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Hepatitis C Main Forums => On Hepatitis C Treatment => Topic started by: Napo on November 16, 2016, 11:30:48 am

Title: Side effects Viekira Pak + Riba
Post by: Napo on November 16, 2016, 11:30:48 am
Hi

I am normally OK with the side effects (major issue has been the itch and feeling tired sometimes...  but the freakin itch is the worst) but lately my stomach (I always take my medicine with food) has been all over the place and concentration has been difficult.... plus the irritability has been horrible I stopped talking to people because I cant even stand myself... has anyone been through this?

Week 8 (out of 12) this week... almost there.

Jorge
Title: Re: Side effects Viekira Pak + Riba
Post by: Lynn K on November 16, 2016, 04:51:21 pm
Not me personally but a lot of people experience riba rash and or riba rage often enough they have nick names.

As far as the itching I have heard people say oatmeal soap and oatmeal bath soaks can help and some folks used Benadryl but you should check with your doctor about any medicines or if they have any additional suggestions to help.

Best I can say is hang in there for a few more weeks and you can put this in the rear view mirror

Good luck
Title: Re: Side effects Viekira Pak + Riba
Post by: Pete on November 16, 2016, 10:57:39 pm
I've been lucky in term of side effects thus far.  I'm 21 of 24 weeks of VP/Riba now, so far so good.  After an slight drop in hgb in the first few weeks, it came back into normal range and has stayed there ever since.       

I tend to get dry itchy skin in the winter.  Best thing I've found is Cortizone-10 skin cream with aloe. The stuff works amazingly well. 

Good luck,
Pete
Title: Re: Side effects Viekira Pak + Riba
Post by: Napo on November 17, 2016, 09:42:11 am
Thanks, my hgb dropped but almost nothing and is getting back to normal levels so that is fine... I wil talk to the doctor because I am also getting rashes in my face.

Its not that much of a problem really, if it cures me I will take it... even the irritability.
Title: Re: Side effects Viekira Pak + Riba
Post by: victor333x on November 22, 2016, 08:03:48 am
Riba is the worst med out there.  I did the old peg interf +riba 12months.  Lost 40lbs and the depression set in about month 7.  Never did riba by itself but I've heard that it's effects are like cemo. Felt like death for sure!
 Did you try just harvoni first?  My sister just  finished after they tried riba-combo first.  She couldn' t take it so just H.  She is finished after 12wks and g1 HVC free!
Title: Re: Side effects Viekira Pak + Riba
Post by: Napo on November 22, 2016, 12:44:56 pm
Harvoni is not an option in Mexico yet, right now is my stomach, I started sunday with a burning sensation that ended in nausea, couldnt eat and a very upset stomach... Dr prescribed Dexivant which help a little bit with the burning and therefore the nausea... so its getting better.
Title: Re: Side effects Viekira Pak + Riba
Post by: its time on November 27, 2016, 12:37:53 am
hi napo
I was on same treatment and exp.  the  rash within the first week   I was told to up my water in take and use aveeno...  for me this worked...  def pay attention to the amount of water your drinking because it does help with the sides
now thinking about it I was more tired then I actually thought... I functioned ok for most part all thru work did have some brain fog...lack there of concentration  n  when I came home I layed down on the couch and slept for lil... I did have some riba rage but not to the point you are expressing... what really got me was the riba cough.... and the heart palpitations...
talk to your nurse thru the vp and talk to your dr...see what they say.. good luck.. and just remember easch day past is one day closer to end of treatment...
I go for my 12 week bloodwork Christmas eve... I'm a basket case but praying hard..   
keep posting 
Title: Re: Side effects Viekira Pak + Riba
Post by: its time on November 27, 2016, 12:39:07 am
p.s are you eating yogurts???   
Title: Re: Side effects Viekira Pak + Riba
Post by: its time on November 27, 2016, 12:53:01 am
i am under  " started vp & riba 8 a.m this morning.
Title: Re: Side effects Viekira Pak + Riba
Post by: Napo on November 28, 2016, 10:00:15 am
So I followed your advice and started drinking more water, we'll see how it goes... I dont particularly eat yogurt but I do have them once in a while...

I havent had the cough, the itch is getting better and the mood also... just the stomach and I still have some rashes (in my face mostly) tomorrow will be the end of the 9th week, so 3 more weeks.
Title: Re: Side effects Viekira Pak + Riba
Post by: Philadelphia on November 29, 2016, 03:29:21 pm
I remember feeling nauseated on VP/riba. They cut back my riba dosage and things went back to normal. I particularly struggled with high acidity foods, you might want to see if they affect you also. I love Mexican food and couldn't eat a lot of it - which would suck for you, living in Mexico as you do! :)

Good luck, you're getting close to the end.
Title: Re: Side effects Viekira Pak + Riba
Post by: Napo on November 30, 2016, 12:31:39 pm
I finally got a hold of the doctor, turns out he had Dengue... only in Mexico I guess... he prescribed Tecta and Almax for the stomach and at least the burning sensation is better.

And I am sorry but I literally cant stay away from Mexican food :) which it is a problem I agree, everything has some sort of spice. Tastes good you just regret it later.

Title: Re: Side effects Viekira Pak + Riba
Post by: Philadelphia on November 30, 2016, 02:38:56 pm
Glad you are feeling better. :)
Title: Re: Side effects Viekira Pak + Riba
Post by: its time on December 30, 2016, 12:10:57 am
Napo
how have you been feeling???

I remember stomach being somewhat off and for me what helped was eating more?? weird... I would eat yogurt...cottage cheese etc... that worked for me but always temporary fix ... my dosage of 1200 was never reduced and hearing when I was going thru treatment that most had reduction why my dr never did...I don't believe I ever got a straight answer from him either... 

how much more time till end of treatment???   


Title: Re: Side effects Viekira Pak + Riba
Post by: Napo on December 30, 2016, 12:59:26 pm
Hi

I actually completed my treatment 10 days ago (more or less), I just got the results this morning, is undetectable after 12 weeks so all is good! I just need to wait for another 6 months and do the viral load test again...

last weekend I had a really upset stomach but the dr. prescribe something and it got better, I dont have the itch as much but I still have a horrible rash in my face I guess is a matter of time.

So far so good! I remember you were taking your 6 month test this month right? how did that go?

Happy Holidays.
Title: Re: Side effects Viekira Pak + Riba
Post by: its time on January 01, 2017, 03:49:37 pm
CONGGRATS on completing treatment!!!   :)
now that's behind ya...I feel this is the hard part ...waiting lol
keep moving... drink the water and you will b on your way back to you.. the new you .. 
yes I went Christmas eve...
I got results back Friday but not THE ONE ive been anxious about..
I was told thou I am pre diabetic now   6.4 is diabetic  I am a 6   :(
and couple other things along with that....that I know what I have to do ...however  I should know my results by jan 6th ...
best wishes to you for a great new year !! 

Title: Re: Side effects Viekira Pak + Riba
Post by: Noony2k on February 25, 2017, 08:03:15 am
Hi I've just joined on here and this is my first post,but anyway I've just started on same as you I'm on to my 3rd day and all is good so far. Just try hang in there and do some searching on Google to see what has worked for other people who has or is going through the same treatment (I'll do some searching myself and let you know) when did you start noticing your first side effects?
Take care now and chat soon.
Ps I love this forum.Thanks!!
Title: Re: Side effects Viekira Pak + Riba
Post by: Irishgirl on April 06, 2017, 04:11:17 pm
Could I ask if anyone noticed more sensitivity in their right hand side? I usually get the odd little twinge but since starting my med's I've noticed it's more sensitive, am I imagining this ?
Title: Re: Side effects Viekira Pak + Riba
Post by: sapphire101 on April 06, 2017, 11:54:59 pm
Never had anything specific to just one side Irishgirl- but who knows I might not have missed it with so much else going on!

Did have the skin itch aka 'creepy crawlies' but hang in there Napo it is all worth it. Do remember to avoid the sun. That is a sure way to get a rash with riba.