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Author Topic: S/O approved  (Read 14111 times)

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Offline trapper

  • Member
  • Posts: 56
S/O approved
« on: October 20, 2014, 04:52:04 pm »
Got approved this morning for S/O for 12 weeks.  Called Optium RX and they confirmed and will send 4 week supply to start on the 15 th of October.  I got approved through my appeal.  No thanks to my GI dr or his staff.  I think they are warehousing patients no matter what condition they are in to better themselves financially by buying hcv meds in bulk and making huge profits on them.  My thanks to hep mag  for information on how to appeal because that's how it got done.  I have a question on  immunizations and being on O/S treatment.  Can I get my hbv booster shot, flu shot or pneumonia shot while on O/S treatment?  Once again I thank this forum for your help.  and don't give up.  You have to stay on top of your case if you want to get something done.     Trapper
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Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: S/O approved
« Reply #1 on: October 20, 2014, 06:25:02 pm »
Congratulations! And yes, you can get all immunizations while on treatment.
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Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: S/O approved
« Reply #2 on: October 28, 2014, 04:23:20 am »
Thats such great news Trapper! We are only 4 days apart in our treatment with S/O and I fully expect us to beat this together! Hope you are tolerating the Meds with limited or no side effects. Please keep posting and let me know how you're doing! This forum and all of these brave warriors give me strength and hope every day.

~Mel~
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~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline trapper

  • Member
  • Posts: 56
Re: S/O approved
« Reply #3 on: October 28, 2014, 02:02:50 pm »
thanks mel  hope things go well for you.  been on s/o for 1 week now. started on the 22nd of oct.    no side effects and hope it stays that way.  any side effects with you? I'll be checking in on you to.  thanks mel.   g1, f-3, 26 mil viral load
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Offline trapper

  • Member
  • Posts: 56
Re: S/O approved
« Reply #4 on: October 31, 2014, 03:39:48 pm »
tenth day on s/o.  No side effects and hope I don't have any.  I was talking to pharmists  at optium pharm.  and he said not to eat grapefruits while on osylo,  seems to slow down absorbation  of osylo.  has anybody heard of this.  thanks trap
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Offline Bucky

  • Member
  • Posts: 341
Re: S/O approved
« Reply #5 on: October 31, 2014, 04:06:05 pm »
Quote from: trapper on October 31, 2014, 03:39:48 pm
tenth day on s/o.  No side effects and hope I don't have any.  I was talking to pharmists  at optium pharm.  and he said not to eat grapefruits while on osylo,  seems to slow down absorbation  of osylo.  has anybody heard of this.  thanks trap

Hello Trapper,
Glad you brought up the dangers of grapefruit. It significantly halts the absorption so you become toxic.
http://www.webmd.com/news/20121127/grapefruit-some-medications-risky
Bucky
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I HAVE SLAYED THE DRAGON.....CURED SVR24!

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: S/O approved
« Reply #6 on: November 02, 2014, 12:22:48 pm »
When Janssen  conducted Olysio and food absorption studies, the subjects didn't drink grapefruit. This tells us 2 things, 1) We don't know if Olysio interacts with grapefruit, and 2) there is a presumption that grapefruit will interact with grapefruit.

In short, I think you made a wise decision Trapper. Here is a little more info: http://hepatitiscnewdrugs.blogspot.com/2011/01/grapefruit-juice-dangerous-medication.html

Thank you for bringing this to our attention. 
Logged
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: S/O approved
« Reply #7 on: November 03, 2014, 09:09:21 am »
Hi Trapper,

Just checking in with you before I head to the doctor. The last few days have been tough on me. I am now day 24. It seems my Cirrhosis has decided to really rear it's ugly head and I have some fairly significant edema especially in my lower extremities. I can't get socks on my feet but was able to fit some older stretched out uggs to wear today. They are a little tight but I can't go barefoot in the cold weather :)
Still itching like crazy but again I think this is more due to the cirrhosis but I will let the doctors decided how to handle it. Keep on keeping on, smile at someone you don't know today they might need it, For me maybe I will do a random act of kindness for someone to pass on all the good I get from this forum. I am so thankful for all of you and for it's existence!

Doctor is over an hour away so I need to head out but have a great day and I will check in later.

~Mel~
Logged
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19
EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Bucky

  • Member
  • Posts: 341
Re: S/O approved
« Reply #8 on: November 03, 2014, 09:31:55 am »
Quote from: lporterrn on November 02, 2014, 12:22:48 pm
When Janssen  conducted Olysio and food absorption studies, the subjects didn't drink grapefruit. This tells us 2 things, 1) We don't know if Olysio interacts with grapefruit, and 2) there is a presumption that grapefruit will interact with grapefruit.

In short, I think you made a wise decision Trapper. Here is a little more info: http://hepatitiscnewdrugs.blogspot.com/2011/01/grapefruit-juice-dangerous-medication.html

Thank you for bringing this to our attention.

Over the years, I have had many meds that had a warning on the bottle concerning consumption of grapefruit. My former coworker was taking Metformin for her diabetes and was eating grapefruit to lose weight. Eating the grapefruit affected the absorption of her meds and her glucose levels went sky high. Yes the bottle had a warning, but she did not read "that" part.
Sometimes simple things can have a big impact .
Bucky

 
« Last Edit: November 03, 2014, 09:33:58 am by Bucky »
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I HAVE SLAYED THE DRAGON.....CURED SVR24!

Offline trapper

  • Member
  • Posts: 56
Re: S/O approved
« Reply #9 on: November 06, 2014, 09:49:30 pm »
been on o/s for 2 weeks now.  no  problems with meds.  taking them in morning with breckfast.  I think im a little more tired cause when sun goes down I go down.  drinking lots of h2o,  no headaches,  a little liver pain but had that before.  I hope it stays this way.  trap
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Offline badbradley

  • Member
  • Posts: 294
Re: S/O approved
« Reply #10 on: November 06, 2014, 11:48:01 pm »
Hey Trapper
   Glad to see your on treatment. I'm on same meds. 4 more doses to go!
I hope you SVR! - Give it a beatdown!!
                                                          Bad Brad
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Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline trapper

  • Member
  • Posts: 56
Re: S/O approved
« Reply #11 on: November 08, 2014, 09:22:11 am »

Bad Brad     your on same meds s/o  right,  high viral load,  and about done with treatment.   I also have a high viral load 26mil.  Im on 3week of treatment.  were you undected at 4 weeks ,  8 weeks  or when.  Im wondering with such a high viral load if not undected by 8 weeks if they will now want a person to go for another 12 weeks to make sure.  just wondering   thanks for info   trapper
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Offline badbradley

  • Member
  • Posts: 294
Re: S/O approved
« Reply #12 on: November 08, 2014, 10:32:36 am »
Hi Trapper   Actually I "HAD" a relatively low viral load - 860,000 at baseline. I was tested at week 4 and was undetectable. Enzymes dropped to normal range. Was not tested for viral load at week 8. Will test for viral load Tues. EOT. Fred220 was on same meds and Doc discontinued his treatment.Still detected at week 8. He had severe muscle and joint aches. There is still some debate on what treatment follows failed S/O. It appears Abbvies 3D combo is the treatment showing good results for failed S/O. I dont think they would extend treatment after 12 wks if your detected still at 8 weeks. I think that liver condition is more a factor than high viral load with these new meds.  Wishing you successful treatment.
                                                                         Brad
Logged
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24
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