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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Recent Posts

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1
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by jberlin on February 25, 2024, 12:08:22 pm »
Awesome News – single digits tomorrow! Sending lots more good vibes! The countdown to Done! Rest and recovery will come next, and not soon enough, but soon.

I am not a MD, so grains of salt please, but I would certainly make sure to be recovered – rest, strength, mental, job, etc before hopping into another major medical procedure. I also think a corticosteroid injection after a few weeks should be fine, and I assume helpful for discomfort. This advice is worth every penny you paid for it!

A doctor that you can trust, and staff that will take the time to advise / answer questions is really important in a multi-month treatment such as this. Shands is top-notch so I assume you are a few hours north of me. Spring and your improved health will both come soon!

Update us when you cross the pill finish line!
jack
2
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by opaleye on February 25, 2024, 12:33:07 am »
Hi Jack!

Keep those good vibes coming!

Once again, a thousand thanks for being there. Sorry I haven't replied earlier. Just so tired, well more than tired-- deep fatigue that feels like I'm on an alien planet with a stronger gravity field. And work has been challenging. A reduced schedule hasn't really meant reduced responsibilities. I've set a few projects aside at least.

But here's the good news! I'm in the final home stretch, only 11 pills to go!!! And I did end up contacting my primary doc about the CBC and CMP labs. Everything was in normal ranges, except platelets that were up 7 points to just 2 points out of range. Not did the liver enzymes stay in the normal ranges, but AST is down from 29 to 20 and ALT is down from 22 to 16. Further indication that Vosevi is doing the trick!

I'm starting to think about life after treatment. I've put off some medical procedures/surgeries, and I'm wondering if I should continue to hold them off until 3 months post-treatment. Do you know anything about that? Specifically I'm scheduled for corticosteroid shots a few weeks after EOT. Should I worry about that suppressing my immune system? I'll ask my hepatologist's PA, but thought I would see if there was any Collective Wisdom from the Forum.

So glad you found a good hepatologist at Tampa General. It really makes a difference when you trust your specialist doctor. I have great respect for my hepatologist of a dozen years. He is buddies with an HVC researcher at Shands so he had insight into the success of early DDA trials.

Take care and thanks again for sharing your stories!

Annie
3
On Hepatitis C Treatment / Re: Hair loss after epclusa
« Last post by FinleyMorse on February 18, 2024, 06:21:18 pm »
First off, congrats on finishing your epclusa treatment! That's a big accomplishment. As for the hair loss, it can be super worrying, especially when it feels like your locks are doing a disappearing act.
So here's the deal: while it might not be listed as a side effect, lots of folks have reported experiencing hair loss post-treatment. It's like your body's still adjusting, ya know? I had a similar thing happen to me after my treatment, and I was scratching my head (literally) trying to figure out what was going on.
But hey, if you're still on the hunt for answers, I stumbled upon something called protein overload during my research. It's this sneaky issue where your hair gets too much protein, making it look thinner than it actually is.
4
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by jberlin on February 16, 2024, 11:59:32 am »
Annie,

Now 19 pills! Awesome!

Sorta surprised there wasn't a midway count to see the drop in the viral load - but let's assume it undetectable - because it was! I remember the 3 month post treatment wait (my 1st treatment in 2004-5 they waited 6 months) - it was good not to be sick from the meds any longer, but still a bit anxious until you know for sure. Sometime in June will be the good news, and you will let us all know pronto!

Your point about pushing the insurance companies, and pushing the Doctors to also push on your behalf, is an important one. By my second treatment I knew more about things than my current GI, so I actually found a local Hepatologist at Tampa General to manage my treatment. Made a world of difference that they were experts. Folks out there - make sure your doctor is experienced in Hep C treatment!

Home stretch, so please keep going strong through the finish line, and update us with any news or thoughts.

Sending good vibes your way!

Best wishes,
jack
5
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by opaleye on February 15, 2024, 11:46:14 pm »
Hello Jack!

Started week 9 today! Only 20 pills to go! The incline has gotten a bit steeper lately. Fatigue is deeper, brain is foggier, and there were numerous days of digestive distress this past week, but the side effects remain tolerable and I am determined to get to The Destination.

Of course The Ultimate Destination is being Not Detected at three months post-treatment. Fingers, toes, arms, and legs crossed!

I haven't had any more testing. I thought my primary care doctor was going to check CBC and CMP after the second month, but I haven't seen that lab slip in the mail yet. Yeah, I know I could've called the office to nudge them, but it's getting so close to the end though that I might as well wait for the HVC Quant order from the hepatologist's PA. That will also include CBC and CMP.

Funny, I did see the hepatologist himself last week. He did an endoscopy for my husband and chatted with me afterwards. He wondered (again) that if the insurance company had ponied up for a 12 week treatment instead of only covering 8 weeks, then maybe that would have been my cure. If they had covered another 4 weeks then perhaps there wouldn't have been a need for me to do a second and now third treatment.

Just tossing that out in case other people are wondering if they should lobby their insurance company for a longer course of treatment.

Thanks again for your encouragement and positive vibes!!  :)

Cheers,
Annie
6
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by jberlin on February 08, 2024, 09:05:04 am »
Annie,

Great to hear from you and to hear things continue to go well, and you continue to tolerate the treatment. Time continues to fly by - often too fast, but in this case let it fly! You are rounding the last turn and soon will be in the home stretch!

Have you seen a quant virus count yet? Wondering how the Vosevi is doing with 'whack a virus mole'? I am betting you are undetectable - let's get there and stay there.

Less than a month to go, so give us an update soon, and often if you can. Stay strong (and rest and hydrate!)

Hugs,
jack
7
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by opaleye on February 07, 2024, 09:50:49 pm »
Hello Jack!

Thanks again for being my seat mate on this journey. As frustrating it has been to be the straggler who didn't respond to the new treatments, I am so happy for those who did and are now cured.

Another milestone. Finished the second bottle today. Only 28 days to go!

Other than that, nothing much to report. Still struggling with deep fatigue and some "intestinal disturbance" more often, but it is tolerable. Having the extra time to sleep with working shorter days helps. I'm even getting "Good job meeting your sleep goal" praise from my smart watch  ;D

That's all for now. Thanks again for being here!

Cheers,
Annie
8
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by jberlin on January 31, 2024, 12:52:06 pm »
Dear Annie,

Thank goodness our livers are tough organs, and with a good diet will heal. I assume your Doc is just being extra careful, and why not?

Sorry about the fatigue, all you can do is keep eating, hydrating and resting - time is flying by and this needs to be, must be!, the end of your Hep C misadventure!

It is bittersweet to me that there is so little traffic on this forum now, but it is clearly because of the diminished pain and suffering of Hep C, and the wonders of scientific advancement. However, as you and I document this, many will read in the future and benefit from this diary - so please keep commenting and keep being that strong person it is clear you are!

Another day done!

Cheers,
jack
9
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by opaleye on January 30, 2024, 09:30:01 pm »
Hi Jack,

No apologies necessary! I didn't log in for a while either. We had family visiting for a few days and then I was catching up with work.

There also wasn't too much to report. I did pass the "halfway" point though -- 6 weeks completed, yay!! Almost done with week 7 now. My spreadsheet is color-coded so each week is a different highlight color. I'll take any positive feedback I can get!

Tomorrow I go to the hepatologist's office. First for a FibroScan and then a follow up visit. I'm a bit perplexed why the FibroScan. They used to do that at my annual visits but then after a liver biopsy I was told the FibroScan wasn't needed. Hmm.

The only other thing to report is that I've had a few episodes of deep fatigue lately. Not just tired, but debilitating fatigue that feels like I'm swimming through mud. Fortunately it isn't all day every day. It is enough though that I am now taking some family medical leave to shorten my work day.

Thanks again for sharing your journey and your words of encouragement! You have walked the walk so you know what it's like to travel down this road. You also know how important it is to have the support of this forum, and I so appreciate you joining me on my journey to slay this dragon.

Cheers,
Annie
10
On Hepatitis C Treatment / Re: Third time is the charm? Starting 12 weeks of Vosevi
« Last post by jberlin on January 24, 2024, 08:47:59 pm »
Annie,

Sorry for being AWOL on you. Was actually out of touch traveling with the paying job for a few days.

Great news on the bloodwork. This means a lot, because your body is really tolerating the treatment. I remember having to get white and red blood booster injections the first go round, and how bad the white one hurt. My second treatment I tolerated so much better. And finally. it seems you are as well.

You are doing amazing and are amazing!

I am holding my breath for your quant Hep C count. I want 'not detected!' Listen to music, it sooths the soul - whatever you enjoy - with a dose of water with electrolytes.

"Stowin' away the time, Are you gatherin' up the tears?"

No more crying soon!

Hope to get an update soon!

jack
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