Author Topic: Genotype 3/day 9 of Sov/Rib treatment (Read 12445 times)

bepper · « **on:** October 18, 2014, 07:46:25 pm »

Hello all, After months of reading here and Dr appointments, here's where I stand...
I was told in the mid 80's I had non A/non B hep, to 1990's the liver doc told me that I was one of the lucky ones, that I had HepC, but my body had fought it off on it's own. Then this past summer I was told my viral load was 4.5 mil, that I have hepC! It was like a knife in my heart, or should I say liver.
Sadly, only a few weeks before, my husband was dx with cirrhosis and liver cancer. I will post his issues in another post as he's been refereed for a transplant. It was his issues that got me reading this board.
On one hand, I'm very grateful to have the treatment available, on the other hand I feel guilty that my husband wasn't so lucky.
The labs listed here are the baseline numbers my Dr ran. I'll go in this week for the week 2 labs. My enzymes and bilirubin are only slightly elevated.
The main side effect I'm having from the meds is the extreme exhaustion. I know it may be a mixture of the sadness of hubby's uncertain future and the meds, but I'm blaming the meds cuz before this, I've been tending to all his needs. This week, not so much, I've slept/stayed in bed much of the week. I laid down last Saturday with a severe headache and light sensitivity. Those are better, but my get up and go has got up and gone without me.
So good to know I am not alone and being Geno 3 I almost feel obligated to post, I know we are rare. Thank you to all the posters before me.
Sending good thoughts and well wishes to all.

bepper

ALANINE AMINOTRANSFE   0 - 33 U/L   72   H
ASPARTATE AMINOTRANS   0 - 32 U/L   88   H
HCV QUANTITATIVE viral load   5678036

rainbowray · « **Reply #1 on:** October 18, 2014, 08:03:28 pm »

Hi bepper,

I am on the same treatment, 15+ weeks so far. It can be brutal but doable. I still go to work each day and push myself to try to be productive. I believe you are on a 12 week treatment, or 24? 24 is tough.
Drink extra water each day, as the treatment goes on the side effects will probably increase. Be diligent in your labs, and watchful of unusual symptoms.
I am genotype 1B, and I was undetected of the virus at 3-4 weeks, so hang in there and get yourself healed. Then concentrate on your husband. Guilt is a unnecessary
negative emotion in my book. You are trying your best.
I just took a week vacation to be with my grandchildren all week, it was very therapeutic for me.

bepper · « **Reply #2 on:** October 18, 2014, 10:51:25 pm »

Hi Rainbow,

Thank you for the kind reply.

Grandkids are the best therapy! I was supposed to have my 2 granddaughter's tonight, but the other grandma kept them so late, I can't get them till tomorrow.

I don't live in guilt, but it crosses my mind.

I'm on 24 week treatment. This week started out rough since the kids were off school on Monday and spent the day with me. So by the time we shopped a little, went for lunch and drove them home, it just really got to me.

bepper

DesertGuy · « **Reply #3 on:** October 19, 2014, 07:44:57 am »

I'm on 24 weeks--same treatment---won't say much except it does not get any easier. Stay with this forum--you will find more info here than elsewhere.

BattleTheBeast · « **Reply #4 on:** October 28, 2014, 06:10:02 pm »

Hi Bepper,
Can I just give you a big hug? I really don't have the right words for you except to say that I will pray for you and your hubby. Try and keep positive.

I face extreme exhaustion myself, in fact that's what finally lead to my diagnosis. I was in NY for a work function and went back to the hotel after a really long day but so over-tired I couldn't sleep. I took a bendryl because I could feel my sinus headache coming and laid down around 9 PM. The next thing I remember is that it was 10:30 am and I couldn't move, literally I could not function. Eventually I managed to call front desk for late check out and a co-worker to explain my absence from the event. Long story short I made it to Penn Station and home about 6 hours later. I then slept at home for an additional 2 days, started having blurred vision, dizziness and made my way to the doctor with some family help. Five months and thousands of dollars in tests later I find out I have Hep C, Type 1a, with a viral load over 8 million and stage 4 cirrhosis.

Now two more months along, I am working for home (I am so lucky my employer is allowing this) and 18 days into the S/0 combo. I go between extreme exhaustion to I can't sleep if my life depended on it, currently on a two day plus awake bender after a three day I can't stay awake bender. My entire body hurts but especially my legs and hips. I itch like a crazed manaic and my poor skin is a mess from it but in spite of it all I have hope. So let me give you a piece of my hope for you and your husband and know that someone else is saying a prayer for you both!

~Mel~

zeena · « **Reply #5 on:** October 28, 2014, 09:56:28 pm »

hi bepper and the beast

my itching started with a rash on my legs during the polar vortex, nobody could evplain it, but now i know it was the hepc. god it waas brutal, it will go away as your viral load drops. sometimes the riba drives me scalp itchy but i can almost always link it back to stress.stress is easier seen in our bodies now i think.the itching, the insomnia. i can not state enough if you can exercise, get oxygen into your muscles it should really help with the side effects of pain especially in the legs and hips.it has gone away in my case, and i use to almost not be able to get up and walk after driving short distances, now, no problem.i went today to get extra iv fluids, and sat with a shunt in my vein for 20 minutes then had the bag hooked up. an hour later a doc comes to check and tells me nothing had gone into me because of a blood clot i let out a little scream and said take it out. i can not have this extra stress, i will drink water today. 1 more month and i am done with these meds. today, at 5 months still ud. now 5 months in a row.my cognitive abilities still poor, very poor. memory? what?? (haha bad joke)anyway, good luck and it gets better!!

BattleTheBeast · « **Reply #6 on:** October 28, 2014, 10:10:17 pm »

Thanks so much Zeena

I need all the encouragement I can get. I don't have Geno 3 and I am not on Rib but saw the post Bepper left and wanted to give her a hug! I am definitely linking back all kinds of crazy to the Hep C now that I know I have it, why did it take the doctors so long to figure it out? I also blame myself for not being persistent enough but it's a confusing thing. It comes and goes, ups and downs. Stress is a HUGE factor for me and a major itch trigger. I can also say that when I quit smoking on 12/19/13 the symptoms became more intense and more frequent but I attributed everything to quitting smoking for you a few months, then I hit the wall. If I can manage to move my tush a bit more I will work on exercise, major goal this week is to work every day and start a big "clean up and throw out" project, more like a program..

zeena · « **Reply #7 on:** October 28, 2014, 11:46:26 pm »

hey beast
beat the stress by taking yourself out to a concert or function. do something special for yourself.buy tickets to a performer and laugh.because this is a short lived problem, you will clear it, there are too many great options now!.stress is dumb anyway, maybe this disease is a teacher-pinging us with pain when we let stress get the best of us.i have learned to get by with a couple hours of sleep for a few days then one night of 6 hours. its only for another month.thank you for sharing your kindness and stories with us. zeena

BattleTheBeast · « **Reply #8 on:** October 29, 2014, 07:56:23 am »

Ah Zeena, great attitude!

I was laughing as I read your post, it's something I would totally write to someone else. Thanks for the kick in the tush!

~Mel~

amocuatli · « **Reply #9 on:** October 29, 2014, 08:11:02 pm »

Hey this is a reply to badbradley Thanks your encourage
ment is just what I was needing. I'm glad for you.
But I have to say something I am worried all over again I have been having bleeding of the uterus-remember the back pain I was tljng y'all about? T
I took the advice of someone on this forum who said it was me and that I just neede to step back and then I started bleeding so I went in for An exam and the doctor said I needed a d&c I am waiting the results now. Has anyone had else had any kind of bleeding? On o/s? I will get my last check up on 11/17 if it is undetected I am CURED! But now I have this bleeding...geez no rest For the weary!
I'll find out if the bleeding means cancer on the 7th of Nov
I love you all stay strong never give up the ship!

Tess1971 · « **Reply #10 on:** October 29, 2014, 08:35:59 pm »

What is your age if I may ask?

amocuatli · « **Reply #11 on:** October 30, 2014, 05:37:03 am »

I am 57

Tess1971 · « **Reply #12 on:** October 30, 2014, 11:53:55 am »

Bleeding can be caused by fibroids - which are benign muscle tumors. They run in my family and I have had them. They can bleed enough to cause anemia if prior to menopause. A full physical exam by a good gyn will tell. I would not assume cancer.

Tess1971 · « **Reply #13 on:** October 30, 2014, 11:57:56 am »

And I should have mentioned that my mother had polyps that caused her to bleed and they were removed with a D&C and there was no cancer involved. So relax and just have it checked out.

amocuatli · « **Reply #14 on:** October 30, 2014, 02:39:03 pm »

I have had a d&c and I should know setting but not until the 7th of November. Also did it ever cause back pain like right at the top of the right hip also I get fever bloating a full sensation, gas a headache right about the time I start bleeding an it just seems to get worse

Tess1971 · « **Reply #15 on:** October 30, 2014, 04:50:01 pm »

I do not remember my mothers details, I only remember some of yours as I was young at the time. But, I had many of them with the fibroids as I had not gone thru menopause yet. I had them removed and never had issue again and that was years ago now.

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Author Topic: Genotype 3/day 9 of Sov/Rib treatment (Read 12445 times)