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Author Topic: Started Harvoni March 17  (Read 11367 times)

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Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Started Harvoni March 17
« on: March 20, 2015, 11:02:44 pm »
I started Harvoni March 17, St. Patrick drove out the snakes, good scenario! Stuck at work 1987, tried interferon, almost killed me, quit. This really is great. Slight headache, chills, no fatigue so far. Watched my brother die of liver cancer, was horrible. So thankful for this 2nd chance to be free of this. 3 million virus count, no fibrosis. We'll see in a few weeks 1st lab
« Last Edit: March 20, 2015, 11:14:40 pm by Espo2 »
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Started Harvoni March 17
« Reply #1 on: March 21, 2015, 12:38:06 am »
Good luck on treatment!
May the luck of the Irish be with ye!
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline lovinglife

  • Member
  • Posts: 21
Re: Started Harvoni March 17
« Reply #2 on: March 21, 2015, 09:30:46 am »
I had chills initially too, and still do at times.  Small price to pay for a cure!
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Offline Espo2

  • Member
  • Posts: 30
  • Needle stick at work 1987, 1b
Re: Started Harvoni March 17
« Reply #3 on: March 26, 2015, 03:42:48 pm »
Quote from: Lynn K on March 21, 2015, 12:38:06 am
Good luck on treatment!
May the luck of the Irish be with ye!
Thank you for wish. Luck to you too! 
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Offline tigger2

  • Member
  • Posts: 5
Re: Started Harvoni March 17
« Reply #4 on: March 28, 2015, 10:12:07 am »
Hi Espo2, I started March 17 also, I'm doing 12  weeks. Good luck with treatment
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Offline sisterbland

  • Member
  • Posts: 18
Re: Started Harvoni March 17
« Reply #5 on: March 29, 2015, 07:20:09 pm »
Hello All,
I started March 17th as well and am doing 12 weeks.

So far I have had some nausea and general upset stomach, insomnia, tiredness and some pain in left hip/groin - but not headaches. Oh, I do occasionally get the chills but all of the above is totally manageable and worth it. Working full time has not been difficult.

Some of the recent posts I've seen of people relapsing after Harvoni are concerning so I'm trying to stay focused on 94% success!

Has anyone reported your side effects to Gillead or to the FDA? I would love to see a single page listing of all reported side effects since FDA approval.

Love this forum, have been reading it for over a month and it has been so helpful.
Logged
1987/88 Contracted HCV 1a (had acute HepA and HepB in the same 5 year period)
1997 Interferon/ribavirin 7 mo; relapser
3/17/15 Harvoni started, 12 wks
4/17/15 VL <15 IU/ML (Undetected)
6/11/15 Complete tx

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Started Harvoni March 17
« Reply #6 on: March 29, 2015, 07:30:19 pm »
Hi sister and welcome to the forum

Where have you seen Harvoni relapses? I don't recall seeing any yet
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline sisterbland

  • Member
  • Posts: 18
Re: Started Harvoni March 17
« Reply #7 on: March 29, 2015, 08:52:35 pm »
Hi Lynn,
dragonslayer posted this after 8 week Harvoni in January, has me a little nervous.
Logged
1987/88 Contracted HCV 1a (had acute HepA and HepB in the same 5 year period)
1997 Interferon/ribavirin 7 mo; relapser
3/17/15 Harvoni started, 12 wks
4/17/15 VL <15 IU/ML (Undetected)
6/11/15 Complete tx

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: Started Harvoni March 17
« Reply #8 on: March 29, 2015, 09:09:33 pm »
Yes Paul was very slightly detected but still not being counted out there has been a lot of technical discussion about the significance of being low level detected at EOT he still maybe able to be considered SVR if when tested at 12 weeks post if his viral load has not rebounded to pre treatment levels.

http://forums.hepmag.com/index.php?topic=2473.msg17880#msg17880

Here is an article from Lucinda you may have missed

http://blogs.hepmag.com/lucindakporter/2015/03/new_hepatitis_c_trea_2.html

No point in worrying this is the best treatment available

"Worry does not empty tomorrow of its sorrow, it empties today of its strength." Cory ten Boom
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline sisterbland

  • Member
  • Posts: 18
Re: Started Harvoni March 17
« Reply #9 on: March 30, 2015, 06:14:40 pm »
Thank you Lynn. :)
Logged
1987/88 Contracted HCV 1a (had acute HepA and HepB in the same 5 year period)
1997 Interferon/ribavirin 7 mo; relapser
3/17/15 Harvoni started, 12 wks
4/17/15 VL <15 IU/ML (Undetected)
6/11/15 Complete tx

Offline cycler

  • Member
  • Posts: 7
Re: Started Harvoni March 17
« Reply #10 on: March 30, 2015, 07:52:29 pm »
Hi and good luck to you.  I started the day after you, 3/18.  Hang in there, Harvoni, at least for me so far, is much easier to deal with than the interferon.  Lots of good info on this board regarding diet, and so on, check it out when you can.
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Offline atomic dog

  • Member
  • Posts: 160
Re: Started Harvoni March 17
« Reply #11 on: April 02, 2015, 12:57:39 am »
Espo2. So sorry to hear about your brother. I wish you all the best with this treatment and loved your analogy: "I started Harvoni March 17, St. Patrick drove out the snakes, good scenario! " Harvoni already is working its magic.
Logged
Infected 1969, dirty needle
Geno 1a
Stage 2 fib, some necrosis
TX naive
1/29/15 ALT61; AST43
2/16/15 Started Harvoni; VL 1.5 m;
2/19/15 ALT40; AST24
2/29/15 ALT29; AST25
3/9/15 ALT28; AST25; 
3/9/15 < 20 IU/mL (3 wks) HCV RNA remains 'detected'
3/24/15 ALT30; AST25;
3/24/15 <20 IU/mL (5 wks) HCV RNA
4/10/15 <20 IU/ml (7 weeks) HCV RNA
4/20/15 ALT36; AST27
4/20/15 UND
5/11/15 UND (EOT); ALT33; AST25
6/11/15 UND; ALT 34; AST 29
8/14/15 UND
11/15/15 SVR, 24-wk EOT
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