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Author Topic: supppose tostart harvoni today but?  (Read 14327 times)

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Offline suec

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  • Posts: 14
supppose tostart harvoni today but?
« on: January 20, 2015, 10:04:00 am »
been waiting for ever and the day to start is here but I seem to have a UTI or something going on??should I wait to start if I need an antibiotic? or will it matter???thanks

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: supppose tostart harvoni today but?
« Reply #1 on: January 20, 2015, 12:06:06 pm »
I'm sorry but we don't know. You need to talk to your MD about this.
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline suec

  • Member
  • Posts: 14
Re: supppose tostart harvoni today but?
« Reply #2 on: January 22, 2015, 08:22:44 pm »
has anybody seeing this start harvoni when you were sick??something going on but dont know what? Docs are no help. Feel like UTI or? but know sign of infection in urine? so, should I start?????who should I consult???????and I cant wait!!!!!!want to start drug yesterday,,waited 12 yrs to start,,,but dont want to screw this up,,any advice I'd appreciate. thanks

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: supppose tostart harvoni today but?
« Reply #3 on: January 23, 2015, 03:31:41 am »
Harvoni Support Path has a 24 hour nurse line

Connect with HARVONI Support Path today.
1-855-7-MYPATH (1-855-769-7284)
 
Connect with a nurse at any hour with questions about your treatment or Hep C.

24/7 live nursing support

https://www.harvoni.com/support?evo_source=MYSUPPORTPATH&_ga=1.40636650.973567089.1408674970


We really can't answer this we are fellow patients. I recommend you call support path or you doctor or his nurse or your specialty pharmacy for answers.

Good luck
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline DisabledHepcat

  • Member
  • Posts: 44
Re: supppose tostart harvoni today but?
« Reply #4 on: January 23, 2015, 01:50:23 pm »
I did the same thing, I wanted to start therapy with NO other stress on my body.
I was going to start on Dec 17th and than an upper root canal cracked just before Thanksgiving and infected my sinus. I had that pulled and used Friggy sinus flushes to get rid of the infection.
http://www.medhelp.org/user_journals/show/2322/The-Sinus-Flush
I also wanted to make sure I got all 84 pills since my insurance company would only send 1 bottle per month and the 3rd bottle fell into this year so I waited until I had all three in my hands.
Get comfy and start when your ready.

Offline apache

  • Member
  • Posts: 52
Re: supppose tostart harvoni today but?
« Reply #5 on: January 23, 2015, 05:34:09 pm »
Quote
I also wanted to make sure I got all 84 pills since my insurance company would only send 1 bottle per month and the 3rd bottle fell into this year so I waited until I had all three in my hands.

That seems like a really smart strategy, DisabledHepcat!   Once you have the entire Rx course in hand, you've eliminated all the stress of possible time-gap b/n months (due to insurance shenanigans).   I think I'll do the same thing (once I get my access approved, that is).

Thanks for sharing your strategy  8)

Offline DisabledHepcat

  • Member
  • Posts: 44
Re: supppose tostart harvoni today but?
« Reply #6 on: January 24, 2015, 05:06:08 am »
That seems like a really smart strategy, DisabledHepcat!   Once you have the entire Rx course in hand, you've eliminated all the stress of possible time-gap b/n months (due to insurance shenanigans).   I think I'll do the same thing (once I get my access approved, that is).

Thanks for sharing your strategy  8)

Yea, I'm on Medicare part D so every Jan 1st it resets so I had to pay the coverage Gap twice before I went into catastrophic bracket which is I only pay 5%, I was afraid my $10,000 Copay assistance from PAN would go over (it ended up around $8,500 copay so I paid ZERO $ for my Harvoni) Not to mention the mail order pharmacy told me they did not have a 2015 contract with United Healthcare yet so I might need to get my 3rd bottle from another pharmacy. The new contract was signed and everything worked out but how was I suppose to know it would work out, so I waited. I told the mail order pharmacy I was going to wait and like you they told me that is a smart ideal - they had no clue either what was going to happen Jan 1st - LOL
« Last Edit: January 24, 2015, 05:10:54 am by DisabledHepcat »

Offline suec

  • Member
  • Posts: 14
Re: supppose tostart harvoni today but?
« Reply #7 on: January 24, 2015, 05:15:15 pm »
thanks for advice,,,did get antibiotic and will delay starting. how do I get my other mos??I only got one mo too. said cuz of insurance. I wonder. Specialty Pharm. said call when you have 2pills left for 1st mo, ya right. I plan on calling 26days from when it was delivered.  I should be all set for getting mo 2 but mo 3? don't want to wait that long 2 start. wondering if I should tell hepc doc anything. have to get blood work done etc. and see him at 5wks. I'll see him after I get mo 2. Don't really trust doc, pharm or gilead for that matter. they all care more about the $.,,, seems that way. I do want to give myself a while to get over taking antibiotic before I start the harvoni. Doc did say dont take it with antibiotic, so probably too hard on body, liver.

Offline DisabledHepcat

  • Member
  • Posts: 44
Re: supppose tostart harvoni today but?
« Reply #8 on: January 24, 2015, 05:23:12 pm »
=^..^=

Offline suec

  • Member
  • Posts: 14
Re: supppose tostart harvoni today but?
« Reply #9 on: January 26, 2015, 11:12:20 am »
have a bad tooth too,,wondering if I should have it pulled first and not keep my fingers crossed like I was planning on? has anyone contacted the Gilead harvoni nurse line? was it or the nurse helpful? dont want my approval or insurance messed up,,dont trust things to go smoothly w/out problems,,never mind with problems,,I'm not pessimistic just realistic,,whatever, thanks

Offline badbradley

  • Member
  • Posts: 294
Re: supppose tostart harvoni today but?
« Reply #10 on: January 26, 2015, 11:40:45 am »
Hello suec,
    Based on personal experience, I suggest getting the tooth extraction before starting treatment. In case of infection, which is always possible with extractions, best not to have the added burden on your immune system. Also, I had an extraction, then started treatment on S/O the very next day. I wish I would have waited at least a week before starting meds as the extraction was "uncomfortable" in itself, then adding the sides of meds , headaches, etc. made for an uncomfortable couple of wks. Best of luck on your treatment and your dental decisions.
Brad
« Last Edit: January 26, 2015, 11:43:28 am by badbradley »
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline ma snart

  • Member
  • Posts: 65
Re: supppose tostart harvoni today but?
« Reply #11 on: January 26, 2015, 11:50:29 am »
My wife Helen had a ruptured appendix at about week 5 on Harvoni, I believe that this interfered with her treatment as she still showed detectable 22 at end of week 8.
She was in the hospital for 3 days on IV antibiotics and then another 10 days at home. On each of her two weekly VL test the numbers stayed at around 100 before the last at 22 started retreating, I have no knowledge if the antibiotics contributed to this or not, Dr. didn't seemed worried as she is on 24 week regimen. Looking for UD after week 10 this weekend.
Helen 54 yr old female
Geno 1B since 84 from transfusion
started Harvoni on 11-22-14 with 8.5 million viral
After 8 days 933 viral and normal AST and ALT
Week 10 viral load  UNDETECTED
Week 17    detected 19
Week 18    detected 21
Week 20    UNDETECTED   Doctor did prescribe Ribavirin, but have not taken it yet as we are thinking that weeks 17,18 had to have been mishandled.
All other test have shown normal levels.
Week 21 results  on Tuesday 4-21
Week 4 post Harvoni 24 week plan UNDETECTED!!

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: supppose tostart harvoni today but?
« Reply #12 on: January 26, 2015, 07:48:50 pm »
I had 2 root canal teeth extracted the day after I began Harvoni on 1/8 but I went to a very good oral surgeon 100 miles away. Infections seem very unlikely if you do as they say and rinse your mouth out in warm salt water often and also use an anti biotic mouth rinse.
I didn't use the antibiotic rinse, I used salt water, my own colloidal silver, and oil of oregano, which both act like natural antibiotics, and my 2 sockets seem to be healing up well.

They told me I could get the extractions or other dental work during Tx, no problem.
I'd do it though because of the chance that Hep C could be harbored in bad teeth.

Joe
« Last Edit: January 26, 2015, 07:53:01 pm by Lukey »
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

 


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