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Author Topic: Still having sleep issues  (Read 29555 times)

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Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Still having sleep issues
« on: October 05, 2015, 07:06:21 am »
This is getting old!

Thursday pm - no sleep at all

Friday - slept good.

Saturday - no sleep

Sunday -  2 hrs sleep.

Going to gp today to see if I can get something to help me sleep. I tried 2 benedryls on Thursday night - no effect

took 2 , 2.5 xanax Sunday night - no effect.

ugh.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline byebyeC

  • Member
  • Posts: 286
Re: Still having sleep issues
« Reply #1 on: October 05, 2015, 11:29:55 am »
Hey DM,

Not much worse than insomnia... So sorry you're dealing with this while you're supposed to be doing your victory lap...

Def Dr. time. Hope they help you out :)

Bless you,
Marianne
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #2 on: October 05, 2015, 12:42:51 pm »
Quote from: byebyeC on October 05, 2015, 11:29:55 am
Hey DM,

Not much worse than insomnia... So sorry you're dealing with this while you're supposed to be doing your victory lap...

Def Dr. time. Hope they help you out :)

Bless you,
Marianne

Thanks Marianne!  I have an appt. today with my gp.  I never had a problem like this before.  Its not much fun.  Hopefully he will have an appropriate rx.

take care
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Still having sleep issues
« Reply #3 on: October 05, 2015, 01:19:19 pm »
Quote from: drummerman on October 05, 2015, 12:42:51 pm
Thanks Marianne!  I have an appt. today with my gp.  I never had a problem like this before.  Its not much fun.  Hopefully he will have an appropriate rx.

Do share whatever your doctor advises, DM. I have had insomnia issues most of my life, which I now think may have been a byproduct of Hep C (which I probably contracted in my teens). My insomnia got much worse during tx - to the point where I really could not sleep at all some nights. But now that I am 10 weeks post-tx, I seem to be sleeping better than usual (i.e., better than pre-treatment). If that holds, that would be a very nice side benefit of clearing Hep C!

good luck,
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Still having sleep issues
« Reply #4 on: October 05, 2015, 04:28:05 pm »
Yeah, medication is your friend here. Not getting enough sleep turns me into a unpleasant person. Good luck.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #5 on: October 05, 2015, 06:24:37 pm »
DM,
That's a bugger. Both the meds you took should have put you to sleep. The times when I don't sleep on tx is horrible and nothing works. Hopefully the Doc will give you some good stuff. Cal  :) found this from Msyo when looking fir test for RIBA saturation.
Elimination of ribavirin is also very slow, and due to incorporation of the drug into red blood cells, may take up to 6 months after the cessation of therapy. Ribavirin has shown teratogenic activity in animal models, thus patients are recommended to practice stringent birth control until at least 6 months after the end of treatment.

Nit to alarm you, just to validate the no sleep is probably RIBA related. Love them ribas!
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #6 on: October 05, 2015, 07:02:19 pm »
Quote from: KimInTheForest on October 05, 2015, 01:19:19 pm
Do share whatever your doctor advises, DM. I have had insomnia issues most of my life, which I now think may have been a byproduct of Hep C (which I probably contracted in my teens). My insomnia got much worse during tx - to the point where I really could not sleep at all some nights. But now that I am 10 weeks post-tx, I seem to be sleeping better than usual (i.e., better than pre-treatment). If that holds, that would be a very nice side benefit of clearing Hep C!

good luck,
kim

He prescribed Ambien.   And look at his info and said that insomnia can be a side effect of riba.  I had never seen that before...
going to try one tonight if I have trouble.

I am just not sleepy.  It's real weird.  Gotta be the riba

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #7 on: October 05, 2015, 07:02:57 pm »
Quote from: Philadelphia on October 05, 2015, 04:28:05 pm
Yeah, medication is your friend here. Not getting enough sleep turns me into a unpleasant person. Good luck.

Thanks Philly!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #8 on: October 05, 2015, 07:05:40 pm »
Quote from: Cal on October 05, 2015, 06:24:37 pm
DM,
That's a bugger. Both the meds you took should have put you to sleep. The times when I don't sleep on tx is horrible and nothing works. Hopefully the Doc will give you some good stuff. Cal  :) found this from Msyo when looking fir test for RIBA saturation.
Elimination of ribavirin is also very slow, and due to incorporation of the drug into red blood cells, may take up to 6 months after the cessation of therapy. Ribavirin has shown teratogenic activity in animal models, thus patients are recommended to practice stringent birth control until at least 6 months after the end of treatment.

Nit to alarm you, just to validate the no sleep is probably RIBA related. Love them ribas!

Yep, love em.

The first time I tx'ed it took me about 6 months to start feeling human again and it was real sudden.... like one day I felt the same crappy way and then the next.... nothing!  But I don't remember having this sleep issue, in fact I am sure I did not.

Gonna try the Ambien tonight if I can't sleep.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #9 on: October 05, 2015, 08:51:15 pm »
DM, it seems our paths are similar.  I'm not sleeping a lot either but not as extreme as your insomnia.  And, I didn't have riba.  I took a half an ambien last night and a Xanax the other night.  I'm so careful with meds but I gotta sleep here and there.  I'm just wide awake after 4-5 hours or if I'm lucky 6 hours (and that's with ambien). 

I was wondering if the body is getting extra alertness from not lugging the HCV around.  I was wondering if this is what it feels like (even though I'm dealing with remnants of the flu). 

Did you get your blood work done yet?  I think you were getting yours after one week?  I had to re-take mine again today.  Doc accidentally ordered HBV test...
I hope you have sweet dreams soon!  Bree
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #10 on: October 05, 2015, 09:10:44 pm »
Quote from: Bree on October 05, 2015, 08:51:15 pm
DM, it seems our paths are similar.  I'm not sleeping a lot either but not as extreme as your insomnia.  And, I didn't have riba.  I took a half an ambien last night and a Xanax the other night.  I'm so careful with meds but I gotta sleep here and there.  I'm just wide awake after 4-5 hours or if I'm lucky 6 hours (and that's with ambien). 

I was wondering if the body is getting extra alertness from not lugging the HCV around.  I was wondering if this is what it feels like (even though I'm dealing with remnants of the flu). 

Did you get your blood work done yet?  I think you were getting yours after one week?  I had to re-take mine again today.  Doc accidentally ordered HBV test...
I hope you have sweet dreams soon!  Bree

I think it is the riba that makes me have insomnia...

Yeah, I saw that about your doc ordering the wrong test....seems like everything that can go wrong now days does,..  Although sometimes I do seem to have more energy now.

Anyway, my blood draw is tomorrow and should have results by end of the week.

I should sleep tonight,problem is  you have to take the medicine and still have at least 7-8 hours to sleep.  Since I get up at 5am., I am going to have to decide by 10pm if I need it or not.  So will make that decision soon.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline byebyeC

  • Member
  • Posts: 286
Re: Still having sleep issues
« Reply #11 on: October 06, 2015, 02:03:28 pm »
Quote from: Cal on October 05, 2015, 06:24:37 pm
DM,
That's a bugger. Both the meds you took should have put you to sleep. The times when I don't sleep on tx is horrible and nothing works. Hopefully the Doc will give you some good stuff. Cal  :) found this from Msyo when looking fir test for RIBA saturation.
Elimination of ribavirin is also very slow, and due to incorporation of the drug into red blood cells, may take up to 6 months after the cessation of therapy. Ribavirin has shown teratogenic activity in animal models, thus patients are recommended to practice stringent birth control until at least 6 months after the end of treatment.

Nit to alarm you, just to validate the no sleep is probably RIBA related. Love them ribas!

Oh good Heavens!!! Six months of riba post tx...  :o :o :o :o :o
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #12 on: October 07, 2015, 02:01:31 am »
Sorry Marianne,
I didn't mean to scare you. Obviously it'll be les time in others, we're all different. I just know my last tx took a while to get through. Now I know the culprit! Cal :-\
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #13 on: October 07, 2015, 11:29:11 am »
Quote from: byebyeC on October 06, 2015, 02:03:28 pm
Oh good Heavens!!! Six months of riba post tx...  :o :o :o :o :o

Keep in mind that from what I have seen every one has a different experience on riba.  For some the worse is during tx, post tx is worse for others.

The only thing that has gotten better for me is I am no longer running out of breath... but the anxiousness, and irritability are just as bad as during tx.  I was the same way 1st time around..... was hoping this time would be different.... and it still could be...maybe it will only last 2 weeks this time!

dm

 
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #14 on: October 07, 2015, 11:37:51 pm »
DM,
We are all different and these are different drugs (except the riba :-\) I am happy to be on the drugs, have most of my brain back and improved mood. That's winning the lottery for me! I'll deal with post tx when it comes. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline byebyeC

  • Member
  • Posts: 286
Re: Still having sleep issues
« Reply #15 on: October 08, 2015, 06:14:10 pm »
Thanks all,

I'm just so bat bleep crazy/crying/then through the roof anger (so not me)... just imagining this going on for 6 months post... Oy Vey! Don't worry, I'm not allowing myself to drive till I'm done with the meds. Blurry vision too...

Does anyone have a spare rubber room I can borrow short term :D

Love you guys!
« Last Edit: October 08, 2015, 06:16:08 pm by byebyeC »
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Still having sleep issues
« Reply #16 on: October 08, 2015, 06:59:46 pm »
 Marianne, Bat crap crazy isn't all that bad once You get used to  the smell!!!
Wish there was something I could do to make it easier on You. Hopefully You get to feeling better soon. All I can offer You is good vibes & best wishes from down here in the Lone Star State.  Well , Maybe Percis' Hawaiian print straight jacket lined with blue velvet!!!!!  I never did tell You that I have a sister named Maryann.
 Hope You are better soon!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline hepboy1

  • Member
  • Posts: 21
Re: Still having sleep issues
« Reply #17 on: October 08, 2015, 07:10:00 pm »
melatonin knocked me down when I needed it
Logged

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #18 on: October 08, 2015, 07:43:23 pm »
Well, now I can sleep! Yay!  But I can only sleep for 5 hours.  So I go to be early in case I can't sleep , so I can take an ambien before it is to late.  Gotta be on the road at 6;30 AM.

So last night I just went ahead and took a half ambien, cause i wanted to sleep allll night.  But nooooo,  I woke up a 2:30.  5 hours sleep.  Stared at the ceiling for 2.5 hours.

Its almost like I don't need as much sleep as I used to ... but I love to sleep!  :(

Actually starting to feel a tad better each day...finally.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #19 on: October 08, 2015, 07:52:47 pm »
DM, I'm feeling better too and sleep is increasing gradually.  A bit disturbed, wake up often but last night slept 7 hours!  It really helps a lot!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #20 on: October 08, 2015, 08:37:32 pm »
Quote from: Bree on October 08, 2015, 07:52:47 pm
DM, I'm feeling better too and sleep is increasing gradually.  A bit disturbed, wake up often but last night slept 7 hours!  It really helps a lot!

I would kill for 7 hours! :o

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #21 on: October 08, 2015, 08:41:59 pm »
You'll get there!  It was my first 7 hours night in a long time.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #22 on: October 08, 2015, 08:56:45 pm »
cool.
maybe tonights the night!
d
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #23 on: October 08, 2015, 08:58:02 pm »
Marianne,
It will get better and you'll get better at knowing and accepting it. Like Tommy said you get used to the smell of bat shit after a while! Stay away from sharp objects.  I recommended a book to Bree I think. The Happiness Trap, it's explains mindfulness techniques. I woke up anxious as hell this morning and firs thought  OMG OMG I can't stand this etc. you know the drill.... then I used mindfulness ....Your just a feeling I am not going to let you change the way I do anything today. I am going to breath deeply and meditate when I have to. Oh and take valium hehe........Mother's little helper! If you get the book, I got my copies (I have copies for my sons too) from The Book Depository, I don't know if that's in U.S. or not. but Amazon would have it. I was never a big fan of self help books but this one is different. Its better than CBT. Just a thought. PM me if you get mad!!!!! :-X :P ::) Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #24 on: October 08, 2015, 08:59:15 pm »
DM,
Are you coping ok on 5 hours sleep? Do you catch up the next night? Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #25 on: October 08, 2015, 09:02:39 pm »
Quote from: Cal on October 08, 2015, 08:59:15 pm
DM,
Are you coping ok on 5 hours sleep? Do you catch up the next night? Cal :)

Yeah, 5 hours is cutting it.  It is so weird.  Its like I don't need as much sleep as before...plus I am still very hyper

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #26 on: October 08, 2015, 10:48:57 pm »
DM,
What day post tx are you now?
Those bloody ribas making you hyper still. I have been on a hyper binge for 3 days, each night I feel sick because I am doing too much, but the ribas keep telling me it's a good idea to do the tax returns, sort out sons driving test etc. etc. But my brain is clear enough to do these things. I am a machine. I do not like it.

It has to calm down eventually DM, you just have to go with the flow as usual. Wish you could get some sleep though. Strange that 5 hours seems enough. Ribas our little blue friends.  8) ::) :-\ Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline dragonslayer

  • Member
  • Posts: 873
Re: Still having sleep issues
« Reply #27 on: October 08, 2015, 11:50:14 pm »
Quote from: drummerman on October 08, 2015, 07:43:23 pm
Well, now I can sleep! Yay!  But I can only sleep for 5 hours.  So I go to be early in case I can't sleep , so I can take an ambien before it is to late.  Gotta be on the road at 6;30 AM.

So last night I just went ahead and took a half ambien, cause i wanted to sleep allll night.  But nooooo,  I woke up a 2:30.  5 hours sleep.  Stared at the ceiling for 2.5 hours.

Its almost like I don't need as much sleep as I used to ... but I love to sleep!  :(

Actually starting to feel a tad better each day...finally.

dm

DM, I know of what you speak!  Insomnia is the bain of my existance.. Used to be HCV, now its just insomnia.    I can get myself to sleep, like you, but usually wake up 4 or 5 hrs later, and then cant get back to sleep.   The only thing which lets me sleep longer is the antihistamine, Diphenhydramine, found in tablets by itself or in products like benadryl, unisom, etc.  But that stuff leaves me really groggy and fuzzy the entire next  day...   Ive found 5-htp to be of some help, and in a pinch, I have an ambien script for 10mg tabs of which I only allow myself 1/2.   If I get to sleep before 1am and wake up 4 hrs later, Ill take a quarter ambien sometimes, to try and get back to sleep a couple of hours.. Sometimes, after that early morning customary wakening, 2 valerian and a melatonin can help...  But usually, nothing helps, I have to make do with just a few hrs of sleep.   It can be a real quality of life killer.
Logged
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline MelHu

  • Member
  • Posts: 33
Re: Still having sleep issues
« Reply #28 on: October 09, 2015, 12:09:44 am »
Hi everyone
Yes I believe the RIBA does have that affect. Like some of you I have been an insomniac most of my life. 4-5 hours was the norm. But during TX seemed like there wasn't one night that I slep more than two hours without waking up. Then I'd be up for an hour or two and then down for another two hours.  It was horrible. Dr did I needed to get at least six hours to give my liver some rest. Never could. But now that I'm almost 1 month sine EOT and suddenly I feel better and getting at least 5 hours straight through most nights. Hopefully at my one month post TX labs will be undetected since I've yet to have THAT claim with HCV RNA detected but not quantifiable when <20 IU/ml.  Maybe you will feel  better when all is done. Here's the best to you all. I'm just sitting and waiting on pins  and needles awaiting the post labs for the 6 month results. Life is too precious for all. How fortunate we are to experience the TX.  We all have SO MUCH TO LIVE FOR!!!! Good luck!
MelHu
Logged
Genotype 2b
Probably contacted in 1979
3/2015 VL 3,250,000
   Alt 70.    Ast 31 U/L
   F3 liver status
Sovaldi/ribavirin
12week duration 6/28/15-9/19/15
TX naive
7/25/15 VL 49 IU/ml
   Alt 11
8/22/15 VL 40 IU/ml detected. Alt 9
9/19/15 VL <20 IU/ml detected Alt 12
10/21/15 VL <20 IU/ml detected not-quantifiable
11/24/15  8 week EOT UNDETECTED
3/19/16  6 month EOT Undetected  SVR
I am truly blessed!!!
Finally!  I am truly thankful to be free of it!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #29 on: October 09, 2015, 07:11:49 am »
Quote from: dragonslayer on October 08, 2015, 11:50:14 pm
DM, I know of what you speak!  Insomnia is the bain of my existance.. Used to be HCV, now its just insomnia.    I can get myself to sleep, like you, but usually wake up 4 or 5 hrs later, and then cant get back to sleep.   The only thing which lets me sleep longer is the antihistamine, Diphenhydramine, found in tablets by itself or in products like benadryl, unisom, etc.  But that stuff leaves me really groggy and fuzzy the entire next  day...   Ive found 5-htp to be of some help, and in a pinch, I have an ambien script for 10mg tabs of which I only allow myself 1/2.   If I get to sleep before 1am and wake up 4 hrs later, Ill take a quarter ambien sometimes, to try and get back to sleep a couple of hours.. Sometimes, after that early morning customary wakening, 2 valerian and a melatonin can help...  But usually, nothing helps, I have to make do with just a few hrs of sleep.   It can be a real quality of life killer.

Thanks DS,...
I was actually able to sleep last night!  Woke up at 2:30 and was able to go back to sleep.  Maybe the worst is over.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #30 on: October 09, 2015, 07:13:48 am »
Quote from: MelHu on October 09, 2015, 12:09:44 am
Hi everyone
Yes I believe the RIBA does have that affect. Like some of you I have been an insomniac most of my life. 4-5 hours was the norm. But during TX seemed like there wasn't one night that I slep more than two hours without waking up. Then I'd be up for an hour or two and then down for another two hours.  It was horrible. Dr did I needed to get at least six hours to give my liver some rest. Never could. But now that I'm almost 1 month sine EOT and suddenly I feel better and getting at least 5 hours straight through most nights. Hopefully at my one month post TX labs will be undetected since I've yet to have THAT claim with HCV RNA detected but not quantifiable when <20 IU/ml.  Maybe you will feel  better when all is done. Here's the best to you all. I'm just sitting and waiting on pins  and needles awaiting the post labs for the 6 month results. Life is too precious for all. How fortunate we are to experience the TX.  We all have SO MUCH TO LIVE FOR!!!! Good luck!
MelHu

I know what you mean MelHu about suddenly you feel better.  Thats the way it was my first round... felt like crap for months and then woke up one day and.... nothing!  it was very sudden.

Waiting on my EOT results now, they should call me today...hope so , cause I don't want to worry about it all weekend.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline julu49

  • Member
  • Posts: 63
Re: Still having sleep issues
« Reply #31 on: October 09, 2015, 06:10:27 pm »
Does the insomnia that typically comes with Harvoni treatment go away once you are done? I've always been able to sleep and this is not good. Please post your experiences after treatment. "hope" "hope"
julu
Logged

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Still having sleep issues
« Reply #32 on: October 09, 2015, 07:33:14 pm »
Quote from: julu49 on October 09, 2015, 06:10:27 pm
Does the insomnia that typically comes with Harvoni treatment go away once you are done?

It went away for me, but be careful what you wish for. I've been needing about 9 hours/night post-Tx. Nice dreams, though.
Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline julu49

  • Member
  • Posts: 63
Re: Still having sleep issues
« Reply #33 on: October 09, 2015, 07:36:51 pm »
Yes!!! Thanks, Gnatty. I used to sleep every time I sat down, I don't want to be that bad but I love my naps and a 9 hour a nite sleep. 3 more weeks. YAY
Logged

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #34 on: October 09, 2015, 07:39:06 pm »
I'm a week post and the insomnia is improving each day.  Still strange dreams though.  I have this strange new energy though.  Wondering if this is what not having Hep C feels like?
And, I'm shouting from the rooftops today, just got one week post treatment VL results:  Not Detected!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #35 on: October 09, 2015, 07:39:34 pm »
DM I hope you get your blood work today too!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Still having sleep issues
« Reply #36 on: October 09, 2015, 09:06:09 pm »
Bree Bree is free free!!!!!!!!!so great to feel good again...we had this so long we can't remember!!!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #37 on: October 09, 2015, 09:24:11 pm »
Rosie, I'm so happy for you too!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline julu49

  • Member
  • Posts: 63
Re: Still having sleep issues
« Reply #38 on: October 09, 2015, 10:53:50 pm »
Isn't it nice to pull up this site and see that someone's life has been saved every day? Some of us have side effects, some worse than others but nothing that compares to what could happen years down the road without Harvoni. As much as I whine about it, I have to say, I'm feeling so very lucky. Every day, there are at least one or two very happy members writing in to say they are free of the beast.
 :)julu
Logged

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Still having sleep issues
« Reply #39 on: October 09, 2015, 11:04:56 pm »
 Julu, The first 4-5 weeks I only slept a couple of hours a night. Weeks 5 to 8 it improved to 4 or 5 hours a night. From week eight to EOT  6 TO 7 hours as long as Sx's did not interfere. As long as I get 6-7 hours I am good. Anything more is just cheddar on the biscuit for Me.
  Keep plugging at it!!! We're all rooting for You!!!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline julu49

  • Member
  • Posts: 63
Re: Still having sleep issues
« Reply #40 on: October 09, 2015, 11:09:00 pm »
Thanks, Slats. I'm sure looking forward to a night with uninterrupted sleep. Soon...Nov 6 is my last pill. Whoopeee!
Logged

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #41 on: October 09, 2015, 11:41:38 pm »
Quote from: Bree on October 09, 2015, 07:39:06 pm
I'm a week post and the insomnia is improving each day.  Still strange dreams though.  I have this strange new energy though.  Wondering if this is what not having Hep C feels like?
And, I'm shouting from the rooftops today, just got one week post treatment VL results:  Not Detected!

Congrats Bree!

I waited till 2pm and decided to call doc's nurse cause I didn't want to stress about it over the wkend.  She said that they had not received results.  Damn.

Anyway, like you, sleep is improving everyday , so that is good.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #42 on: October 10, 2015, 12:14:43 am »
Quote from: drummerman on October 09, 2015, 11:41:38 pm
Congrats Bree!

I waited till 2pm and decided to call doc's nurse cause I didn't want to stress about it over the wkend.  She said that they had not received results.  Damn.

Anyway, like you, sleep is improving everyday , so that is good.

dm

Thanks DM. You are already UND so this is just extra confirmation.  I wasn't expecting mine until Monday.  I'm lucky I get automatic notice through the portal when something comes in from the actual lab.  If it was up to my doctor, I wouldn't know unless I nagged them daily or saw him again in a few weeks.

Glad you are sleeping better.  Have a restful weekend!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline MelHu

  • Member
  • Posts: 33
Re: Still having sleep issues
« Reply #43 on: October 10, 2015, 12:15:35 am »
Yes Julu you are so right. This forum has been instrumental in hashing through thoughts that run rampant on the brain. It helps to have input and idea and thoughts etc etc etc from others who are in the same boat. And yes the opportunity to treat this horrible demon.......we are so lucky. I'm waiting on the 19th of this mo th for my one month EOT results hope I clear as I'm still detected although <20 IU/ ml. Good luck to all!!!!! Now everyone get some REST!!
Logged
Genotype 2b
Probably contacted in 1979
3/2015 VL 3,250,000
   Alt 70.    Ast 31 U/L
   F3 liver status
Sovaldi/ribavirin
12week duration 6/28/15-9/19/15
TX naive
7/25/15 VL 49 IU/ml
   Alt 11
8/22/15 VL 40 IU/ml detected. Alt 9
9/19/15 VL <20 IU/ml detected Alt 12
10/21/15 VL <20 IU/ml detected not-quantifiable
11/24/15  8 week EOT UNDETECTED
3/19/16  6 month EOT Undetected  SVR
I am truly blessed!!!
Finally!  I am truly thankful to be free of it!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #44 on: October 10, 2015, 12:24:46 am »
Quote from: Bree on October 10, 2015, 12:14:43 am
Thanks DM. You are already UND so this is just extra confirmation.  I wasn't expecting mine until Monday.  I'm lucky I get automatic notice through the portal when something comes in from the actual lab.  If it was up to my doctor, I wouldn't know unless I nagged them daily or saw him again in a few weeks.

Glad you are sleeping better.  Have a restful weekend!

My lab has a portal as well... unfortunately in registering , I failed so many identity questions that they said I had to send in a photo copy of my driver's license.  Their questions were really stupid and taken from public records.   Questions like:  What length boat are you associated with?  Uh , kind of hard to answer when I have 3 boats.   
Or, which residence were you once associated with:  6432 M St.,  5799 M. st,  1234 M. st.,  1234 N. st.
         It was ridiculous and kind of irritating/creepy  that they had so much access to my past.

Anyway, sending in my DL photocopy tomorrow.

dm
« Last Edit: October 10, 2015, 07:53:56 am by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Still having sleep issues
« Reply #45 on: October 10, 2015, 12:33:41 am »
What a bunch of nonsense!  Not well thought out on their end.
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #46 on: October 10, 2015, 07:54:47 am »
Slept all night last night!  :) :) :)

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline dragonslayer

  • Member
  • Posts: 873
Re: Still having sleep issues
« Reply #47 on: October 10, 2015, 09:12:03 am »
Lucky!  What is your secret?
Logged
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #48 on: October 10, 2015, 10:17:06 am »
Worked a 15 hour day yesterday, with a pep rally and football game that night.  Didn't get to bed till midnight.  Just worn out.

Plus I think the riba is starting to weaken.

dm
« Last Edit: October 10, 2015, 01:51:05 pm by drummerman »
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline hepboy1

  • Member
  • Posts: 21
Re: Still having sleep issues
« Reply #49 on: October 10, 2015, 11:43:51 am »
did any one on here  take vitamins and mineral supps at all taking harvoni   please I want to know for the sake of humanity ill just be honest im taking it all   milk thistle and a one a day  and other supps  I've seen a pattern those who didn't take stuff  suffer more side effect  one man 6 months out cured  is so weak he's now on b 12 injections  im trying to get an update on his condition , I know the doctors are saying no supplements   etc  but its  not proven its all to new they don't know so their error on the side of caution  might spell problems .  on the other hand  it could be said the same thing  for taking them  but I do see a pattern working the other way those who don't suffer as much took supps   but I need more stories more info  to build a bigger picture
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Offline GLCII

  • Member
  • Posts: 127
Re: Still having sleep issues
« Reply #50 on: October 10, 2015, 12:02:59 pm »
Hi Hepboy1

I took vitamins B12 (1000mcg) & B Complex. Vitamin E (400iu) & D3 (5000iu) while on Tx. All made by Nature Made. Once in a while I would throw in a Cetrum Silver for men over 50. I still take the vitamins, along with my thyroid pill, as a habit now.

 I talked to my doc about it first and he said it would be ok because it's something your body needs anyway. Personally, in my case anyway, I think it helped as far as the fatigue factor goes during & after Harvoni.
Logged
Pre Tx (VL 12043488) ALT 52/ AST 39
Harvoni Start Date 03/12
2 Week in Tx Results HCV RNA Detected, less than 15 IU/mL. ALT 19 / AST 19
4 Weeks in Tx Results HCV RNA Not detected. ALT 21 / AST 18
12 Week in Tx Results HCV RNA Not detected. ALT 17 / AST 19
--------------------------------------------------------------
Post 12 Week EOT Tx ALT 19/ AST 19 (Undetected)
Post 24 Week EOT Tx ALT 19/ AST 15 (Undetected)

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #51 on: October 10, 2015, 08:29:47 pm »
I'm going to get same routine bloods done to test for deficiencies. Always err on the lowest side of normal.

I'm taking Alpha Lipoic Acid (Peripheral neuropathy) and Vit D and occasional Zinc.

All run by my Doctor. Cal
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Still having sleep issues
« Reply #52 on: October 10, 2015, 08:31:56 pm »
Quote from: drummerman on October 10, 2015, 10:17:06 am
Worked a 15 hour day yesterday, with a pep rally and football game that night.  Didn't get to bed till midnight.  Just worn out.

Plus I think the riba is starting to weaken.

dm

Ribas starting to weaken. Hooray DM! 8)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Still having sleep issues
« Reply #53 on: October 10, 2015, 08:34:07 pm »
Quote from: Cal on October 10, 2015, 08:31:56 pm
Ribas starting to weaken. Hooray DM! 8)

thanks Cal!

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17
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