OUR TREATMENT LOL] OR BETTER YET GOT some soda or even better have something in your hand that you bought before getting there. just my opinion , our livers have takin an ass whippin already, you take care my friend ''just'' Willie g
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you got it johnj, ! sounds great! that SNAKE in the woodpile is GONE, amen, enjoy buddy and keep coming back, i need that info to keep me going. ''just''willie g
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hello RIAVISH, JOHN J, had same issues i have[i am on my third set of bottles of s/o] some people have no problem with sun so maybe just peek out of the shade for a few minutes here and there on different days and see how that goes, i snuck a PEEK in the beginning but my nieghbor [nice looking] started thinking i was stalking her, ha ha only kidding but we have been chatting here and there but as soon as sun hits me i do a mexican shuffle back into the shade [i know she is probably thinking, '' nice guy, but whats up with that stagering back and forth?'' unreal, ha ha] and as far as constipation goes? oh yeah , sometimes i feel like im going to blow a head gasket,but i started taking omega 123, or 678, [i dont know the exact numbers lol but its basically fish oil with other goodies plus i take milk thistle, someone suggested it and i asked my dr. if that was cool and he looked it up on his ipad and said,''go for it, i dont see where that will hurt and since than for the most part it has been SMOOOTH saling,,, but once again just my opinion and run everything by your dr. i get tired,and i then sleep for an hour,waking up thinking it has been 4 or 5 hours but then i read under a dim light and within a half hour my kindle falls and so do i,back for another 1 or two hours, of course activity is very important for sleeping and taking good craps but i havent been to good at that, ;so i spend alot of time in my coffin waiting for the next blood draw,lol get a king size one, that way you can have company! oolala later my friend and welcome to Paradise, ''willieg'' just [my hd just kicked in, high definition,ha ha, i think its time for me to go and take some head medicine whoa,,,,] later
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I started Sovaldi and Olysio two weeks ago. The headaches were a regular occurrence for the first week. I think more water helped mine, knock on wood. I have some fatigue and joint discomfort but minor. The reason I am posting is about my cost for the drugs. I got into a hep c program that works with the two drug companies providing them. I pay nothing because of my income level on S.S. I do pay $10 copay for Dr. visits. Who says there's nothing good about being poor? When I first saw the Dr. I told him about some friends that were cured through a research project. The Dr. then asked if I wanted to join a research project. I did not because I qualified on income. I just thought that might be an option for the uninsured to check into.
Good luck everyone, I'll let you know my results later.
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Does everyone on Sovaldi and Olysio take the same amount? Maybe some people have more side effects because they take a higher dose? I am Stage one, normal ALT/AST, viral load under 300,000. My dosage is Sovaldi 400 mg once a day and Olysio 150 mg once a day.
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I assumed it was the same for everyone? Mine is 400 mg sovaldi & 150 mg olysio.
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yes ronaldo, same meds, same dosage here, ''just'' willie g welcome
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I had the same question when I got the meds. A male at 260 lbs takes the same meds as a male at 140 lbs, I would think the 140 lb male would have more sides or over medicated, what do you think?
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Same meds same dose here. I know there have been a lot of questions about after 12 weeks completed. It has been 3 weeks since my last dose. I never had much for side effects. I could feel the difference in being out in the sun at about a week and a half to 2 weeks. Didn't have that I'm burning up feeling. But I could tell my eyes were still sensitive. Now at 3 weeks I feel pretty normal. I also must say I live in Northern Minnesota so easier to wear long sleeves etc. So to be safe I would say be careful for the 2-3 weeks after off the meds at least.
Feeling great and I no longer have the lower back pain that I have had for years. I hope all are doing well. These are truly miracle drugs and it is a great time for us!!
Later Jim
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HEY JIM,glad to hear your doing good! i Have my MINNESOTA VIKINGS HAT right next to me. i am Chippewa and i had ancestors come from norway to Minnesota, so i am a real Viking.! I bet 5 dollars on every Minnesota game played this year with son in law [im not really a gambler but it keeps ya in the game.]so do me a favor go down to the stadium and tell them GATOR said,'GET YOUR FRIGGIN ASSES GOING! THX BROTHER, LATER ''JUST WILLIE G and hepc ya imagine a girl or guy being 125 ibs getting the same dose my big ass is getting! i bet they glow in the dark more! were gonna find out one day when we all wake up with two heads and 7 fingers! hey two heads are better than one and as far as the fingers go, ill leave that alone.lol I'm in enough trouble on this sITE i think i m a Little over the top sometimes but what do you expect from a CHIPPEWA VIKING!
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Funny man!
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Background: I've had hep c for 30+ years. I'm 57 years old, A3/F2 and treatment naive until now. I'm on day 14 of the S/O treatment. My side effects were fatigue and headache for the first 3 days. Now, just a little heartburn and indigestion. When I don't drink enough water I feel tired and sort of like I'm in a weird dream, but if I drink a lot of water then I have no symptoms, but then my heart starts to flutter (I guess I'm depleting all of the electrolytes out of my system with the water). Now I'm drinking less water but adding in Poweraide or Gatorade and this seems to help.
I was feeling completely miserable before I started treatment, but now I feel much better on treatment. I still don't sleep completely sound, but I do get enough rest to function properly. My concentration is not 100%, but it is still pretty good. I had a viral load test done on day 6 (I paid for the test out-of-pocket) and my VL had dropped from 900,000 to 127 in just 6 days. I'm not scheduled for another test until week 4. I'm probably already undetected, but I'm not going to shell out any more money to find out. Also, during the 6th day I had a hep panel done and my ALT/AST were well within the normal range for the first time in over 30 years!!!!!!!!!!
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willie g thanks for the welcome. I want to know if the side effects come later than 15 days of the combo sovaldi and olysio? I am sure it varies, but it has been fairly ez so far.
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ronaldo, maybe because i am already on a bunch of other meds, that is why i get more side effects,, some people HARDLY get any side effects,and some people just because there going thru the treatment get mental effects,especially if you cant go out in sun without abunch of hassles and it has been hot but now that it is cooling down you don't mind wearing long pants, long shirts etc.[that is if the oylisio doing the sun thing] but i must say pain in side still hurting for me and sickish and after a half hour of taking it i get tingling in arms and hands and get a little itchy. it is like the old saying , people all like different icecream well systems[bodys] are the same when taking meds etc. SOUNDS LIKE YOUR DOING GREAT! just keep drinking water and good fluids and eat good snacks during day,,,, take care buddy [wear good shades just to be safe because your eyes can get flash burned,,, ''just'' Willie g
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Just Willie G, I never put much hope in the Vikes! I grew up in the burbs of Detroit and moved to Minnesota in 72. Was out of the army and had a bit of a Heroin problem. Hooked up with a gal from the Nett Lake Reservation. Ran with her brothers for a while. Was a crazy time! We have a lot of parallels to our lives. Hang tough Brother!!
To Ronaldo and Testiva, welcome to the forum. This is a great time for us. I found that the side effects were for the first 2 weeks for me. Very mild and then my body adapted to them. Just a little trouble sleeping on occasion. So I would say if they have been mild up till now I can't see them getting worse. Keep your spirits high, the 12 weeks go by really fast. And we are all looking for that great news called a CURE!! Hang tough all...
Later Jim
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Three days on S/O, and nothing really to report other than a slight sensation makes me aware of where my liver is, but I can't say it hurts. I have been taking meds after dinner, and I have not had problems sleeping as I usually do; on these meds, I have slept better than I have in a long time! I have had some dry-mouth but since I usually have something to drink nearby, that hasn't caused any real problems. I substitute teach so have to get up early, drive to work and back, and function 8 hours at school, and that has not been a problem either. So far, I am feeling very lucky. I just hope I can remember to prepare for sun exposure. My son asked me about going boating tomorrow, and then I remembered that I probably had better not!
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Thanks Willie G, they addressed the importance of sun protection, told me some stories about bad sunburned patients. You take care too Willie. Thanks Evil Santa, I appreciate that. This is a good board, glad I found it. We all have something very serious in common among us. I wish success for everyone with the treatments. Time for Football now.
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I am on Day 5 now of Sovaldi/Olysio. I actually feel better and less tired than before I started. Wow. My alt/ast were in the 200's. Today, my alt was 82 and my ast was 50. (I work in a lab so the temptation to check it was too much) These drugs are amazing.
I am having some trouble sleeping. It seems my brain doesn't want to shut off. I live in Fla, but it has been cloudy all week, thank goodness...haven't had to worry about the sun.
One Lucky Lady!
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you cheater TAMARA,LOL so your a REAL VAMPIRE! i have a coffin built for two if your ever this way lol hey i had to change the time i took mine to supper time while i ate because i was taking it in am and it wasn't workin out. but first week i felt euphoric and was buzzing around toomaybe give it another week so it gets in your system good, then go from there but whatever you do ask doc first. ''just'' Willie g oh yeah i was told to take them together. good luck buddy,
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Wordforthewise1
Hi, Sharon.
Thanks for your reply and warm welcome. Took heed of your advice re the Prednisone. Seems liver doc's first instinct was spot on. He thought I should complete Pred tx (6 wks) then start S/O. A few wks later, he saw the lip ulcer and scab, not at its worse but enough to get the idea. He then changed his mind and said to continue with the Pred and start S/O since there wasn't any info on how Pred would effect S/O and likelihood of ulcer recurring while on S/O is almost guaranteed. I then found this blog and read your input. I decided to do a quick wean off Pred. Was in wk 3 of Pred (40 mg/day). Did 40mg for 4 days, then 30mg 1 day, then 20mg 1 day, then off. Started S/O 4 days ago.
Hope you're doing well. Pain in joints and hands subsiding? Hoping for good news with bloodwork. Suz
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Hi, hopefulAries.
I used to work 12 hr shifts, on my feet, nightshift, too. Sometimes in the mornings after work I could barely walk. This wasn't even on treatment. I can barely imagine how you must be hurting. One thing that really helped me was 1 Alleve, 1 Excedrin, and a long soak in Epsom salts. Don't know if you can take the NSAIDS or if there's any reason the salts wouldn't be OK while on treatment. Hope all is well with you, you're so close. Good luck. Suz
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Hi, All.
Started S/O 4 days ago. So far minimal, if any, side effects. Slight headache, slight stomach ache. Neither severe enough to need any remedies. Could be the weather. Feel good. Was taking meds at night, after dinner. Slept well. Even swelling of feet and ankles improving.
The screwup was: it's been so hot where I live that I couldn't maintain a room temp less than 86 at all times. So I stored the meds in their plastic bag, in an insulated lunch bag, in the vegetable drawer of the fridge (Temp about 44F) for about 2 1/2 wks before starting treatment.
I should have called someone, (specialty care pharmacist, manufacturer) first before doing this. I figured that temp would be safe and better to be cooler than warmer, since they shipped meds in a cooler with ice pack. I did call on day 3, before 3rd dose was due. Neither manufacturer had any stats on drug stability at that temp. Consequently, had to interupt treatment for that day, wait for delivery next day to resume treatment. Fortunately, because I had to postpone treatment for a few weeks, I was due for my first refill anyway and they were able to ship that day. Don't yet know how insurance will act when it comes time for the extra refill. Will jump off that bridge when I get there. Also luckily, weather's cooling so it shouldn't be an issue for long. But for those who live in warmer places, they suggested that on very hot days I store meds in a cooler, with an ice pack not directly touching the med bottles, until room temp is less than 86. Seems room temp means 65-85 F.
Hopefully, no one else will have to make the same mistake.
Good luck to all.
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S/O treatment, the Dr. asked me which meal was my largest (supper) so he said take it after supper everyday. He also said 4 extra strength Tylenol max a day. I thought Tylenol was bad for the liver so I asked about it. He said that was the only pain reliever I should take, I use Aleve but he said no. I had my worst headache last night through most of today. Tylenol was no help, but I will take some pain for the gain.
I forgot to add it was day 16 on treatment.
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hey Texas are you taking your s/o together? the pharmacist from the place i receive the meds and Dr. said take them together, everybody's different but i take mine around 630pm right after i eat, that seems to let you sleep by time to go to bed,say 10/12midnight like i said everyones different and these drugs are new to drs, but pharmacists from place you get them is more knowledgeable and get hold of solvadi,go to site, and i have a lady that calls from solvadi once a month to see how i am doing because they want to know too,plus they give you a number where you can talk to her or another nurse,, i believe pharmacist also can put you in touch, look at your packaging and see if theres any info in there. i know there is list taped to bottles about each drug and tells everything[symptoms etc. and there may be a number on there too but I WAS INSTRUCTED BY MORE THAN ONE PERSON,t AKE THEM TOGETHER ,FOR PEOPLE JUST DOING S/O good luck ,they will also send you a letter and coupon to help with any copay. ''just'' Willie g
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I haven't read all the post, so this may have been brought up already.
I am having trouble with my thought process or slow memory. I get up and go to another room to get something. I forget what I went after, and I do finally come up with the reason but its slow.
My mom died of Alzheimer's so it's kind of scary.
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Ive' been keeping my s/o in the fridge i live in fla so room temp gets above 86. I have my refill in the fridge also i have about 11 doses left b4 the last month tx. Is refrigeration of meds ok probably fridge 40. first months blood work undetectable so far so good. Side effects have been muscle aches joint aches headaches appetite so so other than that only 38 days left hopefully back to golf swimming and the beach
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Hi, Oldmarco. I don't know if 40F is ok or not. I hope so. The issue caused an uproar for me and I was told not to use the meds stored in fridge, since they couldn't affirm that they were still good. Olysio told my pharmacist that their info said that meds stored at -10C to -20C (-4F to 14F) was only stable for 10 days and that they (Olysio) didn't have any info for my fridge temp range (40-45F). Maybe check with your pharmacist. Would love to learn more. Good luck, Suz.
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Hey Ronaldo. I know I've been kind of spacey too, but that was even before starting treatment. I know how scary it is because my both parents have dementia. Have you talked to your doctor? Maybe your symptoms could be caused by something else? Maybe even a simple fix. Good luck, Suz
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Hey Ronaldo. I know I've been kind of spacey too, but that was even before starting treatment. I know how scary it is because my both parents have dementia. Have you talked to your doctor? Maybe your symptoms could be caused by something else? Maybe even a simple fix. Good luck, Suz
Thanks and I was already having some problems, I will ask my Dr. I've also taken 2 antidepressants for a couple of years so I'll check it out.
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Hi everyone,
I just got my lab results that were taken on Sept. 15 ALT/AST are 17/12, my viral load was down to 20 from 1,341,550. My doctor's NP thinks the HepC virus is probably completely gone as of today. I will have another viral load check done on Oct. 13, hopefully it will be undetected. But I thank God the virus is going away after 31 years of living in my body. I'm standing strong. Thanks to you all for your posts, they are very encouraging.
Sharon
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Sharon, Congratulations. Wonderful news. Suz
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Thanks Suz,
I started S/O treatment on Sept. 18 and I've been praying that it will work for me, my doctor's NP says she's sure it will. I'm African-American so I don't know what the percentages for cure are for people in my ethnic group. Past treatment (interferon/ribaviron) percentages were a lot lower. But I believe that S/O treatment is a CURE for everyone, not matter ethnicity, etc., HepC will soon be over for all!
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I am in my 3rd week of treatment with s/o. Yesterday was a nightmare. I took my meds and within 2 hours I had a very high fever with the worst burning sensation from the neck to the top of my head with severe headache. I had blurred vision bc of the fever.My tongue is still swollen today and now has sores. I woke up today with the same headache. I feel like I went through battle my body is so weak today. I am wondering why I am having these symptoms everyone seems to be great on the S/O treatment. I am so disappointed bc of this. I don't understand it. Up until yesterday I had very mild reactions. .Has anyone else had this happen on the Sovaldi/Olysio protocol?
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Hi, Hopeful304. Although I'm new to this drug and this site, I haven't heard of anyone having such severe reactions. Sounds like an emergency to me. Swollen tongue could mean an allergic reaction. I don't know if side effects can come on suddenly like that. I hope you can get to the ER, or at least call your doctor. Best of luck to you.
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Sharon is right you should let the doctor know whats going on. I called my clinic and asked about the side effect timeline. She told me usually around 2 weeks. I am just past that so I'll see what happens soon I guess. Willie G. hit the nail on the head, food and water are essential for me. I was advised to drink 2 liters a day.
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Hi all,
I am now up to Day 7 on sovaldi/olysio treatment. Apologies in advance, if I am wordy.
I only work 3 days/wk...fri, sat, sun, but they are 12 hr shifts. I worked this weekend (day 3-4 of tx) and by sunday night, I practically had to crawl in the front door I was so wiped out. I take my meds at 3pm. I did notice I felt more tired at work after I took them. I suppose I overdid it....ya think?
I feel better today, but I have been having this weird feeling I can't really describe a few hours after meds. I think I read someone say they felt like they were "in a dream". It's kind of like that. I feel like my visual perception is off somehow. Anyone else on these meds ever feel this way?
Not having any side pain much anymore (except after working last wkd). I am thrilled to announce that my pee is clear for the first time in awhile. Sleeping better.
I really feel guilty for complaining at all, because I feel like I am so lucky to be taking them when so many people are still sick.
Anyway, I pray for us all. I know this is going to work.
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Hi all,
I have been sitting on lanai all morning in Fla. It's very cloudy and rainy. I suddenly feel hot on my face and my eyes are kinda burning. Not bad, just noticable.
Do you think I could be getting sun exposure???
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Yes probably
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hey folks, anyday can be a sunny day,, clouds mean nothing, haze same, anykind of sky can be effective on CERTAIN individuals. sun today is so hot and gets thru haze clouds etc. so you could be sitting on a beach half the day saying isnt this nice, no sun just overcast so i should be fine. no no eyes hurting, more headaches, feeling flushy, feeling itchy can and will intensefy once you hit the streets.. youll here some people say, i just wear a hat shades and a long shirt and im fine! do not absorb that thinking ill do this or that and i will be fine!! no no number one you dont REALLY KNOW the person saying this, thier whole interpertation of things could be not anywhere close to yours a
or they live in another state, and they might not have as much sun, and the grass might be different[now that sounds silliy but i think you know what i am saying now] and theres just to many ands to take a chance is silliy because who needs to to take a CHANCE of flashburn to the eyes or EXTRA headaches or BLISTERS ON your lips and face and feeling wierder and the ands and the ands once again are not worth it .SOOO mr. smartass you might be saying whats the big trick ,whats the big answer?? first of all think when your taking a bath, do you run the water and jump right in???? of course not you check it here and there and in the end you submerege into your nice moment,,, moral of the story??? you TEST,,the waters[the sun ,the wind, the weather, the and the ad the lol, we all have different fingerprints for a reason?????why?? because we all are DIFFERENT,, take baby steps, try one way for 10 minutes another day another day for 10 and who knows by the grace of GOD yu may be able to lay BAREASS,, if you can you my friend have hit THE LOTTERY FOR HEPC TREATMENT and i take my hat off to you,[wait a minute before i do that let me check the sky lol] but dont take your fellow hepc buddy with you and let them think it will be fine[unless of course this is a one shot deal and you may never havethis great oppurtunity again!!! lol the one with the less side effects should probably be on top... im going to piss my pants.. so MY FELLOW HEP C PARTNERS DO YOU KINDA get what i am trying to say?? put a baby in the sun at a month ,what would you do, and then 2 months and 3 etc. and before you know it there 18 and if they want to take the summer break to daytona from ny and want to wear there bikini thongs well then so be it.. i guess they will learn just like we did,, so for now treat yourselves like babies[hey you should be treated like a sweet baby because of what your going thru and i am serious about that statement] ya know why i know this stuff? no not because i am mister SMARTASS because,,, thats what i did. 2nd day i was outside for 5 minutes to see[and by the grace of GOD i got to peak at my oolala nieghbor, and i couldnt wait for the third day because it went up to 15 minutes! i was in heaven each day she was laying out but dam dam dam ya know what happened? no she didnt go inside,, i stayed out for 23 minutes and guess where that got my cocky ass at. ! ? in the middle of the night i was burning, my lips hurt, my dam tounge that was hanging out got thicker i could hardly see and my eyes felt like i put them in a wood stove! etc. etc. was it worth it you may ask?, hell no,she wasnt that hot and hell she never gave me her number,,lol she knew i was peeking lol lol ] so with that my friends JUST ACT LIKE A BABY for now and remember your fingerprints are no where like mine. have a good week, and i ''just''willie g approve this message. later
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You made me laugh Willieg. I am paying for it now. My eyes have been burning and watering. If you don't live in fl you might not know that a lanai is a screened in porch attached to the house.
I really wasn't trying to be cocky or anything, I just really didn't realize I am literally going to have to live like a vampire.
Wish you all well.
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Willie G your on a roll tonight Brother. :) Hey Tammy, I have to say I felt kinda like a Mole for the 12 weeks. Just be smart and Sunscreen, hat and sunglasses. The 12 weeks go by really fast. I felt kinda punky even when I would work up a sweat. But I live way up north were our high temperatures are like your lows Ha. And that feeling you are having is called Brain Fog. Mine was gone after 2 weeks but some have it the whole time. Like Willie said we are all different.
Hang tough all,
Jim
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Tamara,
I have that weird feeling too. It reminds me of taking about 1/8 hit of LSD--just enough to feel it. I'm also having shortness of breath and tightness in the chest and a couple of heart flutters per day. I just trust and pray that all of us get healed from this demon virus. But I was feeling so bad before therapy that I still feel better on these meds than before.
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Hi ,
I also have had sun sensitivity after prolonged exposure - 2hrs or more. I have not had sunburn but feel like its about 90degrees when its only 70. I work outside quite a bit so I try to take shade breaks when possible - wear light clothing. Eyes are sensitive so - shades and hat are part of my costume these days! Also I have had my 4 wk labs done on 9/16. The viral load test ordered was { hepatitis c virus RNA quantitative PCR }...I have been doing some exploring on viral load test and have reason to believe this may not be the correct lab order. Is it supposed to be QUALITATIVE - NOT QUANTITATIVE? I've read the "LOD" is not sensitive enough with QUANTITATIVE. Iwas expecting my results for sure by today - labs done 9/16
I have not received my results - am getting concerned. Could anyone enlighten me?
.......Madbradley.......
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hey folks, anyday can be a sunny day,, clouds mean nothing, haze same, anykind of sky can be effective on CERTAIN individuals. sun today is so hot and gets thru haze clouds etc. so you could be sitting on a beach half the day saying isnt this nice, no sun just overcast so i should be fine. no no eyes hurting, more headaches, feeling flushy, feeling itchy can and will intensefy once you hit the streets.. youll here some people say, i just wear a hat shades and a long shirt and im fine! do not absorb that thinking ill do this or that and i will be fine!! no no number one you dont REALLY KNOW the person saying this, thier whole interpertation of things could be not anywhere close to yours a
or they live in another state, and they might not have as much sun, and the grass might be different[now that sounds silliy but i think you know what i am saying now] and theres just to many ands to take a chance is silliy because who needs to to take a CHANCE of flashburn to the eyes or EXTRA headaches or BLISTERS ON your lips and face and feeling wierder and the ands and the ands once again are not worth it .SOOO mr. smartass you might be saying whats the big trick ,whats the big answer?? first of all think when your taking a bath, do you run the water and jump right in???? of course not you check it here and there and in the end you submerege into your nice moment,,, moral of the story??? you TEST,,the waters[the sun ,the wind, the weather, the and the ad the lol, we all have different fingerprints for a reason?????why?? because we all are DIFFERENT,, take baby steps, try one way for 10 minutes another day another day for 10 and who knows by the grace of GOD yu may be able to lay BAREASS,, if you can you my friend have hit THE LOTTERY FOR HEPC TREATMENT and i take my hat off to you,[wait a minute before i do that let me check the sky lol] but dont take your fellow hepc buddy with you and let them think it will be fine[unless of course this is a one shot deal and you may never havethis great oppurtunity again!!! lol the one with the less side effects should probably be on top... im going to piss my pants.. so MY FELLOW HEP C PARTNERS DO YOU KINDA get what i am trying to say?? put a baby in the sun at a month ,what would you do, and then 2 months and 3 etc. and before you know it there 18 and if they want to take the summer break to daytona from ny and want to wear there bikini thongs well then so be it.. i guess they will learn just like we did,, so for now treat yourselves like babies[hey you should be treated like a sweet baby because of what your going thru and i am serious about that statement] ya know why i know this stuff? no not because i am mister SMARTASS because,,, thats what i did. 2nd day i was outside for 5 minutes to see[and by the grace of GOD i got to peak at my oolala nieghbor, and i couldnt wait for the third day because it went up to 15 minutes! i was in heaven each day she was laying out but dam dam dam ya know what happened? no she didnt go inside,, i stayed out for 23 minutes and guess where that got my cocky ass at. ! ? in the middle of the night i was burning, my lips hurt, my dam tounge that was hanging out got thicker i could hardly see and my eyes felt like i put them in a wood stove! etc. etc. was it worth it you may ask?, hell no,she wasnt that hot and hell she never gave me her number,,lol she knew i was peeking lol lol ] so with that my friends JUST ACT LIKE A BABY for now and remember your fingerprints are no where like mine. have a good week, and i ''just''willie g approve this message. later
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Hey Santa,ya i was zommin on that sun thing but i figured if i can save one soul from the gruesome HERPES LOOK then its a day well done he he and TAMMARA I KNOW YOU WERNT BEING COCKY that was in regards to me i think lol. I HAD SAT by a favorite window to have coffee and the little sun that i got from that gave me a Lice rash.lol and another lady wore sunscreen etc.shsdes too but just from driving the sun coming thru got her and her lips and tounge got her!(i know,her Tounge Just from driving!!Ya she had her dog in the car and they talk back and forth and the dog started PANTING FROM HEAT AND HER TOUNGE WAS HANGING OUT like most dogs do so SHE WAS JUST DOING WHAT THE DOG WAS DOING TO LET THE DOG KNOW,"ya sweetie ,i know how your feeling and then the dog kissed her out of love and then she crashed her car from licking him) ha ha ( the part about driving and the sun getting her lips and tounge was true) the other part i made up for my new book i am writing called,,""HEP C, TODAY YOU HAVE A GOOD CHANCE OF LICKING IT"! Soon to be out in paper back for constipation reading while in shitter! By ""just"" wilile g
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Just experimenting with all that googledagy stuff at the top where you write your reply to post,those dam boxes with flags in them,they show up and i DON'T understand them! Must be a Canadian thing lol at least i got the cheesy smile on top right, sorry folks, its ""just""Willie g trying to figure out the lingo lango for HEPC FREAKS LIKE ME. SNOZZEEEEEEEEE NITE COFFIN TIME
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Willie G does make a good point. Don't forget your lips. They make high SPF chap sticks. Would not be fun to have blistered lips...
Later Jim
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Hello,
4 wk lb rslts finally received - It has been the longest week (and 1 day) of my
life. UNDETECTED I am so happy! So is my dog! I have a PUG - They know! Some days I still can't believe i'm even on this treatment - Now I have this to deal with....
Thank GOD for this medicine! HEP FORUMS - AWESOME ! Very encouraging.
Will keep posting.
"IN THE WRING WITH THE DRAGON"
badbradley
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Badbradley
Way to be. Congrats. How hopeful for us all.
I'm on day 7. So far very minimal, if any, side effects. One good bonus - the swelling in my feet and ankles is about half of what it has been for the last several months.
Suz
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Wow Suz that's great about your feet and ankles, you're on your way to freedom!
Sharon
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WELL,2 BLAVE OR NOT 2 BLAde THAT IS THE ? [is not that shakebeard or someone like that's quoate? any way 1 week is a big deal my friend, been there done it and the stuff going thru my mind at that time [not too long ago] was happy, hostile and shoot I never did hardly any typing or anything of that nature and didn't realize I always had my cap lock thing on so I could see better and I figured hell ,so can they. Well to make a long story long lol, there is no short for me,lol or help in some areas as far as that goes, popeye said it well ,'''frigem I am what I am [I watch the r rated cartoons, well pg 14, imean im not that bad.] anyway I get this text from a girl [I thought] ended up being a guy and he sure made me realize that, hell he said he got a 12 pointer hunting and etc. etc. I guess I texted becky one time instead of /////[keep her ,I mean him damit annonomiss] so he didn't have a good day plus he informed me STOP HOLLARING AT ME, I AM SKIPPING YOUR POSTS!,, so I sat back and looked around and said, is she,, is he talking to me? well ya ever been in a room full of people and you kinda feel like your all alone?lol well hell at that point I was thinking frig him and his hepattis ass! and frig this forum and frig this and frig that! [and hell I knew a girl that shot a 13 point buck,SO THERE!] oh boy, gonna piss my pants again,, well instead of leaving the site cause I knew they neededme lol once I was told by a real human... back on the ranch I got humble, and ate a big piece of humble pie and went back on line and proceeded to tell the whole hepc world I was sorry and if I ever posted anything with caps on I dindt realize I was HOLLARING![I think I got this cap thingdown now to almost a science but I still do a lot of small casing[learned that word too lol] cause I sure as hell I did not want to piss any body else off especially because,, seriously this hepc thing IS NO JOKE, even though I may seem like im a heartless, foolish, kinda genious of a GUY[lets get that straight I AM A MAN but I did dress up as agirl once, does that count??? haha oh boy] and of course as you can tell I have no EGO,,,oh boyyyy,, any way,,, to get back to the subject[is there one] of course thieres ONE! congrats 2blade 2blave ,good name, I use to carry two, [got grand kids now so I got it down to one but my daughter says''jesse dad does it have to be that long? ''''well honey , I talked to the kids about it and now they figure and say '' that's granpas grass trimming knife! that's a true story, and they told their mother more or less [well never mind what they said, or told her,she might be reading this, the little hacker] so 2BLADE what the heck am I going to tell them come winter? [I am sure she will be getting me a 3 inch pocket knife for Christmas but I will never tell her about the one in my boot lol I guess I was born in the wrong ERA OR IS IT ERROR, ya, my ma thought I was an error! hell she made me do all my trick er treating over the phone and my dady said 'SON... do you know why ghosts don't have BABYS LIKE YOU?!'' 'no dad [as im dialing the next TREATER] I says, ''why don't ghosts have BABYS like me, ??? WELL SON CAUSE THEY GOT HALLOW WEENIES,,,,, and with that he finished his shot, gave my mother one hell of a look and headed out to the barn,, and yup I got alota candy for Halloween, my mother picked it up at the old townhall po box and almost busted her gut bringing it home[ so there MOM!, I just told the world how dysfunctional YOU ARE AND DAMIT THEY SHOULNT HAVE SLAPPED YOUR MOTHER AND GRANPA WHEN I WAS BORN![just some halloweenie humor for October,,,,, RIDEEM TWOBLADE!2blave YAHOO LITTLE DOGGIE KEEP ON TRUCKIN![PLEASE DONT THINK I WAS CALLING YOU A DOGgie, ![gota be careful I am going to get a pink slip from this forum anyday] ''just'' willie g ps. thx BUCKY FOR HAVEN A cents OF HUMOR, darn I wasn't suppose to give her,he nameup and my backspace button aint workin! sorry becky, im sure youll be given me hell when you come back in nov. or dec. to give us an update[ don't worry folks me and BUCKY are fellow MEN and friends and we will work it out when the sun hits the woods,WE ARE STUDS and there aint many of us left,,, now come on.giddy up my fellow HEPC HIV HD, ADD,PCP, BUDDIES,,,LOVE YA ALL,,,,DONT FORGET TO CHECK OUT THIS MONTHS HEPC MAGAZINE [FREE] CAUSE OUR HUMBLE MODERATER IS ON THE FRONT PAGE AND MRS. PORTER DOES NOT DO WINDOWS,NOPEEE SHE WILL WIRE YOUR HOUSE AND DRAW BLOOD AT THE SAME TIME,, PLEASE CHECK IT OUT AND YOU WILL READ AND SEE WHAT A WONDERFUL LADY AND FIGHTER SHE IS! [AND SHE HAS A GOOD RECIPEA,, NO DEER MEAT OR LIVER IN IT EITHER[YES, I AM HOLLARING] NOW get along and the dam spellcheck thing aint workin,,probably tryin to makr me look ignorant [I anit quitinn, im a fighter and a HEPC biter! and if you don't hear from me again, so be it,NEVER GIVE UP AND KEEP ME IN YOUR PRAYERS AS I HAVE FOR YOU, GOD BLESS,, DONALD TRUMP [THATS MY REAL NAME, HE HEEE OOPS SOMEONES AT THE DOOR AND THERE IS A LIMO OUT FRONT , shhhh
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HEY WILLIEFORD47, do you drive a 47 ford or just a ford [im a chevy MAN,just kidding my cars are two wheelers]or are you 47 ,drive a ford and is your name WILLIE and are you a MAN? just kidding, read my previous short story if you've got 20 minutes, so you've been outside sunscreened and are not having any problems,, well bless you, your one of the few. TELL YA though what gets me bad sometimes if I am out I get these headaches,, whatya think, should I wear a sombrero or become a NUN,, ? I mean amonk, one of those hooded ones, just wonderin, welcome to paradise and I am glad to meet you WILLIE [who would ever call their kid WILLIE ? LOL] HAng in there my friend, im prayin for ya RIGHT NOW,,, '''just''' WILLIE g [ps if you don't have a cents of humor PLEASE don't tell me\ I like that cents thing, that's why I pick up pennys ,heads or tails,, cause their all from HEAVEN, hey EVILSANTA, whataya think? kinda think I out did myself again? darn spell check still aint workin, I aint no fool now,, giddy up
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HEY TESTIVA,, you remember PURE 25 AND the old cartoon paper acid? I use to take adrop or an eigth and then get on a c130[she was huge and much huger when I took that eigth and we would be takening 82nd airborne and 1001st airborne to their destinations. Sometimes my heart would be pounding and I would feel like your feeling and then when I was peeking I would watch a war between the 82nd and the 1001st right in front of me and I was duckin all over the place. after we landed and I started coming down [on the ground and the acid] them old airborners would walk by and say '''AIRMAN, WHAT THE HELL WAS GOING ON UP THERE WITH YOU!!!! ahhhh SIR,,i guess im fraid of hieghts,,''' WELL SON I SURE AS HELL DONT WANT TO SEE YOUR SCITSOPHRANIC ASS UP THERE AGAIN WITH MY MEN! YOU GOT ME AIRMAN??? YES SIR!!! and that my friend is a true story, well if those side effects get any worse or not better give your dr. a call, cause the last thing you need is a bad trip,, you've had enough,, im prayin for you too right now,, and welcome ''just''wilie g dam spellcheck, its a CURSE
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I have been on olysio and sovaldi for the past 12 weeks. Today is my last day. The ONLY side effect that I've had is an aversion to the sun. Once I forgot and helped wash the car. Probably 30 minutes in sun. The next day, I had what was like sun poisening.
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HEY rossierob[ I tried saying your handle[post name,, I was a big cb kinda guy back in the day, roger that! lol] 10 times real fast and it took me 5 minutes to get my tongue rearranged ha ha [I had to use my special hook remover from my fishing gear, which wasn't being used this year due to sun,,bitch bitch bitch lol, if it wasn't for these meds next years fishing trip may have been canceled lol but really not lol] ANYWAY ROSSIE THANKYOU, THANKYOU THANKYOU, for sharing that because I am a big advocate on that SUN thing. I am really sorry to hear about your situation and if anyone knows or has been there when sun burned you REALLY do feel your nerve endings in such a bad way [ohhhh the nights especially, bottles of yinegar ,ice backs and aloe and who knows if the vinegar thing even worked, all I know is I ate less italion salads lol] but I think there is a misconception about this sun thing due to people [some,which I am glad for] stating , 'hey I just wear a hat shades and sunscreen and have no problems but on other hand those same folks are saying all I have is more headaches which THEY may not realize is a big cause of sun exposure too,, yes I know it is a regular side effect to because I do live in a coffin and I have headaches,,lol but I'm sure their more intense and sun POISONING is a whole nother story! POISON IS POISON and poison should not be a regular food item[whered I come up with that,,food item! sometimes I swear I am a reincarnation of jed clampet,] but thankyou rossie and that's JUST what this forum needed. Another truthful wake up call! [from a normal person, not like me,, really because I joke around a lot and some people may think ,is he SERIUOS this time or what?im working on that lol] I am praying for those symptoms to go away in and on you, right now. ''just'' Willie g
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Who out there is on S/O only with a treatment length of 24 weeks not 12
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I am about to start the solvadi and olysio. i have had it here for a few weeks but havent started it yet. ive been real nervous about it. i finished the 48 weeks of interferon/ribavirin/victrelis on may 5. it didnt work. i was in bed sick fro three and a half months from it. im just now about over the bad anemia it caused. i feel better after reading the posts in here today. i am probly going to take the first dose in a little bit after i eat. I hope this works for me this time.
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Hi, RebelGir
I was very leary, too. Especially re the skin issues with the Olysio. The posts on this site really helped me find the courage.
Today is day 11 for me. So far, side effects have been mild, if any. Just a headache. Might have been weather and not treatment causing the HA. I am GT 1b, Stage 4 cirrosis. Taking S/O only, no peg/rib.
Have really taken everyone's warnings about photosensitivity to heart. Try not to even go out or sit by an an uncovered window while sun is out. When I do, I am covered. Sunscreen, hat, etc.
Someone else mentioned taking meds after dinner. Has worked well for me, too.
Good luck.
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Hi, Finbar.
My treatment plan is for the 12 wks.
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hey FINBAR[sounds like a new energy bar lol] 12 weeks here s/o and high REBLELGIR[I am figuring your a girl? you never know around here lol] anyway the REBEL sounds good to me,,,i have 9 days left of treatment on s/o combo,, and just like 2blave said, for the last 11 weeks no one has called me ''SUNNY BOY'!' Lol I advocate for that dam SUN all I can say at this point is CAUTION plus CAUTION! there, I got that out of my system for an hour,he he sooo, ONWARD CHRISTAN SOLDIERS, [ITS JUST A SONG, im not labeling anyone here,not yet ho ho ha ha] right now I don't know what else to say,, boy are you two lucky,, now giddy up WELCOME to PARADISE ''just'' Willie g
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i am on the 12 week treatment. today is my 3rd day. no noticeable side effects as yet.
well i did feel a bit spacey at first but it wasnt a bad feeling . my lips feel a bit chapped probly from not enough water which i am working on right now. actually yesterday and today i seem to feel a bit better. might be coincedence or my imagination, but either way i like it. We will kill this nasty dragon!
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Hi Finbar, I'm on 12-week S/O treatment. Today is my 44th day, at 4 weeks my viral load check went from 1,341,550 to 20, hallelujah! Nurse practitioner thinks it's probably completely gone by now, I will have another viral check on Oct. 13. I'm genotype 1a, stage 3-4 Fibrosis, failed interferon/ribaviron treatment twice. I'm kind of like willeg with the sun-sensitivity, it's really bad for me and seems like each week I become more and more sensitive, lots of water helps. But I can handle it for my cure, were all going to get there. Wishing you the best!
(Hope you don't mind me asking but did your doctor tell you why 24 weeks instead of 12?)
Sharon
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Hi Finbar, please forgive me, i just thought about it - you didn't say you were on 24 weeks, you just asked if anyone on board in on 24 weeks instead of 12 weeks. So sorry, I find myself missing the point a lot lately , wonder of it's the treatment or "just me???"
Oh well I'm going to have some more water and go to bed. Good nite all.
Sharon
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just took my day 4 pills..my lips feel like they are burning this evening. i dont feel real good today.i dont think its from the pills tho, but the lips burning may be as i was out in the sun a little bit today. taking them at night seems to work well for me. I hope everyone is doing well as can be and has a good night.
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Hi all, been a while since my last post. my spouse Carol will be finished with her 12 weeks on friday. although her first month was rough because of the ribavirin,she had transfusion (3 units) of blood twice.after adjustment of dosage she has done great .before starting the S/O with ribavirin she was so confused from encephalopathy she didn't know what was going on that's why i reached out to this forum for answers .she's stage. 4 liver failure and so sick. the dr. had told us there's nothing more they could do for her......two weeks later we got a call saying there was new medicine and they wanted to try it for her. Devine intervention . here we are almost finished with meds and she has improved a hundred per cent. she was undetected at 4 weeks. and she's like her old self her mind has cleared she's just doing great .those who are just starting the treatment relax and take 1 day at a time if you read these posts you see the slight side effects so you know kinda what to expect. I pray it helps all you as it has Carol for her it's been a miracle . I hope for everyone that you all are cured of this terrible disease. love to all
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I have just 11 days left of S/O combo. Basically no side effects until 4 weeks ago. Now every day seems like I have a new joint pain. Is anyone else having this? Other than that, I've felt great. I was undetectable after 1 week, with normal enzymes. I am genotype 1B. Couldn't tolerate peg/rib combo 11 years ago, so this combo is a cakewalk compared to that.
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HEY REble sorry to haer your under the weather, feeling sjck IS intensified by the sun but you get it here and there on this s/o anyway and headaches here and there and other side effects for some so just keep plugging away day at a time and keep sharing everything and don't feel like your pissing and moaning ever( not that you are or have but some folks, . Even me feel reluctant to share the bad) praying for ya girl. "Just" willie g
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GREAT to hear 719 , ya i bet those other meds were horrible from what i hear and have read yuck yuck. You take care "just"willie g
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Hey Dray that is great to hear,poor woman's been thru hell but yes by the grace of God and researchers,techs. We have been givinen a Gift." Just" Willie g
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Finally, after 4 months of serious pro-active writing, calling, begging, finagling (and I don't like to do, finagle), I got my drugs (Sovaldi and Olysio) for a very doable price of, NO COST! I must say, that I could not be more thankful to get a chance at living again. Certainly what Ive been doing for many years now, can not really be classified as "living"! Much more like "surviving"! Yeah, that's the word!
So I've secured medication, and have finished my first full week! I've noticed that the most consistent aspect of these posts, are the fact that they show an incredible lack of consistency! It seems as if not many of us have the same story to tell. I would imagine that part of that has to do with the fact that all of us who have begun taking the combo S/O, were in a different place, both physically and emotionally (don't forget the emotional part of it), before we even got to pop our first pills! I myself began my new quest while dealing with incredible (sometimes barely functional) fatigue, and not having the physical or mental energy to much care about things anymore. That is not the story I would tell all that often, because I still felt that I had to keep my appearance up, while dealing with friends and family, besides the fact that I was still actively running my own business. Lets say, sort of not so actively "running my business". It's been hard, but one does a lot of unpleasant activity while trying to keep the dream of "good health and a cure" in focus! I have a headache, which gives me some relief while taking Acetaminophen, and drinking gallons of water, and I haven't quite figured out how to sleep at night, or day, but will speak to my Hepatologist this coming week about the idea (which I got from you guys) of taking meds. at night, rather than morning. All and all, this is not hard to deal with! I remember some awful aspects of the Interferon and Ribaviran regiment, and anything is better than that! ANYTHING! I'm very thankful that my Doctors recognized the fact that the old combination was not a good thing for me. I would have consented to S/O with Ribavirin, if necessary, but I would not have been terribly pleased! I don't remember Ribavirin being all too friendly to the system, either, with many side effects that were not too pleasant! So, HEADACHE, INSOMNIA, and my eyes burn a bit after being out in sun! NOT A BAD TRADE, AT ALL!!!!!! I am very careful, and use a sunblock for the very first time in my life (SPF50), but it's rather difficult here in Phoenix, with our 160 degree heat...but low humidity! Yeah right!
That's all for now, and all in all, I'm pretty pleased! First labs on the 6th, and I really feel like it will go well! How nice to finally have hope! Hope is not "over rated"!
Best of everything good to the rest of you, fellow troopers,and troopettes! Keep fighting the good fight! Maybe when it's over, we can have a party! Maybe not at my house, its a little small, but we can work out the details in two months, two weeks, and 6 days! Love you all!
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Roger,
You hit the nail on the head. Some of us have been through 1-3 rounds of previous treatments and many of us are in different stages of Liver damage but I think most of us have dreamed of a cure for many years. I was going to write a sci fi novel about how a plague hit the world and the hep c virus protected us that were infected! Forget that! I think world War Z had that concept. Enjoyed your post!!
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Good Morning and Namaste,
I just started Sovaldi and Olysio on September 30, 2014. I was diagnosed in December of 2006 and probably acquired it in 1984 from two pints of plasma given during what was supposed to be a routine surgery, but frankly it doesn't matter where we got it, just that we have it. I have no cirrhosis or major scarring. I have spent the last eight years taking very good care of myself, cleansing and supporting my liver health. Earlier this year I was loosing the battle and I noted the new treatments available with such excellent results and knew it was time. My viral load is now 3.8 mill. My liver enzymes have just begun to rise. All my other blood work is good, liver making proteins etc. This virus is very insidious as it is not just the liver that it attacks, it is an equal-opportunity virus. The most damaging affect for me is Melvin (I named my virus) causing such brain fog, fatigue, memory issues. I was diagnosed with CFIDS in 1993. So, I was ready. I go for first labs 10/15 and have DR. apt on 10/20. I am very positive and eternally optimistic.
Since starting treatment, I have noticed increased irritability and a short fuse. I apologize ahead of time each day, but it does seem to be getting better. I like calm and quiet, but you don't always get what you want. So, I listen to a lot of soothing music, yoga for the liver and walk.
I am glad to be here and be among friends who understand. You can follow my story at my blog at http://extremehealthwarrior.blogspot.com/.
God Bless and Namaste and keep fighting the good fight and I pray for all a good outcome. ;D
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welcome JEANNO, I AM ON same meds, I have 4 days left and hopefully I will be hep free,, at the half way point I was undetected so yes the new drugs are great, this is a good forum and coming here daily [or whatever] will help you cruise right on by. again WELCOME ,hope to be hearing you around.''just'' Willie g
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Welcome Jeanno and thank you for sharing your story on your blog, it is very encouraging. I am geno 1a on my 7th week of s/o treatment, my viral load at week 4 was 20 (started at 1,300,000's), nurse says it's gone, praise be to God! You have such a positive attitude which is what makes this forum so helpful. Thank you again and keep posting as you reach your cure.
Willie g congratulations you're right at the finish line - that's wonderful!
Blessings to all!
Sharon
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Hi guys , just want to say welcome Jeanno this forum is really great it helps answer many questions you have but more important is the peace of mind it brings from reading so many positive posts of others sharing this beast with you. I have been posting about my spouse Carol because at the time she started treatment she could barely write her name .her liver is stage 4 level 3 the encephalopathy was terrible . Friday she completed her 12 weeks and is undetected since week 4 she had a hard uphill battle having 3 units of blood twice due to ribavirin she was on with S/O you would not believe the turn around she's like her old self this medicine has give her back to me. You all are blessed to be receiving the meds. you are given a new life. rejoice with us Carols 12 weeks are done. her doctor has also told her that she can now be on a transplant list if need be down the road.I wish for all you guys the best and live your life praise God.
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Willie G!!!!! You're almost done. I pray you stay UD!!!! So today I am on my 7th dose of S/O at dinner. Side effects very minimal. Just alittle prickly on skin here and there, and slight headache which I have tramadol if gets bad since I run my own biz also. Just working partime for now. Also I take 5 mg ambien for sleep which works wonderfully since I wake refeshed and ready for day. Alittle more fatigued in morning , but once im up and eat, all is good! Definitely sunblock and sunglasses are a must. Especially since I am in southwest as well. Had this 23 yrs, didn't know it till June 2014. Which in someways a blessing with the fact I suffer from some anxiety issues and the interferon treatment would have sent me over the edge. I was tested geno 1a 5 mil vl slightly elevated alt ast. Dont get tested til 4 wks into treatment for vl. Just gonna pray. Its wierd for such strong DAAs to have such small side effects. WHAT A MIRACLE!!!! I hope the best for you all!!!! Blessings
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Oh and Dray, you tell Carol I am thrilled to hear her progress! She has been thru the trenches for sure. Just take good care and eat good! Love your liver. She is lucky to have someone thats loves her and takes care of her. That alot of us wish we had. I am grateful for my son and his girl and my family. They are a great comfort and support. Living alone though can be hard sometimes, but being a strong person makes it doable. You must be a good man.
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I am on day 6 and feeling better all the time. I switched from evening to morning. The first few days weepy and extremely irritable, not just itchy. Trying to eat well, keep moving and being positive and drink plenty of fluids.
http://extremehealthwarrior.blogspot.com/
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THANKYOU my friends , word,sunrise,dray and any of you other folks,,, it is really nice ,, i feel really happy that your all chugging along. just remember everybody..... 85% of the things we worry about is always worthless worrying and the other 15 % we have no control of.. we are always given the boat and oars,,, all we have to do is row it,,,,FAITH HOPE AND THE BIGGEST ONE is Love,, call someone or do something,,small for someone each day and you will find that IS the best part of your day.[I need to be reminded of everything I just posted myself,,,, in so many instances I am just the messenger and not the ONE who gives me the gift to do it,, MAY the CREATOR be with all of you and also I "just" Willie g
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today will be day 8 for me. starting week 2!! I feel a little headachy today. i take mine right before bed and they seem to totally knock me out. i have been having to take sleeping pills but not now. I am out before i can even pick a channel to watch on my bedroom tv lol. i have also been having weird dreams and some nightmares since ive been on it. i just hope the next 11 weeks go as easy as this one did. Every one hang in there..we will get thru this!
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Béen on Olysio and Solvadi for 8 weeks. I have 4 weeks to go. I cleared the virus in 10 days down from a 5 million viral load! Absolutely no side effects! I took the ribavarin/interferon trestment years ago and it just about killed me. These new antivirals are a miracle!
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Hi Nancy
Thats soooo awsome! Hey not to be nosey but how long have you had it? Just curious because I dont get vl test til 4th week marker. Ive had it 23 yrs and wonder if my vl will go down as well. Best of luck on your recovery!! It's so wonderful to hear good news!!
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Hi Sunrise,
I've had Hep C for 40 years! Now, thanks to Olysio and Solvadi - I don't!
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That is amazing. They say our time with it makes it different on the response, but to hear that makes it a reality that it doesnt matter. So wonderful to hear that Nancy! Continued UD!
Hey Willie day 9 for me. That means you should be done in a day or so. Congrads and God Bless
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I drove 35 miles to the clinic for my 4 weeks completed lab test. I was told to call for my results in 7 days. I called and they gave me my results. The dang lab worker was so busy talking that she had forgot to do a vial that was the important one. I think she told me they did not test my viral load. I had to go to a closer clinic and do labs again. I have to wait till next Monday for results now. I wasn't mad but disappointed for sure. I'll tell you that if I'm hungry I better eat or I pay for it with a headache. I have to stay ahead of it with food and water. Good Luck everyone.
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Hi Everyone - There are lots of great posts and new threads on this topic, but now that it is 9 months old and 4 pages long, I am going to lock it. If anyone has something that needs feedback on, please start a new topic. And good luck to you Ronaldo on your treatment. You got the last word on this topic! Hope to hear you sharing good news with us in a week.