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Author Topic: Day 1 Harvoni  (Read 12106 times)

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Offline Just breath

  • Member
  • Posts: 10
Day 1 Harvoni
« on: February 20, 2016, 10:57:39 am »
Scared, positive , exicted to be free of Hep C. Diagnosed with Hep C geno type 1b in 2004.
Due to having geno type 1b I waited for a better chance of ridding myself of this ugly Hep C. I choose not to do interfon.
Was monitored by Dr. and took herbs until Harvoni arrived. Last year my insurance denied Harvoni.
Due to cost of insurance tripling had to change insurance. 
What a blessing to me... My new insurance approved Harvoni and I took my first freedom pill today.... Positive that I will beat this once and for all !
Logged

Offline jakas

  • Member
  • Posts: 265
Re: Day 1 Harvoni
« Reply #1 on: February 20, 2016, 03:17:01 pm »
 :) Excellent, better late than never. Yes you will beat it !
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline AussieRosa

  • Member
  • Posts: 226
Re: Day 1 Harvoni
« Reply #2 on: February 21, 2016, 04:53:14 am »
Congratulations on starting treatment, Just Breath. I hope it goes well for you. All the very best and please let us know how you're doing.
Rosa
Logged
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #3 on: February 21, 2016, 10:06:02 am »
First Day was good. Felt jittery and headache. Last night bad heartburn.
Day 2 heartburn not good. I was trying to go without low dose of proilosec but my need it.
I will be so happy if I can keep active , so far so good.
Of course only day 2. But I want to remain positive.... :)
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Offline jakas

  • Member
  • Posts: 265
Re: Day 1 Harvoni
« Reply #4 on: February 21, 2016, 02:20:35 pm »
drink water lots of it JUST PLAIN WATER. The 1st week can be a bit bad but things get much better. I was crappy for 10 days but then much better. Still 11 pills to go and on the whole feel good. Yes I stiil have some edema on the left foot and some liver pains for the last 3-4 days but they will go away.
Logged
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Day 1 Harvoni
« Reply #5 on: February 21, 2016, 03:44:29 pm »
Here's my advice, for what it's worth:
Try not to fixate on side effects, they come and go and the majority of people don't get anything significant with Harvoni.
Now isn't the time to try and change your other Meds. Tell the treating dr what you are taking to ensure no clashes, but if you need a medication normally, keep taking it unless your dr tells you not to. Stability is key here.
Take each day as it comes. Don't wait for the other shoe to drop - it might not! You might get through this with minimal issues.
Don't borrow trouble - don't anticipate problems.
Keep your medical team in the loop.
Drink water. Lots of water.

I learnt all this the hard way. I offer it to you at no cost, so you don't get to make all my mistakes. M
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #6 on: February 22, 2016, 05:02:24 pm »
 :) Thanks for encouragement and drinking lots of water has definitely helped.
So happy had a great nights sleep and have been able to stay active. Advil really helped with the headache...Thanks
Logged

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Day 1 Harvoni
« Reply #7 on: February 24, 2016, 05:00:58 am »
awesome news
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Day 1 Harvoni
« Reply #8 on: February 24, 2016, 04:31:28 pm »
Just Breath, joined you as of this morning on the Harvoni Train!!!!  Philly gave us some wonderful advice, so I'm printing it off and posting it on my frig. The power of positive thinking cannot be underestimated........... our futures are bright!  FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #9 on: February 24, 2016, 07:12:00 pm »
Positive is the key word for sure... Best wishes and lots of water works for sure...
Day 5 day and doing good. Have headache but handled with a advil. Yeah...
Logged

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #10 on: February 24, 2016, 07:18:53 pm »
Future Thinker, so glad we're on the path to Hep C free.. Keep me posted on how your doing...

Also try to remain as stress free as possible...
Logged

Offline Mugwump

  • Member
  • Posts: 778
  • My number of posts means nothing, piscor ergo sum!
Re: Day 1 Harvoni
« Reply #11 on: February 24, 2016, 08:03:40 pm »
Quote from: Just breath on February 24, 2016, 07:12:00 pm
Positive is the key word for sure... Best wishes and lots of water works for sure...
Day 5 day and doing good. Have headache but handled with a advil. Yeah...
I avoided any extra medication completely because I have advanced cirrhosis. At first the headache was pronounced but not severe enough to keep me up at night.


What I wound up doing instead of taking meds was exercises to increase the blood flow to my head. Yoga is great for this and the Chinese are really on to something with Ti Chi. It did me wonders during treatment.


As much as staying well hydrated helped, I know that also doing slow careful exercises did more to ease the minor effects of harvoni than any over the counter medication would.


All the best.
Eric
Logged
Caution shameless self promotion below :-)
https://www.hepmag.com/article/eric-reesor-27742-782589663
DING DONG MY DRAGON (HCV) IS FINALLY DEAD!

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Day 1 Harvoni
« Reply #12 on: February 24, 2016, 09:35:33 pm »
Mugwump, excellent advice, thank you. I felt just fine all day today, couldn't tell I'd taken anything at all, but I do know this may change as more of these miracle pills do their thing.  Exercise in all forms has its own healing powers, doesn't it?!

I'm just so glad to be able to finally post that I'm on treatment!!!  FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline AussieRosa

  • Member
  • Posts: 226
Re: Day 1 Harvoni
« Reply #13 on: February 24, 2016, 10:21:19 pm »
Congratulations on starting treatment, Future Thinker! Hope it goes really well for you.
Logged
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Day 1 Harvoni
« Reply #14 on: February 24, 2016, 11:05:49 pm »
Thanks, I'm just so looking forward to being able to post "VL 4 weeks undetected" just like you!!  Congrats! FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #15 on: February 24, 2016, 11:32:57 pm »
Me too... That will be a great day.
Yes excercise is a huge part of my life. I agree it really does help... :)
Logged

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Day 1 Harvoni
« Reply #16 on: February 25, 2016, 02:48:55 am »
Great to see you have started FT!
I walked every day without fail, even if I didn't want to. I did three km every morning. I think that really helped. Got me up, out the door, into the fresh air and I appreciated the world aroud me. My dog really liked it too.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Day 1 Harvoni
« Reply #17 on: February 25, 2016, 11:00:36 am »
Philly & JB, walking is my primary form of exercise, too, get in 2.5 miles most days and plan to make that every day now.  Feeling grateful is important!!  FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline BillT

  • Member
  • Posts: 573
Re: Day 1 Harvoni
« Reply #18 on: February 26, 2016, 03:25:05 pm »
You all are making me feel like a bloody slug talking about all this exercise. :)
Logged
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Day 1 Harvoni
« Reply #19 on: February 26, 2016, 04:17:24 pm »
Well if it's any consolation I'm not doing it at the moment. It's been well over 100f here for over a week, I have a broken arm and I'm finding it all very challenging just getting dressed on my own in the morning let alone walking. ;)

I'm in plaster from my fingers  to my armpit and therefore not a happy camper.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Day 1 Harvoni
« Reply #20 on: February 27, 2016, 11:07:53 am »
Philly, sorry to hear this, when did this happen?? At least you know that broken bones heal a whole lot faster and definitively than these liver issues!! FT
Logged
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Day 1 Harvoni
« Reply #21 on: February 27, 2016, 05:17:34 pm »
It happened when I was in Cuba. A few weeks ago now. A rental car full of Czech tourists hit the taxi we were in. They seemed to think an illegal u turn without signalling or looking was okay.
Logged
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #22 on: February 27, 2016, 05:22:01 pm »
For sure... Philly sorry about the arm hoping for a speedy recovery for you...

One week today .... Yippee! Only 11 more to go. Headache all day yesterday but played pickle ball and went for walk. Today no headache and played piCole ball and walked. Excercise sure helps...
Now time to get some more water down...

Logged

Offline Just breath

  • Member
  • Posts: 10
Re: Day 1 Harvoni
« Reply #23 on: March 03, 2016, 03:56:59 pm »
Just want to say Sat. Will be week 2 and doing good.... Yeah !
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