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Author Topic: am i the only one that packed on the pounds while on Harvoni  (Read 8068 times)

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Offline Karin

  • Member
  • Posts: 45
  • Hi Glad to meet all of you
am i the only one that packed on the pounds while on Harvoni
« on: October 08, 2016, 01:00:16 pm »
Hello Everyone, Not sure i post correctly cause i really never get many responses??? Gonna try again. I have put on about 10 lbs in the past 3 months which is not good on a 5'2 frame. i am not blaming it on the Harvoni maybe just my eating habits changed and also my type of aerobic exercise i think. Has anyone else gained any weight while in tx and did you lose it after? I have 4 more days of Harvoni  :)
genotype 1a
fibroscan f3
diagnosed April 2016
Began Harvoni July 19th 2016
4week blood test today Aug 16 2016
Negative for virus on 4 week check
finished Harvoni Oct 11tth 2016

Offline jakas

  • Member
  • Posts: 265
Re: am i the only one that packed on the pounds while on Harvoni
« Reply #1 on: October 08, 2016, 03:03:18 pm »
i PUT ON 6 KGS
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: am i the only one that packed on the pounds while on Harvoni
« Reply #2 on: October 08, 2016, 05:10:13 pm »
Hey Karin, I did gain ~ 5# while on treatment, I think due to feeling best when there was something in my stomach.  Feeling hungry did not feel good, so I tended to eat small amounts off and on during the day.  I'm a lifetime member of Weight Watchers, so I knew how to control it somewhat, but I think if I had not had that background, I would possibly have gained more.

I lost most of it and am wanting to lose a few more, but I know several other members talked about weight gain, too, so you are not alone! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: am i the only one that packed on the pounds while on Harvoni
« Reply #3 on: October 09, 2016, 05:56:19 am »
Karin, I'm one of those "several other members" who gained. Harvoni gave me a huge amount of extra energy and a voracious appetite. Unfortunately, when treatment ended the energy normalized but not the voracious appetite. I'm still ~5 pounds over what I was before treatment, despite considerable effort to lose weight, so I think my metabolism has changed, causing my body to feel it's in a state of famine when it isn't. That makes dieting extraordinarily difficult. Good luck to you!

Gnatty
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline LightBeingAtLast

  • Member
  • Posts: 31
Re: am i the only one that packed on the pounds while on Harvoni
« Reply #4 on: October 09, 2016, 12:21:40 pm »
I've found that keeping a little something in my stomach makes everything  better, not that's it bad and I'm definitely a bit more ofc myself but small price to pay for getting rid of this virus.  I'm beginning week 6 of 12 today on Harvoni. Can't believe I'm almost half way done!
64 yo female
Dx Oct 20, 2000
Type 1b
VL 32 mil
Liver biopsy 1979 nonspecific reactive hepatitis
Liver biopsy 2001 stage 1 of 4
Liver biopsy 2007 stage 2
Fibrosure 2015  stage 2
2016 August liver scan stage 4
9/3/16  began Harvoni. Treatment naive.

Offline brie41

  • Member
  • Posts: 191
Re: am i the only one that packed on the pounds while on Harvoni
« Reply #5 on: October 09, 2016, 12:39:30 pm »
Hi Karin,

  I actually lost about 10 pds while on my 8 week treatment with Harvoni.  I went out of my way to eat healthy and light.  Did not want to deal with any stomach issues.  I didn't notice a change in my appetite due to the medication.  So since then I have gained the 10 pounds back, but I have always gone up and down and now trying to take it off again.  Always something!!   I just started drinking Bragg's Apple cider vinegar as it is suppose to help with weight loss and many other health benefits.  Not too bad mixed in water with a bit of honey. 

LBAL,

 Glad you are half way through already!  Brie
Diagnosed  HCV, 1A 2006
Viral load 6 million
Ast/Alt always in the 20's
F0-F1, never changed
Treatment naive, started 8 week Harvoni 3/15/16
4 and 8 week labs undetected
6 week eot labs undetected
13 week eot UNDETECTED!

Offline Karin

  • Member
  • Posts: 45
  • Hi Glad to meet all of you
Re: am i the only one that packed on the pounds while on Harvoni
« Reply #6 on: October 09, 2016, 10:04:55 pm »
Thanks all for your experiences on weight. I agree a few pounds is worth it to get rid of this virus. Good Luck to all
genotype 1a
fibroscan f3
diagnosed April 2016
Began Harvoni July 19th 2016
4week blood test today Aug 16 2016
Negative for virus on 4 week check
finished Harvoni Oct 11tth 2016

 


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