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Author Topic: new here and started harvoni on christmas eve  (Read 9014 times)

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Offline edmed

  • Member
  • Posts: 10
new here and started harvoni on christmas eve
« on: December 25, 2014, 09:47:02 pm »
Hi all, I'm new to the forum but not new to hep C treatment.  diagnose in 1996 and had my first experience with meds.  Tried again in 2004 but failed,  2013 and failed treatment for the third time. I hope this time is a winner for me. I'm geno 1a and this type the worst to treat.  I was on triple therapy last year and it really did number on my body but I cant stop hoping to achieve SVR someday. Here we go, last year my VL was 7.9 mil and after meds it came down to just under 300. When the doctor took me off the protease and kept on riba & peg my numbers jumped to 214,000VL . Needless to say I was very disappointed but I knew their was light around the corner for me. Last month my VL jump to 2.1ml and made the decision to start Harvoni.  My first day it OK but today I got a headache. I hope that's about all the sideaffects that I get to experience for the next 12 weeks.

Offline HHburme

  • Member
  • Posts: 117
  • Harvoni start 12/13/14 12wks UD/24wk DET
Re: new here and started harvoni on christmas eve
« Reply #1 on: December 25, 2014, 09:58:01 pm »
Welcome edmed,  glad to hear you started the harvoni and are on your way to being cured. I'm on my 13th day, so far some headaches, hot/cold spells, and a metallic taste in my mouth. Very minor SE. Everybody has posted excellent results from this medicine and hoping this will be our miracle drug.

Fight the Good Fight
« Last Edit: December 26, 2014, 10:21:51 am by HHburme »
infected age 19, blood transfusion 1977, detected 2003  GT 1a, Harvoni relapse 06/15, Clinical Trial Study for SOF/VEL GS-9857 start 02/16. SVR12 Cured 08/16

Offline Doluska

  • Member
  • Posts: 86
Re: new here and started harvoni on christmas eve
« Reply #2 on: December 26, 2014, 09:24:16 am »
Hi! Good luck with the treatment! I am feeling so sad for the people who was on those previous torture treatment and relapsed after all! This one will be different! D

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: new here and started harvoni on christmas eve
« Reply #3 on: December 26, 2014, 11:08:28 am »
Hi Edmed,

Hope this magic Orange Pill brings you SVR, you have been through a few battles already, it's your turn to win! Try to remember to drink as much water as you can, it's not officially documented anywhere but it's really helped  most of us in treatment with our headaches.

Only other hint is to try and stay away from Tums, Rolaids, Prisolec (sob), the new medications like stomach acids. if you have to take one my doctor told me to space it as far out as possible so for me that would mean Harboni @ 9 am and some kind of antacid @ 9 PM; the acid reflux has been pretty bad for me but trying to just deal with it and only take a something every few days.

Eat healthy, lots of walks in the sunshine if you can find it, laugh as much as you can stand.

Take care and let is know how you are doing

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline edmed

  • Member
  • Posts: 10
Re: new here and started harvoni on christmas eve
« Reply #4 on: December 26, 2014, 03:10:58 pm »
Hi all, I go by the of Ed. Today is day three and this really feels like a walk in the park when you compare the hell I went thru already. I live sunny south Florida and I have big concern because that's one of hells I went thru before. I had terrable rashes from the sun and wore long sleeves all the time plus lots ointments. Not fun in summer time I must say.  six weeks ago my doctor said to me (you need to do something about your weight) so I cut out all bad thing from my diet and by the grace of gods I started feeling better and drop 15lb already.  The truth is I really need to lose about 50 to 60lb but I'm just trying to healthy and do the right thing. Thanks to all for the replies

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: new here and started harvoni on christmas eve
« Reply #5 on: December 28, 2014, 09:00:00 am »
Hi ED...my grandpa, dad, brother and nephews name.    So I'll for sure remember you! 

WOW!  3 treatments already!!  Love your determination to kick this disease out of your body.......... and good for you for dropping 15lb already...that's fantastic!

Are you by the ocean?   My parents have a place on the Intracoastal and I enjoy watching the manatees.   Can't see any sunsets when walking the ocean because they built the buildings too high (unreal) but i hope you can where you are.   They are so comforting and healing.

Hope you're still feeling like a walk in the park!



take care!

Jill


Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: new here and started harvoni on christmas eve
« Reply #6 on: December 28, 2014, 12:57:36 pm »
The Ocean is where I am going as soon as I am feeling up to it! I need some peaceful waves and nothing but the sound of the surf in my ears!

It makes me smile just thinking about it! A trip to a warm comfy place with a quiet beach is something to look forward to!

Have a happy day!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline edmed

  • Member
  • Posts: 10
Re: new here and started harvoni on christmas eve
« Reply #7 on: December 28, 2014, 02:22:30 pm »
Hi all, i agree the ocean is the place to be for peace and serenity. Just yesterday me and my son were watching a beautiful sunrise on the way to go fishing. luckily we have a wonderful dinner plan for today.

i was wondering what and how much to take for some of these headache I've been having during the day. I'm really hesitant to take anything that would make my liver work harder than it has to. Its going to be tough when i go back to work on Monday. I've living with this virus for over 30 years and I'm allway trying to protect my only liver.

PS; it still a walk in the park compared to pass treatments

 


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