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Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
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Recent Posts

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21
I Just Tested Positive for Hepatitis C / Re: >25Million Viral Load
« Last post by 76trombones on December 24, 2020, 12:00:38 pm »
i finished my 8 weeks mavyret today, god bless big pharma  ;D
id say my hep c symptoms are 90% improved. i started noticing incremental improvement about 2 weeks into treatment.  side effects were a grind but doable. i had a dizzy/nausea spell about about an hour after i took my dose the first 3 days but it lasted only 20mins and then i felt fine. eating more food with the pills helped. then days 5 -10 i had constant but mild headache & nausea that built up to a full flu like feeling for 2 days roughly, then it completely cleared up for 5-6 days and i felt pretty ok, and then it would repeat, mild headache & nausea, tiredness 5-6 days and then it would clear up for 5-6 days,&  i never had full flu like feeling again thank god.  the last 2 weeks i had no side effects at all.
   i hate taking drugs and i hate drug side effects i'm a big whiner so if i can handle it then you can too, so dont delay if you get the chance. yes some people have bad side effects but odds are it wont be you  :D
 i havnt had any tests yet, i'll keep you posted. fingers crossed.

DB
22
Over a period of 27 years, deaths from viral hepatitis have significantly risen, report researchers in a study published in the Journal of Viral Hepatitis.

Viral hepatitis presents as liver inflammation caused by hepatitis viruses A, B, C, D and E. While all these viruses can cause acute hepatitis, hep B and hep C can also cause chronic infection, resulting in progressive liver fibrosis, cirrhosis and a higher likelihood of developing liver cancer. Hepatitis D occurs only in conjunction with hep B.

For more...
https://www.hepmag.com/article/viral-hepatitis-burden-continues-rise-globally
23
An analysis of the prevalence and mortality of hepatocellular carcinoma (HCC) among Medicare beneficiaries found that the condition is becoming increasingly common. Moreover, the causes of this type of liver cancer are dependent on race.

“In this in-depth analysis of the Medicare database, our data confirms an increasing rate of HCC that was observed in the Medicare beneficiaries between 2005 and 2014,” study authors Danubia Hester, MD, of the Inova Fairfax Hospital in Falls Church, Virginia, and colleagues wrote. These findings were published in the Journal of Clinical Gastroenterology.

For more....
https://www.hepmag.com/article/liver-cancer-growing-concern-among-medicare-recipients
24
Non-alcoholic steatohepatitis (NASH) is the second most common—and fastest-growing—indication for liver transplants in the United States, according to a study in Clinical Gastroenterology and Hepatology. Moreover, among women without hepatocellular carcinoma (HCC), NASH is already the leading reason for a liver transplant.

Changing trends in obesity and the development of better treatments for viral hepatitis have altered the picture of chronic liver disease in the United States. While vaccines can prevent hepatitis B and new treatments can cure hepatitis C, the prevalence of obesity and type 2 diabetes have shot up, increasing the risk of non-alcoholic fatty liver disease (NAFLD) and NASH, its more severe form.

Read more...
https://www.hepmag.com/article/nash-second-leading-indication-liver-transplants
25
 Physical activity levels were found to impact the likelihood of death from any cause in people with non-alcoholic fatty liver disease (NAFLD), according to a study published in Clinical Gastroenterology and Hepatology.

Arising from the accumulation of fat in the liver, NAFLD and its more severe form, non-alcoholic steatohepatitis (NASH), are responsible for a growing proportion of advanced liver disease worldwide. As a result of inflammation, NAFLD can lead to the buildup of scar tissue (fibrosis), cirrhosis (advanced scarring) and even liver cancer. With no effective approved medical therapies, disease management is dependent on lifestyle changes such as weight loss and exercise.

For more...
https://www.hepmag.com/article/physical-activity-tied-lower-fatty-liver-disease-mortality
26
Post Hepatitis C Treatment / Re: It is not in your mind
« Last post by Lynn K on December 13, 2020, 01:45:09 am »
The forum isn’t as active as it was in the past before the new DAA’s were approved.

From what I found hep c itself has the potential of causing autoimmune problems.

For myself I like most had only mild elevations in liver enzymes. I treated three separate times with interferon based medicines but was a null responder. After probably 30 years of infection I was diagnosed with liver cirrhosis. I was finally successfully treated with Harvoni and ribavirin which did cure my hep c but not my liver cirrhosis. So at this point I’ve been living with liver cirrhosis for 13 years. I’ve been free from hep c for 6 years.

I hope your doctors are able to treat your autoimmune problems and you experience relief from your symptoms

All my best to you
27
Post Hepatitis C Treatment / Re: It is not in your mind
« Last post by almostfinished on December 13, 2020, 12:43:11 am »
Hello...no I have never had interferon, my liver functions were not bad at all and I don't know why I was even put on the Epcluse. My Hep. C Dr. said I might develop problems with my liver when I got older. I was already 64. Doesn't seem like any one else has in this group had these same problems, my Doctor's can not figure it out. All of my auto immune disorders onset is usually early in life.
Thank you Lynn for your research.
28
Post Hepatitis C Treatment / Re: It is not in your mind
« Last post by Lynn K on December 12, 2020, 11:42:28 pm »
Did you ever do treatment with interferon in the past?

https://pubmed.ncbi.nlm.nih.gov/12528081/
29
Egrifta (tesamorelin), a growth hormone–releasing factor analogue, turns off genes that promote inflammation and scar tissue buildup in people living with HIV who have non-alcoholic fatty liver disease (NAFLD), thereby improving their liver health and potentially reducing the risk of liver cancer, according to a recent study.

“These data demonstrate for the first time how tesamorelin reduces the accumulation of liver fat and improves hepatic gene expression that reflect an overall return toward liver health in people living with HIV-associated NAFLD/NASH,” Steven Grinspoon, MD, of Massachusetts General Hospital, said in a press release from Theratechnologies.

For more...
https://www.hepmag.com/article/egrifta-improves-liver-health-people-hiv
30
Post Hepatitis C Treatment / It is not in your mind
« Last post by almostfinished on December 10, 2020, 01:43:26 pm »
I was tested for all auto immune disorders before starting Epclusa and I am a senior, I was very ill starting at week 3 or four of treatment and requested it be stopped but was told I could not stop after it was started. I finished treatment and was getting continually worse. Admitted to hospital 7 months after treatment ended and was diagnosed with Lupus, Mixed Connective Tissue Disease and Raynauds. I had none of these symptoms before I started treatment. I was convinced that it was all in my mind. It was not. My immune system is fried. i have all documentation and would like to hear if anyone else contracted Lupus or auto immune disease after treatment?
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