Author Topic: start viekira with riba in the morning :) (Read 44098 times)

guitarplayer86 · « **on:** November 27, 2015, 05:56:44 pm »

Well after a two week delay my viekira pak and ribavirin came today. So thankful to start tommorow. God bless. Ill check in regularly!! Matt

gnatcatcher · « **Reply #1 on:** November 27, 2015, 06:22:55 pm »

Matt, glad your meds are here. There's someone else about to start VPak and Riba as soon as her meds arrive. Perhaps you two will enjoy being on the journey together. Her thread is here: http://forums.hepmag.com/index.php?topic=3659.0

Every good wish,
Gnatty

Philadelphia · « **Reply #2 on:** November 27, 2015, 07:13:01 pm »

In the immortal words many Australians use to encourage people - go you good thing!

guitarplayer86 · « **Reply #3 on:** November 28, 2015, 10:44:31 am »

Well goin into this morning I must say I was very nervous but I dont know how longer in Its going to be but I took my morning three pills with three ribas bout six hours ago and I havent felt the slightest side effects!! I hope it stays that way

KimInTheForest · « **Reply #4 on:** November 28, 2015, 01:40:41 pm »

You're on your way, Matt!

kim

Cal · « **Reply #5 on:** November 28, 2015, 04:53:24 pm »

Hi Matt,
Welcome to the Exclusive Viekarians Club. Cal

guitarplayer86 · « **Reply #6 on:** November 28, 2015, 06:36:55 pm »

Thank you Cal! Im proud to be a viekirian!

Super mom · « **Reply #7 on:** November 28, 2015, 11:07:22 pm »

hope your doing great guitarplayer86

Super mom · « **Reply #8 on:** November 28, 2015, 11:08:38 pm »

hope your doing great guitarplayer86

BillT · « **Reply #9 on:** November 29, 2015, 08:13:47 am »

Good morning Player,
Being nervous is understandable but you're going to beat it this time.Your VL looks good and low to start so hopefully you'll get a easy ride.How long are you going to treat this time?

guitarplayer86 · « **Reply #10 on:** November 29, 2015, 02:25:05 pm »

Thanks guys.. im treating for twelve but if needed im approved for 24 weeks but hopefully wont need since my vl isnt real high. Im on day two n I feel great. Sleeping fine no sides. I know that can change but so far so good.

Cal · « **Reply #11 on:** November 29, 2015, 07:28:21 pm »

Hi Matt,
12 weeks is good. 24 is hard. I'm split I'm doing 17 weeks. 13 days to go! You'll do well for sure. Cal

Cal · « **Reply #12 on:** November 29, 2015, 07:30:15 pm »

Hi Supermom,
You're a Viekirian too. Welcome to the club! How are you doing? Cal

guitarplayer86 · « **Reply #13 on:** November 29, 2015, 08:27:13 pm »

Cal since youve been undetectable have u started feeling good again

guitarplayer86 · « **Reply #14 on:** December 01, 2015, 12:51:49 am »

Well im on day four... so far so good.. only annoying sx ive had so far is it has started to be painful when I urinate... burning like. Oh well glad to be kickin this.

Matt

Cal · « **Reply #15 on:** December 01, 2015, 04:15:12 am »

Quote from: guitarplayer86 on November 29, 2015, 08:27:13 pm

Cal since youve been undetectable have u started feeling good again

Yes and no,
Since I stopped the ribas nearly 3 weeks ago I have been feeling better. Undetected made me feel mentally well and I think you cope with sxs better when you feel happy. But yes, I have a clearer brain and more energy.

Watch out for a UTI with that burning wee. I had a UTI and was on anti biotics for it for half my tx. Cal

guitarplayer86 · « **Reply #16 on:** December 01, 2015, 07:38:55 pm »

Cal .. yea thats what I was thinking maybe uti... its not as bad as was last night but still uncomftorable... but glad you are doing good .

Cal · « **Reply #17 on:** December 01, 2015, 08:41:53 pm »

Hi matt,
Thanks friend. I am pretty happy with a clear brain. Body is stuffed but brain is starting to make new synapses and the drugs have gotten that virus out of there! Cal

Super mom · « **Reply #18 on:** December 01, 2015, 08:45:57 pm »

Cal

hello and thank you very proud to join the viekirian my meds wil be here monday so I will start tx on tuesday morning im having mixed emotions going intonthis Im very blessed and thankfulnto have acess to these meds but at the same time im scared

I have no idea what to expect how good or bad this will go im hoping and praying for the best just came down with some sort of bug not feeling good grrr

Cal · « **Reply #19 on:** December 02, 2015, 02:22:53 am »

Supermom,
You're in the exclusive club and we protect our own. Whatever your tx turns out to be, we'll be here, cheering or commiserating. Yes it is damn scary! But keep your eye on the prize. No HCV! Keep it in front of you.

Have you txed before? I can't remember.....

Cal

Super mom · « **Reply #20 on:** December 02, 2015, 02:32:32 am »

Hey cal

I feel speacial to be apart of the club and thank you for yoyr words of encouragement I have never done any type of treatment this will be my first v pak and modariba im super super scared I heen so stressed out I feel bad for my husband and kids I been a bit sensitive lately

I most def have my eye on the prize my youngest son whom is 11 is worried he says mom you wont die right ! I tell him no son (thinking to myself I hope not )

I have nooo idea what to expect but hey I gotta do what I gotta do

im sure time will fly by and im sure I will be just fine I think im just working myself up

Cal · « **Reply #21 on:** December 02, 2015, 03:39:37 pm »

Yes it's super doper scary,
But you can do it. I too, keep my family in mind and remind myself constantly if them. My youngest has asked me the same question. They need our reassurance, they're used to supermom!
After 2 weeks you will start to clear in the brain and you'll see subtle changes. It us so worth it. They will get a supermom back 100!fold!

cal

BillT · « **Reply #22 on:** December 03, 2015, 09:30:14 am »

Hi Super Mom,
Tell your son the only people we know of that have died from this were the one's killed by the people taking the riba's...right Cali?

Super mom · « **Reply #23 on:** December 03, 2015, 12:49:36 pm »

BillT

Ribas what do you mean people have died taking rib

gnatcatcher · « **Reply #24 on:** December 03, 2015, 12:56:51 pm »

Relax, Super mom -- Bill was joking, like when he told you to tell your husband to lock up the knives. Some people taking riba experience a need for anger management, that is all. Bill and Cali are used to joking about "riba rage" on another thread.

Super mom · « **Reply #25 on:** December 03, 2015, 01:54:21 pm »

gnatcatcher

ya I got it

im relaxed for right now so I have 5 days till tx begins med del will be on monday so will start on tues morning any advice on foods that have helped you all when dosing meds ? Alsohow muchbwater should I be drinking a day and how much Iis too much

i dont know why but I been extremely tired lately I dnt knw if its my body saying hey super mom lets catch up on some sleep for our journey ahead

or if Im jst being lazy

im sure im not the only one here that has been super stressed out before starting tx I just want to do everything rightvand hopefully have no or minamal side effects

I know dosing is am and pm is there a specific time I should start like 6am etc what has worked for you all

Philadelphia · « **Reply #26 on:** December 03, 2015, 02:03:06 pm »

Here are some suggestions I had when I first started treating
http://blogs.hepmag.com/gracecampbell/2015/04/tips_for_new_players.html

Cal · « **Reply #27 on:** December 03, 2015, 05:41:50 pm »

Supermom,
The only thing you can control about this treatment are the times you take the pills. Eg I did 7-7.30 am and pm. Take with food. Ribas are best absorbed with fatty food, like cheese, yogurt, or whatever you're eating for dinner . You can control your water intake, ribas dry you out so plenty of water. Don't drown yourself , but drink plenty. Have a bottle with you always. Rest when you need to, but if you can maintain exercise good. Sleep is important, ribas can upset sleep, so don't be afraid to ask your GP for sleepers. Check first to make sure any drug you take is allowed on the regime. Wash with a soap free wash. I use Aveeno wash. Moisturise as many times a day as you need, I use Aveeno again.
Above all keep posting and let us support you through this. You can do this you're a supermom! Cal

guitarplayer86 · « **Reply #28 on:** December 04, 2015, 08:59:33 am »

Cal.. why do we need to use soap free wash I didnt know that

guitarplayer86 · « **Reply #29 on:** December 04, 2015, 11:00:40 am »

Well im on day six and I got ahead of myself when I was having no sides cuz I just feel like crap today. Im so fatigued I feel tired laying down watching tv. Oh well

KimInTheForest · « **Reply #30 on:** December 04, 2015, 01:28:20 pm »

Quote from: guitarplayer86 on December 04, 2015, 08:59:33 am

Cal.. why do we need to use soap free wash I didnt know that

I think because of the problem of riba drying the skin and hair and tissues of body so much. I just continued to use soap. But I do know about the drying effect of riba. My hair got very dried out during and post-tx - like a haystack, even with me gobbing coconut oil onto it. And my lips were very chapped and often split from being so dry. Those problems have disappeared now that I am several months post-tx.

kim

I fightis thetitis · « **Reply #31 on:** December 04, 2015, 08:32:43 pm »

QUESTION:

Has anyone on Harvoni experienced tingling in their legs? My right leg has a bit of numbness and tingling at the shin and not sure if it's a side from from Harvoni.

I am a cyclist so I cannot rule out some odd anomaly from cycling.

Any one heard of sim symptoms?

Cheers,
Greg

Philadelphia · « **Reply #32 on:** December 04, 2015, 10:23:26 pm »

Guitarplayer, I was slammed around 2/3 weeks with fatigue. I was so tired, like you lying on the lounge was about all I could manage. I picked up after the first month and motored through the rest of it.

BillT · « **Reply #33 on:** December 05, 2015, 03:42:31 am »

Hi Super Mom,
I'm really sorry if that was taken the wrong way.I'll try to be more careful.I forget that the newbies that haven't read most of the posts don't expect to find a lot of humor coming from us.

Matt,
I think the fatigue really shows up more right the beginning as the meds are saturating our systems and kick our immune system into overdrive.It only lasted about 2 weeks or so with me and then slacked off.I'm at the point now that the reason I'm tired is because I'm not sleeping.I've had insomnia since the service so it's hard for me to say if it's me,or it's a sx.

Cal · « **Reply #34 on:** December 05, 2015, 05:04:56 pm »

Hi Matt,
The soap free thing is because, soap druse out the skin, taking away the natural oils. Soap free washes leave the oils there.your skin will get dryer it's just the nature if the ribas, the dry you out. water is important as is moisturising. Lip balm is a must too as Kim said it cracks the lips.
I'm over 3 weeks post ribas and my skin is still scaly but is not cracking. It's slightly itchy but I am not scratching as much. Cal

Cal · « **Reply #35 on:** December 05, 2015, 05:09:23 pm »

Matte
The drugs do their best work in the first few weeks of tx. The ribas drop your HB in the first and second week, so you could be going into anaemia. If it gets too bad, get a full blood count done and see if you need a RIBA adjustment I did. Then I went back on higher dose when it was a but better. Some people on the forum (chuck I think) had some special injections so he could stay on the ribas but address the low HB. Good luck! Watch tv and rest up. Cal

Super mom · « **Reply #36 on:** December 06, 2015, 04:28:36 pm »

BillT

I totally got you were playing no offense taken my friend

I can totally use some humor. Tomorrow my meds will be delivered to me so I will be at home all day waiting for them

So I been nervous about this whole thing but I'm sure everything will be fine. Tuesday morning is my start date. A little FRUSTERATED with my doc he has not gone over anything with me

I guess I just dive right in I have no clue to what times I'm suppose to dose or how far apart I'm suppose to dose I'm clueless right now

Guitarplayer86: how are you doing my friend ?
How's the fight going ?

guitarplayer86 · « **Reply #37 on:** December 07, 2015, 08:34:13 am »

Hey supermom... its going ok ... been really tired n a lil ancy feeling... im on day ten. U were saying u didnt kno when to dose n all. Me personly I take mine 7-8 am n the same in the pm.my nurse practitioner said that was best way twelve hour increments but u can go ten. Hope its ez sailin for ya.. hang in there

Super mom · « **Reply #38 on:** December 07, 2015, 10:20:40 am »

guitarplayer86

Im glad all is going well for you wow day 10 already yea yea yeah way to go thx for all the advice

Cal · « **Reply #39 on:** December 07, 2015, 06:00:29 pm »

Hi Matt,
Yep antsy, I would guess a bit speedy? That's the ribas. This to shall pass my friend. Cal

guitarplayer86 · « **Reply #40 on:** December 07, 2015, 06:55:13 pm »

Hey cal excuse my spelling but yeah this evening im feelin lil better but for days now had antsie feeling accelerated heart beat but actually feeling prettygood this evening. Could be becuz I spent an hour in the sauna at the gym.. always makes me feel so much better to get the heart goin n get a good sweat in. On to day 11

Cal · « **Reply #41 on:** December 07, 2015, 08:49:18 pm »

Hi Matt,
I had a resting heart beat of around 100 during the ribas days, especially in the first few weeks. That's when the HB drops a lot. It's another sign you could be anaemic. So don't push yourself too hard. Glad you feel better though.

Cal

Super mom · « **Reply #42 on:** December 08, 2015, 07:18:42 pm »

Day 1 viekira pak & riba
Ate fruit and cheese sandwich
Took my meds 7:30 am
No side effects
Went about my day ate lunch with hubby within 15 mins of eating. I started itching like I rolled around in fiber glass lol

But my ? Is how far apart should my meds be taken is 12 hrs 10 hrs etc any help would be great thx

guitarplayer86 · « **Reply #43 on:** December 08, 2015, 09:57:38 pm »

Congrats supermom... 12 hr between is ideal but u can go ten

Cal · « **Reply #44 on:** December 08, 2015, 11:32:49 pm »

Supermom,
Check with your Doctor, I went on an antihistamine for the itching. Yuk, drove me insane. Cal

Super mom · « **Reply #45 on:** December 09, 2015, 12:30:22 am »

guitarplayer86
Thank you very much I appreciate it so how is everything going for you ?

Cal
Thank you so much and
YES THE ITCHING IS INSANE

guitarplayer86 · « **Reply #46 on:** December 09, 2015, 10:35:14 am »

Supermom its getting better im on day 12 I believe n the anxiety that came around day five seems to be subsiding... that was the only side I had.. I didnt get the itching guess I got lucky on that one but im happy for u that youve started I was very anxious waiting on mine n its been almost two weeks now.n its flew... I get my labs done monday but unfortunately ill have to wait till week four to find out my viral load so counting down to that now.

God bless

Matt

Philadelphia · « **Reply #47 on:** December 09, 2015, 03:10:05 pm »

I didn't have bad itching, but when it happened I used an antihistamine. Chat to your doctor.

Super mom · « **Reply #48 on:** December 09, 2015, 08:53:35 pm »

guitarplayer86
Lucky you no itching im on day 2 and Im feeling not to swell bearable but feeling yucky my stomace hurts like someone got a wrecking ball and hit me in the tummy tired itching and I noticed my heart was beating kinda fast

almost like an anxiety type feeling a bit of head fog but like I said nothing super bad I would say super bearable jst uncomfortable I csn deal with these symtoms hopong the rest of my tx goes like this

Please update us on vc I go on tuesday BEST WISHES MY FRIEND KEEP KICKING A**

guitarplayer86 · « **Reply #49 on:** December 10, 2015, 08:13:24 am »

Supermom... yes the anxiety is the worst part to me but it seems like when you getclose to two weeks it starts getting better cuz mine has. It will get better for ya.. excersise has made me feel better cuz flushs suma the bad stuff out. Ill will update any labs when recieved. Good luck girl u gotthis.

Matt

Super mom · « **Reply #50 on:** December 10, 2015, 07:52:59 pm »

Question is itnokay to drink prune juice

guitarplayer86 · « **Reply #51 on:** December 11, 2015, 09:12:04 am »

I would say it is juices are good ... all I drink that n water.. no sodas for me I try to limit the amount of hard things for the liver filter.. btw two weeks now n feeling better each day.. keep at it super mom

guitarplayer86 · « **Reply #52 on:** December 14, 2015, 10:40:57 am »

Super mom how is tx going

guitarplayer86 · « **Reply #53 on:** December 15, 2015, 04:07:00 pm »

Well I got my two week labs done....and......UNDETECTABLE BABYYYYY

Super mom · « **Reply #54 on:** December 15, 2015, 05:39:51 pm »

Matt
Hello tx is up and down its def taking a toll on my body today is 1 week into tx and I can say its kicking my butt im really just taking it a day at a time thats all I can do im def getting jaundice my whiyes of the eyrs are yellow skin is red im fatigued my body hurts and the list goes on and on

I went for my labs today so waiting game begins

matt SUPER DUPPER CONGRATS YEA YEA BABY THATS WHAT IM TALKING ABOUT SO HAPPY FOR YOU HOWS TX GOING FOR YOU

guitarplayer86 · « **Reply #55 on:** December 15, 2015, 11:20:33 pm »

Supermom stick with it.. im sorry ur having bad sides mine started getting way better at the two week mark I have no sides really now.. hang in there girl... n yea I was shocked it worked that fast still gotta finish the treatment of course... its kicking ur butt cuz I believe CAL said itdoes the most work in the first couple weeks which is true.. stay at it

Cal · « **Reply #56 on:** December 16, 2015, 01:58:02 am »

Supermom,
Sorry the sxs are getting harder. Those yellow eyes could be increased bilirubin. Check your Liver results. If the Doctor hasn't picked up on it then point it out to him. Just to keep an eye on it. I know Phily and Marianne both had increased bilirubin with yellow eyes. You're doing great my friend. Cal

Philadelphia · « **Reply #57 on:** December 16, 2015, 06:06:13 am »

nice work guitarplayer! Supermom I found Weeks 2 and 3 horrible. My was exhausted and my eyes were yellow. It's not uncommon for highly increased bilirubin to be part of this treatment, but it usually normalises by week 4. The riba is kicking your butt. You'll probably find your hb is low too.

Your dr might want to reduce your ribavirin dose, mine did. I ended up on only 2 riba tabs each day - 1 morning and night. Despite that massive drop, from 5 to 2, I still cleared.

Super mom · « **Reply #58 on:** December 16, 2015, 11:30:52 pm »

Cal & philadelphia

thanks so much I still have not got a copy of blood work yet im hanging in there the best I can question how many of you all have experienced weight loss and if so how much weight loss

the itching has been real today grrrrr I was told drinking coffee was good for my liver

But I can say this it has helped with my energy level started with a slight cough on and off muscle aches emotional etc

I just keep thinking 11vweeks to go

Philadelphia · « **Reply #59 on:** December 17, 2015, 04:00:05 am »

I lost weight Super Mom, about 5kg quite early on. It stabilised and I stayed 5kg under my starting weight all the way through. I've sinceputit back on. I was a bit underweight during treatment, now perhaps a kilo or two over what I like.

If things get too much with tiba sx, and most of these are, talk to your dr about your ribavirin levels and what can be done about them.

Cal · « **Reply #60 on:** December 17, 2015, 06:17:53 pm »

Hi Supermom,
Yep I lost 3 ks in first 2 weeks and stayed off until about week 8 when I suddenly became a bottomless pit! I have put back on all weight plus 1 extra K. Like Phily I was a bit underweight anyway.
Are you on an anti histamine for itching? I still take them post tx. They work. SO do check with the Doc about that.
Everything else sounds on target sxs wise. If the cough is dry it's the ribas. Good on you, you'll get there! Cal

HazelAustralia · « **Reply #61 on:** December 18, 2015, 07:12:09 am »

Hi Supermom,
It sounds like you are a week ahead of me, so I'll be following in your footsteps.
Take care,
Hazel

guitarplayer86 · « **Reply #62 on:** December 19, 2015, 08:41:55 pm »

Well im three weeks in... even tho im undetectable I kno my liver has much healing to do. Look forward to seeing four week labs since they didnt do liver enzymes on the two week labs.. mine have always been high with the virus ive noticed sum ppl were close to normal even wit. The virus. Mine have always been around 200 - 300 ,one time they were 700 and 500

HazelAustralia · « **Reply #63 on:** December 19, 2015, 09:15:13 pm »

Hi guitar player,

Three weeks and already undetected! I appreciate what you say about a lot more liver healing needing to be done, but that's pretty encouraging. So I'm 2& 1/2 weeks behind, following your journey,
best,
Hazel

Cal · « **Reply #64 on:** December 19, 2015, 10:28:27 pm »

Go Matt!
UND you little beauty. Cal

Philadelphia · « **Reply #65 on:** December 20, 2015, 03:41:26 pm »

UND - great work Matt!

guitarplayer86 · « **Reply #66 on:** December 20, 2015, 05:52:09 pm »

Thanks so muchguys.... I was mindblown when the nurse called with the two week results... just gotta get to that 12 week post svr to take a big sigh of relief and HAzelaus stick with it first two weeks sucked for me but thats becuz it was woopin up on that virus. You got this

jakas · « **Reply #67 on:** December 21, 2015, 01:21:57 am »

Best of Luck and Merry Christmas hope this treatment finally works for you.

Philadelphia · « **Reply #68 on:** December 21, 2015, 02:26:50 am »

Hazel, I blogged my entire treatment - all 24 weeks of it. If you want to see how I was in the first month, jump to April. I was hammered and tired and quite emotional.

HazelAustralia · « **Reply #69 on:** December 21, 2015, 04:47:01 am »

Thanks Philly,

I'll have a read now (in fact I just read week one and two). It's just what I need right now. This morning I slept in for one hour after I was due to take the tablets and tonight, I spontaneously called in to see a friend in Melbourne, and was just agreeing that it would be great to go out to eat when I looked twice at my clock and gasped- I was meant to take my pills in one hour and I live at least 90 minutes away. Hmm, I need to take that tip about packing spare tablets in my bag seriously. How much leeway do we really have with the time of day we take them??
H.

Philadelphia · « **Reply #70 on:** December 21, 2015, 04:53:38 am »

Quite a bit of leeway. Don't panic. I never missed a dose, EVER. But I was late for a few. I always kept two days Worthing handbag, just in case. I figured two days would get mouton trouble.

I also set a reminder on my phone and had a medicine app that reminded me - I had to manually tap a reminder to turn the alarm off and indicate I'd taken the tablets. It was a useful reminder. AND THE PILL BOX! That pic box saved my bacon more than once.

Super mom · « **Reply #71 on:** December 25, 2015, 02:54:08 am »

Just updating for wifey she's been put into the hospital more updates coming soon

Philadelphia · « **Reply #72 on:** December 25, 2015, 03:45:13 am »

Please keep us updated.

gnatcatcher · « **Reply #73 on:** December 25, 2015, 04:33:30 am »

Super mom's hubby,

Thank you for letting us know -- very sorry to hear this. Please let your wife know that she and you and your children are in our hearts.

Gnatty

jakas · « **Reply #74 on:** December 25, 2015, 04:04:03 pm »

Sorry to hear this. Keep us updated please. Pray all is gonna be well soon.

HazelAustralia · « **Reply #75 on:** December 25, 2015, 04:44:04 pm »

I hope everything is okay

Super mom · « **Reply #76 on:** December 25, 2015, 06:45:14 pm »

Update my wife was hospitalized in need of blood transfusion from treatment. She fell faint and also severely dehydrated I'm confused she been drinking half a gallon or more of water. She's been doing everything to a T except resting she's been on the go 247 also side effects from medication has anyone had to be hospitalized due to complications on treatment

Philadelphia · « **Reply #77 on:** December 25, 2015, 07:42:20 pm »

I know of people who have been quite sick as a result, but generally stuff like rising alt and bilirubin. I think it's important to know your limitations and not push yourself too hard. I do hope everything stabilises soon. My thoughts are with you and your family.

gnatcatcher · « **Reply #78 on:** December 25, 2015, 07:51:32 pm »

Super mom's hubby, thanks for the update. Because I was on a different medication (Harvoni), I don't have an answer to your hospitalization question, but I did post it to another thread and included the link to this thread, so I hope some answers will come soon.

It's amazing how much water these meds guzzle. Also, I've read posts where people had to have their ribavirin dose reduced because of side effects.

I'm sure you're right that Super mom "has been doing everything to a T except resting." I'll bet you were already trying to convince her that she doesn't have to be Super mom while on treatment. Please let her know that we here on the Hep forums hope she'll take it easy from here on out! She can always celebrate Christmas in July.

HazelAustralia · « **Reply #79 on:** December 26, 2015, 02:42:50 am »

How frightening. I hope she is doing better now.

BillT · « **Reply #80 on:** December 26, 2015, 06:44:56 am »

Keep us posted Super Dad.

lporterrn · « **Reply #81 on:** December 26, 2015, 09:33:21 am »

Super Mom and Dad:
So very sorry to hear you are going through this, esp. during the holidays. To answer your question re the commonness of blood transfusions, yes, it happened fairly frequently with ribavirin + interferon (interferon would contribute to about 10% of loss in red blood cell manufacture). But, it does happen, esp if someone started out with a low hemoglobin in the first place.

What I wonder about is if Super Mom carries the gene for ribavirin-induced anemia sensitivity. It isn't tested for but obliviously she is tested. I hope her hep doc is aware of what is going on - sometimes these ER visits fall through the cracks, esp over the holidays

Cal · « **Reply #82 on:** December 26, 2015, 09:12:37 pm »

Quote from: Super mom on December 25, 2015, 06:45:14 pm

Update my wife was hospitalized in need of blood transfusion from treatment. She fell faint and also severely dehydrated I'm confused she been drinking half a gallon or more of water. She's been doing everything to a T except resting she's been on the go 247 also side effects from medication has anyone had to be hospitalized due to complications on treatment

Supermom and Dad,
I was on Viekira and Ribas and was hospitalised in the second week for sodium loss. I drank too much water because I was dehydrated by the ribas, but my existing illnesses needs a balance of sodium and potassium. I was in for 4 days. My Gastro came to the hospital immediately so they would give me my Viekira and ribas and worked with them to make a fluid plan. All through tx I was either low sodium or dehydrated. I was extremely anaemic but did not require a blood transfusion just an adjustment of the ribas. It is something that happens on ribas and some get a blood transfusion. It sounds so drastic I know, your poor lovely wife. So sorry for you. Especially over the Christmas break. I was in hospital for Christmas 4 years ago due the ifn and riba treatment. I know how it feels to be out of control and away from the family. So sorry for you all. Please keep posting with news. Cal

Laura · « **Reply #83 on:** December 27, 2015, 01:23:08 pm »

Supermono and family,
You are in our thoughts and prayers. I just started this journey, and have no advice or experience to offer, but my heart goes out to you and your family. Give the little ones a hug.

Laura

guitarplayer86 · « **Reply #84 on:** December 31, 2015, 09:45:15 am »

Supermom so sorry hope u get better quick ill pray for ya

Super mom · « **Reply #85 on:** February 11, 2016, 11:18:08 am »

Hello everybody sorry it's been forever I have had several complications due to tx was in the hospital for almost a month. Dr's appts etc. Just been regaining. Strength. .

Thank you everyone for your prayers I definitely felt them. I have 3 weeks left. On this tx and I'm ready for it to be over. How's everyone

BillT · « **Reply #86 on:** February 11, 2016, 12:08:03 pm »

Welcome back Super Mom.Sorry to hear it hit you so hard,but I'm glad you're doing better.I think all of us are glad when it's over,especially those that are having problems with it.You'll make the next 3 weeks and I hope they're uneventful for you.I got to EOT on the 8th of January so I only have another 8 weeks to find out if I SVR.For some reason my brain scrambled a bit for a few weeks after I finished but I'm a lot better now.I feel confident I made it and I'm feeling good about it all.I'm so glad you're feeling better.Let us know how it's going.

gnatcatcher · « **Reply #87 on:** February 11, 2016, 12:25:44 pm »

Super mom, thank you so much for checking in. You've been missed, and we were worried. What a rough ride you have had! I hope the Viekira and Ribavirin are accomplishing their objective of getting rid of the HCV.

Quite a few of us have made it to SVR12 (still virus-free 12 weeks after the end of treatment). Some of us who had an easy time on Harvoni are having a rougher time after treatment, but nothing like what you have gone through.

Looking forward to celebrating the end of your treatment soon.

Gnatty

Philadelphia · « **Reply #88 on:** February 11, 2016, 10:28:39 pm »

So pleased to see you back. You have been missed .

AussieRosa · « **Reply #89 on:** February 12, 2016, 07:52:11 am »

Welcome back, and glad to hear you're doing ok and still on the treatment. Hoping you have all the very best outcome. You deserve it after all you've been through!

guitarplayer86 · « **Reply #90 on:** February 12, 2016, 01:15:44 pm »

HEY GUYS I MISSED YALL I havent checked in ina while I hppe your good supermom. I have one week of treatment left thank God. Been undetectable since week 2 but still having occasional liver pains anyone else experience this? God bless u all

gnatcatcher · « **Reply #91 on:** February 12, 2016, 02:27:04 pm »

guitar player, missed you too. Glad to hear about the continuous undetected.

BillT · « **Reply #92 on:** February 12, 2016, 04:36:12 pm »

We're waiting for you at the finish line Guitarplayer.They didn't do a 2 week lab on me but I have a feeling I had been undetectable at that point.I had more kidney pain with it but I'm sure it was a stone.I did have confusion(very mild)after my EOT but that's all gone now.The waiting that last week of tx damn near killed me but you're going great.Congratulations.

guitarplayer86 · « **Reply #93 on:** February 12, 2016, 05:46:48 pm »

How long till I feel normal again lol

Philadelphia · « **Reply #94 on:** February 12, 2016, 10:48:29 pm »

I've never been normal so I'm not sure what it feels like.

I admit I didn't get hammered after the end of tx. I don't remember feeling significant;y better or worse, just the same, more or less. I'm now 5 mothins post treatment cessation and I still feel pretty okay, but I'll bet my platelets are still crappy and my INR not great.

BillT · « **Reply #95 on:** February 13, 2016, 09:08:52 am »

I'm with Philly.Define normal.

I've noticed that like with the sxs everyone is different.It looks like some are going to take longer for the healing process than others.I think you'll be like me and get over it fairly quickly.I also think that everyone needs to remember that some of the health problems could have been in the works even it they hadn't treated.The HCV did a lot of damage to a lot of us,especially for those that had it for years.I'm not a doctor but in my opinion this virus did a lot more damage to us than just the liver.Take it for what it's worth.

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