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Author Topic: Timing  (Read 9590 times)

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Offline Sam1224

  • Member
  • Posts: 62
Timing
« on: May 18, 2015, 07:58:52 pm »
Went to get poked for my post EOT 4 week blood test today. On the way to the clinic who calls? Support-path. Said I've been Ok'd for the 8 weeks of extra treatment I had asked for. Could have knocked me over with a feather.

I was originally ok'd for 12 weeks of Harvoni. I then got the ok for an additional 4 weeks with the intent to go for the full 24 weeks. The insurance company balked after the 1st 4 wk extension. I submitted to support path but my pills ran out before I could get more from Gilead.
I told support path I would know in 2-3 days what my status was and asked that they hold on to my approval until I find out if I cleared or not. They said they would wait to hear from me.
This whole thing seemed like an episode of the twilight zone. I was super stressed trying to get the final 8 wks then just resigned myself to the DAA gods when I ran out. At least we'll have a 16 wk tx data point to add to the list.

If I'm not clear in a few days I am going to immediately start treatment again.
 
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Offline sapphire101

  • Member
  • Posts: 238
  • "Stop worrying and start living"
Re: Timing
« Reply #1 on: May 21, 2015, 11:33:30 pm »
Sam this is actually good news in a back wards kind of way! You have your plan "B" all set to go.
Huge Win if you are still undetected and not so horrible if you are not and can immediately get back into treatment.

Will this backup plan hold in place through your future lab draws too?
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Sapphire101
Genotype 1a Fibrosis level 1
Viekira Pak with ribavirin 12 weeks
Pre treatment  VL  1.7 million, AST 45 ALT 65
EOT VL not detected, AST 21 ALT 21
12 week SVR not detected,24 week SVR not detected.
Cured! Class of 2015

Offline Sam1224

  • Member
  • Posts: 62
Re: Timing
« Reply #2 on: May 22, 2015, 12:51:47 am »
Got the results for my 4 week post eot. Undetected. All liver panel results within range. If things change by 12 week SVR, I will be on the phone to support path post haste. This may be the first all normal liver panel I've had in 40 years..
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Timing
« Reply #3 on: May 22, 2015, 05:18:02 am »
Congrats Sam

From what I have read there is a 98.5% likelyhood if you make SVR 4 you will stay SVR for SVR 12 it is 99.8% so your odds with SVR 4 are very good that you have made it!
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Sam1224

  • Member
  • Posts: 62
Re: Timing
« Reply #4 on: May 22, 2015, 08:42:36 am »
Thanks. Are you going for the 4 wk test or just waiting for the big 12?
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Timing
« Reply #5 on: May 22, 2015, 11:36:36 am »
The 4 week test. That would be June 1st.

I relapsed last year after 12 weeks of Sov/Oly treatment at week 12 post. (Viral load at relapse was 2.4 million).

So with that in mind I think that would be very informative for me based on my history.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!
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