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Author Topic: Over two years of freedom  (Read 11206 times)

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Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Over two years of freedom
« on: November 09, 2017, 09:41:25 pm »
In 2013 I doubted that I would see another 4 years of decent existence. After having to quit work, having constant discomfort in my hepatic region, mild hepatic encephalopathy sometimes not being able to remember even simple things and stay focused, my life has turned around.
The pain around my liver especially when I ate is gone for the first time in over 12 years. My liver enzymes and all functions are spot on normal. ALT, AST, Bilirubin all normal for my age. The swelling around my liver is noticeably decreased.
Was using a DAA worth it? For me there is no question that it has improved my quality of life dramatically.
Most importantly I know that if some unforeseen accident exposes someone else directly to my blood it will not harm them! ;D
Logged
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Over two years of freedom
« Reply #1 on: November 10, 2017, 12:57:56 am »
Congrats on your 2nd hep c free re-birthday!
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Over two years of freedom
« Reply #2 on: November 10, 2017, 11:28:59 am »
Hey Mugwump!!  What a happy post to read, so glad you are feeling better.  Life is good ---- FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline I fightis thetitis

  • Member
  • Posts: 129
Re: Over two years of freedom
« Reply #3 on: November 11, 2017, 03:18:26 am »
Congrats Eric!

Awesome news and well done. You are an inspiration.

best always,

Greg
Logged
M59  56@start of TX. date infected:1976
diagnosed 1997 - asymtomatic
Genotype 1a
AST 111 -ALT 124 - AFP -89
Viral Load 1900000 - Log 6.28
Fibro Test F4 ActiTest A3
Harvoni 24 wks - start date 11/24/15

6 Week Labs VL Undetected!
104 weeks EOT Undetected.

8/25/17 Fibrosure score 80 = F4
11/10/17 Fibroscan 7.5 mean 1.6 m/s = F2
8/2018 Ultra sound normal.

Offline Gaj

  • Member
  • Posts: 172
  • Optimist
Re: Over two years of freedom
« Reply #4 on: November 12, 2017, 10:55:04 pm »
Congratulations Eric,  :)

Great to hear about your improved quality of life these days and encouraging for others.

Tight lines,
Guy
Logged
Male - 61 years
Genotype 3a (since 1978?)
Diagnosed 2012
Treated 2013 PEG/Riba/Dac (Relapsed)
F4 - HCC#1 Resected 06/15 - #2 RFAblated 11/15
11/18/15 Commenced Generic Tx - Sof/Dac/Riba (24wks)
Pre Tx = ALT: 270  AST: 209  ALB: 31
05/05/16 = ALT: 34  AST: 32  ALB: 40  VL: Undetected (EOT)
06/16/16 = Relapsed
06/23/16 = ALT: 92  AST: 59  ALB: 40  VL: 290,770
01/12/17 3rd Tx - Zepatier + Sofosbuvir (16wks)
05/03/17 EOT und
06/22/17 SVR7 und
07/27/17 SVR12 UND!
10/26/17 SVR24 UND & Cured!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Over two years of freedom
« Reply #5 on: November 13, 2017, 05:07:50 am »
Eric, you may take the prize for most dramatic before-and-after story: congratulations!
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Over two years of freedom
« Reply #6 on: November 13, 2017, 02:30:03 pm »
Congrats Eric! So great to hear your story!

I passed my 2nd hep c free re-birthday a couple of weeks ago myself. Great feeling to be rid of something most of us assumed we would have for life.

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Wiglaf

  • Member
  • Posts: 14
Re: Over two years of freedom
« Reply #7 on: November 18, 2017, 06:30:28 pm »
We all have a lot to be grateful for. I too slayed the dragon in early 2015. Thank you Gilead!
Logged
Contracted: 1969
Treatment: Naïve
Geno 1A
VL: 15,900,000
ALT 38, AST 37
Belirubin 1.3
TX start date: Mar 2, 2015
Harvoni and Ribavirin (1200 mg)
EOT (24 weeks) 5/25/15 undetected
6 mths post TX: undetected 11/24/15
ALT 10, AST 17
Belirubin 0.8

Offline HazelAustralia

  • Member
  • Posts: 178
Re: Over two years of freedom
« Reply #8 on: December 09, 2017, 05:52:21 pm »
It's great to read your post Eric. I'm coming up to two years now and I struggled for some time over the first twelve months post-treatment with some immune issues and recovery from the anaemia but I'm now feeling pretty damn good, and so happy and grateful that we have all had this opportunity. How's the fishing?
Hazel
Logged
Female age 53
Australia
Contracted in the 1980's
Genotype 1A
VL 314k

Started treatment with Veikira Pak and Ribaviron on Thursday 17th December 2015
NOT DETECTED, End of Treatment, 16th March 2016

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Over two years of freedom
« Reply #9 on: December 09, 2017, 07:00:27 pm »
Two years for me too. Had a slight hiccup with a scan (thought maybe it was cancer, MRI showed not), but apart from that, motoring onwards!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Over two years of freedom
« Reply #10 on: December 09, 2017, 08:07:12 pm »
Glad our Aussie contingent is doing well.
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: Over two years of freedom
« Reply #11 on: December 10, 2017, 03:07:10 am »
Quote from: HazelAustralia on December 09, 2017, 05:52:21 pm
It's great to read your post Eric. I'm coming up to two years now and I struggled for some time over the first twelve months post-treatment with some immune issues and recovery from the anaemia but I'm now feeling pretty damn good, and so happy and grateful that we have all had this opportunity. How's the fishing?
Hazel
The fish are just fine at the moment, and I am no threat to them this time of year. I am far too lazy to get out a chain saw and cut a hole in the ice big enough to get in a decent fly cast! :o
Logged
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!
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