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Author Topic: Hep c and Lupus  (Read 5896 times)

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Offline mzmavis

  • Member
  • Posts: 4
Hep c and Lupus
« on: October 05, 2014, 09:54:57 am »
I am genotype 1b with stage 3 fibrosis, never been treated due to Lupus/autoimmune disease.   I will begin non interferon treatment this month and would like to hear from those who have Lupus and are being treated now.  I frequently have joint pain, flu-like symptoms and suspect that it will intensify during treatment.
Thanks for this forum I am learning so much already!
 
Hep C 30+ years/Lupus/ PN
Geno Type 1b, VL6220000
Began Harvoni 11/14/14

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Hep c and Lupus
« Reply #1 on: October 05, 2014, 06:12:14 pm »
I would be very much interested in your experience. Although I don't know anyone w/ lupus who is on current ifn-free therapies, I do know a few people with autoimmune disorders who reported a reduction in their symptoms during ifn-free hcv treatment clinical trials. It was the first time they had a reduction in symptoms in decades. 
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

Offline mzmavis

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  • Posts: 4
Re: Hep c and Lupus
« Reply #2 on: October 05, 2014, 08:09:38 pm »
That would be welcomed!  I have 30 plus years of living with autoimmune disease and I suppose Hep C too.  I'm not sure just when I was infected, but suspect it was late 1960's or early 70's. 
I will keep you informed. 
Hep C 30+ years/Lupus/ PN
Geno Type 1b, VL6220000
Began Harvoni 11/14/14

Offline penny

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  • Posts: 52
Re: Hep c and Lupus
« Reply #3 on: November 15, 2014, 10:59:55 pm »
Are you on any meds for autoimmune? Do you have a high VL? Please let us know about the AI issues. I have some also.

Offline mzmavis

  • Member
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Re: Hep c and Lupus
« Reply #4 on: November 15, 2014, 11:20:56 pm »
I take Plaquenil.  VL 6220000 (6.79). 
Hep C 30+ years/Lupus/ PN
Geno Type 1b, VL6220000
Began Harvoni 11/14/14

 


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