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Author Topic: My PCP wants to take me off treatment  (Read 9015 times)

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Offline dawn

  • Member
  • Posts: 5
My PCP wants to take me off treatment
« on: September 24, 2014, 03:27:48 pm »
My PCP doctor wants to take me off of my treatment. I am taking Sovaldi + ribavirin + pegylated interferon for 12 weeks. I have had side effects that I thought was normal. Vomiting,  pain in joints, anger at times, feeling up and down, shaking and swollen liver. And earlier I posted craving sweets. I have waited years to take this treatment and don't want to stop now. I have only been on the treatment for 2 weeks. Why would he want me to stop? I have had no blood test

Offline Mike

  • Member
  • Posts: 999
Re: My PCP wants to take me off treatment
« Reply #1 on: September 24, 2014, 05:44:55 pm »
Hi Dawn,

Sorry to hear this. I'm not sure why the doctor would stop treatment; but it sounds like it's due to the side effects.

Make sure you follow your doctor's orders.

I would encourage you to call the doctor and check if you can get in and see him/her tomorrow to discuss specifics. Most doctor's offices can squeeze in a patient under special circumstances, and I would imagine this would qualify.

I would call and explain the situation to the receptionist/nurse and, in an assertive but calm manner, see if you can be squeezed in ASAP.

Please let us know what you find out.

Best, best wishes, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: My PCP wants to take me off treatment
« Reply #2 on: September 24, 2014, 06:13:36 pm »
Only your doc can tell you the reason. However, there is another way to look at this - in about 2 weeks we will hear from the FDA about ledipasvir/Sovaldi - a single pill a day with mild side effects, very high cure rates, and treatment will be any where from 8 to 12 weeks. Perhaps your side effects will qualify you for this easier treatment.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)

Offline dawn

  • Member
  • Posts: 5
Re: My PCP wants to take me off treatment
« Reply #3 on: September 24, 2014, 06:48:12 pm »
Good news  about the new treatment. I am going to call my gi doctor and let him handle talking to my PCP dr. Thank you everyone.

Offline willie g

  • Member
  • Posts: 427
  • geno 1 25million etc. s/o for treatment
Re: My PCP wants to take me off treatment
« Reply #4 on: September 25, 2014, 02:43:33 pm »
 I  am sorry DAWN  may GOD  be with you and I am sorry if my humor came at an inappropriate time,,, please keep us posted, I do care   I am praying for you right now,,,''just''willie g


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