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Author Topic: Starting Harvoni  (Read 169421 times)

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Offline TyNessa

  • Member
  • Posts: 4
Re: Starting Harvoni
« Reply #200 on: February 11, 2016, 07:43:03 pm »
Started at 7pm EST tonight... 42 mins in wish me luck! I will do the same. Thanks for the replies.

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni
« Reply #201 on: February 11, 2016, 07:57:37 pm »
luck and good juju coming your way
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: Starting Harvoni
« Reply #202 on: February 11, 2016, 10:18:28 pm »
Started at 7pm EST tonight... 42 mins in wish me luck! I will do the same. Thanks for the replies.

Good luck TyNessa! You got this! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni
« Reply #203 on: February 11, 2016, 11:22:32 pm »
 Ty, Got Your message. The forums are a great place to get info., ask questions , get educated, and vent when needed. Jump on in the water is fine, Your are in good company here. Here is to a good Tx, for You. ;D

 MY DIET PLAN! MAKE EVERYONE CUPCAKES! THE FATTER THEY GET THE THINNER I LOOK! ;D ;D ;D ;D ;D
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline jakas

  • Member
  • Posts: 265
Re: Starting Harvoni
« Reply #204 on: February 12, 2016, 05:29:13 am »
Best of luck, Slats1056 cupcakes await you ! :D :D
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #205 on: February 17, 2016, 12:59:56 pm »
Hi all, I can finally post something on this topic as I will be starting Harvoni SOON.  Have a question re: coffee/caffeine -- I'm thinking I should take the pill at night since coffee is the only thing that keeps me functional during the day due to extreme fatigue, usually 2-4 cups/day.  Has anyone been told not to drink coffee or caffeine while on this med, or avoid it at certain times?  Thanks and I'm looking forward to getting on this train! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline slats1056

  • Member
  • Posts: 765
  • SVR to all and to all a good life!
Re: Starting Harvoni
« Reply #206 on: February 17, 2016, 02:08:03 pm »
 FT, I took mine usually 5:30-6:30 AM every day with a liter of water. usually had another liter by 7:00 AM. Also had a glass (8-12 oz.) of juice. I like strong coffee. At work by 7:00 AM another 1/2 liter of water on My desk to sip. Then had 3-6 cups of coffee. I personally did not have any problems during the first half of the day usually. Most of My Sx,s were afternoon and evening. Except the Migraines which would come at any given time of the day or night. I 'm a big ole' boy so I had 5-6 liter of water minimum H2O every day. Plus coffee, juice , etc. Staying hydrated with good old H2O is well advised. You also get fluids in the foods You consume.

 KNOWLEDGE IS KNOWING A TOMATOE IS A FRUIT! WISDOM IS NOT PUUTING IT IN A FRUIT SALAD! ;D ;D ;D ;D ;D ;D
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #207 on: February 17, 2016, 02:48:19 pm »
Slats1056, your humor is so appreciated! So sounds like coffee was not an issue or something to avoid, which I am very glad to hear.  Take away my coffee and I am pretty much a zombie these days. Hoping that will change in the near future! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni
« Reply #208 on: February 17, 2016, 02:50:08 pm »
Hey FT,

I love my coffee in the morning and did not give it up for TX.  As an aside, there is a lot written about positive effect of Coffee on the liver.  Regardless, it is one of life's simple pleasures (well and vices).  Does not sound like you are over doing it anyway.  I wake up like this   :( then have my coffee  ;D.  all good far as I'm concerned.
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #209 on: February 17, 2016, 02:55:51 pm »
LOL! Yes, I do think when the saying came about that beer/wine/etc. was referred to as "the nectar of the Gods", they really meant coffee! I was so glad to read the news re: coffee appearing to be good to retard liver fibrosis.  When did you take your miracle pill -- day or night?  Thanks, FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Starting Harvoni
« Reply #210 on: February 18, 2016, 11:38:34 am »
As an aside, there is a lot written about positive effect of Coffee on the liver.

It's true, FT.  Don't sweat the coffee.  And no need to separate the coffee from when you take your Harvoni.  All things in moderation, though.  With rare exceptions, I don't drink it past noon so I don't end up having to deal with insomnia. 

But water is really your friend with Harvoni.  Lots of it!  I found it very effective in eliminating the occasional Harvoni headache.  I'd start your day with a 8oz guzzle, if not more.

I also found Harvoni very "activating" for lack of a better word.  So 10:00 a.m. in the morning was my medication schedule.  That way I could enjoy all that extra energy!  I don't think a p.m. dosing schedule would have worked for me.
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #211 on: February 18, 2016, 12:10:15 pm »
Interesting re: the "activation" aspect..... Lord knows I could use some more energy!! I am very hopeful my body reacts that way.  I already start my wake up in the a.m. with 12 oz. of water, have done this for years, so will just have to increase my daily intake.  Am aiming for minimum 64 oz/day, will just have to see what my body says.

So, still on the fence as to WHEN to take this miracle pill -- I was leaning towards pm.  Will be talking to my doc so will get more info there, too.  Thanks again!!  I am getting excited moreso than scared or anxious! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline beto

  • Member
  • Posts: 548
  • "no risk it, no biscuit"
Re: Starting Harvoni
« Reply #212 on: February 18, 2016, 02:11:03 pm »
FT,

I took mine around 10:00AM and have no complaints.  I slept well at night...with a little helper now and then. 
HCV/nonA,nonB acute phase 1975
HCV detected active 1990
HCV persistent chronic diagnosis 1995
1995 liver enzymes mild elevations
1996 Biopsy F2 fibrosis
treatment naive geno 1-A
2000-to early 2015 Viral load 150, 000 to 800, 000
recent liver enzymes before treatment alt/ast 59to209,  Fibroscan F4,cirrhosis
start tx Harvoni 7/11/2015
6.5 week-UD-ast/alt 25/25
9wk-UD-ast18 alt23
10/3/15 completed tx
11/5/15 new fibroscan f0-f1 amazed
6wk EOT UD ast/alt 20/20
12EOT-UD-ast/alt19/21
25wk-SVR! 19/18

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Starting Harvoni
« Reply #213 on: February 28, 2016, 11:40:20 am »
The following are my Four Week Labs. I had a wonderful Man in Australia help me purchase Generic Harvoni abroad.

ALT:  37 down to 19
AST:  48 down to 27
GLUCOSE:  92 down to 78
VIRAL LOAD:  7 million down to less than 15

Anyone seeking treatment, don't wait as it is getting more difficult to purchase abroad!  You are all in my prayers!  Nothing is impossible with God, Messiah!  I marvel at his ways and the Grace bestowed me.  Me, not worthy to wipe the dirt from his shoe!
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline jakas

  • Member
  • Posts: 265
Re: Starting Harvoni
« Reply #214 on: February 28, 2016, 11:50:19 am »
Excellent result :)
M/57 yrs.
Contracted (Unknown) 10-20-30 yrs back ??
Treatment Naive
Geno 1a&1b
VL  17+ million
ALT 200+, AST 170+
Fibroscan F4 ( 26+ kpa ) on 8th Dec. 2105
Started Tx 11th Dec.2015 ( 12 wks. Gilead Harvoni)
7/1/2016 :Viral Load|<25 UND.
23/1/2016: ALT 34 , AST 35, ALP 143
8 week NO labs done
EOT:03.03.2016 ( 84 pills eaten )
ALT 26, ALP 124, BIL .54
V/L <25 UND E.O.T.
4 weeks E.O.T. V/L UND::: SVR 4
SVR 12 and  SVR 24 on 16/8/16
Fibro 24.5kpa 23/05/16
SVR 63 05/17
Fibro 17.03.2020 kpa 6.3

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Starting Harvoni
« Reply #215 on: February 28, 2016, 11:57:19 am »
Thanks Jakas!  Your name made me laugh! Thanks.  Can't get enough of that.
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Starting Harvoni
« Reply #216 on: February 28, 2016, 01:02:54 pm »
Great numbers, Rocket!  You're well on your way!
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #217 on: February 28, 2016, 05:42:34 pm »
Rocket Girl, we are so very, very blessed that these DAAs have been developed!! Happy to see your 4 wk labs -- mine will be next month and I hope to post as good of numbers as yours!!! The future is bright ----- FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline BillT

  • Member
  • Posts: 573
Re: Starting Harvoni
« Reply #218 on: February 29, 2016, 08:43:13 am »
Good morning FT,
                         I was reading some of the posts and happened to see yours about coffee.I'll post this one but if you Google coffee/liver there's a lot of information on it.I drink a lot of coffee(like a pot a day).Enjoy it. :)

http://www.liversupport.com/coffees-liver-benefits/

Edit:This one is from the forum here.


https://www.hepmag.com/article/hepatitis-coffee-liver-19572-1220281259
« Last Edit: February 29, 2016, 08:58:48 am by BillT »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #219 on: February 29, 2016, 02:24:54 pm »
Thanks BillT! Perhaps I should have worded my question differently -- I was really wondering if others had been advised not to take their Harvoni with coffee, as I was by my hepatologist. I was advised not to take ANY medicine with coffee....... but after reading others' experiences, I think this may just be a personal preference of my doctor, vs. a real concern w/ Harvoni. If I don't have my coffee, it's not good!  So I'm just waiting ~ an hour after coffee before taking the miracle pill, and not having coffee for ~ another hour or so.  So far, so good.  Thanks again, FT

Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline BillT

  • Member
  • Posts: 573
Re: Starting Harvoni
« Reply #220 on: February 29, 2016, 07:44:18 pm »
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #221 on: March 02, 2016, 12:13:08 pm »
Thanks again BillT, hadn't seen that particular piece from Gilead. So I am limiting my caffeine to 3 / day, which I think will be OK.

AND ---- I am thrilled to report today, on day 8, that I feel the most normal I've felt in MONTHS.  Maybe this is the "Harvoni High" I've read about? As of yesterday, just felt less tired and today even less so. Maybe my liver enzymes are normalizing? Fatigue has been the most debilitating aspect for me, so I hope this "normal" feeling continues! Thanks again for your help & support, FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Else

  • Member
  • Posts: 523
  • Appeal, appeal, and appeal again!
Re: Starting Harvoni
« Reply #222 on: March 02, 2016, 01:31:31 pm »
Enjoy, FT.  It's a wonderful feeling, isn't it?  :)
F/53 yr
diagnosed 1995
Genotype 1a
ALT: 58 AST: 39 ALK: 105
Viral load 4,201,950 IU/ml
Fibroscan 6.5 (F1-F2) Fibrosure 0.36 (F1-F2)
Treatment-naive
After 3 denials, finally approved!
Harvoni 12 wks - start date 9/15/15
4 wk labs 10/14/15
ALT: 12 AST: 16 ALK: 85
HCV Not Detected!!!
8 wk labs 11/10/15
ALT: 13  AST: 15  ALK: 77
12 wk (EOT!) labs 12/8/15
ALT: 11 AST: 15 ALK: 78
HCV Not Detected!!!
10wk posttx labs 2/11/16
ALT: 22 AST: 17 ALK: 61
HCV Not Detected!! SVR10!!!
SVR10 (99.7% Cured!!!)

Offline BillT

  • Member
  • Posts: 573
Re: Starting Harvoni
« Reply #223 on: March 02, 2016, 04:58:53 pm »
The first few weeks seem to be the worst for everyone FT.After that most of us started feeling better but there were some that had a very hard time with it all the way through.I was always tired because I wasn't sleeping.I still swear by the Aleve PM to help with that.Glad to hear you're doing better now and I hope the rest of the ride is uneventful for you. 8)
Contracted 1973 Military
Diagnosed 1980
Pegintron treatment 2004 unsucessful
Genotype 1b
FibroScan 10 (F2)
Start Viekira 10.17.2015

AST 40 ALT 69
VL 440k
10.31.2015/Week 2 Labs : AST 14/ALT 17
No VL done
10.14.2015/Week 4 labs : AST 14/ALT 14
VL UNDETECTED!!!
12.11.2015/Week 8 Labs : AST 12/ALT 13
No VL done
01.05.2016/EOT labs : AST 15/ALT 13
VL UNDETECTED!!!

12 WEEK SRV:UN-BLOODY DETECTABLE !!!!!!!!

24 WEEK SVR:UNDETECTABLE!!!! Thank You God.

Fibroscan 6Mo. Post Treatment 7.15.2016-5.3(F1)

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #224 on: March 03, 2016, 04:51:51 pm »
Else, I was hoping you'd see this post as I was definitely thinking of you when I typed it! Day 5 & 6, I was wiped out and slept a lot both days. Day 7, when I felt a bit less tired, I assumed it was due to getting more needed sleep; but then yesterday, I knew it was more than that.  After "diagnosing" this new feeling all day, I think I'd describe it as feeling like a weight had been lifted off me, just felt lighter, not sluggish/dragging, and more able to get off my a** and get a needed chore done, vs. just sitting there and thinking, "yeah, need to get that done, but I'm sooooooo tired". I really didn't expect to feel such a change so quickly, and am very grateful for the easy journey so far. You just never know, as this forum has proven.  I also realize this could change, but I'm being optimistic and taking one day at a time --- along w/ one pill a day! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Starting Harvoni
« Reply #225 on: March 15, 2016, 01:24:59 am »
I've almost completed 2 months now.  Steadily losing my hair, headaches, nausea and not a lot of energy.  I cut off about 2-3 inches of hair which seemed to help. I have to push
myself and get to the gym. I always feel better. The first four weeks seemed better than the second.  I can't wait for this to be done.  I've always been sensitive to medicines. For the first time I considered ending therapy when I finished the second bottle but I know I cannot do that. One more month!  I have to keep busy. Not doing enough.


Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline mary.wei

  • Member
  • Posts: 13
Re: Starting Harvoni
« Reply #226 on: March 15, 2016, 06:47:03 am »
where can i buy Harvoni? I am in China. I have no economy ability to go to America to treatment. :( Who can help me?

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #227 on: March 15, 2016, 11:37:39 am »
Rocket Girl, hang in there and finish the last bottle! I am sorry to hear this hasn't been as easy as you'd of liked, this disease and the meds really do affect each of us differently.  You just never know until you try. But you know you need to persevere with this to get to the other side! You're already 2/3 done.... I'm just at 1/4 done and we need to keep looking forward to that finish line.  Have you talked to your doc re: these sides? A lot of people on here have said they were able to find ways to deal with them w/ their doc's guidance.  The future is bright -- FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline Rocket Girl

  • Member
  • Posts: 40
  • Harvoni Treatment: January 23rd 2016
Re: Starting Harvoni
« Reply #228 on: March 16, 2016, 01:29:49 am »
Thanks so much Future Thinker!  I purchased my meds abroad, so my KAISER Doctor made it quite clear he was not treating me.  Spineless little man.  I had to fight to get  the lab work.  I need to stay busy and get to the gym. My husband has been sick, so we practically live at the hospital.  I won't stop the meds - your right.  I mean it's only 3 months right.
Started  GENERIC HARVONI: 1-23-2016
Female:  57 yrs old
Infected:  1987
Diagnosed:  2002
Treatment Naive
Genotype:  1A
Fibrosis Stage 2
Alt:  37
Ast:  48
Viral Load:  7 million
4 Week Labs: < 15
12 Week Labs: NOT DETECTED
3 Month Post Therapy Labs:  NOT DETECTED

Offline KimInTheForest

  • Member
  • Posts: 1,970
  • Believe in yourself
Re: Starting Harvoni
« Reply #229 on: March 16, 2016, 01:43:15 am »
Keep going, Rocket Girl. You can do it! It sounds like you just have 1 month left. Then you'll have the rest of your life to get sorted out from whatever side effects developed during treatment. And it won't take that long to do so. Plus you will be rid of Hep C. You're right about staying busy and keeping physically active. That will help you get through it.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline FutureThinker

  • Member
  • Posts: 711
  • Onward and upward!
Re: Starting Harvoni
« Reply #230 on: March 16, 2016, 03:18:09 pm »
Rocket Girl, sorry to hear about this doctor situation, but try to "stay calm and carry on" and get yourself to the other side, like it sounds you are doing. These side effects can come and go, from what I read here. Fight the Good Fight! FT
Treatment naive
Likely contracted mid-70s
Diagnosed 1a, 2011
F1-2
Harvoni X 12 weeks, completed 5/17/16
Pre-treatment: VL 3 mil, AST 64, ALT 84
4 week labs: VL 30, AST 21, ALT 14
8 week labs: VL UD!!!, AST 22, ALT 16
12 week labs: VL UD, AST 23, ALT 14
2 wk EOT: VL UD
12 wk EOT: VL UD, AST 22, ALT 13 =  SVR 12! Yay! 
Last hep appointment: VL UD, AST 19, ALT 12 = SVR 39! I AM DONE!

Offline AussieRosa

  • Member
  • Posts: 226
Re: Starting Harvoni
« Reply #231 on: March 16, 2016, 11:08:34 pm »
You're on the home stretch now, RocketGirl. You've come this far, you can make it the rest of the way. Take it easy and try to pamper yourself a bit. Best of luck!
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline pansy

  • Member
  • Posts: 40
Re: Starting Harvoni
« Reply #232 on: March 17, 2016, 02:29:07 am »
Hi, RocketGiirl,

I lost a lot of my long hair on the prednisone taper.
Try Biotin, 1mg a day.(10,000 mcg)
I know others go for 10mg, but there's chances of reactions.
1mg works, and no problems.
Get some biotin shampoo, too.
There's one I used I ordered off of Amazon, "Vitamins Shampoo" for hair loss...
http://www.amazon.com/Advanced-Shampoo-Growth-Thinning-Clinical/dp/B00KU8FYN0/ref=pd_bia_nav_i_1?ie=UTF8&refRID=12TS96D4RAWW9VRKZTN4

It has coconut oil in, biotin, and another ingredient to help hair from falling out.
I dreaded washing my hair, so much would come out.
This bottle I ordered a YEAR ago, and it is still not empty.
It lasts awhile...
It will grow back, hang in there!
2 months down, WOO HOO!
I got 2 weeks in, good results, a few migraines, but they go away with a headache tab and lots of water.
I get tinnitus also.
The sides were so bad with prednisone, I'm relieved to get a less bumpier ride, with Harvoni!

pansy
 
« Last Edit: March 17, 2016, 02:32:44 am by pansy »
Diagnosed 2002, geno: 1a.
Treatment naive.
Started Harvoni 3-3-2016
ALT: 78 AST:60 VL  = 6.3
3-17- 2016 (2 wks Harvoni)
ALT: 16  AST: 21 VL = 2.2
3-28-2016  (4 wks Harvoni)
ALT: 17  AST: 21 VL = Undetected
4-14-2016 (6wks Harvoni)
ALT:17 AST:22 VL = Undetected
4-25-2016 (8 Wks Harvoni)
ALT=18 AST= 21 VL=Undetected
5-9-2016 (10 Wks Harvoni)
ALT=16 AST=25 VL=Undetected
Finished Meds 5-25-2016
5-30-2016 (12 wks Harvoni)
ALT=18 AST=24 VL=Undetected
6-27-2016  (4Wks EOT)
ALT=19 AST=24 VL=Undetected

 


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