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Author Topic: My Neuro-Ophthalmologist is Perplexed  (Read 8078 times)

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Offline MikeDsnizzy

  • Member
  • Posts: 6
My Neuro-Ophthalmologist is Perplexed
« on: December 26, 2015, 09:00:05 am »
This was an answer to some one else's post but, it's old so, I'm reposting this on here as a new topic.>> I'm having eye problems too and am looking for anybody having issues like this. The little red bumps under the eye lids is from Optic Nerve swelling causing vessels to burst in the eye.. I'm have issues with both eyes but, my right is worse. I'm having a specialist (WELL 4 specialists) trying to get to the bottom of this whole thing. I'm very scared right now. The swelling isn't going down. All of this started after starting the Harvoni. Now it's bad. My blood pressure is now up and down. It was 165/96 at one time. I never had any issues with my eyes or blood pressure---ever!! Please, anybody having issues like this let me know please!! I did clear the virus and am very grateful because of that but, at what cost?? This is the medical term coming from my Neuro-Ophthalmologist::** Central Retinal Vein Occlusion** Also, he asked me if I wanna get back on it so, he can tell if that's it doing it to me----SO FREAKING LOST RIGHT NOW

Mike D.
:)

Offline jakas

  • Member
  • Posts: 265
Re: My Neuro-Ophthalmologist is Perplexed
« Reply #1 on: December 26, 2015, 09:51:13 am »
I take blood pressure meds my norm is 135/75 on harvoni its 145-155/83-87.
I hope you can get sorted on your eye problem. Are you over with Harvoni treatment ?
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: My Neuro-Ophthalmologist is Perplexed
« Reply #2 on: December 26, 2015, 10:47:39 am »
Freaking out may increase your blood pressure, something you can't afford right now. See if you can take a step back, find a way to tap into a calm part of you who will help you through this puzzling upset. Don't get me wrong, being freaked out is what I'd do too, but sometimes I can talk myself down a notch with little reminders that getting too upset isn't going to improve the situation.

Although the connection with Harvoni seems like an obvious correlation, there are other causes (diabetes for instance). 1) be sure your doc has a complete medical history 2) Have your doc (or you, or both) call Gilead's medical expert http://www.mysupportpath.com/
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline MikeDsnizzy

  • Member
  • Posts: 6
Re: My Neuro-Ophthalmologist is Perplexed
« Reply #3 on: December 26, 2015, 10:58:32 am »
I did all the investigating necessary!! There are no reasonable explanations yet. Its very easy for someone to say: Calm down take it easy--look for other things. Im not sugar coating this thing,, ok!! I'm only interested in people that are having this same problem. Please don't tell me what I should be looking for--PLEASE!! If you have this same problem, please contact me---if not, then do not say things that are not relevant.
:)

Offline dragonslayer

  • Member
  • Posts: 873
Re: My Neuro-Ophthalmologist is Perplexed
« Reply #4 on: December 26, 2015, 03:29:12 pm »
Mike.. How rude!  Lucinda is an RN extraordinaire and one of the most knowledgeable support folks on this board.

Dont come on here with all kinds of noob aggression and start dissing one of the best assets we have..

Peace out...
Paul

DX 2008
Started Harvoni 11/26/14 for 8 wks
Completed 8 wks Harvoni 01/20/15
EOT RNA Quant result:  Detected 29
7.5 wk post tx: Detected < LLOQ(12)
11 wk post tx: UNDETECTED SVR12
24 wk post tx: UNDETECTED SVR24; AST 26; ALT 22; ALP 73
48 wk post tx: UNDETECTED SVR48; AST 18; ALT 18; ALP 70
GT 1a
vl 2.4mil
2008 bpx: Stage&Grade 0
2013 bpx: Stage&Grade: 0-1
IL28B: TT
likely infected early '70s

Offline Hep Forum Moderators

  • Administrator
  • Member
  • Posts: 33
Re: My Neuro-Ophthalmologist is Perplexed
« Reply #5 on: December 26, 2015, 06:46:38 pm »
A reminder to be courteous to other posters. We will not tolerate the use of abusive language under any circumstances.

- Hep Forum Moderators

 


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