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Author Topic: Starting my Harvoni tomorrow  (Read 26086 times)

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Offline ihavehope

  • Member
  • Posts: 10
Starting my Harvoni tomorrow
« on: September 19, 2015, 01:50:29 am »
Hope all goes well  :)
Logged

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #1 on: September 19, 2015, 03:20:42 am »
Welcome ihavehope.  I think it will go very well for you.  Harvoni is awesome. There were a few minor bumps in the beginning (looking back, very minor relative to the results I'm getting) and I'm almost done.  For the most part... pretty smooth.

Anyway, welcome and good luck on your journey!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline gnatcatcher

  • Member
  • Posts: 1,372
Re: Starting my Harvoni tomorrow
« Reply #2 on: September 19, 2015, 03:26:46 am »
Welcome, ihavehope. You're about to begin taking an amazing medicine!

I'm in my 11th week of Harvoni, and it has been going extremely well. I've had very few, very mild side effects, and already by 4 weeks' test, my viral load had dropped from the millions to undetected, and my very elevated ALT and AST had dropped all the way back into the normal range.

You've picked a great username. Any time any of us types "ihavehope," we get to send you more hope.

Gnatty
Logged
9/29/71 transfusions
HCV genotype 1a
7/09/15-9/30/15 Harvoni

Before treatment:
Viral Load 9,490,582
FibroScan 19.5 kPa [F4]
ALT 262
AST 217
ALP 183

Most recent:
VL still UNDETECTED (SVR 102)
FibroScan 7.6 kPa [F1-2]
ALT 15
AST 20
ALP 85

Offline byebyeC

  • Member
  • Posts: 286
Re: Starting my Harvoni tomorrow
« Reply #3 on: September 19, 2015, 05:02:08 am »
Welcome and congratulations Ihavehope!

This is a great resource and community. Time to kill this wee beastie! 8)
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #4 on: September 19, 2015, 08:50:59 am »
Thank You all who have replied. Just took my first pill at 7:00am (here we go).
Logged

Offline byebyeC

  • Member
  • Posts: 286
Re: Starting my Harvoni tomorrow
« Reply #5 on: September 19, 2015, 09:08:23 am »
YUSSSSSSSS! ;D
Logged
GT 1a
VL BOT 7 M
Diagnosed 1980
Treatment naive
12 wk Viekira Pak Riba Started 9/7/15
Alaska 
Pre-treatment labs were ast 42 alt 33 vl 7,162,(eyes are light yellow now)
*Latest alt 19 ast 23! Yay! VL <15 detected

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Starting my Harvoni tomorrow
« Reply #6 on: September 19, 2015, 09:11:11 am »
Ever onwards, Ihavehope! The results coming through are excellent and this is a great time to be starting treatment. You might get some side effects but they are worth it for the feeling you get when you hear "undetected".

All the best :)
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #7 on: September 19, 2015, 09:55:28 am »
I'm ready. 24 weeks, let's do it!
Logged

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Starting my Harvoni tomorrow
« Reply #8 on: September 19, 2015, 09:57:59 am »
I did 24 weeks of VPak + Riba. 24 weeks is doable and has great odds. You're in the box seat.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Starting my Harvoni tomorrow
« Reply #9 on: September 19, 2015, 10:28:06 am »
Hello Ihavehope,,,you will do fine. Are you on harvoni?  I have found these forums very useful, and full of information the medical world doesn't really tell you, like how many people actually feel like they are on speed, from the boost of energy, or some weird side effects. I am on harvoni, and the first couple of days I had slight headache, but being that I have never been a big water drinker I think that was what did it. I forced myself to drink water and haven't experienced any real side effects since. Unless you want to count an abundance of energy. Started at 13.9 million viral load to undetected!! Welcome to the cure train!

Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #10 on: September 19, 2015, 10:57:29 am »
That post sounds like me. I too am not a big water drinker, going out to get those 8oz small water bottles. 24 weeks of Harvoni, those pills are expensive, thank god for insurance. Took my first pill today.
Logged

Offline Sheltonmj

  • Member
  • Posts: 36
  • New at this
Re: Starting my Harvoni tomorrow
« Reply #11 on: September 19, 2015, 11:13:15 am »
You will do fine.
 It's no worse than the worse antibiotic you may have ever taken.
 Nothing on a scale of suffering.
 But make sure to keep a calendar of how many pills you have taken and keep it up.
A pill dispenser. And a app for meds.
You will be fine.
Logged
Been infected since early 80s
60
W male
Genotype 1a
 F4 cirosis
 Vl 4,000,000

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #12 on: September 19, 2015, 01:32:30 pm »
Welcome to the forums, ihavehope, and to the Harvoni journey! You will do great. And you are, in all likelihood, on your way to being cured! Do what you can to stay well hydrated. It will help with any side effects. You may not have any significant sides with Harvoni.

I was on Harvoni plus ribavirin for 12 weeks, and as far as I could tell, all of my bothersome side effects were caused by the ribavirin. The only side effect I had from the Harvoni was a boost in energy and mood - which was very welcome! :)

I bought a blank journal, mainly for keeping track of when I took my pills each day. I literally had to write it down or 10 minutes later I would be asking myself "Did I take my pills? Or did I just think about taking my pills?" You don't wan't to go through that for the next 24 weeks. So work out a system for recording your pill taking the moment you take them, and stick to it.

Good luck! :)
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #13 on: September 19, 2015, 02:01:06 pm »
That sounds like a good Idea, I will write it down.
Logged

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #14 on: September 25, 2015, 10:37:09 pm »
7 days of taking the harvoni. I hope it's working, I don't feel any side effects.
Logged

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #15 on: September 25, 2015, 10:46:23 pm »
Quote from: ihavehope on September 25, 2015, 10:37:09 pm
7 days of taking the harvoni. I hope it's working, I don't feel any side effects.

Oh, it's working! In fact Harvoni has probably eradicated most of the Hep C by now. On Day 1 my viral load was 4 million. On Day 8 it was 130. That's how fast it works! Great that you aren't experiencing any side effects. You got this! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #16 on: September 25, 2015, 10:52:59 pm »
Thank you for the-uplifting post. :)
Logged

Offline coastal girl

  • Member
  • Posts: 36
Re: Starting my Harvoni tomorrow
« Reply #17 on: September 27, 2015, 01:00:32 am »
Hi Kim,
I can totally relate to your system of keeping track of your pill intake.  I know that if I didn't write it down I would be checking the bottle all day making sure the count was right on, doubting that I took the pill, worried that I just thought about it.  So glad someone else is doing the same...I'm Not Obsessive Compulsive...YAY!!! When I am away from home as soon as I take the pill I text my husband and have him write it on my calendar.  I so don't want those little buggers mutating.
Logged
8/6/15
1a, shear wave elastography F4
ast-114 alt-80,
viral load 5,941,282

Start Harvoni 9/3/15
ast-131 ast-97, viral load 12,997,415

9/29/15 4 week labs VL 64
ast 34 alt 17
11/25/15  12 wk EOT Undetected!
AST 29 ALT 17  Albumin 3.8 Bil .06

12 week PostTX UNDETECTED!!!
AST 33 ALT 20  Bil. 0.9 Albumin 3.9

25 week Post Tx  UNDETECTED

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #18 on: September 27, 2015, 01:10:18 am »
Quote from: coastal girl on September 27, 2015, 01:00:32 am
Hi Kim,
I can totally relate to your system of keeping track of your pill intake.  I know that if I didn't write it down I would be checking the bottle all day making sure the count was right on, doubting that I took the pill, worried that I just thought about it.  So glad someone else is doing the same...I'm Not Obsessive Compulsive...YAY!!! When I am away from home as soon as I take the pill I text my husband and have him write it on my calendar.  I so don't want those little buggers mutating.

So true, Coastal girl! I had to dump all the pills out of the bottle and count them on more than one occasion to confirm I had taken them, if I ever slipped up and forgot to write it down the instant I took them. I hope to see some improvement in memory as my healing continues. ;)

kim
« Last Edit: September 27, 2015, 11:14:59 am by KimInTheForest »
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting my Harvoni tomorrow
« Reply #19 on: September 27, 2015, 10:48:09 am »
 Kimintheclear(LOL) and Coastalgirl, just posted about that, wearing that bottle top out I tell You. Obsessive? Yes! Compulsive? Probably! Insane?No doubt! Doing the same thing & expecting different result?? You Got It!!!! Hope this post finds You all well and in good spirits!
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #20 on: September 27, 2015, 11:23:59 am »
Quote from: slats1056 on September 27, 2015, 10:48:09 am
Kimintheclear(LOL) and Coastalgirl, just posted about that, wearing that bottle top out I tell You. Obsessive? Yes! Compulsive? Probably! Insane?No doubt! Doing the same thing & expecting different result?? You Got It!!!! Hope this post finds You all well and in good spirits!

Hi Tommy! :) I seem to be improving from my post-tx malaise. No longer sick at all, just low energy. I think from a combo of residual anemia from the ribavirin, but also part of the healing and cellular replacement process that must be happening. I seem to need about 10 hours of sack time each night! Very unusual for me. But anything less than that right now, and I am just dragging my butt around the next day. To me that suggests a lot of healing and repair work going on.

But I'm in good spirits. I can see progress every day. Sometimes I even think I am seeing my brain again after all these years. Am awaiting its permanent comeback. Eager for the results of my 12-week post-tx labs next month. But also feeling confident that I am in the clear. :)

You must just have about 2 weeks of tx left, Tommy. Way to go!!

Best,
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting my Harvoni tomorrow
« Reply #21 on: September 27, 2015, 11:46:23 am »
 Kim, Nine little diamonds sparkling at the bottom of the bottle. I know because I counted them for the third time this morning!! LOL!!!! I just can't help it I tell You!!
Glad You are feeling better! Like I told Cal--- I THINK I CAN , I THINK I CAN!!! I KNOW I CAN . I KNOW I CAN!!!!!!

   Ihavehope , PUT THE LIME IN THE WATER AND YOU DRINK IT ALL UP!! I SAY DOCTOR, AIN'T THERE NOTHING I CAN TAKE??

                                  Harry Nilsson with poetic editing
 
Logged
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline Scoutdoy

  • Member
  • Posts: 452
Re: Starting my Harvoni tomorrow
« Reply #22 on: September 27, 2015, 02:25:43 pm »
Good for you Kim. The positive attitude is a good sign also. Wonderful isn't it, that we are fortunate enough to get the meds. Wishing you a long,  happy hep free life....enjoy


Scout
Logged
F/49yrs
Genotype 1a
infected 1987-tatoo/military?
Diagnosed 2007
Biopsy F-0
vl 13,900,000
AST 23
ALT 19
Harvoni Treatment 7/27/2015
4 week lab --<12 negative...AST 23 ALT 15
6 week lab -- Undetected.....AST 17 ALT 10
8 week lab---undetected.......AST15 Alt 10
12 week lab---UNDETECTED....AST 15 ALT 9
12 week EOT--1/13/2016----UNDETECTED!
24 week EOT ----UNDETECTED  --AST 18 ALT 12
I AM FREE!

Offline KimInTheForest

  • Member
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  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #23 on: September 27, 2015, 02:50:54 pm »
Thank you Scout & Tommy! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: Starting my Harvoni tomorrow
« Reply #24 on: September 27, 2015, 03:09:43 pm »
You all are so wonderfully positive!  Ihavehope...yes, you have a great reason to now have hope since you are well on your way in your treatment journey. 

I am on day 11 of Daklinza and Sovaldi and feel more positive (and powerful against this viral demon) every day!  I, too, feel like I have hope and am very appreciative! 

Today IS a great day!  Thanks for posting.

Mary

Logged
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline KimInTheForest

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  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #25 on: September 27, 2015, 03:29:26 pm »
Quote from: MaryC on September 27, 2015, 03:09:43 pm

I am on day 11 of Daklinza and Sovaldi and feel more positive (and powerful against this viral demon) every day!  I, too, feel like I have hope and am very appreciative! 

Mary

That's great, Mary! Any sides so far? You are one of the first Daklinza/Sovaldi people on the forums so I think we are all curious about what that's like.

best,
kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline MaryC

  • Member
  • Posts: 117
  • Life is not a sprint; it's a marathon.
Re: Starting my Harvoni tomorrow
« Reply #26 on: September 27, 2015, 08:55:37 pm »
Quote from: KimInTheForest on September 27, 2015, 03:29:26 pm
That's great, Mary! Any sides so far? You are one of the first Daklinza/Sovaldi people on the forums so I think we are all curious about what that's like.

best,
kim
Thanks Kim.  The reported sides are similar to Harvoni, headache and fatigue.  I'm not experiencing any so far (knocking on wood).   I had fatigue prior to starting treatment and believe this has actually improved since starting the med combo.  No headaches either. 

I have taken the advice given here on the forums...drinking plenty of water, eating healthy for the most part and, of course, no alcohol.   I'm also fortunate in that I can stay pretty active too. 

I am also very obsessive/compulsive about making sure I take my meds daily.   I have a weekly mediset I fill, and take the pills at the same time every day...a kind of ritual. The pills are a 'gift', and the key to my cure so I don't want to risk missing a dose!

Mary

Logged
GT 3a
Dx'd 4/15 not known when contracted
Labs 7/15:
-VL 537,000
-AST 32
-ALT 41
-Fibrosis score 0.46 (F1-F2)
Started tx 9/17/2015 with Daklinza + Sovaldi
6/6/16: 24 week EOT SVR!  Cured!

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #27 on: September 27, 2015, 11:23:57 pm »
I too have a weekly pill box that I fill.  It works out fine for me.
Sometimes I have ringing in my ears, could this be from the Harvoni or is someone talking about me as my Mother would say about that. :)
Logged

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #28 on: September 27, 2015, 11:31:24 pm »
I believe the ringing n the ears (tinnitus) is a reported side effect of Harvoni. It goes away after treatment.

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Starting my Harvoni tomorrow
« Reply #29 on: September 27, 2015, 11:32:41 pm »
Welcome Maryc and havehope.  Keep posting, use the profile signature and we can keep track and so can you. You are now members of an exclusive club, the we're gonna SVR club! Your on your way. Cal  :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #30 on: September 27, 2015, 11:39:46 pm »
Good going... MaryC and havehope!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #31 on: September 29, 2015, 09:16:46 pm »
Does anyone know if it's ok to get a Flu shot while on Harvoni?
Logged

Offline Butterflykisses

  • Member
  • Posts: 21
Re: Starting my Harvoni tomorrow
« Reply #32 on: September 29, 2015, 09:51:41 pm »
Welcome ihavehope!

That's a good question for your Dr.  I saw my Dr on Monday, The suggestion for me was to wait until after treatment because I have less than two weeks until eot.  I keep counting down those orange diamonds, 12 more to go!  Sides have been minimal, mostly skin rash and neck pain.  They tell me this will pass post tx, I am hopeful too!  Best of luck on your journey to SVR.

Butterflykisses
Logged
GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #33 on: September 29, 2015, 10:17:15 pm »
Here is Lucinda Porter's view on the flu shot:

http://blogs.hepmag.com/lucindakporter/2015/09/hepatitis_c_or_no_he.html

I saw on the national news that the flu shot was 13% accurate last year and is expected to be 60% accurate this year (if the news channel is correct).  My liver specialist is of the opinion to take it (although I'm unable to due to an extreme reaction in the past) but that's not most people's experience. I would check in with your doctor.

Butterflykisses - so great you are almost complete!  I just finished my Harvoni.  I feel so fortunate and grateful to have the opportunity for this treatment!  Wishing you both the best!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Butterflykisses

  • Member
  • Posts: 21
Re: Starting my Harvoni tomorrow
« Reply #34 on: September 29, 2015, 10:49:46 pm »
Thank you, Bree.  Congratulations to you on EOT!  You are right, we are truly blessed to have this wonderful treatment.





Logged
GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline ihavehope

  • Member
  • Posts: 10
Re: Starting my Harvoni tomorrow
« Reply #35 on: October 23, 2015, 06:58:58 pm »
Well, after 4 weeks of taking Harvoni. My VL was undetectable! I started with 347,000. I have had no side effects. Because of my cirrhosis I still need to go the full 24 weeks. Yes, goodbye Hep C!!!!!!
Logged

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #36 on: October 23, 2015, 07:01:31 pm »
Quote from: Butterflykisses on September 29, 2015, 10:49:46 pm
Thank you, Bree.  Congratulations to you on EOT!  You are right, we are truly blessed to have this wonderful treatment.

Thanks Butterfly!  I just saw this post.  I think your  EOT was UND too right?
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #37 on: October 23, 2015, 07:01:38 pm »
Quote from: ihavehope on October 23, 2015, 06:58:58 pm
Well, after 4 weeks of taking Harvoni. My VL was undetectable! I started with 347,000. I have had no side effects. Because of my cirrhosis I still need to go the full 24 weeks. Yes, goodbye Hep C!!!!!!

Excellent news, ihavehope! Well done!

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #38 on: October 23, 2015, 07:02:35 pm »
Quote from: ihavehope on October 23, 2015, 06:58:58 pm
Well, after 4 weeks of taking Harvoni. My VL was undetectable! I started with 347,000. I have had no side effects. Because of my cirrhosis I still need to go the full 24 weeks. Yes, goodbye Hep C!!!!!!

That's awesome news Ihavehope!  So happy for you... and sounds like you are sailing right along....
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Cal

  • Member
  • Posts: 957
  • Cal on Viekira Pak
Re: Starting my Harvoni tomorrow
« Reply #39 on: October 24, 2015, 12:35:52 am »
Havehope,
You're on your way now. Well done. Cal :)
Logged
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline Butterflykisses

  • Member
  • Posts: 21
Re: Starting my Harvoni tomorrow
« Reply #40 on: October 26, 2015, 03:56:20 pm »
Quote from: Bree on October 23, 2015, 07:01:31 pm
Thanks Butterfly!  I just saw this post.  I think your  EOT was UND too right?

Bree, I went for my EOT Labs on 10/21 still waiting for results, fingers crossed. I'm feeling so nervous, but so hopeful at the same time.  Thank you for asking, I will post when they become available.

 
Logged
GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #41 on: October 26, 2015, 04:14:16 pm »
Quote from: Butterflykisses on October 26, 2015, 03:56:20 pm
Bree, I went for my EOT Labs on 10/21 still waiting for results, fingers crossed. I'm feeling so nervous, but so hopeful at the same time.  Thank you for asking, I will post when they become available. 

Good luck Butterfly! :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Butterflykisses

  • Member
  • Posts: 21
Re: Starting my Harvoni tomorrow
« Reply #42 on: October 26, 2015, 04:27:00 pm »
Thanks Kim.  Thinking of you too!   


 



 
Logged
GT: 1a
2008: Interferon/Riba NR
VL: 851,413
7/20/15:  Started Harvoni (12 Weeks)
8/17/15:  4 week Lab VL Undetected
9/16/15:  8 week Lab VL Undetected, ast 20, alt 18
10/21/15:  EOT Lab VL Undetected, ast 15, alt 13
1/18/16:  14 Weeks Post VL Undectected, AST 21, ALT 15

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Starting my Harvoni tomorrow
« Reply #43 on: October 26, 2015, 04:29:48 pm »
Quote from: Butterflykisses on October 26, 2015, 04:27:00 pm
Thanks Kim.  Thinking of you too!   

Thanks Butterfly :) I may know my 12-week post-tx results by tomorrow. Otherwise, later this week. Exciting times for both of us :)

kim
Logged
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #44 on: October 26, 2015, 04:45:24 pm »
Kim and Butterfly,

You'll both have your results soon.  hmmm... I'm guessing Butterfly is UND at EOT and Kim is SVR at 12 weeks (my crystal ball comes in quite handy) 8)
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Starting my Harvoni tomorrow
« Reply #45 on: November 06, 2015, 11:26:30 pm »
Hi everyone!  I am having the weirdest set of circumstances.After being denied 2 times for continuation of tx from 8 to 12 wks...it was sent to peer review that was promptly denied... At first I was stressed about not even knowing current labs yet & fear of relapse but after some down time I realized this is my path so moved on to my new life post tx.It has been a week since I finished Harvoni.My 8 wk.labs should be here in a few days but it gets weird now.Mayo & Gilliad both called today & want to send me Harvoni after all.They needed me to electronically sign online...I guess you can go a week without & start again according to Gilliad.Thoughts?
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Bree

  • Member
  • Posts: 576
  • "Today is a good day for a great day!"
Re: Starting my Harvoni tomorrow
« Reply #46 on: November 06, 2015, 11:45:29 pm »
Quote from: Rosie13 on November 06, 2015, 11:26:30 pm
Hi everyone!  I am having the weirdest set of circumstances.After being denied 2 times for continuation of tx from 8 to 12 wks...it was sent to peer review that was promptly denied... At first I was stressed about not even knowing current labs yet & fear of relapse but after some down time I realized this is my path so moved on to my new life post tx.It has been a week since I finished Harvoni.My 8 wk.labs should be here in a few days but it gets weird now.Mayo & Gilliad both called today & want to send me Harvoni after all.They needed me to electronically sign online...I guess you can go a week without & start again according to Gilliad.Thoughts?

Wow Rose!  That's is really wild.  I wondered what happened in your journey with all of this.  I'll leave the responses to those better equipped with more knowledge to answer the question.  If the week doesn't really matter to your treatment plan and they can get it to you quick, I'd probably do it because you can and it might help.  And, at the same time, I think you'll be fine either way.  Big help, huh!
Logged
Dx 1997 Geno 1a
2002-2003 PEG Intron/riba (48 wks) respond/relapsed
Pre-Harvoni - Viral Load: 13.5 M - Log 7.1
Fibrosure Score F1-2  Pre-Treatment:  AST 73 / ALT 88

7/6/15 Started Harvoni (12 weeks)
10/5/15 HCV NOT DETECTED (One week post EOT)
11/9/15 NOT DETECTED!!! (6 wk post)
12/21/15 NOT DETECTED (12 wk post) 
3/14/16  NOT DETECTED (24 week post)AST 26 ALT 18
SVR ACHIEVED!!! 
CURED YES!!!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Starting my Harvoni tomorrow
« Reply #47 on: November 06, 2015, 11:59:59 pm »
My only thoughts are, "wow, that's weird."  But yay!  I'm sure you're undetected but why the heck not.  Extra insurance.  The times they are a changin'!
Logged
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline Rosie13

  • Member
  • Posts: 297
Re: Starting my Harvoni tomorrow
« Reply #48 on: November 07, 2015, 12:14:59 am »
Just when you think brain fog will be a distant memory! I am so darn conflicted . They are changing all the rules we heard to start with arn't they? I think it will be a good thing but dang lets get going here. The Gilliad dept. is called " Urgent care team"! The reason for the time lapse is they needed copies of the peer review.My path is back on track but I am anxious to get going . I had no idea that Mayo Clinic was still working on this. They really are some special ladies!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!

Offline Rosie13

  • Member
  • Posts: 297
Re: Starting my Harvoni tomorrow
« Reply #49 on: November 07, 2015, 12:16:02 am »
Oh yes & Bree & Else you are too!
Logged
Labs August 15,2015
Genotype 1b
AST 112 U/L
ALT 181 U/L
HCV 192,000 IU/mL
Fibroscan F2-3
Started Harvoni Sept. 5, 2015
4wk. labs Oct. 2,2015
AST 21 U/L
ALT 27 U/L
HCV UNDETECTED!!
8wk. labs Nov.5,2015
AST 16 U/L
ALT 19 U/L
HCV UNDETECTED!!
12 wks.post tx.feb.11,2016
UNDETECTED!!!
24 wks. post tx. may 16,2016
UNDETECTED Fibroscan  F-0!!!!!
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