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Author Topic: Started Harvoni / New to forum  (Read 13274 times)

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Offline Paleface

  • Member
  • Posts: 35
Started Harvoni / New to forum
« on: November 12, 2014, 03:55:03 pm »
I've had  HCV since 1977 blood transfusion. My liver enzymes have been tracked since and usually normal. I've had 4 liver biopsy's the most resent April 2014 all showed stage 1. When the Peg Interferon 1st came out I went on it even though I wasn't having any issues I just wanted to get rid of this monkey. Well I went undetectable in 6 wks and finished the 48 wk treatment and a year later it was back. my liver functions were normal so I decided to wait.
 March of this year my ast/alt went crazy 400 and 700. My doctor doesn't know why it jumped up like that. We still waited it out to start Harvoni when it got approved.
 On Oct. 29 I started treatment.The day before my AST 385 / ALT 688 VL-4.2 Mil. My 1st week blood test AST 32,Alt 106. I just got blood work today will post the results soon as I get them.
I hope this will be the cure.
Keith
« Last Edit: November 12, 2014, 06:05:32 pm by Paleface »
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Started Harvoni / New to forum
« Reply #1 on: November 12, 2014, 04:26:40 pm »
Hi Keith,

Welcome and I hope Harvoni cures you and the beast is part of your past. Keep us updated on your progress. There is so much more hope where there wasn't any. Keep smiling.

~Mel~
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Paleface

  • Member
  • Posts: 35
Re: Started Harvoni / New to forum
« Reply #2 on: November 12, 2014, 06:04:32 pm »
Thanks Mel!!
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline Paleface

  • Member
  • Posts: 35
Re: Started Harvoni / New to forum
« Reply #3 on: November 18, 2014, 04:18:04 pm »
Update!! I just ot my 2 week test results back.
AST- 28  From 385
ALT- 35  From  688
HCV Quant.-  390  From 4,288,200
HCV log10 - 2.591  From 6.632

All this in 2 weeks I am on cloud 9!!! Whooo Hoooo!!!
Keith
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Started Harvoni / New to forum
« Reply #4 on: November 18, 2014, 06:12:27 pm »
Hi Keith!

Great news! Keep up the fight :)


~Mel~
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline penny

  • Member
  • Posts: 52
Re: Started Harvoni / New to forum
« Reply #5 on: November 18, 2014, 06:46:19 pm »
Wow paleface. Any sides?

Offline Mike

  • Member
  • Posts: 999
Re: Started Harvoni / New to forum
« Reply #6 on: November 18, 2014, 07:48:38 pm »
That's great news!!! ♪♫♪♫

https://www.youtube.com/watch?v=DhlPAj38rHc

Best wishes, Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Paleface

  • Member
  • Posts: 35
Re: Started Harvoni / New to forum
« Reply #7 on: November 18, 2014, 07:56:04 pm »
Hi Penny,  I have no noticeable side effects.  Maybe some headaches but I get sinus headaches so I can't tell the difference. I did the interferon for 48 weeks so I can't / won't complain about this treatment! !!! :-)
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline Paleface

  • Member
  • Posts: 35
Re: Started Harvoni / New to forum
« Reply #8 on: November 18, 2014, 08:04:01 pm »
Thanks  Mel and Mike !!!!
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline suzy

  • Newbie
  • Posts: 1
Re: Started Harvoni / New to forum
« Reply #9 on: November 22, 2014, 05:12:12 pm »
Also just started Harvoni, after trying Interferon, the peg-interferon and Ribavirin. So far, more tired and more headache than before, but feeling hopeful. I've had Hep C for about 40 years now. Was treated a couple of times with temporary improvements. Had to stop the ribavirin treatment after bad side effects. Liver is is in cirrhosis and I had liver cancer, now apparently clear. Hope for some improvement after the Harvoni treatment. My life has become almost unbearable because of the fatigue and terrible itching (stops me sleeping), as well as the other usual issues. I wanted to share after having benefited so much from other people's contributions — I thought it was time to give back.

Hang in there y'all!

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Started Harvoni / New to forum
« Reply #10 on: November 22, 2014, 06:24:28 pm »
Welcome Suzy,

Sounds like you have been through some tough times with the beast. This is going to help you finally get rid of it. Keep sharing; it feels really amazing to have the support of the members here.  I've learned so much I wouldn't have known and its a place to vent if you need to. I'm always open to a good YELLING PRIVATE session if you need that!

You can do this, you are going to win this time!!

~Mel~
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Paleface

  • Member
  • Posts: 35
Re: Started Harvoni / New to forum
« Reply #11 on: November 22, 2014, 08:12:02 pm »
Hi Suzy,  Thanks for sharing!! I hope for all our sakes this is the cure. Good luck and keep in touch. I go in for my 4 week tests this Weds. and I will post the results :-)
Keith
Hep C 1a
Blood Transfusion- 1977
2002-48 wks Peg Interferon+Ribavirin-relapsed 2003.
VL- 5,700,620
AST- 393
ALT- 717
Liver Biopsy- Stage 1-2
Oct.29,2014- 12 wks Harvoni
Jan.20,2015 Finished Harvoni Treatment-Undetectable
4 wk post- Undetected
8 wk post- Undetected
12 wk post- Undetected- "Cured"

Offline ma snart

  • Member
  • Posts: 65
Re: Started Harvoni / New to forum
« Reply #12 on: November 23, 2014, 10:32:53 am »
Day 1 of Harvoni led to lots of Nausea for my wife Helen.
Getting ready for day 2....
Snart

Previous history
Hi everyone
I just joined to post on behalf of my wife's road to  a cure, we are currently awaiting the FedEx delivery of her first dose of Harvoni, due by noon today.
I would like to share our experiences so far.
A little background first, Helen was diagnosed in 2005, suspect she was infected during a twin premmie delivery in which she lost one baby in 1983.
Completed 6 month treatment of Ribovarin and Peginterferon, almost killed her in 2006.
Have been going down hill over the last year or so, GI said we should wait for Harvoni due to past problems with interferon and soon as it was approved we started to apply for insurance benefits.
Latest biopsy showed it had progressed to stage 4 grade 3 cirrhosis???
Viral 8.5million
Doctor has a third party (Aureus Health)helping get all paperwork pushed thru.
Got the RX for 24 week treatment about two weeks ago, submitted all to Cigna
First denial was fairly routine in that they just wanted updated viral load.
Got results back Tuesday morning, Aureus resubmitted that day, got approval yesterday, 6 fills total, 75.00 copay, had the support path copay coupon, it covered all but 5.00 no other charges, Aureus shipped first bottle last night for Saturday delivery.
Just wanted to let all know to keep the faith, I called insurance company every day or two, don't stop pushing ever.
Feel like we hit the lottery, you could hear me scream across town.
Snart
Helen 54 yr old female
Geno 1B since 84 from transfusion
started Harvoni on 11-22-14 with 8.5 million viral
After 8 days 933 viral and normal AST and ALT
Week 10 viral load  UNDETECTED
Week 17    detected 19
Week 18    detected 21
Week 20    UNDETECTED   Doctor did prescribe Ribavirin, but have not taken it yet as we are thinking that weeks 17,18 had to have been mishandled.
All other test have shown normal levels.
Week 21 results  on Tuesday 4-21
Week 4 post Harvoni 24 week plan UNDETECTED!!

 


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