User

Welcome, Guest. Please login or register.
November 28, 2024, 05:36:40 pm

Login with username, password and session length


Search

Forums Index

Stats

Members
Stats
  • Total Posts: 55133
  • Total Topics: 4851
  • Online Today: 274
  • Online Ever: 3061
  • (September 25, 2024, 11:40:40 pm)
Users Online
Users: 0
Guests: 236
Total: 236

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.
« previous next »
Pages: [1]   Go Down

Author Topic: Starting Harvoni-day or night?  (Read 17561 times)

0 Members and 1 Guest are viewing this topic.

Offline coastal girl

  • Member
  • Posts: 36
Starting Harvoni-day or night?
« on: September 02, 2015, 12:13:35 pm »
Hello everyone,  I've been viewing your posts for a few months now to get a feel for what the real side effects may be.  I am confident I can do this with a positive attitude thanks to all of you!!!  I am starting treatment today.  I'm hesitant to take my first pill!  The Doc says I need to pick a time and stick to it..the pharmacist says I can change times but do it slowly over a few days in 3 hour intervals.                     My other concern is...If I have an appointment and have to leave the house a couple hours before dosing do I really have to take the whole bottle with me, I'm a rule follower, makes me nervous to carry around a ridiculously expensive and life saving  bottle of pills with me.
So the question is..day or night to start..(probably up to me, right) and can I just take with me the dose for the day or 2 in a secure air tight container.  Gosh that sounds like a ridiculous question but with serious meds like this I want to make no mistakes!!!!  Thanks for your input :)
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting Harvoni-day or night?
« Reply #1 on: September 02, 2015, 12:19:46 pm »
Hi Coastal Girl. Welcome to the forums and to the Harvoni journey! You are on your way to being cured. :)

I have seen split opinion here on the day/night question with Harvoni. Some of us (me for example) found Harvoni to be very energizing. It would have kept me awake at night, whereas I benefitted from the 6 hour boost it gave me each day after I took it each morning at 9:00 am. Other people found the reverse - that it made them tired and lethargic. So it was useful for them to take it at night.

As for being away from home at pill-taking time, I would definitely take 1 or 2 pills with you in an airtight/watertight pill container. Don't take the whole bottle with you if you just need access to 1 or 2 pills. Who wants to worry about losing or damaging a $30,000 pill bottle?

Good luck! I hope it goes smoothly for you. And keep us posted on your progress. :)

best,
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Lou66

  • Member
  • Posts: 18
Re: Starting Harvoni-day or night?
« Reply #2 on: September 02, 2015, 01:50:12 pm »
For my personal experience is better in the morning, if you have a little problem with Morfeo, because before one week, when i had bad side effects, the body accustom to new guest, and i have boost of energy in the morning.
I take my pill at 6 am.
Logged
Hcv since 1986
2003 peg inf.+ riba nullrespond.
Genotype 1a
Fibroscan 18,1  F4
Viral load 3800000
Start Harvoni 24 weeks 24 aug. 2015

Offline Michael0543

  • Member
  • Posts: 5
Re: Starting Harvoni-day or night?
« Reply #3 on: September 02, 2015, 11:29:17 pm »
I take it everyday at 7:00 A.M. on an empty stomach with a lot of water to get it out of the way before my day starts. It has worked out great so far with no side effects. I take day 10 of 84 in the morning.
Logged
Contracted Dec 2014
Diagnosed June 2015
VL 650,000. GT 1a
Treatment naive
Started Harvoni 8/25/15 for 12 weeks
9/22/15 HCV Not Detected; ALT 13; AST 24
11/16/15 Finished Harvoni
2/10/16 HCV Not Detected: ALT 13; AST 25

Offline coastal girl

  • Member
  • Posts: 36
Re: Starting Harvoni-day or night?
« Reply #4 on: September 03, 2015, 05:59:18 pm »
I took my first pill today!  Boy am I happy I decided to take it in the morning, I feel like I took some speed of some sort.  Hope that calms down just a wee bit, I am a high energy person already...My poor husband :)  I am so grateful for this treatment and have very positive thoughts flowing thru my mind with a few aggressive ones telling the Harvoni to go ahead and kick that viruses a......:)  1 down 83 to go!!!!
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,546
  • Get tested, get treated, get cured, fight Hep c!
Re: Starting Harvoni-day or night?
« Reply #5 on: September 03, 2015, 06:10:31 pm »
When I started on bottle #2 I saved bottle #1 for transport so I would not have to carry around $30,000.00 plus of meds but still carry in original container. Just a thought.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline sugarfree

  • Member
  • Posts: 13
Re: Starting Harvoni-day or night?
« Reply #6 on: September 09, 2015, 08:23:27 pm »
  I was told  to pick my time and stick with it.  I  set an alarm for 9 am.  I took it faithfully.  I am now non detectable!!  I have no idea if that is why but it worked.  Good luck and hope all goes well
Logged

Offline annajustanna

  • Member
  • Posts: 17
  • I cannot direct the wind but I can adjust my sails
Re: Starting Harvoni-day or night?
« Reply #7 on: September 09, 2015, 08:58:55 pm »
I started at around 5 PM but brought this down to 900 am in 4 days at about 2 hr increments. I much prefer it in AM. I took it early today though because I saw MD and it is a 2 hr ride.
Logged
75" Diagnosed non A/B
96" Treated Interferon/Ribaviron
responder with relapse after stopping treatment AMA
8/11/15 Harvoni 12 weeks
8/01/15 VL at start 9110000 
treatment ended 11/3/15
11/5/15    UNDETECTED!!!!! YEA!!!!
12 weeks post treatment
1/27/16 - UNDETECTED!!

Offline lin44

  • Member
  • Posts: 15
Re: Starting Harvoni-day or night?
« Reply #8 on: September 09, 2015, 10:43:09 pm »
I just started on the 8th and decided in the morning. 
Logged

Offline coastal girl

  • Member
  • Posts: 36
Re: Starting Harvoni-day or night?
« Reply #9 on: September 15, 2015, 12:56:28 am »
I picked the morning to take my pill,  I'm happy I did because I have been side effect free except for increased energy...very speedy about 2 hours after dosing and then energetic all day.  No loss of appetite or headaches, nausea...I feel blessed !!  I do realize this could change any day but I am keeping positive thoughts and I don't let any small aches and pains get to me...I'm 55 and I work with heavy weight in my business so I'm used to aches and pains at a moderate level.
Before starting tx I had a problem with my eyes which ended up being caused from a blocked carotid artery for which I had to have surgery.  I was so glad that it happened before Tx because I so would have blamed it on my choice to try Harvoni!!!  I have resisted Tx for years because of the sides that came with it.  I changed my diet and supplemented which kept me feeling pretty good for years..I still supplement even during Tx, I want to keep my body strong!! 
For those of you who are suffering through this I feel for you and hope the sides fade away...I feel a little guilty for posting that I do not have bad sides but I think it is important for all the people who are considering treatment to know that not all suffer and go ahead and jump on the train...wishing everybody SVR!!!
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline annajustanna

  • Member
  • Posts: 17
  • I cannot direct the wind but I can adjust my sails
Re: Starting Harvoni-day or night?
« Reply #10 on: September 15, 2015, 08:29:40 am »
thanks coastal girl!! I too have been relatively side free with exception of headaches. This is very tolerable. I am 55 too and also have the aches and pains from my work and life at this age. I too feel blessed that it was also relatively easy to get approved. I just really want to achieve SVR and stay there because my only fear is resistance if I don't. I was only approved for 12 weeks and MD is saying maybe thinking about extending it. I am afraid if I cant because insurance wont pay then I will have to stop and possibly achieve SVR only to relapse in month. This is what happened last time. I achieved SVR and stopped to soon - at 5 month of treatment with interferon and riba - uuuggghh
now fear is resistance to this new antivirals that stop the replication process
Logged
75" Diagnosed non A/B
96" Treated Interferon/Ribaviron
responder with relapse after stopping treatment AMA
8/11/15 Harvoni 12 weeks
8/01/15 VL at start 9110000 
treatment ended 11/3/15
11/5/15    UNDETECTED!!!!! YEA!!!!
12 weeks post treatment
1/27/16 - UNDETECTED!!

Offline Hep Forum Moderators

  • Administrator
  • Member
  • Posts: 33
Re: Starting Harvoni-day or night?
« Reply #11 on: November 24, 2015, 11:13:03 am »
Robert Gish, MD of the medical consulting firm Robert G. Gish Consultants LLC replied via Twitter....

Logged
Pages: [1]   Go Up
« previous next »
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.