Hepatitis Forums

Hepatitis C Main Forums => Living with Hepatitis C => Topic started by: mzmavis on October 05, 2014, 09:54:57 am

Title: Hep c and Lupus
Post by: mzmavis on October 05, 2014, 09:54:57 am

I am genotype 1b with stage 3 fibrosis, never been treated due to Lupus/autoimmune disease.   I will begin non interferon treatment this month and would like to hear from those who have Lupus and are being treated now.  I frequently have joint pain, flu-like symptoms and suspect that it will intensify during treatment.
Thanks for this forum I am learning so much already!
 

Title: Re: Hep c and Lupus
Post by: lporterrn on October 05, 2014, 06:12:14 pm

I would be very much interested in your experience. Although I don't know anyone w/ lupus who is on current ifn-free therapies, I do know a few people with autoimmune disorders who reported a reduction in their symptoms during ifn-free hcv treatment clinical trials. It was the first time they had a reduction in symptoms in decades. 

Title: Re: Hep c and Lupus
Post by: mzmavis on October 05, 2014, 08:09:38 pm

That would be welcomed!  I have 30 plus years of living with autoimmune disease and I suppose Hep C too.  I'm not sure just when I was infected, but suspect it was late 1960's or early 70's. 
I will keep you informed. 

Title: Re: Hep c and Lupus
Post by: penny on November 15, 2014, 10:59:55 pm

Are you on any meds for autoimmune? Do you have a high VL? Please let us know about the AI issues. I have some also.

Title: Re: Hep c and Lupus
Post by: mzmavis on November 15, 2014, 11:20:56 pm

I take Plaquenil.  VL 6220000 (6.79).