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Author Topic: Post viekira pak...feeling crappy  (Read 11460 times)

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Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Post viekira pak...feeling crappy
« on: September 30, 2015, 07:17:44 am »
Good news = no longer having the riba hyper rush and no longer panting and running out of breath.

bad news - feel like crap.  2 nights of restless on and off sleep... maybe 3 hours total sleep each night.

Any other post tx viekirians having these problems?

Is it withdrawal symptoms?

thanks,
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Post viekira pak...feeling crappy
« Reply #1 on: September 30, 2015, 07:25:26 am »
Quote from: drummerman on September 30, 2015, 07:17:44 am
Good news = no longer having the riba hyper rush and no longer panting and running out of breath.

bad news - feel like crap.  2 nights of restless on and off sleep... maybe 3 hours total sleep each night.

Any other post tx viekirians having these problems? Is it withdrawal symptoms?

thanks,
dm

Hi DM. Sorry to hear you are feeling like crap post-tx. I think that has happened to many of us - both V-Pak and Harvoni alike. Various theories about what is going on. I have heard some mention the withdrawal idea.

I am amazed (and happy for you!) that you are no longer panting and running out of breath just 2 days post-tx. Wish I were so lucky. I am just finally getting to that stage 9 weeks post-tx. I take it that the ribavirin did not cause a big drop in your red blood cells and hemoglobin? Some people do much better than others on that score.

this too shall pass! it's all temporary. what's lasting is the eradication of the virus.

kim :)
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Philadelphia

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  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Post viekira pak...feeling crappy
« Reply #2 on: September 30, 2015, 07:46:37 am »
No, sorry. I just seemed to segue from treatment to non treatment fairly incident free.  Give yourself time. Riba takes a long time to leave your system.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Post viekira pak...feeling crappy
« Reply #3 on: September 30, 2015, 08:22:06 am »
Quote from: KimInTheForest on September 30, 2015, 07:25:26 am
Hi DM. Sorry to hear you are feeling like crap post-tx. I think that has happened to many of us - both V-Pak and Harvoni alike. Various theories about what is going on. I have heard some mention the withdrawal idea.

I am amazed (and happy for you!) that you are no longer panting and running out of breath just 2 days post-tx. Wish I were so lucky. I am just finally getting to that stage 9 weeks post-tx. I take it that the ribavirin did not cause a big drop in your red blood cells and hemoglobin? Some people do much better than others on that score.

this too shall pass! it's all temporary. what's lasting is the eradication of the virus.

kim :)

Thanks Kim,

your are correct, my hemoglobin dropped very little (which makes no sense when you consider I was constantly winded).

Anyway, just getting a little panicky , even though it took me about 4 months to get over interferon.  I guess I thought I would just wake up the next day and feel fine.  Shoulda known better.

I think I feel a little better today (even though only 3 hrs. sleep last night) and I have been off caffeine since the start of tx.   Weird. 

Maybe I'm just freaking out and need to just chill.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Post viekira pak...feeling crappy
« Reply #4 on: September 30, 2015, 08:23:01 am »
Quote from: Philadelphia on September 30, 2015, 07:46:37 am
No, sorry. I just seemed to segue from treatment to non treatment fairly incident free.  Give yourself time. Riba takes a long time to leave your system.

Thanks Philly,

damn Riba.

dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Post viekira pak...feeling crappy
« Reply #5 on: September 30, 2015, 08:26:50 am »
yeah, you have to remember when you look at me not getting much in the way of post tx sx - I was down to 400mg of riba a day. One tablet in the morning, one at night. That was all. 
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline drummerman

  • Member
  • Posts: 538
  • For those regarded as warriors....
Re: Post viekira pak...feeling crappy
« Reply #6 on: September 30, 2015, 08:45:14 am »
Quote from: Philadelphia on September 30, 2015, 08:26:50 am
yeah, you have to remember when you look at me not getting much in the way of post tx sx - I was down to 400mg of riba a day. One tablet in the morning, one at night. That was all.

good point.
dm
Logged
Diagnosed07
Interferon/riba 2008 - non-responder
5/16/15 - AST -34
ALT - 35_ HCV RNA - 10,783,000
 7/6/15 - started viekira/riba
8/11/15  Week 5 <15 vl,  AST 18, ALT 18
9/11/15 Week 9  "HCV NOT DETECTED"!
AST 16, ALT 11.  10/16/16 - 2 weeks post EOT = "HCV NOT DETECTED!   AST - 18,  ALT 14
12/29/15 -12 wk EOT-HCV NOT DETECTED! AST 23, ALT 15
3/26/16 - 24 wk post EOT - HCV NOT DETECTED!! AST 19, ALT 21
1 yr eot - AST 20, ALT 17

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Post viekira pak...feeling crappy
« Reply #7 on: September 30, 2015, 11:20:47 am »
Quote from: drummerman on September 30, 2015, 08:22:06 am

Maybe I'm just freaking out and need to just chill.

dm

I think the body has been through a HUGE event with the eradication of the virus AND the bombardment with some very intense chemicals over such a short period of time. I am surprised there aren't more people experiencing some post-tx aftermath as the body adjusts to civilian life and post-HCV life. One of the primary theories here on the forums is that the treatment leaves some of us with a temporarily hyperstimulated immune system. Perhaps that is an intentional part of the treatment, to get our immune system involved in some of the clean-up.  But then the job ends, virus is gone, drugs stop pouring in. Nothing left but our jacked-up immune system and our own tissues, cells and organs… It's a possibility.

And of course, feeling crappy post-treatment can just be some opportunistic infection taking advantage of what we've been through.

It is frustrating though. I still have not had a chance to catch a glimpse of my new life & self post-HCV because I have been too busy recovering from this post-tx malaise. I had very much hoped to experience the astounding energy and mental clarity I had after just one week of treatment when most of the virus had been eradicated but the ribavirin had not yet laid me low. I think that week or two was my only glimpse so far of what my post-HCV life will be like. But It was beautiful! :) I am finally pulling out of my post-tx malaise after 9 weeks. Here's hoping yours just lasts a few days. Everyone's different.

best,
kim

« Last Edit: September 30, 2015, 11:22:47 am by KimInTheForest »
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/
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