Hepatitis Forums

Hepatitis C Main Forums => Post Hepatitis C Treatment => Topic started by: almostfinished on December 10, 2020, 01:43:26 pm

Title: It is not in your mind
Post by: almostfinished on December 10, 2020, 01:43:26 pm

I was tested for all auto immune disorders before starting Epclusa and I am a senior, I was very ill starting at week 3 or four of treatment and requested it be stopped but was told I could not stop after it was started. I finished treatment and was getting continually worse. Admitted to hospital 7 months after treatment ended and was diagnosed with Lupus, Mixed Connective Tissue Disease and Raynauds. I had none of these symptoms before I started treatment. I was convinced that it was all in my mind. It was not. My immune system is fried. i have all documentation and would like to hear if anyone else contracted Lupus or auto immune disease after treatment?

Title: Re: It is not in your mind
Post by: Lynn K on December 12, 2020, 11:42:28 pm

Did you ever do treatment with interferon in the past?

https://pubmed.ncbi.nlm.nih.gov/12528081/

Title: Re: It is not in your mind
Post by: almostfinished on December 13, 2020, 12:43:11 am

Hello...no I have never had interferon, my liver functions were not bad at all and I don't know why I was even put on the Epcluse. My Hep. C Dr. said I might develop problems with my liver when I got older. I was already 64. Doesn't seem like any one else has in this group had these same problems, my Doctor's can not figure it out. All of my auto immune disorders onset is usually early in life.
Thank you Lynn for your research.

Title: Re: It is not in your mind
Post by: Lynn K on December 13, 2020, 01:45:09 am

The forum isn’t as active as it was in the past before the new DAA’s were approved.

From what I found hep c itself has the potential of causing autoimmune problems.

For myself I like most had only mild elevations in liver enzymes. I treated three separate times with interferon based medicines but was a null responder. After probably 30 years of infection I was diagnosed with liver cirrhosis. I was finally successfully treated with Harvoni and ribavirin which did cure my hep c but not my liver cirrhosis. So at this point I’ve been living with liver cirrhosis for 13 years. I’ve been free from hep c for 6 years.

I hope your doctors are able to treat your autoimmune problems and you experience relief from your symptoms

All my best to you