Hepatitis Forums
Hepatitis C Main Forums => I Just Tested Positive for Hepatitis C => Topic started by: Prayinglez on February 29, 2016, 07:41:02 am
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>:( my dr are referring me tp a specialist so now i am waiting for an approval in the mail if this is your first time interacting and or reading my post i am 29 years old and i receive medical through the state so i am very worried about being denied
For treatment especially the new ones. Which i hear havr better success rate of being cured I wanted to start trying get pregnant but now seems this will have to wait .I live in los Angeles county is there any clinical trial with new medicine out here or a way have someone else pay for it please help
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Hi Praying and welcome to the forum.If you get turned down you can always appeal it.There will be several people here that can help you with that,and answer you question about the pregnancy.Do you know what genotype you are?Don't worry about all of this right now.Some people have been denied and had to appeal,and some have gotten it without a fight.Wait and see what happens.As far as your VL,some people are starting in the millions.I started at 440k.Very few people are relapsing and VL doesn't matter.Hope this help some and there are some others here that can fill in the blanks I left for you.
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Hey Prayinglez,
A viral load of under 100k is not high, in fact low be comparison with most. However, it is different for everyone. Whenever I got over 3 to 5 hundred k, I wold get symptoms. Some folks are walking around in the millions and feeling fairly OK. More important right now I think are enzymes (ALT/AST) and fibrosis score (if any). Also, how you are feeling. My advice is to not ever be discouraged and never take no for an answer. You deserve a cure and will get one. Hang in there, absorb all the good info on this forum and through other helpful sources. Get your doc to help you fight and look into all of the patient access sources. good luck
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Hi
My pre treatment viral load was 2.4 million. All I ever felt was maybe a little more tired than I should feel.
I think anything under 6 million is considered low or at least low enough to be considered for 8 weeks of Harvoni vs 12 weeks assuming you have the correct genotypes for Harvoni treatment.
One thing to note is that viral load and liver function tests (ALT, AST) have nothing to do with severity of illness or amount of liver damage. Primarily it seems to be how long you have been infected. But even with that many people have been infected for decades and have little to no liver damage.
Good luck hope you have an easy time getting your meds
Lynn
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I agree with LynnK.
Pre-treatment over 19M copies - GP described as "those numbers are very high". In my case, they would raise and lower a few times on their own. No one can specificly say why, but I know this because I had been monitored despite not being treated yet (i.e. the fluctuation is documented).
Had been living with genotype 3a for at least 25 years prior to treatment and my F-score was 0-1, meaning little to no liver damage.
It has been my experience that you really cant compare anything regarding this disease or its treatments to anyone else's experience. You either have a similar experience with someone else, or you don't. We are all different, even if many things about us appear to be the same.
I got into a program regardless of my very high numbers, and 3 months post treatment I am undetected. Be patient yet dilligent and follow your doctor's orders. Eventually I'm sure you will get help too.
Best wishes! :)
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Everyone is different in how there symptoms effect them with this disease. My VL was > 6 million and I had been infected since 1971 with Fibrosis F3 and high normal ast/alt. But overall i was feeling Ok , now post cure i realize i had less energy before. I read on here people that have much higher and lower scores and have better or worse symptoms. So overall use all of this as reference and you decide how much the Hep C affects your life.
In any case with the new meds it is time to treat it and get cured.
This is a link to a post Lucinda put up about coverage and it has california medicare criteria
https://forums.hepmag.com/index.php?topic=3820.0
Fight for it and you will probably get treatment, worse case is you can go the generic substitutes from the redemption program and buy it for about $ 1500.00 or try Support path for help getting the harvoni. if your nt feeling that bad and your other liver functions and scan or biopsy are not bad you have time to wait and fight for the treatment.
Best of Luck, there are cures available now and you can get anew start!