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Author Topic: Genotype 3, Sovaldi and Ribavirin for 24 weeks  (Read 241090 times)

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Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #300 on: August 25, 2015, 07:17:52 pm »
Thank you Kim! I hope so :) looks like you are cured and have supported many people in this group. Can't wait to get this over with and be cured once and for all! I'll let y'all my progress :)

I very much hope I am cured. Won't know for certain until late October when I receive the results of my 12-week post-treatment labs. But I am ever hopeful. All of the new drugs have a very high success rate.

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Sookiesue2

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  • Posts: 14
  • I got this!!
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #301 on: August 25, 2015, 07:32:07 pm »
Fingers crossed Kim!!
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline janca

  • Member
  • Posts: 8
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #302 on: August 26, 2015, 12:44:41 am »
Hi Janca. Sorry to hear you are having so many problems with side effects. I had diarrhea for a week when I was on treatment. Others here recommended the "BRAT" diet for that. I tried it after a week, and my diarrhea stopped almost immediately. Could have been coincidence, but I think it was the BRAT diet: Bananas, Rice, Applesauce, Toast. (Rice and toast are supposed to be white, and applesauce is suppose to be from peeled apples so there is no roughage to irritate/stimulate digestive system.)

Maybe others here will have other suggestions. I too found it hard to eat during treatment.

Best of luck to you,
kim


Thanks everyone! I started the brat diet today and have increased my water intake even more and I feel better today then I have int he last two weeks,

Offline cazbyrd

  • Member
  • Posts: 24
  • If healthy you have everything
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #303 on: August 26, 2015, 05:51:43 pm »
Hi Janca..glad you're feeling better today...Good luck to you each day after...

CAROL
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline janca

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  • Posts: 8
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #304 on: August 26, 2015, 07:40:59 pm »
Hi Janca..glad you're feeling better today...Good luck to you each day after...

CAROL
thanks Carol.

Today I saw my Doc and the hep C nurse. After filling me in on the legality of obtaining and taking drugs brought in from India they wished me luck, booked my blood test for tomorrow and then again after one month. Lol and after that they asked  for my contact in India...hmmm.

Offline TexasC+

  • Member
  • Posts: 72
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #305 on: September 02, 2015, 12:26:53 pm »
On week 14 here!! Just had my viral load done this am. VND I hope. Will know in 5-7 days. 10 weeks to go.
I eat some hard cheese every night. I love italian cheese so thats what I choose. Has kept the loose stools under control.
Janica I am glad to read your feeling better. Are the drugs from India the same brand name or generics?
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline MontanaBlue

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  • Posts: 20
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #306 on: September 06, 2015, 07:33:03 pm »
Started week 20 today! Just had VL and still UD. All blood test in normal range. Seems like side effects are tapering off. finally!!! I just hope I don't get another side effect in the next 4 weeks. I must of had all of the side effects. UGH!!! I'm so ready to get off all meds and feel normal again. I will have another VL test done the day after my last pill. I will post my results. Then again in January for the big one.

For all who have just started, please stick with it. It gets easier.

Good luck to all.

Offline LisaMarie

  • Member
  • Posts: 43
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #307 on: September 07, 2015, 10:00:09 am »
Hi everyone, I am down to 2 weeks left! Side effects last week were minimal. I went through some scary times due to some confusion with Specialty pharmacy company and without some help from a WONDERFUL team , nurse, assistant, and Dr I would have been without meds for the 10 days it took to get it all straightened out. It sure makes a difference when your Healthcare team truly cares.
Now just waiting for MRI results concerning septiated complex cyst on liver. It's been of some concern over the last 6 months, and hasn't gone away. I have learned that out Genotype is considered somewhat more aggressive and, as we know by our tx regimine compared to the other G types, it is more stubborn to treat. So theory has it that G3 caused this cyst. It was my hope that it would go away as the Virus was going away..... anyone know if this is possible in time? That IF I beat the virus if the cyst may then shrink and go away.
Thanks.
Much compassion and respect to each of you.
LisaMarie
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline msu

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  • Posts: 12
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #308 on: September 08, 2015, 02:55:07 am »
Hi Lisa

Nice to hear that you are doing well in the last part of the treatment.

best of luck for your SVR!

Cheers
MSU
GT3A
Sovaldi+Riba for 24 Weeks
VL before treatment 2.9 million
Treatment started 8.8.15

Offline TexasC+

  • Member
  • Posts: 72
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #309 on: September 08, 2015, 08:30:30 pm »
day 2 of week 15. Sept 2cnd lab results today. VIRUS NOT DETECTED!!!! 9 weeks to go after this one.
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #310 on: September 08, 2015, 08:39:32 pm »
day 2 of week 15. Sept 2cnd lab results today. VIRUS NOT DETECTED!!!! 9 weeks to go after this one.

Congrats Mary! :-)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline cazbyrd

  • Member
  • Posts: 24
  • If healthy you have everything
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #311 on: September 09, 2015, 11:40:59 am »
YAY...went from 18 DETECTED on 4 week labs to <12 UNDETECTED on 8 week labs...Hgb came up from 9.9 to 10.5 after lowering my ribavirin to 800mg...Dr says to stay at this dosage...everything looks good...side effects are minimal...I'm psyched...Congratulations to TexasC+..LisaMarie..MontanaBlue...Good luck to us all...keep drinking that water  8)
CAROL
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline LisaMarie

  • Member
  • Posts: 43
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #312 on: September 12, 2015, 10:38:07 am »
Congratulations ! Sending happy and positive thoughts everyone's way.
8 more days.....
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline cazbyrd

  • Member
  • Posts: 24
  • If healthy you have everything
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #313 on: September 12, 2015, 12:30:23 pm »
Best luck to you on SVR coming up soon... 8)
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline LisaMarie

  • Member
  • Posts: 43
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #314 on: September 13, 2015, 09:04:36 pm »
Does anyone have any positive post tx news to share?
Thanks.
I need it. There's another Hep community site and it's so depressing. I have 7 days left and was looking forward to life after tx.
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline Greatful

  • Member
  • Posts: 15
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #315 on: September 15, 2015, 10:05:43 am »
Lisa Marie, I have some good news! I posted earlier that I had broken my wrist on 7/4, had surgery & plate implanted 7/10. Everyone was telling me I would have a long recovery, 3-6 months. In 6 weeks I was out of the splint & had impressive bone growth. Now at two months I'm almost back to normal strength & flexibility.

I'm one week behind you in treatment, and so glad this is almost over. Our bodies have amazing healing powers and it sounds like you are doing well. Block out the negative thoughts and comments. Like many on tx, I've had to withdraw from a lot of my social life, and become the one who "rests". My husband has not stopped drinking alcohol in solidarity with me, and continues to go out without me as I'm too tired. Thankfully I have Netflix and four animals to keep me company!

Our six month journey is almost over, let's just be glad we made it! The odds are on our side that we are cured.
Grace
Genotype 3
Tx: Sovaldi, Ribavirin
Started 24 week tx April 7, 2015

Offline Sookiesue2

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  • Posts: 14
  • I got this!!
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #316 on: September 15, 2015, 10:42:21 am »
Congratulations to all of you on your last few days of treatment on Sovaldi/RIBA! I'm way behind you you, only on day 6! So far, so good, side effects have been minimal and hope it stays that way! Like you Gracie, I am pretty much canceling my social life, I live in California where we have the finest wines and love sharing a nice bottle with friends. I was afraid that I would miss it, but so far I'm psyched to make the best out of this 6 months and just take care of my body, not missing my wine yet :) my husband still drinks a little beer, but that doesn't bother me and he stays home with me and my fur babies :) the RIBA gives me bursts of energy and hoping I can use that to accomplish some fun sewing and canning projects this fall. Bought a 1/2 bushel of apples Sunday to can some applesauce and apple pie filling. I was also afraid of insomnia from the RIBA, but have been sleeping like a rock, fingers crossed that continues. I'll be following you guys and wishing us all a hep C free life!

Teri xx
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline LisaMarie

  • Member
  • Posts: 43
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #317 on: September 15, 2015, 01:59:15 pm »
Oh Grace, how far we've come!  Thank you both for taking time out of your tx to respond. Teri, please stay positive. It was all such a process for me and the not drinking socially was difficult at first.... anyway, both your posts are right on, I rest and keep to myself. Just trying to move to "recovery from tx" phase, lol.
Much love and respect to you both.
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline Sookiesue2

  • Member
  • Posts: 14
  • I got this!!
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #318 on: September 15, 2015, 02:19:09 pm »
Thanks Lisa Marie! Yea, I passed up our local art and wine festival this weekend and canceling the upcoming Pumpkin Festival as well as a Thankgiving camping trip :( but it's all good, just a bump in the road to good health, which is way more important!  :-*
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline TexasC+

  • Member
  • Posts: 72
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #319 on: September 15, 2015, 09:31:43 pm »
Week 16 here of riba and sovaldi.  I have worked the whole time. Side effects are not to bad : itchy sometimes, do not sleep to well and some headache for an hour or so after the dose. All well controlled by drinking tons of water. I am VND as of 9/2.
This treatment works. I try to eat well, stay busy and get fresh air. I wear sun block as the sun is not your friend on riba.
Insurance denied me at first. My doc took care of the paper work. They told me up front to not worry about denial letters.
Stay positive and remember your 24 weeks will end and you can be cured.
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline MontanaBlue

  • Member
  • Posts: 20
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #320 on: September 15, 2015, 10:27:10 pm »
Hello brave ones,

Anyone know why some people are on a 12 week and not a 24 week with Ribavirin?

All have geno 3a....just wondering.

can you take solvaldi without ribavirin?

Peace to all!


Offline Sookiesue2

  • Member
  • Posts: 14
  • I got this!!
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #321 on: September 16, 2015, 12:26:05 am »
Than you Texas! Did not know about the sun, I walk my dogs every day, at least fall is coming  :)
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #322 on: September 16, 2015, 04:17:52 am »
Hello All,
Will be starting my pills in the morning, but not sure if this is the right thread to post on. looks like everyone here is on Sovaldi and Ribavirin. I also have to take Daklinza. so should I start a new thread for this treatment? or did I miss the thread for this combination?
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline Philadelphia

  • Global Moderator
  • Member
  • Posts: 1,157
  • It only looks like I know what I'm doing
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #323 on: September 16, 2015, 07:34:32 am »
Hi chuck3a and welcome! I started my own thread even though there were a couple of others about similar treatments. I wanted to keep a sort of journal of what I was doing, how I was responding and how I felt.

Feel free to do the same, or piggy back on a thread that is the next best fit if you'd rather.

Good luck! You've already got a sig - you are all over this stuff!
CURED SVR24  Class of 2015
Wk 12 post EOT 30.11.15: ALT 14 AST 22 GGT 22 VL UND
Week 19 07.08.15: ALT 17 AST 23 GGT 25
Week 12 18.06.15: ALT 21 AST 23 GGT 28
Week 8 25.05.15: ALT 23 AST 27 GGT 30 VL UND
Week 4 20.04.14: ALT 30 AST 36 VL 40
Treatment start 23.03.15: ALT 137 AST 185 VL 342,600
Cirrhosis Child-Pugh A, Genotype 1a - Viekira Pak + riba 24 weeks
Total failure interferon/ribavirin/boceprovir Mar 2013
https://www.hepmag.com/blogger/grace-campbell

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #324 on: September 16, 2015, 10:22:13 am »
Thanks Philadelphia, I think I am going to start a new thread. due to the fact that adding Daklinza to the mix, it has a some different side effects not covered it in this thread.  Thanks, Chuck
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline badbradley

  • Member
  • Posts: 294
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #325 on: September 16, 2015, 10:39:22 am »
Hello chuck3a             Welcome!  Another new forum member, Mollythedog, may be treating soon on Daklinza. Her posts are on another thread, "will our S/O please post EOT results 4, 12, 24". It is under the topic Post treatment. She has very recently learned of her relapse on 12wks of Sovaldi/Olysio.
    It is a great idea to start a new thread for Daklinza treatment. I hope your treatment goes well. Have a good day!
                                                Brad
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline mollythedog

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  • Posts: 36
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #326 on: September 16, 2015, 06:04:14 pm »
Hello Cuck,
I too am starting same therapy end of month. Failed on S/O plus 400 ribavirina 12 weeks. I had LT almost 2 years ago then hep C gt1a came backl briinging the new liver to F4 in November last year. Did treatment from March to June then they recommended 24 weeks but it was too late for me. I am now hoping that retreatment will make the difference being 24 wks. I was undetected at 4 and 12 weeks during treatment and had next blood work 12 EOT. so don't know how long I stayed UND. What are the s/e with this? I mean Daklinza? I guess I'll have 1000 /day so probably will experience some s/e this time. Relapse is disappointing to say the least. I wish you a smooth time on treatment and undetected 12/24 weeks after. I'll be catching the same train soon so save me a seat and as you know, a train journey goes much quicker if you have someone to talk to. All the best, Molly

Offline mollythedog

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  • Posts: 36
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #327 on: September 16, 2015, 06:08:33 pm »
Sorry Chuck, I meant 1000 ribavirina.

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #328 on: September 16, 2015, 10:06:47 pm »
Hi molly,
this is what is on the info sheet they gave me
This information is for MALE patients only. it does NOT include important information for FEMALE patients
for daclatasvir aka daklinza.
rash, hives, itching, red, swollen blistered, or peeling skin with or without fever. wheezing, tightness in the chest or throat, trouble breathing or talking, unusual hoarseness, or swelling of the mouth, face, lips, tongue or throat. other minor s/e are headache, feeling tired or weak, upset stomach.

 if taken with amiodarone, sofosbuvir and certain other hep c drugs, sometimes it has been deadly, slow heartbeat has happened up to 2 weeks after starting hep c treatment, let your doctor know if signs of slow heartbeat like chest pain, confusion, dizziness, passing out or near-passing out, memory problems, shortness of breath, tiredness or weakness
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline mollythedog

  • Member
  • Posts: 36
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #329 on: September 17, 2015, 04:07:58 am »
Oh my God! Is this only Daklinza or also Ledispavir? Sounds pretty grim doesn't it?

Offline badbradley

  • Member
  • Posts: 294
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #330 on: September 17, 2015, 10:21:26 am »
Molly
      Here is Daklinza prescribing information.http://www.daklinzahcp.bmscustomerconnect.com/treating/

I do not have the actual paper in hand but usually for those symptoms they advise you to report them to your doctor if any of those develop and that is why they are listed. Those are not common side effects.

Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline chuck3a

  • Member
  • Posts: 48
  • I'm Neo, his guardian angel now
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #331 on: September 17, 2015, 11:37:59 am »
Thanks Brad,
I really appreciate the link that you did, I am still a newbie on linking in this forum. and to Molly, sorry about scaring you. from what my care team said, they went to a informational meeting about this pill the day before I started my tx and most of the people just experienced the minor s/e.
Chuck
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline mollythedog

  • Member
  • Posts: 36
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #332 on: September 17, 2015, 04:45:47 pm »
Hi all, Molly Here, well thanks to Brad I understand more about resistance but as he said, the more in-depth you go, the more you realise you're unqualified to have full picture of your situation. My doc says Daklinza is pangenotype yet apart from one of Brad's links it seems to be for gt3/3a. I hope this isn't a question of conflict with Gilead. Yes, they want the full treatment to be in house and that could be questionable with my specialist. I must be honest, I'm still working on handing over the problem, spiritually, easier said than done. Sure I don't want treatment less likely to work for me, gt1a f3/4 and transplanted to boot. But I can't stress out on this, I don't want to lose my everyday living.  I teach and translate, take part in occasional short films, help my daughter study at Uni, go swimming 4 times a week (not since relapse last week), I have a dog, Molly, hence the nickname and have short breaks in Tuscany or nice places with my friends now and again. Simple but fulfilling life. All this came as a big surprise in June 2012, hcc formed in late July 2013, chemio ablation partly successful in October and 4 days later a new liver. Shock. Had to let all that out. LT was a great success, hcv not quite so. My prognosis is not good but I really don't want to consider that. I look and feel fine. No s/e from S/O plus riba. I think this filthy bastard

Offline badbradley

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #333 on: September 17, 2015, 05:39:32 pm »
Hi Molly,
          Don't stress. From links that I provided earlier I concluded that you have a very good chance of clearing on this regimen. It is only FDA approved here in United States for Geno type 3 but in fact is pangenotypic and is very effective for other genotypes.  Hope this helps. Please don't stress out. You are going to clear this time. It can be overwhelming studying this information and some of it is conflicting, mostly because of outdated material.
                                                                                   Brad

http://www.infohep.org/Hepatitis-C-treatment-factsheet-Daclatasvir-iDaklinzai/page/2911744/

I found this also
http://news.bms.com/press-release/rd-news/european-commission-approves-bristol-myers-squibbs-daklinza-daclatasvir-across

http://news.bms.com/press-release/rd-news/european-commission-approves-bristol-myers-squibbs-daklinza-daclatasvir-across

Daclatasvir (Daklinza) has been approved in Europe for use with Sovaldi since August 2014 for multiple genotypes and in those that failed previous treatment that contained an NS3 protease inhibitor.
And I also just found  this 
http://hepatitiscnewdrugs.blogspot.com/2015/05/fda-okays-hep-c-investigational-combo.html

This is encouraging info for your profile. I hope it helps.
« Last Edit: September 17, 2015, 09:22:19 pm by badbradley »
Geno 1a
Sov/Oly 12wks - relapse
Har/Riba 12wks
Alt-16  Ast-17 SVR - 12
Alt-15  Ast-14 SVR - 24

Offline mollythedog

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #334 on: September 18, 2015, 03:56:34 am »
Morning Brad,
What a kind person you are. Thank you. I am trying so hard not to stress, yet I dream of hepatitis, treatment combinations, side effects, all kinds of nasty situations. I'll work on letting go again today, all day.  Thanks for the links. Please post when you get treatment approval. All the very best meantime. good luck chuck3a and hope you sail through tx.

Offline LisaMarie

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #335 on: September 18, 2015, 06:51:54 am »
MontanaBlue, no! Can't take sovaldi without Riba...
Can't wait to be done. I had very few side effects, but Def had them, I have THREE MORE DAYS!!! I did have headaches (first side effect) water water water solves it.
Then on to 5 days fine and 3 weeks nausea and wow it was a roller coaster IF I paid attention. First day in sun weird line rash, but never again got it and I was out in sun more than I planned because I started my tx in April. Bad idea. Lol. The sun bothered me. It was bright. I'm in texas... alot of things bothered me. I think support, water, staying busy, staying positive, and riding the waves of really, compared to past tx's, minor side effects, no  over all. I admit, some days I was just not happy, some days I was like, "SCREW THIS, I'm not taking any more pills, I quit."... but that's not rational and must be noted that it was part of MY journey, the weird thinking was. I felt weirdly saturated at week 2. Like cotton in every part of me. Full . Saturated. It's mental, I just said YES! GO MEDS KILL THE VIRUS I WILL SUPPORT YOU MEDICATION BY POSITIVE THINKING OR GETTING POSITIVE SUPPORT!
I want you all to know... I never thought I'd make it. I hate meds except fun ones. I like to drink on weekends. I treasure my body, and my mental sharpness. But I did it. I did it. You can too.
LisaMarie
forgive mistakes in spelling and punctuation. I'm on a cell phone
And not gonna check it. :)
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline LisaMarie

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #336 on: September 18, 2015, 07:07:41 am »
Another other thought to hopefully help y'all:
  I do work for a Gastroenterologist.... kind of ironic, but I choose not to use my office. Not important why. but anyway It gives me the opportunity to see what real liver disease does, I am able to look in the eye of those with ascites , with those that didn't have this medication and now are desperately fighting for their lives and fighting to now get the medicine when honestly it is probably too late as far as the advanced stages of liver diseas3 they are in. This medicine gives so many people hope regardless It breaks my heart to see the devastation Hepatitis C does on some people's bodies. Please please keep that in mind on the days you get discouraged or think you can't handle it or, like me, wonder what the hell you are doing because you think you might have enjoyed life better and felt better before this treatment. The days you question everything, just remember, Hep C is the enemy to our bodies and this well researched medicine is the closest possibility to a cure we'll ever have.
Wish I could encourage each of you.
please hang in there.
Excercise daily, drink water, get a supportive hug from someone.
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline Sookiesue2

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #337 on: September 18, 2015, 10:38:27 am »
Than you so much for your inspiration Lisa Marie! I'm on day 8 of Sovaldi/RIBA and almost 2 weekends down without my beloved wine and I feel great. Water, water and more water, exercise, healthy food and a positive attitude that you're killing the dragon has been working foe me so far :) I have a lot of energy and so far the headaches and nausea has been vey minimal, knock on wood!!
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline LisaMarie

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #338 on: September 20, 2015, 09:54:05 am »
Your welcome. Please hang in there. I see these harvoni commercials, 8 weeks. 1 pill. Well, we with G3a don't have that 1 pill luxury and must get it in our heads that 6 months is what it is- longer then the 8, more side effects with Riba, but still a huge medical break through for Hep C G3 cure! Ups n downs but mostly the length of tx time was tough for me... but here it is... last day. Wow. Yours will come too. Survive. Conquer, defeat!!
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline Sookiesue2

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #339 on: September 20, 2015, 10:45:37 am »
Congratulations Lisa Marie!! Can't wait for the last pill! Us Genotype 3's do have the longest and hardest treatment and my 10th day here is hardly a dent! This weekend was tough due to a heat wave here at our beach town, so wanted to be on the beach drinking wine but I stayed home and tried to stay productive. Looking forward to cooler fall and winter hibernation weather. I will survive, conquer and defeat!! Can't wait to hear about your 4 week after treatment labs! 22 weeks to go!! Ugh! LOL  ::)

Teri xx
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline LisaMarie

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #340 on: September 21, 2015, 06:26:25 am »
On to the gym this morning.... day 1 of Phase 2 of treatment: put up all signs of medicine, try to overcome the subtle, low key anxiety that must be a result of the meds, even the psychosomatic effects of TAKING the meds and going to try and  do some light cardio. You know, there are after effects, lingering effects....... doctors can't tell anyone how long or to what degree they last. So, in my mind, 6 month mark is end of phase 1. (Actually phase 1 should be the process of GETTING the medicine....but that's another story.... sigh...), Next 12 weeks is when virus either comes out of hiding from tissues and organs , reproduces, rearing it's ugly head in labs results  >:(  OR, DOESN'T EVER SHOW ITS UGLY FACE AGAIN.  :D ;D
 that's reality folks.
Stay strong, rest, don't get depressed. You can do it!!!!
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline LisaMarie

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #341 on: September 21, 2015, 06:31:37 am »
Teri, I live in Texas and summer time is rough here too... always bright, hot, sunny. I agree, winter time is hibernation time and may work better for you as far as heat and social activities! I'm really rooting for each of you who have just started. So much advice to give but really can't because we are all unique in our make up and disease stage. Blanket advice, again ^^^ stay strong, don't give up, seek positivety.
LisaMarie
GT 3a
Tx: Sovaldi, Ribavirin 800 mg
Started 24 week tx April 5, 2015
EOT 9/19/15

Offline Sookiesue2

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #342 on: September 21, 2015, 10:41:13 am »
Good morning Lisa Marie!

Have fun at the gym and I agree you are in phase 2 and  I pray for phase 2 to be virus free blood work!! I'm on day 11 and am going to yoga today for the first time since I started treatment. I think I'm ready, I've spent the last 11 days getting used to side effects which have been minimal so far. Staying positive! Keep us posted on your after treatment journey, I love following you since we are on the same oh so long treatment :) have a great day!!!

Teri xx
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #343 on: September 26, 2015, 08:37:13 pm »
Hi there all you GT3's...I'm 1/2 way through Tx as of last Thursday..Yay for me...Sx's have been minimal although I've probably experienced most of them a time or 2...they just didn't hang around very long...I just started my 13th week & thought it would be smooth sailing here on out but I woke up Friday morning with several sores inside of my mouth...I've had these off & on during Tx  but usually go away within a few hours...I also itch like the dickens & feel like a million little creepy crawlies are running all over my body...Wow...whats happening? any ideas from any of you...has this happened to anyone else at this stage? HELP... :-\
Best wishes to all.... 8)
CAROL
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #344 on: September 26, 2015, 09:00:54 pm »
Hi there all you GT3's...I'm 1/2 way through Tx as of last Thursday..Yay for me...Sx's have been minimal although I've probably experienced most of them a time or 2...they just didn't hang around very long...I just started my 13th week & thought it would be smooth sailing here on out but I woke up Friday morning with several sores inside of my mouth...I've had these off & on during Tx  but usually go away within a few hours...I also itch like the dickens & feel like a million little creepy crawlies are running all over my body...Wow...whats happening? any ideas from any of you...has this happened to anyone else at this stage? HELP... :-\
Best wishes to all.... 8)
CAROL

Hi Carol. Congrats on passing your halfway point! :) As for the mouth sores and itching, I think those are both ribavirin-related. I had both.

For the mouth sores, you can google "oral lichen planus". That might be what's going on. Or it might be something else. Best thing for me was to really double down on oral hygiene - lots of regular brushing and flossing throughout day… more than usual. And rinsing with warm salt water. Swoosh it in your mouth for as long as possible before spitting it out. I think oral lichen planus wants acidic environment, so the alkalinity of salt water lessens it.

As for itching, in my case that was the riba rash, which for me only lasted a couple of weeks coinciding with my night sweats on treatment. And it was confined to my chest and upper back where my wet T-shirt was stuck to my body when I woke up. So I associated it with moisture. I kept that skin as clean as I could with soap and water and then always put potato starch on it to dry it out. The red bumps dried up and fell off and that was the end of it.

Some people with really bad itching problem on treatment are using Gold Bond lotion or benadryl to sleep at night. Mine was never that itchy.

good luck!
kim :)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #345 on: September 26, 2015, 10:09:34 pm »
Thanks Kim...I knew if anyone could help me it'd be you...I started using the warm water & salt & it already feels better...I also googled "oral lichen planus"...alot of good info there...I'll have to get potato starch & give that a try...I live in AZ & the heat is horrendous right now...My skin is super dry & it seems like I'm getting psoriasis on my left elbow...don't know for sure cause never had it before...my sweat feels sticky creamy & yucky all of a sudden like all the demons are leaving my body by any means...I already take Atarax @ night to help me sleep & it controls my itching during that time... we can do this...

CAROL
« Last Edit: September 26, 2015, 10:14:36 pm by cazbyrd »
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline TXLastTime

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #346 on: October 03, 2015, 02:25:16 am »
Just a update I've been on Solvadi/Riba for about 16 weeks. Geno 3 contracted around 1988-1989 and had a 5million viral load before treatment. I've been un-detectable for the last few months. I have 8 weeks to go under my 24 week plan and then done with treatment. My biggest test is post followup at the 6 month mark. I was un-detectable before and did treatment back about 2 years ago with Interferon/Riba but it came back. I will make sure to throw away all razors/toothbrushes this time. I do not know why it came back and neither do the doctors.

I hope this is my last treatment this time.

I do not deal with stressful situations well under this treatment and I have what you may call RibaRage and have a short fuse. Tired all the time and have to take naps. I will be glad when its over!

 

Offline TexasC+

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #347 on: October 04, 2015, 10:07:17 am »
Tomorrow I start week 19!! Almost there for my 24 weeks. Labs on 9/24 looked good. Last viral load VND.
I eat lots of ice pops and Italian ices this and using good oral hygiene have kept the mouth sores at bay.
As for itch I use sun screen, ivory soap to wash, dreft baby laundry detergent and avoid any processed foods with the exception of the ice pops.
I drink tons of water and on days I dont get as much in I feel more itchy. I don't drink any sodas or juice that's not real juice. NO GRAPEFRUIT juice as its contraindicated with the meds.
Tx last time I am sending up a prayer this is your last time. I found the riba moods to be controlled best by staying busy and positive. I also have a great deal of flowers and plants I tend to in the evening after work, This is a great stress relief. Keep telling yourself " its the medicine and its not me"  that has worked for me pretty well. I also have some utube meditations I have found that  I listen to. I have found a few that have really helped. They are free and I just book marked them on my phone.  Jody Whitley is one I found has lots of them on there but there are a lot of them.
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #348 on: October 04, 2015, 02:57:01 pm »
Already in week 14...moving right along...Had labs done...VL is UND...but Hgb is back down to 9 so Dr lowered my RBV again...I'm down to 400mg...1 in morning & 1 at night...hoping this is enough to keep me from relapsing...the itchy problems I had last weekend were all gone by Monday so it looks like the only SX I have is the Anemia...Everyone have a good day..

CAROL
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline janca

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #349 on: October 13, 2015, 10:14:24 am »
Well, it has now been 9 weeks. My viral load is undetectable which is awesome! My anemia is so bad I cannot really function and my riba has been decreased by one pill. I am a little worried as I weigh 206 pounds but the doctor says my blood is totally saturated. Do not have much of an appetite but I am trying to eat healthy and drink lots of water. 15 weeks to go! I hope you all are having an easier time of it then me :)

Offline TexasC+

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #350 on: October 13, 2015, 12:49:08 pm »
Ribavirin can have some nasty side effects. I just tell muself its the drug and not me. I will finish and be able to celebrate being hep c free. I have 4 weeks 5 days to go.
Stay the course!!!
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline janca

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #351 on: October 13, 2015, 12:51:12 pm »
I am hanging in there :) Glad you are at the end!

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #352 on: October 13, 2015, 01:35:28 pm »
Well, it has now been 9 weeks. My viral load is undetectable which is awesome! My anemia is so bad I cannot really function and my riba has been decreased by one pill. I am a little worried as I weigh 206 pounds but the doctor says my blood is totally saturated. Do not have much of an appetite but I am trying to eat healthy and drink lots of water. 15 weeks to go! I hope you all are having an easier time of it then me :)

Fantastic that you are now undetected janca! Congrats!

Yes, riba can be tough. I just had it for 12 weeks, but the anemia made life difficult and I couldn't do a whole lot. I too had serious appetite suppression during treatment. It was very hard for me to eat healthy on tx but I did my best. I wouldn't worry about being dose-reduced by one pill. Your doctor is right about your blood being saturated with it.

You'll make it through, and a new life will await you! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline janca

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #353 on: October 14, 2015, 04:47:32 pm »
Thanks Kim!

Offline belle3375

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #354 on: October 15, 2015, 02:11:31 pm »
I started treatment 10/9/2015 and so far so good, the most I've experienced is a metal taste in my mouth and occasional head aches. Other than that I'm excited to finally get this going and put it in my past.
GT3
Diagnosed 4/26/2015

Offline TexasC+

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #355 on: October 23, 2015, 10:08:29 am »
What an amazing feeling to open that last box of Riba.( Mine comes in packs of 4 ) 3 weeks 2 days to go!!
24 weeks seems like  a long time when you start , but you get through it.
Not the best morning for me so I am going to do the unthinkable and stay home from work. I never miss and often work 16 -20 hours a day. Riba made me not sleep well so I filled the time with positive and productive work.
The fight is real and the victory is finally possible with new meds.
 
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline CE

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  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #356 on: October 23, 2015, 12:31:54 pm »
Hi all,
I started this thread when I started treatment a year ago, and I think it only appropriate that I post my end results on it.
I am so overwhelmed with emotion right now! I just got my 24 week post treatment results and I am SVR24, CURED!!!  I was very apprehensive to hear my results as that fear was always in the back of my mind that is would not work. But ALLELUIA!!
I feel pretty good; my hair is growing again, I lost 12 pounds (eating better and wanting to lose weight), and my outlook on life is so different. I enjoy the little things and find myself more patient and kinder.
I want to thank all my kindred spirits on here for your support and sharing your experiences. You all helped me because only you know how it feels. Bless you all and I wish the very best for you. SVR FOR ALL. It will happen.
Take care.
Chris
« Last Edit: October 23, 2015, 05:59:50 pm by CE »
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline slats1056

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  • SVR to all and to all a good life!
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #357 on: October 23, 2015, 01:55:20 pm »
  Super Happy for You CE!!!! Very appropriate, open to close. Long time coming. Your sentiment matches up with My personal message. Just finished Tx. 2 & 1/2 weeks ago and playing the waiting game Myself.  Good to know that the culmination of Your journey is here and that You are SVR and Happy. Big changes behind You as well as ahead!!!!!!
 I know that finding the forums through Lucinda's' blog has helped Me greatly. Always nice to have a sympathetic ear and a virtual shoulder when needed. Good for You and God Bless Us All!!!!!!!!!!!! Time marches on.
73 non ab 98 hep c refused pegint/riba
6-15 Gen.1b 1/2 MIL ALT72 AST37 No cirrhosis
7-15  Harvoni 12 weeks
10-14-15 EOT VIRAL LOAD NON-DET  
12-30-15 EOT+12 VIRAL LOAD NON DET  SVR12            8-9-18 HCV LOAD 1.02IU/ml AST22  ALT30 RELAPSE?
9-18-18 confirmed gt 1b relapse
10-16-18 approved 16 weeks Mavyret

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #358 on: October 23, 2015, 02:20:14 pm »
Hi all,
I started this thread when I stared treatment a year ago, and I think it only appropriate that I post my end results on it.
I am so overwhelmed with emotion right now! I just got my 24 week post treatment results and I am SVR24, CURED!!!  I was very apprehensive to hear my results as that fear was always in the back of my mind that is would not work. But ALLELUIA!!
I feel pretty good; my hair is growing again, I lost 12 pounds (eating better and wanting to lose weight), and my outlook on life is so different. I enjoy the little things and find myself more patient and kinder.
I want to thank all my kindred spirits on here for your support and sharing your experiences. You all helped me because only you know how it feels. Bless you all and I wish the very best for you. SVR FOR ALL. It will happen.
Take care.
Chris

Fantastic news, Chris!!! Congratulations on your victory and your new life free of Hep C!  :D

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline TexasC+

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #359 on: November 02, 2015, 06:17:58 pm »
Way to go Chris!!! I have 1 week 6 days left of my 24. I can not wait to be done with the treatment.
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline mollythedog

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #360 on: November 24, 2015, 11:32:17 am »
Hi chuck3 and everyone on sov/daklinza ribs 24 weeks
I relapsed 12 wks Eot on sov/oly riba 400mg for 12 weeks. I am 2 years post transplant hcv relapsed. Week 6 into TX and trying to recover from gastrointestinal virus going around here. Also have anaemia 10.0 last week so now on 600 mg ribavirina till it stabilizes. Feeling quite drained of energy, cold and sleeping badly, very dry skin but no rash. Must drink more water. Well I see all is going well for you Chuck and that's encouraging. After 4 weeks my Vl was 79 from almost 4 mln. Hope to get ud in a couple of weeks, second time around is a little more complicated but I think feeling fluish makes me somewhat negative. Of course I am worried that it may not work again but mainly don't think about results so long away yet. With winter coming in I have to be careful of catching anything as I take immune suppressants to avoid organ rejection. Reading this I sound like a physical wreck !!!!!! Yet I look as healthy as a butcher's knife hahaha. I hate complaining too so it's great to have somewhere to vent my feelings. Do you think 600mg is okay? I'm 5'4" and 8 stones 2 lbs more or less. Well will prepare a quiet evening with a film. Best wishes

Offline TexasC+

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #361 on: November 24, 2015, 06:23:00 pm »
I finished 11/14/15 most post labs were VND.
I am so happy to not have to have the alarm on my phone go off 2 times a day.
Side effects are greatly reduced. Next lab in 3 months. Post treatment md visit is 12/10/15.
Molly drinking water and staying positive helped me a lot.

CE congrats!!!
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline chuck3a

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #362 on: December 02, 2015, 03:22:21 am »
Hi Molly,
the riba's may be what is causing the anemia with you, at least it was for me. my GI had me going in for a EOP injection when my HGB dropped to 9.8, and he had me take 1 less riba pill a day. so 4 instead of 5. so I am at 800mg a day now. the first time I got the shot it was at 8.9, 2 weeks later it was at 9.7 right before the second one. when it gets above 10.0, they will stop the injections. I can tell that there is a big change with my being tired and rundown all the time. I feel more active now, not as tired as I was all the time. you may want to look into that if your HGB drops below 10.0. you can google EOP injections, I found it on a mayo clinic information thread. 
diagnosed 2008 hep c 3a
viral load of 1656491 08/2015
treatment 2/2009 - 7/2009 pegasys and ribapak  failed
treatment starting: 09//16/2015 for 24 wks daklinza, sovaldi, and ribavirin
4/30/2013 alt - 133  ast - 143
7/24/2015 alt - 65    ast - 73   vl - 1656491
9/29/2015 alt - 21    ast - 24
10/14/2015 alt - 22   ast - 26   vl - not det.
11/11/2015 alt - 15   ast - 22
12-15-2015 alt - 14   ast - 21  vl - not det.
2-2-17 1 year 1 month hep c free
1-26-2016   alt - 11   ast - 19 vl - not det.

Offline Cal

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  • Cal on Viekira Pak
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #363 on: December 02, 2015, 05:16:24 pm »
Hi Molly,
That's good advice from Chuck about the injections. My FBC is still below normal but going up since I stopped ribas 3 weeks ago. I'm still on Viekira Pak. I was on 600mg for a month and then back up to 800mg. I am small like you. So yes 600 is ok. Phily went through her 24 weeks on, I think, 400mg. She might chime in. But I know it was reduced. You'll be fine.
I'm a relapser from the DAAs and ifn and RIBA. So I know your fear. I have it too. Vent on here, you'll get support. I was supported at times when I wad so down and fearful about relapse. It's ok to to realistic but it's not healthy to dwell there too long. Stay posting about your worries. Because you will be ok. If by any chance you do relapse, and if Molly, Merck and Gilead have drugs in phase 3 trials which will cure relapsers in the DAAs. It's ok. Cal :)
HCV 30 years. Geno 1A.
Veikira Pak with ribas on Compassionate Access.
Brisbane. Australia. began 21.8.15.
17 weeks.  Previous non responder 2011.
V/L 9 million
2 week V/L 54
12 weeks V/L UND
No 17 week  EOT V/L
EOT Post 4 weeks UND.

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #364 on: December 28, 2015, 02:00:54 pm »
Took my last solvadi/ribavirin on 12/17/2015 then had EOT blood tests...am still waiting on my results...this is ridiculous...have always had results within a few days...you'd think the Dr would be the first to understand my dilemma...been on this treatment for 24 long & devastating weeks...need to know whether I am clear of this or not...also am having breathing problems due to the anemia from the ribavirin but need to see my results before I can address that situation...WTF
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline Rubi

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #365 on: December 29, 2015, 11:57:47 am »
It always takes about 10 days for me to get the RNA (viral load) tests back. Other tests come back quicker. But, that one takes longer. The more important one will be 3 months after treatment. Isn't that when they consider you cured?

Hope you are feeling better soon, no matter what. I just finished 12 weeks of sovaldi/riba. I don't think I could have made 24 weeks with the side effects I was already having.

Please keep us posted.

Rubi
F 59
GT 2
Started treatment 9-28-15
Solvaldi/Ribavirin for 12 weeks
ALT/AST was 74/48; now 17/17
VL 5.6 million down to 42

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #366 on: December 29, 2015, 04:53:44 pm »
Thanks Rubi for the kind thoughts...I'm just a little antsy after 24 weeks of RIBA...I'm glad its done but the results are what I need...
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline CE

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  • Genotype 3. Sovaldi & Ribavirin 24 weeks.
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #367 on: December 29, 2015, 09:54:11 pm »
Hi Cazbyrd!
I know that feeling all too well! But you got this one! You won! Have faith! Prepare to live again!
Take care and God bless!
Chris
Chris :)
Diagnosed July 2014
Genotype 3
Viral load of 950,000
Most likely from blood transfusion in 1978
Treatment started November 2014
Sovaldi and Ribavirin for 24 weeks
End of treatment April 2015
SVR12 July 2015!!!!!!
SVR24 October 2015!!!!!
Cured!!!! Praise the Lord!!

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #368 on: December 31, 2015, 11:12:51 am »
Thanks Chris...I did get my Labs back & I was UND...just as I thought they were in the drs office all along & signed off by my Gastro @5:30 am on the 23rd...I had to call & call & call & was told they werent even there yet...when I raised enough hell they were emailed to me on the 30th...I guess the right hand doesnt know what the left hand is doing...go figure...going back to my PCP...looks like I've been kicked to the curb by my Gastro...cant make anymore money off of me..SAD...Whew..needed to get that off my chest...my labs look good...everything is on the low side but still in the normal range...will be much better when this RIBA is out of my system...labored breathing...muscle cramps & joint pain...hopefully this will be all gone by the time I reach my SVR12...God Bless to everyone still on treatment & congratulations to those who have  slayed the dragon...



65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline mollythedog

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #369 on: December 31, 2015, 07:18:57 pm »
hi everyone and thanks Caz For Your helpful advice.  I'm almost halfway through my second round of DAAs, March to June 2015 sov/oly/riba. Relapsed 12 weeks EOT. October to April sov/daklinza/600riba 24 weeks. 4 weeks vl 71, 8 weeks  vl <12
 ast/alt 25/19 . 5th Jan 12 weeks labs. Felt bad after 3 weeks. RIBA was 800 and I quickly became anaemic, dry skin, itching, dry eyes in the morning, frequently urinating, irritability, no inhibitory barriers when speaking, lost a couple of not real friends. So strange. Cramps like seizures in my feet and legs at night, and others. Most have passed  by drinking more water, cranberry juice, taking calcium and vit D.  Still out of order when I speak (actually I'm swearing, which I always loathed) my daughter finds it quite amusing. But the best thing is that now I can handle the passing s/e and finally I can reach that place inside where the source of strength and peace spring from. More in touch and as it's New Years Eve I'd like to wish everyone a very smooth and peaceful treatment and that this psychologically trying experience is a lifelong success for all of us. That we are ready to have this burden taken from us and most importantly, that we have all learned a lot from this experience, evolved as human beings, changed for our own good and that of all we come in contact with, that we can finally appreciate to the full the beauty all around us, in so many different forms, that it's free and available to us always. That we become less material and more spiritual, that we no longer waste time worrying about things we can do nothing about, and have the insight to solve problems in the right way. And mostly, my greatest wish for me and you all is once again experience times without worry, like when we were kids and felt protected somehow. Enthusiastic and optimistic, creative and that we never deny a smile or a kind word. Blessings to all. Molly

Offline Jorjia

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #370 on: January 03, 2016, 06:23:06 pm »
Am new and have a question
.... type 3 on sovaldi and ribavirin. Just started 14th week  of 24.. first month accidently took sovaldi 2 times  same day...tested undetected that month... did same 2nd month ( just stupid I guess ). ..tested undetected. ..just noticed have xtra ribavirin. .missed last week one day....question is did I mess up my treatment. .I will end 2 days earlier because of the 2 sovaldi mistakes and missed a dose of riba
Thanks for any advice
Jim
« Last Edit: January 03, 2016, 06:24:42 pm by Jorjia »

Offline Jorjia

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #371 on: January 03, 2016, 06:28:28 pm »
Am new and have a question
.... type 3 on sovaldi and ribavirin. Just started 14th week  of 24.. first month accidently took sovaldi 2 times  same day...tested undetected that month... did same 2nd month ( just stupid I guess ). ..tested undetected. ..just noticed have xtra ribavirin. .missed last week one day....question is did I mess up my treatment. .I will end 2 days earlier because of the 2 sovaldi mistakes and missed a dose of riba
Thanks for any advice
Jim

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #372 on: January 03, 2016, 06:50:46 pm »
Am new and have a question
.... type 3 on sovaldi and ribavirin. Just started 14th week  of 24.. first month accidently took sovaldi 2 times  same day...tested undetected that month... did same 2nd month ( just stupid I guess ). ..tested undetected. ..just noticed have xtra ribavirin. .missed last week one day....question is did I mess up my treatment. .I will end 2 days earlier because of the 2 sovaldi mistakes and missed a dose of riba
Thanks for any advice
Jim

Hi Jim. I am not a doctor, but I don't think you have anything at all to worry about by accidentally shortening your treatment duration by 2 days out of 168. I think the virus will be well and truly gone by that point anyway.

best,
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jorjia

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #373 on: January 03, 2016, 09:32:40 pm »
Thanks Kim
Congrats
didn't know about harvoni and ribavirin.
So you think missing a dose of the ribavirin is ok also or should I try to make it up somehow

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #374 on: January 03, 2016, 09:55:46 pm »
Thanks Kim
Congrats
didn't know about harvoni and ribavirin.
So you think missing a dose of the ribavirin is ok also or should I try to make it up somehow

From what I have been told by my own treatment team, missing a dose of ribavirin is pretty much irrelevant - especially by the time you are 14 weeks in on a 24-week stint of it. Your body is saturated with ribavirin by that point. Don't forget that many people are dose-reduced on their ribavirin or are taken off it altogether mid-way through if they can't tolerate it (i.e., if they become dangerously anemic). And from what I hear, they are all getting cured as well, even when the ribavirin is reduced or stopped mid-way through.

Harvoni+Ribavirin, the combo I did, seems to be very effective for genotype 3 (a 100% cure rate in the new zealand trial). And it is only a 12-week course instead of 24 weeks like the sovaldi+riba. But so far, I think the Harvoni/riba combo for geno 3 has only been done in clinical trials. So it is not yet being prescribed for geno 3.

good luck! :)
kim

« Last Edit: January 03, 2016, 09:59:22 pm by KimInTheForest »
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Jorjia

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #375 on: January 04, 2016, 08:19:14 am »
Thanks for everything
KIM

Offline dan98584

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #376 on: February 04, 2016, 07:11:15 pm »
Hi hope this thread is still active. Just started my drug therapy this week. Sovaldi and Ribovirin. Have had hep C since I was 18, am now 60. I'm excited that after a lifetime , I have a chance for a cure. Doc says liver is healthy so far, although apparently a got a boulder stuck in my gall Bladder. Have to take to a surgeon about that. Please Lord one thing at a time. Still working.
Male 60
Contacted hepatitis C genotype 3 1972-73?
on 24 weeks therapy of Ribavirin and Savaldi
Began treatment 2/1/16

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #377 on: February 04, 2016, 08:32:20 pm »
Hi hope this thread is still active. Just started my drug therapy this week. Sovaldi and Ribovirin. Have had hep C since I was 18, am now 60. I'm excited that after a lifetime , I have a chance for a cure. Doc says liver is healthy so far, although apparently a got a boulder stuck in my gall Bladder. Have to take to a surgeon about that. Please Lord one thing at a time. Still working.

Welcome to the forums, Dan! And congrats on starting treatment. You will do fine and in all likelihood be cured by this combo. Just remember to drink plenty of water daily. Helps with side effects. You may experience temporary anemia from the ribavirin at some point during your treatment. But if you do, just remember that it will go away once you finish treatment. Feel free to post any questions or experiences along the way! :)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline dan98584

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #378 on: February 04, 2016, 11:12:38 pm »
Thanks Kim. Suppose I should google that. Umm off the top of my head, doesn't that mean low iron and tiredness? Or which symptoms are u referring to , with anemia?
Male 60
Contacted hepatitis C genotype 3 1972-73?
on 24 weeks therapy of Ribavirin and Savaldi
Began treatment 2/1/16

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #379 on: February 04, 2016, 11:39:17 pm »
Thanks Kim. Suppose I should google that. Umm off the top of my head, doesn't that mean low iron and tiredness? Or which symptoms are u referring to , with anemia?

Ribarvirin induces hemolytic anemia in many/most people who take it. I experienced that when I did my 12 weeks of Harvoni+ribavirin. It is not iron-deficient anemia. So don't try to compensate with iron supplements. This anemia will result in your hemoglobin and red blood cell count dropping below normal, and yes, you will experience tiredness and shortness of breath. It's all temporary. But you do want to make sure you are getting blood tests, just to ensure that your hemoglobin doesn't drop dangerously low during this period. If a person's hemoglobin drops too low while on ribavirin, the doctor will usually reduce the ribavirin dose. Basically the riba-anemia is just one of those things you get through, knowing that it is part of the thing that is curing you. Some people are more affected by that ribavirin side effect than others.

good luck!
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline dan98584

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #380 on: February 05, 2016, 10:39:32 pm »
Thx, good info. Part of the reason we get so many labs eh? My 2 week lab on the 15th
Male 60
Contacted hepatitis C genotype 3 1972-73?
on 24 weeks therapy of Ribavirin and Savaldi
Began treatment 2/1/16

Offline dan98584

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #381 on: February 21, 2016, 06:27:39 pm »
End of week 3. 21 weeks to go. Sounds so far away. some nausea, little bit foggy at times.
Male 60
Contacted hepatitis C genotype 3 1972-73?
on 24 weeks therapy of Ribavirin and Savaldi
Began treatment 2/1/16

Offline TexasC+

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #382 on: February 22, 2016, 06:27:29 pm »
24 weeks sounds long, but so worth it. I had lots of side effects but kept going. Drinking lots of water helped. My 3 month follow up was NEGATIVE today.
I took my sov and riba am and pm and never missed a dose. I stayed positive and talked with someone who had done the treatments. You may feel like you can not go on but YOU CAN.
It is so worth it.
Genotype 3a
diagnosis date 4/29/15
treatment naive
viral load 6 million
unknown date of infection
Sovaldi and ribaviron  24 weeks started 6/1/15
End of treatment date 11/15/2015 VND last 2 labs
3 month follow up 2/22/16 NEGATIVE !! NOT DETECTED

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #383 on: February 22, 2016, 09:09:41 pm »
Congratulations TexasC+...you and I are just a month apart...I am now waiting for my 3 month follow up...also stayed positive...sometimes it was hard but oh so worth it...You can do this too...water water & more water...the fogginess will pass... 8)
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline Sookiesue2

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #384 on: February 22, 2016, 11:37:36 pm »
I have 2 days left!!! Long ass 6 months!! EOT labs next Monday, then stress for 3 months for SVR 12 :) Minor side effect, except for the anemia and insomnia, but I can almost say I'm done! Wishing you all SVR 12!
« Last Edit: February 23, 2016, 03:28:25 am by Sookiesue2 »
Teri
62 yr old
Gt 3a
Probably had since early 70's drug use
Dx 2003
VL 22,900
F1 F2
Started Sovaldi/Ribavarin 24 weeks on 9/10/15

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #385 on: February 22, 2016, 11:59:37 pm »
Congrats on your SVR12 TexasC+ !!! What a great feeling.  And good luck to all those coming up behind you.

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline AussieRosa

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #386 on: February 23, 2016, 06:41:58 am »
Congratulations Sookiesue2 and TexasC+!
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline dan98584

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #387 on: February 29, 2016, 10:08:30 pm »
4 weeks down 20 to go>>>>>>>>>>>>>>>>>>>>>>
Male 60
Contacted hepatitis C genotype 3 1972-73?
on 24 weeks therapy of Ribavirin and Savaldi
Began treatment 2/1/16

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #388 on: February 29, 2016, 10:19:04 pm »
4 weeks down 20 to go>>>>>>>>>>>>>>>>>>>>>>

good work, dan!

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #389 on: March 15, 2016, 10:31:17 pm »
Tomorrow are my labs...been a long 12 weeks but not as long as the 24 weeks of treatment...I am sure I am cured but will only be positive when my tests say so...I went back to work a month ago after 2 years of retirement...something I couldn't have done prior to beginning treatment...didnt realize how the hepc had affected me...but not any longer...I now have so much energy & truly feel like a 50 year old although I turned 66 the day before I started my new job...I am thankful each & every day for my new lease on life...It is so worth all the bad side effects I had which by the way are pretty much gone..Now I can look forward to the next 30 some odd years... 8) I am BLESSED..so I will be totally surprised if I dont reach SVR12..Good luck to all
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline dan98584

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #390 on: March 16, 2016, 08:54:57 am »
Awesome Cazbyrd! I am 6 weeks along now , in my therapy. My 4 week lab came back as viral load undetected. 18 weeks and counting.
« Last Edit: March 16, 2016, 08:58:16 am by dan98584 »
Male 60
Contacted hepatitis C genotype 3 1972-73?
on 24 weeks therapy of Ribavirin and Savaldi
Began treatment 2/1/16

Offline AussieRosa

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #391 on: March 16, 2016, 11:29:28 pm »
Best of luck Dan and Cazbyrd. I'm hoping for SVR for both of you.
Gt 1a
contracted 1983
Fibroscan 6.1
Treatment naive
VL 2.97M
ALT 38
AST 47
Started Viekira Pak + Ribavirin Tues 19th Jan 2016
Week 4: VL Undetected!
March 5th Ribavirin dose reduction to 800mg from 1000mg
EOT April 11th 2016. VL Not Detected
12 Weeks post EOT: SVR12. Cured with a capital C!!
6 months post EOT: Undetected :-)

Offline cazbyrd

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #392 on: March 22, 2016, 09:33:32 pm »
Just got off the phone with my Dr...I am SVR12..I am cured...Such an awesome feeling...he'll check me in 3 more months...I can honestly say this is the best I've ever felt... 8)
65 female
Contracted 1978
GT 3a 5/15
7/2/15  Solv/Riba 24 weeks
VL 484,970
4 wk VL 18
8 wk VL <12 UND
12 wk  UND
10/2/15 ANEMIC so RIBA lower'd 800 to 400 mg
EOT 12/17/2015
24 wk VL  UND ALT/AST 9/15

Offline KimInTheForest

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Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #393 on: March 22, 2016, 09:41:00 pm »
Just got off the phone with my Dr...I am SVR12..I am cured...Such an awesome feeling...he'll check me in 3 more months...I can honestly say this is the best I've ever felt... 8)

Fabulous news, Cazbyrd! So happy for you!  8)

kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline kimharvest

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    • Vital Wonders
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #394 on: March 28, 2016, 01:20:34 am »
Congratulations Cazbyrd! Welcome to your new beginning! Give it time!
kimharvest
"Eat healthy food and drink pure water for a healthy life."
GT 3a  15,000,000 VL.
Started Sovaldi/Ribavirin 1/26/15 for 24 weeks.
Doctor Office Dropped me on 5/8/15 at 14 weeks;
Finished 4 months total, two months short.
I do not recommend Grand Junction Gastro!
Not Detected at 3, 6 & 12 months.

Offline Johnny_Wayne

  • Member
  • Posts: 47
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #395 on: May 21, 2016, 02:36:51 pm »
Ribarvirin induces hemolytic anemia in many/most people who take it. I experienced that when I did my 12 weeks of Harvoni+ribavirin. It is not iron-deficient anemia. So don't try to compensate with iron supplements. This anemia will result in your hemoglobin and red blood cell count dropping below normal, and yes, you will experience tiredness and shortness of breath. It's all temporary. But you do want to make sure you are getting blood tests, just to ensure that your hemoglobin doesn't drop dangerously low during this period. If a person's hemoglobin drops too low while on ribavirin, the doctor will usually reduce the ribavirin dose. Basically the riba-anemia is just one of those things you get through, knowing that it is part of the thing that is curing you. Some people are more affected by that ribavirin side effect than others.
good luck!
kim

This was great information. Personally, when I heard that Ribavirin causes anemia, my first thought was indeed "iron supplements". This is good to know! Because of cirrhosis, my personal iron levels usually run high enough to suggest hemochromatosis. Self treating with iron could be highly dangerous.
Diagnosed 04/2014
Started Harvoni 10/2014
Undetectable 01/2015
Relapsed 04/2015
F4 Cirrhosis (Compensated - barely)
Child Pugh Score 6-7
MELD Score 10
Started Olysio/Sovaldi/Ribavirin (24 weeks)
EOT Not Detected 11/9/2016
--------------------------------
5-10-2017
Virus undetected SVR 24 Achieved
I AM FINALLY CURED!

Offline KimInTheForest

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  • Posts: 1,972
  • Believe in yourself
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #396 on: May 21, 2016, 02:52:56 pm »
This was great information. Personally, when I heard that Ribavirin causes anemia, my first thought was indeed "iron supplements". This is good to know! Because of cirrhosis, my personal iron levels usually run high enough to suggest hemochromatosis. Self treating with iron could be highly dangerous.

Yes, self-treating with iron could be very dangerous, Johhny_Wayne. So I am glad you read this. I have read a couple of studies that diets very high in anti-oxidants (berries, fruits, carotenoids) may be useful in slowing and lessening hemolytic anemia. So that can't hurt. :)

good luck!
kim
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline Johnny_Wayne

  • Member
  • Posts: 47
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #397 on: May 21, 2016, 03:26:23 pm »
Where's the "Like" button?  ;D
Diagnosed 04/2014
Started Harvoni 10/2014
Undetectable 01/2015
Relapsed 04/2015
F4 Cirrhosis (Compensated - barely)
Child Pugh Score 6-7
MELD Score 10
Started Olysio/Sovaldi/Ribavirin (24 weeks)
EOT Not Detected 11/9/2016
--------------------------------
5-10-2017
Virus undetected SVR 24 Achieved
I AM FINALLY CURED!

Offline KimInTheForest

  • Member
  • Posts: 1,972
  • Believe in yourself
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #398 on: May 21, 2016, 03:28:11 pm »
Where's the "Like" button?  ;D

Haha! I know - I've thought the same thing myself many times. If only this were like Facebook. (Except I wouldn't want it to become the time-sink that Facebook is.)

kim ;)
Kim Goldberg (Nanaimo, BC)
1970s: Contracted HCV (genotype 3a)
2015: Cured with Harvoni + ribavirin (12 weeks)
MY STORY: https://pigsquash.wordpress.com/2016/01/28/undetectable-my-hep-c-story/

Offline mollythedog

  • Member
  • Posts: 36
Re: Genotype 3, Sovaldi and Ribavirin for 24 weeks
« Reply #399 on: June 27, 2016, 06:28:16 pm »
Hi all,
Just got svr12 on sovdakriba 24 weeks genotype 1a transplanted and relapsed on 12 weeks SovOlyRiba last but June. Slow responder so I would like to say to other slow responder s, don't worry, it means nothing
 I'd like to rejoice but  I can't believe it. Is better it really happening?

 


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