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Author Topic: Starting Harvoni tomorrow: 1/2/15  (Read 12977 times)

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Offline Hudson Guy

  • Member
  • Posts: 7
Starting Harvoni tomorrow: 1/2/15
« on: January 01, 2015, 09:48:15 pm »
Hi, I am new to this forum also, I pick up my Harvoni tomorrow and will start.  I am looking for guidance with this, so it is interesting to read these threads.

My history is that I contracted Hep C in 1967, got diagnosed in 1992 and was treated 2000 - 2004 with a variety of Interferon combinations.  The first was Riboviran, which I proved allergic to and had to stop after 12 weeks, really bad reaction.  Then a drug trial with Interluken 10, this made us all so sick they stopped the trial after 3 months. Last treatment, another drug trial, Interferon and Thymosin.  I had to drop out after 9 months due to heart side effects - Tachycardia, mucho many trips to ER.  I was a non-responder each time.  I am genotype 1-A.  For the last 10 years I have just been trying to keep my healthy and hopeful.

So now I get to do Harvoni and I am stoked!  The fact that modern medicine has cured this virus and that I get to benefit are huge.  I am interested in what I am in for over the next 11 - 22 weeks??  Thank you.
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #1 on: January 01, 2015, 10:18:22 pm »
Hi Hudson

Happy New year for us all

My history is similar to yours. I started Harvoni on 11/18 for 24 weeks and haven't really had much in the way of sides maybe some mild headaches but that's about it.

Certainly a cake walk compared to what we have been through.

Good luck on treatment and wishing you SVR
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Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Hudson Guy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #2 on: January 01, 2015, 11:37:13 pm »
Thank you Lynn K. I am always optimistic and you are right about what we have already been through.  The early versions of treatment were downright brutal.  I am looking forward to this treatment not having bad side effects.  This seems to be the results and also your experience.  I'll keep this thread up to date!
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Offline cathy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #3 on: January 03, 2015, 01:57:17 am »
F4
compensated cirrhosis.
Geno type 1A
Viral load:

Hi,

Happy New Year to all of us.  I started Harvoni tonight at 8 p.m. It is now 1 a.m. and do not feel like I have taken anything.  Probably too early to tell.
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Offline Hudson Guy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #4 on: January 03, 2015, 11:58:47 am »
Hi Cathy,

I picked up my Harvoni yesterday but decided to start this morning.  I didn't want to risk a bad reaction in the middle of the night.  We have been there with some of the earlier meds, so I am officially on the new regime at 8AM today.  Exciting!
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Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #5 on: January 04, 2015, 06:20:48 pm »
Hi Hudson,

It's a crazy thing when you finally take that first magic orange pill isn't it? Happy you are on the road to SVR!

Mel
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~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #6 on: January 04, 2015, 06:22:38 pm »
Quote from: cathy on January 03, 2015, 01:57:17 am
F4
compensated cirrhosis.
Geno type 1A
Viral load:

Hi,

Happy New Year to all of us.  I started Harvoni tonight at 8 p.m. It is now 1 a.m. and do not feel like I have taken anything.  Probably too early to tell.

Hi Cathy!

Welcome, glad you are doing ok so far. Hope your treatment stays as easy as your first few hours!

Happy 2015 - SVR for everyone this year!!

Mel
Logged
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Hudson Guy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #7 on: January 04, 2015, 07:34:26 pm »
Thank you Mel,

Yes, it is a great feeling to start taking this miracle pill.  I felt queasy yesterday but today I am doing fine.  I have a higher level of fatigue, but hey, I had fatigue already.  I have been told that once you beat the virus the fatigue goes away.  That will be a welcome change.  I have to plan what I will do with all of my new energy.

Happy New Year!
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Offline edmed

  • Member
  • Posts: 10
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #8 on: January 04, 2015, 08:18:18 pm »
Hey Hudson guy,

 wow similar story with me, except for all the trial. Multiple time on therapy and each time it fail for me as well. I started Harvoni 12 days ago and my side affects have been minimal. I had mild headache and that all.  I just make sure I drink lots of water and try to live life as best as I can.  today I took my med at 6:30 in the morning and went fishing the whole morning and felt great. Remember, drink lots of water.


   
Ed
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Offline cathy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #9 on: January 06, 2015, 03:07:44 am »
Happy to say, Harvoni, 4th day and no side-effects at all.  Even have more energy than I had before.  I can't believe it.

Cathy
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Offline Hudson Guy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #10 on: January 06, 2015, 11:15:45 am »
Hi everyone,

I am also starting day 4 on Harvoni with almost no ill effects.  I had some mild nausea my first day and a higher level of fatigue than usual, also didn't sleep much.  But in the 3 days since I feel pretty good.  I have been doing a 2 mile walk every morning and drinking a lot of water.  My doc told me that the better shape I was in, the easier time my body would have getting rid of the virus, so I am trying to do my part.

Interestingly the side effects listed for Harvoni are similar to  chronic Hep C, like I already was fatigued and suffered from insomnia and headaches, muscle & body aches, etc.  This early on, I do feel all around better and stronger.  I am stoked!

Richard
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Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #11 on: January 06, 2015, 04:37:50 pm »
Hi Richard,

Sounds like you are doing great! Keep up the walks and the water and the great attitude. I can't wait to hear at your next Blood Test you are Undetected!!

Wishing you and all of us SVR in 2015!

Mel
Logged
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Hudson Guy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #12 on: February 14, 2015, 10:58:16 pm »
Woke up this AM with a weird rash on my calf??  Red, skin hard with rash?  Wondering if it is a spider bit or a Harvoni side effect?
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #13 on: February 14, 2015, 11:04:00 pm »
Hadn't heard of that if it doesn't improve call your doctor.

Also you could review the prescribing sheet that came  with your meds and check the listed side effects

Here is a link

http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Hudson Guy

  • Member
  • Posts: 7
Re: Starting Harvoni tomorrow: 1/2/15
« Reply #14 on: February 14, 2015, 11:52:22 pm »
Thank you, Lynn.  I did read the insert for the drug and it is silent on any kind of rash. I do live in the country and we do have spiders here, so that might be it.  I will go to the doc if the rash doesn't get better.

I am now in my 6th week on Harvoni.  I was not undetectable at 4 weeks.  However the doc told me that I am scheduled for only 12 weeks and I am due for a blood test at the end of the 12 weeks and an appointment a week after that.  So we shall see??

I flunked 3 interferon treatments in 2000 - 2004.  However my liver health did improve as a result of these treatments. I was a 3+ in last biopsy in 2006 and a 2 with Fibro Scan in 2/14.  I guess that I am lucky!
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