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Author Topic: Need advice about sovaldi & olysio treatment  (Read 6569 times)

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Offline Vintag54

  • Member
  • Posts: 22
Need advice about sovaldi & olysio treatment
« on: January 21, 2015, 01:43:44 pm »
NEED ADVISE : I am about to start Solvaldi and Olysio very soon. Years past I tried interferon and Rabavirin and had to be pulled off due to side effects.

What can I expect regarding sun light sensitivity and restless sleep etc. I have read articles but would like real patient feedback.

Also, can I expect hair loss as well ( not really an issue but would like to know).

Any feedback would be greatly appreciated.

Vintag54 (wish me luck)
« Last Edit: January 21, 2015, 03:42:06 pm by lporterrn »
Warm Thanks, Vintag54

HCV over 30 yrs.
64 yrs
Genotype 1a
Viral load in orbit.
3.5 mos of interferon/rabavirin
2/5/2015 on Sovaldi/Olysio

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Need advice about sovaldi & olysio treatment
« Reply #1 on: January 21, 2015, 03:48:38 pm »
Welcome,
There is a lot of experience with that drug combo and I hope you get some answers. In the meantime, you can look at a couple of previously-posted threads   http://forums.hepmag.com/index.php?topic=2043.0
http://forums.hepmag.com/index.php?topic=1674.0
Wishing you a safe and healthy journey to defeat hep C.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline sunrise

  • Member
  • Posts: 463
Re: Need advice about sovaldi & olysio treatment
« Reply #2 on: January 21, 2015, 04:10:07 pm »
Hi Vintage
      Best of luck with your treatment.  I took Sovaldi with Olysio for 12 weeks. What I can tell you is my experience.  I had some light sensitivity.  Luckily it is winter so try to wear sunglasses. If you aren't covered up in bright sun wear a natural 50 sunblock. I had no hair loss . I do however have anxiety issues, and for me the meds increased mine.The doc prescribed clonepin. I also have had jpint pain whoch increased. Mainly my ankles which was wierd. My Achilles tendon, which still bothers me and im off treatment one month now. My biggest side effect is my weight. My appetite got out of control. I gained 35 pounds!. Im trying to lose it now.
Best wishes for your recovery. Don't worry ypu will do fine. Oh anpther side effect was I got little prickly feelings randomly on different parts of ky body on my skin. Nothing bad, you just know something is happening. .. Blessings Sunrise

Offline sunrise

  • Member
  • Posts: 463
Re: Need advice about sovaldi & olysio treatment
« Reply #3 on: January 21, 2015, 04:12:10 pm »
Hi Vintage
      Best of luck with your treatment.  I took Sovaldi with Olysio for 12 weeks. What I can tell you is my experience.  I had some light sensitivity.  Luckily it is winter so try to wear sunglasses. If you aren't covered up in bright sun wear a natural 50 sunblock. I had no hair loss . I do however have anxiety issues, and for me the meds increased mine.The doc prescribed clonepin. I also have had joint pain which increased. Mainly my ankles which was wierd. My Achilles tendon, which still bothers me and im off treatment one month now. My biggest side effect is my weight. My appetite got out of control. I gained 35 pounds!. Im trying to lose it now.
Best wishes for your recovery. Don't worry you will do fine. Oh another side effect was I got little prickly feelings randomly on different parts of my body on my skin. Nothing bad, you just know something is happening. .. Blessings Sunrise

Offline Lynn K

  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Need advice about sovaldi & olysio treatment
« Reply #4 on: January 22, 2015, 04:04:17 am »
Hi Vintage

I treated with Sovaldi Olysio I was just careful with sun exposure helps I live in the Seattle area but it was June so did have to be careful. Not much in the way of sides maybe my knee that had been bothering me bothered be a bit more or maybe I am 56 years old and my knee was bothering me. That's about it.

Good luck on treatment
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

 


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