Welcome, Guest. Please login or register.
April 02, 2020, 08:07:10 pm

Login with username, password and session length


Members
Stats
  • Total Posts: 54821
  • Total Topics: 4727
  • Online Today: 78
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 0
Guests: 55
Total: 55

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Amazing Meds  (Read 20074 times)

0 Members and 1 Guest are viewing this topic.

Offline trebor

  • Member
  • Posts: 9
Amazing Meds
« on: March 31, 2014, 12:45:57 am »
Co-infected with Hiv/Hep C. My HiV is controlled with meds....

Recent infection (less than a year) with the Hep C and my Dr. recommended me for a trial of sovaldi and daclatasvir and after one week-----(how fortunate I am)

8,000,000  down to 200 hep C viral load and all my liver enzymes are back to normal. I have 11 more weeks of treatment, but expecting and hoping this will be a distant memory in my life.

There is hope and my fingers are crossed.

Offline iana5252

  • Administrator
  • Member
  • Posts: 176
Re: Amazing Meds
« Reply #1 on: March 31, 2014, 09:08:45 am »
Thanks for sharing Trebor. Best of luck with the rest of treatment and please keep us updated on your progress.

- Ian

Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #2 on: March 31, 2014, 07:12:48 pm »
Fantastic!!!!!!!!!!!!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #3 on: April 04, 2014, 01:27:27 am »
I am in week 4, but got the test results of week 2 this afternoon.....

HEP C undetectable.

I am riding this hope train.


Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #4 on: April 04, 2014, 02:37:11 pm »
Wow, wow, wow!!!!! Looks like the train is running over hep C.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #5 on: April 24, 2014, 12:49:16 am »


Update from week 4, lab messed up the results, irritating the Dr. and the drug companies, but results from week 6  is "virus not detected".

I am on 12 week, 2 pill a day treatment and will finish the end of May. Looking forward to this being in my past. Holding onto the hope of being SVR12 come August.

Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #6 on: April 24, 2014, 12:50:47 am »
Wonderful news!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #7 on: May 01, 2014, 01:17:08 pm »
Back from the Dr. and results the same fantastic news-- No virus trace. One month left of treatment. Never been so hopeful!!!

Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #8 on: May 01, 2014, 08:54:12 pm »
Thanks for sharing the great news - it made me smile!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline bobby

  • Member
  • Posts: 4
Re: Amazing Meds
« Reply #9 on: May 15, 2014, 08:34:02 pm »
hey trebor, congrats on your good fortune. had hoped to share in it myself but the doc tells me today that since my hep c diagnosis is so new, he estimates 8 weeks due to rising numbers, that sovaldi is not available for cases of acute hep only chronic. us newbies have to stick with rib+ pg for the full 24 weeks.
happy those who suffer from chronic hep can take advantage of the new miracle treatment though.

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #10 on: May 22, 2014, 01:32:34 am »
Hi Bobby,
Sorry for the delay, just saw your posting. I understand. I had to wait near a year for this trial, to get past the acute stage (in hopes I would clear it myself). I have 6 days left of the treatment and never felt better and look forward to being this in my past. SVR 12 here I come.

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #11 on: May 29, 2014, 02:20:17 am »
Finished treatment yesterday-(12 week) and all came back from the last blood work as "virus not detected" and all my liver tests are normal and this has been true since the second week of treatment.
Now I just continue to live with a renewed vow for health and gratefulness for this amazing opportunity to be cured of this. I look forward to the future including being SVR 12.


Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #12 on: May 29, 2014, 03:52:16 pm »
Congratulations on finishing! Quite an accomplishment. Please let us know about your follow-up labs. Waiting is hard, and we wait with you
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline bobby

  • Member
  • Posts: 4
Re: Amazing Meds
« Reply #13 on: May 31, 2014, 09:35:52 pm »
congrats trebor. all the best.

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #14 on: July 04, 2014, 12:23:36 pm »
Dr. called with results of blood work 4 weeks after end of treatment and I'm on my way SVR12--

Virus not detected!!!





Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #15 on: July 04, 2014, 12:30:14 pm »
Yahoo!!!!!!!!!!!!!!!!!!!!!!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline trebor

  • Member
  • Posts: 9
Re: Amazing Meds
« Reply #16 on: August 21, 2014, 03:59:07 pm »
Today was 12 weeks post treatment and went in for the blood work. My dr. says now the new normal is pushing towards, SVR 4. That being four weeks, post treatment and still virus free... then the dragon is forever gone.

I am never more confident, the beast, is in my past. My four week post treatment was clear and I expect the same for this test.


Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #17 on: August 22, 2014, 11:30:01 am »
Wow, wow,wow!!!!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline bobby

  • Member
  • Posts: 4
Re: Amazing Meds
« Reply #18 on: September 16, 2014, 07:48:19 am »
just want to keep this going a bit for anyone searching online who has just found out they have hep c and are freaking out...
you couldn't have gotten hep a better time...I was told I'd have to do the 24 week treatment of peg+rib even though I had been hearing about all these new treatments and had a great insurance plan to cover much of sovaldi. fortunately I live in a big city and found a clinical trial...sovaldi and rib...after 2 weeks I was undetectable for hep c. just took week 4 bloods and will get those results next week.
many docs don't know about the new standards of treatment. don't give up. keep looking. keep asking. as trebor stated when he started this thread - amazing meds indeed.

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: Amazing Meds
« Reply #19 on: September 16, 2014, 08:17:38 am »
good for you Bobby and your right not many drs. are up on it because it is new. my Dr. informed me a few weeks back i was the first one statring it in his office [from ny] so like you i am glad he pushed for new drugs. GREAT 2 week report!  ''just'' willlie g''

Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #20 on: September 16, 2014, 06:11:19 pm »
Nicely stated Bobby - I like this line,
Quote
you couldn't have gotten hep a better time...
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline bobby

  • Member
  • Posts: 4
Re: Amazing Meds
« Reply #21 on: September 25, 2014, 08:05:36 pm »
good luck to you willie. week 4 results - still undetectable.

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: Amazing Meds
« Reply #22 on: September 25, 2014, 09:24:16 pm »
WAY TO GO BOBBY,,,i think now,for now,, GOOD is really still out weighing the BAD,,,,  4 weeks undected, that is a gift, so there are still many GIFTS out there! now, giddy up     ''just'' Willie g

Offline Tammra

  • Member
  • Posts: 12
Re: Amazing Meds
« Reply #23 on: October 04, 2014, 07:57:19 pm »
Hello everyone,
   The sovaldi/olysio combo is truly truly amazing!! We are so lucky! Must share with you my good news.
  i started with a viral load of 47 million, got lymphoma, went thru chemo, which brought me to 12 million back 2mths ago.
  After 2 weeks on tx:    Viral Load = 280     (From 12 million)
                                    AST = 20
                                    ALT = 17 !!!!!
  Thank you all for being here and helping me get through this. Gonna get there
Tammy

Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: Amazing Meds
« Reply #24 on: October 05, 2014, 05:57:42 pm »
Fantastic news Tammra!
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline penny

  • Member
  • Posts: 52
Re: Amazing Meds
« Reply #25 on: November 15, 2014, 11:19:51 pm »
Glad you are doing well Tammra. Hope you can give us an update?

 


© 2020 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.