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Author Topic: Last Bottle!  (Read 12737 times)

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Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Last Bottle!
« on: November 04, 2015, 07:52:44 pm »
A new avatar in celebration of receiving my LAST bottle of Harvoni!!!   ;D ;D ;D  No more worrying about why the paperwork I was given at my last doctor's (nurse) appointment read "Duration: 8 weeks" instead of 12 weeks. 

"Oh don't worry.  You can ignore that."   ::)  Silly me, I worried anyway.  A lot.  I'm funny that way about my medical records.

So long surly Eminen and hello Carol.  Cookies for everyone!  Lots and lots of cookies!

Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Last Bottle!
« Reply #1 on: November 04, 2015, 08:05:35 pm »
Good luck, not that you'll need it!
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Last Bottle!
« Reply #2 on: November 04, 2015, 08:29:33 pm »
Else, congrats on being done getting Harvoni deliveries. Now you can begin worrying about what artistic masterpiece you want to create once you have three empty bottles. (Someone on these forums made a mobile out of hers. What have I done with mine? Nothing. Zilch. Nada.)
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline BillT

  • Member
  • Posts: 573
Re: Last Bottle!
« Reply #3 on: November 04, 2015, 08:34:21 pm »
Somebody que the conga line music please.Well done Else,well done.I'm glad for you.Cheers
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Last Bottle!
« Reply #4 on: November 04, 2015, 08:48:06 pm »
Thanks all!

Gnatty, I don't have an artistic bone in my body.  I've always been more the tom-boy athletic type so enjoyed tossing empty bottle #1 in the trash bin from across the room.

"She shoots, she scores!!!  woooo-hooo!"  The second bottle might be a slam dunk.  I like to mix things up.  :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: Last Bottle!
« Reply #5 on: November 04, 2015, 09:44:29 pm »
Else...Congrats on heading into the home stretch.  I just got a call today from my specialty pharmacy to make arrangements for delivery of my last bottle next Tuesday!  For some reason I feel a need to save the empty bottles...not sure why.
Mary
Logged
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Last Bottle!
« Reply #6 on: November 04, 2015, 10:14:34 pm »
Mary

I saved my bottles too.  I think it is common to do so.  Saying goodbye to the little boogers is tough for the last week.  I did not want to stop.  Enjoy that final month.   :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Last Bottle!
« Reply #7 on: November 04, 2015, 10:15:54 pm »
Mary

I saved my bottles too.  I think it is common to do so.  Saying goodbye to the little boogers is tough for the last week.  I did not want to stop.  Enjoy that final month.   :)
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Last Bottle!
« Reply #8 on: November 04, 2015, 10:21:23 pm »
Congrats Else wow amazing after your hard fight to get th emeds you are now almost done yay!

Congrats on fighting the good fight and double congrats on almost being done with treatment

All the best to you
Lynn
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Last Bottle!
« Reply #9 on: November 04, 2015, 11:05:24 pm »
 I smell COOKIES!!!!!!! Damn, there goes the food reference again. Much more personality appropriate avatar Else. Get Your cookies on girl!! Don't know about artistical bones and such, but My three emties are still sitting in the cabinet where I see them everytime I take My vitamin , take a advil , get the coffee or tea down----- Can't tell You why!!!! Just because I can , that is why. I get a warm fuzzy everytime I look at those three empties. Sometimes I have to shake one just to make sure they are empty. First thing that pops is the bold letter word HARVONI!!!
  Hang in there Else, eyes on the prize :) It's within Your grasp ;D ;) Oh Yea , I just got ta know----- What is Your favorite cookie???????
   Congratulations , Love to hear the good news.

 WELCOME TO THE KARMA CAFE! THERE ARE NO MENUS, YOU WILL BE SERVED WHAT YOU DESERVE!!!!!!! 8) 8) 8) 8) 8)
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Cindy1955

  • Member
  • Posts: 30
Re: Last Bottle!
« Reply #10 on: November 05, 2015, 09:52:41 am »
I too saved my first empty bottle, not sure why but glad I was not the only one.  No clue what I will do with them though.
Waiting for my first delivery was brutal.  Waiting and waiting for UPS only to see him pass by and not drop anything off.  Had it delivered to the office so I would be sure and be here but when I had to leave and he had not yet arrived, made my hubby wait.  He found the UPS guy (substitute driver) ready to drop the package off with someone else in another office >:(....Next delivery will be the week before Thanksgiving.  Much anxiety with delivery, will be happy to see that final bottle arrive.  It is about a 6 hour drive to the pharmacy from my home, part of me thinks it would be less stressful if I just drove up and picked it up.

Cindy
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Last Bottle!
« Reply #11 on: November 05, 2015, 10:06:50 am »
Cindy, the sense of relief you'll feel when the final bottle arrives! In my neighborhood, sometimes thieves walk a discreet distance behind the delivery truck, then steal the packages. I'm retired, hence no office, and our pharmacies aren't all that great. So, I requested Signature Required but worried that I'd fall asleep and not hear the doorbell. Whenever I really, really, REALLY need a nap on delivery day, the truck doesn't show up until the evening -- sigh! Makes me dread ordering things, which is good for our household's bottom line  ;D
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Last Bottle!
« Reply #12 on: November 05, 2015, 10:23:52 am »
Yeah, waitin' on the delivery truck.  Endless loops of the Jeopardy music played in my head.   :o  You're right Gnatty - that final bottle is a rush!  8)

Tommy - my favorite cookies are made by my brother-in-law and it's lucky I don't have the recipe.  I'd be in trouble.  It's a chocolate chip cookie with dark chocolate chips, white chocolate chips, smashed up Heath bars and chopped pecans.  And just enough cookie dough to hold it all together.  Oh man!!!  :D :P :o  You really can't eat more than one, but I manage to anyway.  :)

Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Last Bottle!
« Reply #13 on: November 05, 2015, 10:29:34 am »
Quote from: Lynn K on November 04, 2015, 10:21:23 pm
Congrats Else wow amazing after your hard fight to get th emeds you are now almost done yay!

Congrats on fighting the good fight and double congrats on almost being done with treatment

All the best to you
Lynn

Now THAT'S what I call an avatar!!!   ;D  May you "top the wind-swept heights with easy grace."

You're a special person, Lynn.  And what a year it's been! 
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Cindy1955

  • Member
  • Posts: 30
Re: Last Bottle!
« Reply #14 on: November 05, 2015, 10:43:24 am »
I have a unrealistic fear of losing the pills or them being stolen. Past of my mind knows it is crazy, the other part...not so much...  I set the house alarm every day. If someone were to break in while we were gone, they would probably steal them thinking they were worth something to someone besides ME!!  I put them in a less obvious place too. 
Even I think I am crazier than normal.  I have not told anyone though :o

Half way point...6 more weeks to go 8)  Still waiting on my first 4 week blood test. 

Else, I also have no artistic ability.  Maybe someone can make a youtube video on how to decorate the bottles.

Cindy
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline BillT

  • Member
  • Posts: 573
Re: Last Bottle!
« Reply #15 on: November 05, 2015, 10:54:14 am »
It's not just you Cindy.My meds come in small boxes with 3 pills for the morning and one for at night.I pop them out one by one,and take them one by one.Then I check the box 3 times before I throw it away,and 5 minutes later I start thinking about if I got them all. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cindy1955

  • Member
  • Posts: 30
Re: Last Bottle!
« Reply #16 on: November 05, 2015, 11:24:44 am »
Always nice to know there are others in Crazyville with me :o :o :o :o
Think we can blame it on the disease?
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Last Bottle!
« Reply #17 on: November 05, 2015, 11:31:17 am »
Cindy,

I have to chuckle...I had so many 'little' annoying fears while on harvoni.  I must have counted the pills in the bottle 6 times while counting the days backwards.  When I "kinda forgot" if indeed took my pill, I thought...'If I did and I take another, it is considered an overdose, if did not take it and go a whole 24 hrs the virus might build immunity to the drug'  :).  Oooooh Nooooo!

I always questioned the theft aspect because of the cost of the drugs and because I have little faith in the mail system being safe.  I even thought about getting counterfeits...haha.  Seriously, for the money that could be made on the open market...the cost of creating a mold and switching the pills out ain't nothing...pretty paranoid stuff I know...only half serious here  ;)

More serious though, I travel a lot and was so concerned with losing them, theft from hotel rooms (locked them up) TSA confiscating them...dropping one down the drain. I also hid spares in luggage nooks and crannies...when I got to the end of tx I was taking the hidden ones.

Alright I confessed...someone else now. 

Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline BillT

  • Member
  • Posts: 573
Re: Last Bottle!
« Reply #18 on: November 05, 2015, 12:00:05 pm »
I'm really beginning to believe there's a best selling book somewhere in all these posts.LOL
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Cindy1955

  • Member
  • Posts: 30
Re: Last Bottle!
« Reply #19 on: November 05, 2015, 12:03:40 pm »
Maybe a horror movie.  Where is Alfred Hitchcock when you need him?
Logged
F/60
Diagnosed 1992 with non A-non B
Genotype 1A
Asymptomatic
Probably contracted blood transfusion 1972
Fibrosis score .54
Fibrosis Stage F2
Treatment naive
Harvoni started 9/28/2015
Begin: AST 55 ALT 66 VL 6,037,770
4 Week Lab: AST 26 ALT 28 VL-UND
8 Week Lab: AST 17 ALT 18 VL-UND

Offline BillT

  • Member
  • Posts: 573
Re: Last Bottle!
« Reply #20 on: November 05, 2015, 12:06:13 pm »
Well we've got something here that's for sure. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Last Bottle!
« Reply #21 on: November 05, 2015, 12:10:09 pm »
Heck yeah, I hide them!!!  One bottle is worth more than all my worldly goods combined.  And if you believe the bogus retail list price per pill, two of those little guys are worth more than my car.  Where do I hide them?   :-X   ;D

Beto!  Haha - I just got done counting.

Okay, I'm saving my last bottle as a Christmas tree ornament.  That's as artsy as I get.  I'll drill a hole in the lid and put a hook on it.  Ta-da!   :)
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Last Bottle!
« Reply #22 on: November 05, 2015, 12:19:45 pm »
we could all get together and do a harvoni bottle pyramid stack for a guinness world record...set the bar for the future EOT'ers
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Last Bottle!
« Reply #23 on: November 05, 2015, 12:29:45 pm »
Just in time for Christmas - Antiviral Jenga!!!

Brought to you by... wait for it... The Milk'em Badly Company!!!   ;D
« Last Edit: November 05, 2015, 01:29:32 pm by Else »
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Else

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Re: Last Bottle!
« Reply #24 on: November 05, 2015, 01:28:40 pm »
.
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline gnatcatcher

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Re: Last Bottle!
« Reply #25 on: November 05, 2015, 03:35:54 pm »
Quote from: Else on November 05, 2015, 12:10:09 pm
. . .  if you believe the bogus retail list price per pill, two of those little guys are worth more than my car. . . .

Good one, Else! I just read that line to Spouse, who replied, "ONE of those pills is worth more than YOUR car."
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline JAF

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Re: Last Bottle!
« Reply #26 on: November 05, 2015, 03:53:44 pm »
Else congratulations. You'll be all finished by the holidays!!  Good for you.  I'm supposed to get the last 2 month supply delivered tomorrow and i will rest easier with them in my possession.

Cindy and Beto - you are not alone!  I've done the pill counting to make sure I didn't miss a dose. With 6 ribas a day that's not easy. (thank you brain fog!)
Logged
Female; 56; New York
Infected: mid 70's
Diagnosed: 2000
Treatment naive
Began Sovaldi + riba (1200 mgs) on 10/15/15
GT 2b
PRE-TREATMENT:
VL: 2,412,570
AST: 50
ALT:  52
Fibrospect index: 42

4 wk labs done 11-14. Waiting for results

Offline Cal

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  • Cal on Viekira Pak
Re: Last Bottle!
« Reply #27 on: November 05, 2015, 05:41:02 pm »
Hi all,
What a gorgeous girl you are Else :) much prettier than Eminem. Remember when I thought that was you?
Lynn I love your new pic too, you look like a strong self assured woman, with a hint of mischief 8)

Congrats on getting to the last bottle. I have another week to go then I'm off Ribas (that's 12 weeks) and the I restart that extra month of Viekira. I probably won't be able to tell if it's much difference because as we know RIBA takes so long to leave the body. Never-mind! It's nearly over. Then off to the other side (play scary music).

I was given my 3 months worth of Viekira all at once so I've never had to worry. I However in the first month of tx I used to dream every night that I forgot to take them, I took the wrong ones, too late, I lost them etc. etc. I would wake up so distressed I'd have to get up and check. It's so scary and brave what we've done, don't ever forget that. We need to credit ourselves and pat ourselves on the back. Or in the virtual conga line Bill we could pat each other on the back!

What a journey it's been so far. Bit more to go yet though so I won't count my chickens just yet. I keep peeking at them though.  :P cal



Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Lynn K

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Re: Last Bottle!
« Reply #28 on: November 05, 2015, 09:29:54 pm »
Hi Cal
That is my hero Amelia Earhart but thanks!

Else
"Brought to you by... wait for it... The Milk'em Badly Company!!!  " Lol too funny!

I was able to contact the delivery companies setting up an account on the UPS and Fed ex sites to control delivery to a local store so that way I knew the little $30,000 bottles were safe in the store and not on my porch.

They would call when they received them and I would go there to pick up. I got tired of sleeping on the carpet by the front door so I wouldn't miss the delivery or worse having to go into work on second shift before they were delivered or be late to work in order to receive my meds.

I have my Alpha and Omega bottles 2 of the 6  I like the tree ornament idea hey I have an idea we could string them like popcorn for garland!

Never interrupt someone doing what you said couldn't be done.

Lynn
« Last Edit: November 05, 2015, 09:34:13 pm by Lynn K »
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Cal

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  • Posts: 957
  • Cal on Viekira Pak
Re: Last Bottle!
« Reply #29 on: November 05, 2015, 10:19:58 pm »
Sorry,
Lynn. Doh! Cal :-[
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline beto

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Re: Last Bottle!
« Reply #30 on: November 05, 2015, 10:33:40 pm »
If we go to Bree's house in Hawaii, we could make lais with em'
Logged
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline KimInTheForest

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Re: Last Bottle!
« Reply #31 on: November 05, 2015, 10:51:03 pm »
Quote from: Lynn K on November 05, 2015, 09:29:54 pm
Hi Cal
That is my hero Amelia Earhart but thanks!
Lynn

I think there is considerable resemblance, Lynn. And you are both flying high in life. :)

kim
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Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lynn K

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Re: Last Bottle!
« Reply #32 on: November 05, 2015, 10:53:58 pm »
"Lynn I love your new pic too, you look like a strong self assured woman, with a hint of mischief 8) "

No worries Cal
That was exactly why I chose that pic of her :)

Thanks Kim

I was also kinda thinking that one does bear a slight resemblance to me so second reason
« Last Edit: November 05, 2015, 10:56:06 pm by Lynn K »
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!
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