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Welcome to the Hep Forums, a round-the-clock discussion area for people who have Fatty Liver Disease, Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

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Author Topic: Hep c and Lupus  (Read 10421 times)

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Offline mzmavis

  • Member
  • Posts: 4
Hep c and Lupus
« on: October 05, 2014, 09:54:57 am »
I am genotype 1b with stage 3 fibrosis, never been treated due to Lupus/autoimmune disease.   I will begin non interferon treatment this month and would like to hear from those who have Lupus and are being treated now.  I frequently have joint pain, flu-like symptoms and suspect that it will intensify during treatment.
Thanks for this forum I am learning so much already!
 
Hep C 30+ years/Lupus/ PN
Geno Type 1b, VL6220000
Began Harvoni 11/14/14

Offline lporterrn

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  • LucindaPorterRN
    • LucindaPorterRN
Re: Hep c and Lupus
« Reply #1 on: October 05, 2014, 06:12:14 pm »
I would be very much interested in your experience. Although I don't know anyone w/ lupus who is on current ifn-free therapies, I do know a few people with autoimmune disorders who reported a reduction in their symptoms during ifn-free hcv treatment clinical trials. It was the first time they had a reduction in symptoms in decades. 
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline mzmavis

  • Member
  • Posts: 4
Re: Hep c and Lupus
« Reply #2 on: October 05, 2014, 08:09:38 pm »
That would be welcomed!  I have 30 plus years of living with autoimmune disease and I suppose Hep C too.  I'm not sure just when I was infected, but suspect it was late 1960's or early 70's. 
I will keep you informed. 
Hep C 30+ years/Lupus/ PN
Geno Type 1b, VL6220000
Began Harvoni 11/14/14

Offline penny

  • Member
  • Posts: 52
Re: Hep c and Lupus
« Reply #3 on: November 15, 2014, 10:59:55 pm »
Are you on any meds for autoimmune? Do you have a high VL? Please let us know about the AI issues. I have some also.

Offline mzmavis

  • Member
  • Posts: 4
Re: Hep c and Lupus
« Reply #4 on: November 15, 2014, 11:20:56 pm »
I take Plaquenil.  VL 6220000 (6.79). 
Hep C 30+ years/Lupus/ PN
Geno Type 1b, VL6220000
Began Harvoni 11/14/14

 


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