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Author Topic: New to Forum, On Viekira 6 weeks  (Read 11521 times)

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Offline Happy55

  • Member
  • Posts: 3
New to Forum, On Viekira 6 weeks
« on: May 04, 2015, 02:06:26 pm »
Hello everyone! I am new to the forum and appreciate all the information I've gotten so far.  I have Hep C, Genotype 1A, and have been through various treatments over the years, all unsuccessfully.  I was first diagnosed in 1985.  I work in the medical field and had lots of blood exposure in those days.  We didn't realize blood was a dirty thing and never wore gloves.  This was before Universal Precautions were in place in the hospital.  I stopped even seeking treatment for the past 8-9 years as there was nothing out there I hadn't already tried.  I was talked into trying Viekira with Ribavarin by my gastroenterologist.  I am just starting week 6.  So far, so good.  My last labs show no drop in my blood count which sometimes happens with the Ribavarin and my liver enzymes are the lowest they've never been.  The only side effects I am experiencing is a constant tingle in the skin on my face and a mild rash that looks like I'm having a acne breakout.  I work 12 hour days, haven't felt too tired but am maybe more emotional.  I cried watching a Mother's Day commercial yesterday  :'(

I get some labs done tomorrow and am cautiously optimistic so far.  I'd love to have this disease become a thing of my past.  It's always been the elephant in the room.

I'll keep you posted!
Happy55

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Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: New to Forum, On Viekira 6 weeks
« Reply #1 on: May 04, 2015, 08:25:46 pm »
Welcome Happy!
You have come to the right place there is much wisdom here and also love and support.
There are a few of us on the  same medication regimen as you and when they see your post I am certain they will join in to support your journey.


I start my last week of Viekira with Ribavirin tomorrow and while I did not have the rash; I have experienced dry itchy skin and almost a 'creepy crawly' feeling at times.


You can see my stats in my signature. 

Keep in touch - you are half way there!
Logged
Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: New to Forum, On Viekira 6 weeks
« Reply #2 on: May 05, 2015, 05:56:59 am »
Hi Happy. I'm another Viekirian. :)
I'm on 24 weeks w riba.

You are halfway there! How amazing! My stats are in my sig too
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline hepctreatnow

  • Member
  • Posts: 46
Re: New to Forum, On Viekira 6 weeks
« Reply #3 on: May 05, 2015, 02:07:18 pm »
Hi Happy,

Member of V Club here also. I'm in my 5th week of treatment - Holkira Pak and Ribavirin starting today. Any questions, just ask I'lll be happy to answer them as best I can.
Logged
Contracted 1980's - blood transfusion
Relapse on first treatment - Viekira Pak + Ribavirin
Fibr. Stage F4 Severe Fibrosis
Fibroscan score 28 kpa
Genotype 4 - VL 233,000 at beginning of treatment
Current Treatment: Sofosbuvir, Velpatasvir, GS-9857
Gilead clinical trial
Start: 01/19/16
12 weeks treatment

Offline baby1315

  • Member
  • Posts: 7
Re: New to Forum, On Viekira 6 weeks
« Reply #4 on: May 11, 2015, 06:47:06 pm »
Coming on my 6 week treatment Viekira with Ribavirin.  I've noticed that I'm devloping itchiness on my arms with raised little bumps.  Nasaeu, Headaches and once a while a fever. Has anyone else have these symptoms.

Has anyone finished the 12 week treatment with success?

Previously I have tried approx. 5 HCV treatments in the past and failed all of them.
I'm hoping this combo will be more promising.  Taking for 12 weeks

I'm new to the forum.  Thank you for inviting me.
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Offline Mike

  • Member
  • Posts: 999
Re: New to Forum, On Viekira 6 weeks
« Reply #5 on: May 11, 2015, 07:30:36 pm »
Hi Baby1315,

Welcome to the forum! This is great place to ask questions and I'm sure someone with experience with the Viek pack will chime in.

Best wishes, Mike
Logged
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline hepctreatnow

  • Member
  • Posts: 46
Re: New to Forum, On Viekira 6 weeks
« Reply #6 on: May 11, 2015, 08:05:28 pm »
Hi Baby1315,

Like yourself I'm starting week 6 tomorrow and am on the Vieira Pak + Ribavirin regiment. I'm undetected at week4 but my Hemoglobin and Platelets are quite low. That's what caused minor red spots on my skin but I did not have any rashes (others did and can chime in). I would check with your doc and see how your Hemoglobin and Platelets are holding on. I also got 2 B12 shots the last 2 weeks and as helped tremendously with energy level. As for headaches and low level fevers, I did experience those symptoms on week 3 and lasted about 4-5 days. My doc told me to take a 200mg Ibuprofen along with a 500mg Tylenol. I took it twice a day and really helped. Hope this helps.
Logged
Contracted 1980's - blood transfusion
Relapse on first treatment - Viekira Pak + Ribavirin
Fibr. Stage F4 Severe Fibrosis
Fibroscan score 28 kpa
Genotype 4 - VL 233,000 at beginning of treatment
Current Treatment: Sofosbuvir, Velpatasvir, GS-9857
Gilead clinical trial
Start: 01/19/16
12 weeks treatment

Offline hepctreatnow

  • Member
  • Posts: 46
Re: New to Forum, On Viekira 6 weeks
« Reply #7 on: May 11, 2015, 08:22:45 pm »
Hi,

Here's week 4's update.
Regiment: Viekira Pak + 1200 mg Ribavirin / Day for 12 weeks
Profile: Genotype 4 Compensated Cirrhosis

April 07 (Day 1)     April 14       April 21    May 05

ALT: 128               ALT: 59        ALT:64     ALT: 39
AST: 95                AST: 46        AST:62    AST: 35

Viral loads:

11-Feb-15 - 106,921 IU/ml
16-Mar-15 - 940,000 IU/ml - screening
07-Apr-15 - 276,000 IU/ml - before 1st dose
07-Apr-15 - 181,000 IU/ml - 2 hours post dose
14-Apr-15 - 145 IU/ml - week 1
21-Apr-15 - <25 IU/ml - week 2 (25 is the lowest quantity they are able to count)
05-May-15 - UNDETECTED

At week 4, my Hemoglobin and Platelets are taking a beating though - HGB: 108, Plts: 74. Side effects have been very minimal the last few weeks. Some tiredness in the afternoon.

Cheers.
Logged
Contracted 1980's - blood transfusion
Relapse on first treatment - Viekira Pak + Ribavirin
Fibr. Stage F4 Severe Fibrosis
Fibroscan score 28 kpa
Genotype 4 - VL 233,000 at beginning of treatment
Current Treatment: Sofosbuvir, Velpatasvir, GS-9857
Gilead clinical trial
Start: 01/19/16
12 weeks treatment

Offline baby1315

  • Member
  • Posts: 7
Re: New to Forum, On Viekira 6 weeks
« Reply #8 on: May 11, 2015, 08:35:36 pm »
Thanks for your insight.  I'm seeing my Doctor tomorrow who definitely will be taking more blood work.  The funny thing is when I started Vierka pak & Ribavirin, During my 2nd week my hcv v/l was undetected.  Trying to stay positive.  The real test is after the 12 week once I stop will I still be undetected during the following months after. 
Let's keep are fingers crossed.
Logged

Offline hepctreatnow

  • Member
  • Posts: 46
Re: New to Forum, On Viekira 6 weeks
« Reply #9 on: May 11, 2015, 08:42:14 pm »
You're doing really well and I'm confident you will remain Undetected. Stick with it.
Cure rate is 93% plus and haven't heard of anyone relapsing on VPak yet.
Logged
Contracted 1980's - blood transfusion
Relapse on first treatment - Viekira Pak + Ribavirin
Fibr. Stage F4 Severe Fibrosis
Fibroscan score 28 kpa
Genotype 4 - VL 233,000 at beginning of treatment
Current Treatment: Sofosbuvir, Velpatasvir, GS-9857
Gilead clinical trial
Start: 01/19/16
12 weeks treatment
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