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Author Topic: Tomorrow is my 12 week follow up at VA hospital  (Read 17771 times)

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Offline Dale Johnson

  • Newbie
  • Posts: 2
Tomorrow is my 12 week follow up at VA hospital
« on: July 27, 2015, 05:39:56 pm »
65 years old  HCV Gen Type 1
Contracted HCV in Early 1970s
Interferon 2001  not cleared
PEG Interferon with RBV  2003  not cleared

Jan-Apr 2015 12 week Harvoni and RBV

4  weeks clear (UND)
8  weeks clear (UND)
12 weeks clear (UND)

Tomorrow (7-28-15) is my 12 week follow up at VA hospital.
I will post my status by the end of the week.
I would welcome any information comments or questions.

I have been trying to find statistics for for people like me that have been clear  (UND) at 12 weeks

« Last Edit: July 27, 2015, 08:27:34 pm by lporterrn »
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Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #1 on: July 27, 2015, 08:28:06 pm »
I believe that your chances of clearing with an undetectable viral load at week 12 are the same as they were when you started the drug. In other words, that is not the point in which prediction is made. However, if you had a viral load done 4 weeks after treatment was completed, and it was undetectable, then with GT1 you are nearly certain to have an SVR.

All speculating aside, you will know soon. Hope this helps.
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Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Dale Johnson

  • Newbie
  • Posts: 2
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #2 on: July 27, 2015, 11:42:45 pm »
lporterrn,

I had 3 viral measurements done during my 12 week Harvoni/RBV treatment. One at 4,8 and 12 weeks. Tomorrow will be my first follow up after treatment. (12 weeks after completion of the program)

I do not know if I am a GT1 or 1A. I will ask that question tomorrow.

Thanks for the reply.

Dale
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #3 on: July 28, 2015, 01:32:23 am »
Hi Dale

I probably have had hep c since 1978. I treated with interferon monotherapy in about 1995. Later I did 2 rounds with interferon ribavirin null responder. I was diagnosed with cirrhosis in Jan 2008. Treated last year with Sovaldi and Olysio for 12 weeks I was not detected on treatment and EOT but had relapsed when tested 12 weeks post.

I started 24 weeks of Harvoni in November to which was later added ribavirin so 15 weeks of ribavirin to go with the 24 weeks of Harvoni.

I was still not detected at 4 weeks post treatment in June.

I had my 12 week post blood draw today 7/27/15 and also hope to know if it worked by the end of this week.

Good luck to you I will be looking for your post

Lynn
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Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #4 on: July 28, 2015, 02:22:25 pm »
Hi Lynn,

I know you beat that beast this time!!! Thinking of you, when I went to get my VL last week I thought of you and got my happy results this morning. You are next!!

Mel
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~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #5 on: July 28, 2015, 10:03:04 pm »
That is fantastic news Mel!!!!!!

I was wondering how you have been you haven't been around much lately.

How are you feeling otherwise any better?

Lynn
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #6 on: July 29, 2015, 09:19:07 am »
Mel - SO happy to hear this. I think of you a lot, and now here you are, sharing the good news. Hope you are holding up. I know you still have cirrhosis to deal with, but perhaps this one less thing will make a difference.
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Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #7 on: July 30, 2015, 01:05:29 am »
Welcome Dale. You are joining in time to share the most important part of your journey!

Lynn K. thinking of you too.
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Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #8 on: July 30, 2015, 12:09:08 pm »
Called my doctors office this morning.

12 week post treatment results

Hep c virus not detected

I am cured!!!!!!!
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #9 on: July 30, 2015, 12:43:58 pm »
FANTASTIC NEWS LYNN!!! I am so happy for you. You are such a trooper!

Kim :)
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Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline CE

  • Member
  • Posts: 147
  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #10 on: July 30, 2015, 04:15:13 pm »
CONGRATULATIONS LYNN!!!   So very happy for you!  May you enjoy your new life! God bless!
Chris
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Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #11 on: July 30, 2015, 05:19:09 pm »
Did you hear that sound? It was the sound of trillions of hep C viruses dying. Congratulations Lynn
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Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Mike

  • Member
  • Posts: 999
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #12 on: July 30, 2015, 05:28:53 pm »
Lynn,

You hear that sound? That's a million people cheering and giving you a standing ovation!! You've been an inspiration to all of us!

I'm so happy for you I could cry!

Best, best wishes, Mike
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Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #13 on: July 30, 2015, 07:00:01 pm »
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Bituman

  • Member
  • Posts: 157
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #14 on: July 30, 2015, 07:19:34 pm »
Quote from: Lynn K on July 30, 2015, 12:09:08 pm
Called my doctors office this morning.

12 week post treatment results

Hep c virus not detected

I am cured!!!!!!!

Congrats Lynn, I've been on and off this site all day looking for this news.  You're an inspiration to us all!  Bet your photo is next to the word "perseverance" in the dictionary.  All the best.

Bob
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Age = 59, male, infected likely 1975
DX 07/07 GT 1a
Biopsy 2007:  GR 1, stage 0, HAI = 2/18
Since 2007:  1.48 MM < VL < 11 MM, avg = 5.64 MM
IL28B=CT
1/26/15, AST=43, ALT=55, VL=3.59 MM
2/5 Start Harvoni 12 weeks; Treat naive
2/20 AST=29, ALT=24, VL=59
3/6 AST=29, ALT=25, VL<15
3/19 AST=24, ALT=22, VL=undet
4/3 AST=29, ALT=25, VL=undet
4/30 EOT, AST=22, ALT=20, VL=undet
5/29 EOT+4, AST=20, ALT=19, VL=undet SVR
7/24 EOT+12, AST=23, ALT=18, VL=undet SVR
10/16 EOT+24, AST=22, ALT=17, VL=undet SVR

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #15 on: July 31, 2015, 03:34:17 am »
Quote from: Lynn K on July 30, 2015, 12:09:08 pm
Called my doctors office this morning.

12 week post treatment results

Hep c virus not detected

I am cured!!!!!!!

HOORAY!! Congratulations Lynn!! So happy for you!!
« Last Edit: July 31, 2015, 03:36:50 am by BattleTheBeast »
Logged
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline terih

  • Member
  • Posts: 74
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #16 on: July 31, 2015, 08:05:34 pm »
Lynn, this is excellent news! Sorry I'm late to the party! All I can say is So Danged Happy for YOU!!!!! I hope you are floating like a butterfly today!
Logged
64 yrs. on this fine planet!
diagnosed 1993
Stage 1 cirrhosis
Genotype 1a
12 wks. Harvoni  Relapse late Feb. 2015
Currently treating with Solvaldi/Olysio
The light at the end of the tunnel, is often not a train!

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #17 on: August 03, 2015, 09:56:36 am »
Lynne and Mel!  What wonderful news - I'm so happy for you both!!!!!

This is such a boost to us all to see your reward for hanging in there and literally beating the c#@$! out of our common monster!  I love you guys and am so happy for you :)

Sorry I haven't checked in for a while now, I've had a few issues that made me concerned that I might have relapsed, thank God that turned out not to be the case and my Ultrasound 7/27 came back NORMAL, no fatty liver, no fibrosis, etc - ALL NORMAL.  Last lab done for my annual physical was the best it's been in a long time - everything within normal limits except AST Plasma which is 41 (none of my docs find that a concern).  However,(after many tests, biopsies, an upper endoscopy) I am now taking meds for a diagnosis of mild gastric reflux.  No one will admit or confirm but I suspect this is a result of taking the Harvoni.  So September, possibly October, will be my tests for SVR 12. 

Keep up the good work and positive attitudes - giving charge this to myself as well ;)  Love you guys!     ....Islandgirl
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1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #18 on: August 03, 2015, 03:18:36 pm »
Lots of good news here - Islandgirl, I have my fingers crossed!
Logged
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #19 on: August 03, 2015, 08:02:29 pm »
Thanks, Lucinda! ..... 8)Islandgirl
Logged
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline kate0b1

  • Member
  • Posts: 293
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #20 on: August 09, 2015, 08:50:25 am »
Agh Mel here your are, i just asked about you in another thread, i am so happy to see your results (sorry I'm late to the party), i hope this finds you well, i am so excited to see all the people that started this journey with me reach the finish line in one piece lol, and hey island girl, good to see you, hope you and your mom are well.

kate
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Offline Downnout

  • Member
  • Posts: 21
Re: Tomorrow is my 12 week follow up at VA hospital
« Reply #21 on: August 12, 2015, 06:12:04 pm »
Quote from: Dale Johnson on July 27, 2015, 05:39:56 pm
65 years old  HCV Gen Type 1
Contracted HCV in Early 1970s
Interferon 2001  not cleared
PEG Interferon with RBV  2003  not cleared

Jan-Apr 2015 12 week Having and RBV

4  weeks clear (UND)
8  weeks clear (UND)
12 weeks clear (UND)

Tomorrow (7-28-15) is my 12 week follow up at VA hospital.
I will post my status by the end of the week.
I would welcome any information comments or questions.

I have been trying to find statistics for for people like me that have been clear  (UND) at 12 weeks

Hey dale, I'm also 65 and probably got Type2 in the Army, from airgun shots or blood exposure in VietNam. I've been going through the VA and to begin with they wouldn't administer the new drugs they said because of price. They wanted to wait until I was in grade 3 liver failure before giving it to me. I bet you can believe that after dealing with the VA.

My story gets even deeper! I had liver cancer for over 1.5 years and they didn't even tell me. The only way I found out was I feel like the good LORD told me to get my medical reports, which I'd never done and there it was in black and white. Hope your experience with the VA has been better than mine! If I'd of been told early, the mass could have been burned out. That's not to say I wouldn't have gotten it later with my cirrhosis.

Anyway It was too large after waiting for an appointment for 7 months to see the Dr. who would've burned it out. Personally I think, well.... know, considering all things I had to go through just to get that appointment was another delay tactic. I mean they act like it's their money instead of treating those who put their lives on the line to protect their liberties! Makes me wonder how many they didn't tell and just let die!

All those decisions by the VA cost the tax payers probably over a million for treatment associated with a liver transplant. Gilead tells me they've not treated anyone post transplant so I guess I'm a guinea pig but I have good news after 4+ weeks of Sovasbuvir sp? and Ribavirin my  Btest shows <15 and not detected.

Having a transplant, I'm on Immunosupressants cyclosporin (which sometimes can have bad side effects with the Riba) The article I read on Drugs.com has a list a mile long about side effects of Riba, alone. Side effects alone, for the Immuno's, are bad enough but add the Riba and it can get eally bad. So far the bad feelings pass about two hours after taking the meds except for the fatigue or weakness... That for me, never goes away.

Sorry about all the venting but hopefully someone else may see this post that's dealing with the VA and Hep-C and will take the proper actions and get their med records and see what they're not telling them.

Good luck on your treatment!!!!
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