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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Author Topic: New to forum  (Read 8297 times)

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Offline Hepaway

  • Member
  • Posts: 3
New to forum
« on: December 17, 2015, 10:48:20 am »
I am on day 15 of 12 weeks of harvoni. I live in the Netherlands (Holland) where harvoni is now freely available on national health. Till now just periods of fatigue, the occasional light headache washed away with copious amounts of water. Blood pressure doing strange things though. Much higher than usual first 10 days then seemed to level out again. Energy seems to be increasing again and head seems less foggy. After 40 years of hosting this virus a parting of the ways seems inevitable  Have always stayed away from alcohol, drugs, smoking and have led a healthy lifestyle. Contracted virus via blood transfusion. Have never been treated before harvoni as never really had many problems. Asat and alat always in the 25-35 range and vl around 350,000. The posts here helped me to decide to take treatment, thanks to all contributers
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Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: New to forum
« Reply #1 on: December 17, 2015, 12:05:26 pm »
Welcome to the forums, Hepaway. And congratulations on starting your treatment journey! A few others here have commented on increased blood pressure while taking Harvoni. Glad to hear yours has gone back down already. May your remaining 10 weeks be smooth sailing. :)

kim
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Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Madelief

  • Member
  • Posts: 60
  • Together we reach the bright site of te road
Re: New to forum
« Reply #2 on: December 17, 2015, 01:38:12 pm »
Hoi Hepaway, welkom hier!  :)
I live also in Holland and have had a lot of information and support here!
Wish you a very good treatment!
I am almost at the end (28 december) , have 8 weeks treatment and had bloodworks after 3 weeks and the virus was undetectable then!
I am going to see my doctor next monday and will ask for the  exact numbers. I hope it will be the same for you!
you can mail me by pb If you want to talk in Dutch  :)
Heel veel succes, good luck!
Madelief
Logged
start Harvoni 11-02-2015 (november)
Bloodtest 11-09-2015 alt 45 (before treatment 145)
8 weeks treatment
F1
Bloodworks 11-23-2015
HCV not detectable!!!
Rest of the numers in a normal range : ))))

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: New to forum
« Reply #3 on: December 17, 2015, 02:26:20 pm »
Welcome! How wonderful that your government has made HCV treatment available. I am in Australia and sadly ours has not yet acted in such a compassionate way.

I am so pleased things are going well for you.

I have heard travellers talk with great affection about the Netherlands. I do hope to see it for myself one day.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline HazelAustralia

  • Member
  • Posts: 178
Re: New to forum
« Reply #4 on: December 18, 2015, 06:17:55 pm »
All best wishes
Logged
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Laura

  • Member
  • Posts: 19
Re: New to forum
« Reply #5 on: December 20, 2015, 12:20:04 pm »
Welcome! Let us know how it's going for you.

Laura
Logged
--------
F / 60 years old
Genotype 2b
Treatment started 12/19/2015, 12 weeks Sovaldi / Riba
RIBA reduced from 1000 daily to 800 1/8/2016, further reduced to 600 1/11.
Hep C status known since 1997
Etiology unknown-
US Navy Vet, air gun inoculations  1975
Gamma globulin inoculations, late 80's, for international travel

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: New to forum
« Reply #6 on: December 20, 2015, 01:26:52 pm »
Hiya hepaway,

40 years seems to be the most common time frame.  I have (had) had it 40 yrs almost to the day.  I had high BP even prior to the treatment, but never checked it during tx.  I bet it was on the high side.  There have been others that had that issue.

Welcome to our international hullabaloo.  You will soon be hep free...so congrats.  Yes very cool that Holland has a compassionate program.  It will be interesting to see what happens as the new drugs go global.  It is fascinating the difference in price depending on where you go and what programs are available.  Some individuals are paying out of pocket at the tune of 1200.00 a day...some are getting them free...some payin 35.00 co-pay...the generics cost much less in India and other countries.  Even non generic Harvoni  varies greatly in every country.  Insurance companies and socialized medicine are having difficulties with the high costs.  My hope is that eventually we can see equity in the world for the 200 million infected.

Keep us informed on the Netherlands system...perhaps it could be a model for other governments.  Very happy to have you on board this forum.  peace
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: New to forum
« Reply #7 on: December 20, 2015, 03:05:30 pm »
You know I too had high blood pressure while on treatment and I am happy to report that it is now back to normal.
Full disclosure- I did usually see my doctor after a big cup of coffee in the morning and was probably a bit nervous too which did not help my BP numbers.

Wonderful to hear that the Netherlands is sensible about HCV treatments. Congrats on living in a health promoting nation. Please be a lesson for the rest of the world.
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Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline Hepaway

  • Member
  • Posts: 3
Re: New to forum
« Reply #8 on: January 13, 2016, 05:55:49 pm »
First Id like to thank those who took their time and energy to welcome me to this forum; appreciated. And second the nurse rang today with results of 4 week blood test and yes undetected. So now it is a matter of sitting it out till the end. Thank you Gilead and thank you Dutch government for making it possible. So far so good, no sides to speak of, almost too good to be true. I had adopted a let's wait and see state of mind some years ago so a few more months shouldn't be too difficult. I read here about relapses so I guess anything is possible and I really feel for those who relapse after setting their hopes on a cure.
I see most of you have a long list of test results etc listed. Is it enough to share:
Geno type 1b
Not detected at 4 weeks. To be continued...
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Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: New to forum
« Reply #9 on: January 13, 2016, 09:10:37 pm »
Hepaway,
Welcome and congrats on the good news...4 weeks and undetected!  You've got this!  So good to hear the Dutch government is supporting treatment for all. I hope other countries follow...soon.
Mary
Logged
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: New to forum
« Reply #10 on: January 13, 2016, 09:14:09 pm »
Love it Hepaway...this is indeed wonderful news!
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18
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