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Author Topic: Starting Harvoni tomorrow morning.  (Read 16424 times)

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Offline RiseUp

  • Member
  • Posts: 45
Starting Harvoni tomorrow morning.
« on: December 16, 2014, 10:09:45 pm »
Merry Christmas to all.  I'll be jumping on the Harvoni Hep C cure train tomorrow morning. Diagnosed in 1997, treated (3) times.  Last treatment was 2000.  This forum has been very helpful to me.  Looking forward to getting rid of the virus once and for all.  See you all on board.
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow morning.
« Reply #1 on: December 17, 2014, 08:00:13 am »
Hey RiseUp,

Congrats and welcome. You must be one strong person to have tried to beat this thing 3 times already, wow!

Let's hope Harvoni is your magic pill, let us know how you are doing.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline RiseUp

  • Member
  • Posts: 45
Re: Starting Harvoni tomorrow morning.
« Reply #2 on: December 17, 2014, 09:04:58 am »
Hey Mel, thanks.  Just took pill #1, looking forward to week 4 bloodwork.  I'll keep you posted.
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline sunrise

  • Member
  • Posts: 463
Re: Starting Harvoni tomorrow morning.
« Reply #3 on: December 17, 2014, 09:11:40 pm »
Hi rising up
     Best of luck on your treatment.  Welcomr go this forum. There are really great souls on here that love to help on anyway they can. I'm on my last 4 days of sovaldi olysio tx. From what I hear. The harvoni is a cakewalk next to pega riba tx. Habe a wonderful holiday...Sunrise

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: Starting Harvoni tomorrow morning.
« Reply #4 on: December 17, 2014, 10:01:17 pm »
Rise Up....nice to meet you.

Kick it's ASS!!!


Jill

Offline RiseUp

  • Member
  • Posts: 45
Re: Starting Harvoni tomorrow morning.
« Reply #5 on: December 18, 2014, 09:39:30 am »
Hey JillLynn & sunrise, thanks.  Last treatment was 14+ years ago.  Going to beat it this time.
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow morning.
« Reply #6 on: December 18, 2014, 05:28:20 pm »
Yes you are Rise Up!

We all are........

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline sunrise

  • Member
  • Posts: 463
Re: Starting Harvoni tomorrow morning.
« Reply #7 on: December 18, 2014, 06:48:15 pm »
Yes riseup! Thats the spirit! Well I have 3 more doses od S/O then we wait. Hope your feeling  good.

Offline RiseUp

  • Member
  • Posts: 45
Re: Starting Harvoni tomorrow morning.
« Reply #8 on: December 18, 2014, 08:19:50 pm »
Hey sunrise, feeling pretty good on 2nd day.  Keeping my spirits up. 
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow morning.
« Reply #9 on: December 19, 2014, 08:40:59 am »
Yes riseup! Thats the spirit! Well I have 3 more doses od S/O then we wait. Hope your feeling  good.

Sunrise,

I think i am just as nervous waiting for others results as I will be waiting for mine at the end of this but you know what? What's the very worst case? That it comes back on us and we have to take the AbbieV combo or whatever else is coming really soon. I think we will beat it this time, I really do. I also know that if we don't it's not the end of the road, it's still the beginning.

My IDhero has told me that we will beat this thing and I believe him.

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline sunrise

  • Member
  • Posts: 463
Re: Starting Harvoni tomorrow morning.
« Reply #10 on: December 19, 2014, 08:49:24 am »
Thanks Mel
               I inow me too!  I would like tp see more post treatment results like 12 and 25 weeks out. 3 more doses then done! How you feeling today? Im still getting pain on my side its wierd. Maybe nothing to do with liver, but my worry wart mind thinks its the virus hiding out. Silly me. I get eot bloodwork Monday.  Im sute it will be UD . More cpncerned with 4  12  and 24 week tests. ..... Blessings Sunrise.

Offline RiseUp

  • Member
  • Posts: 45
Re: Starting Harvoni tomorrow morning.
« Reply #11 on: December 19, 2014, 09:04:15 am »
Sunrise, keep those spirits up.  We are all pulling for you.
started Harvoni 12/17 (12wks)
dx 1997 1a (3,900,000)
infected early 70's
infergen 1997
interferon & riba 1999 and 2000
liver bio 2/4
started riba feb 4th
undetected vl feb 10th
finished 12wks mar 10
extended to 24 weeks

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: Starting Harvoni tomorrow morning.
« Reply #12 on: December 19, 2014, 09:05:15 am »
Good Morning.

Sunrise....sorry about your pain.  I caught a cold while out shopping.  It's already  moved into my lungs.   I cancelled my appts yesterday.    Gave everyone a choice if they wanted to see me and take a chance at catching.  Guess what? no one did.
    I sure wish sick people would stay home but they never will.    I accept my powerlessness over others.

I'm anxious to see post treatment results too!  It's gonna be way way better than the Peg/Rib I'm sure!  and like Mel said.......new treatments are coming so hopefully one way or the other we will get rid of this.

All my birds are here.....5 feeders, heated bath,  lots of squirrels....they keep me company along with my 4 dogs.

Have a great day and blessings to each and everyone!

Riseup.......Harvoni is a blessing.  I did rib-peg twice (enuf said!)

hugs!  Jyl

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow morning.
« Reply #13 on: December 19, 2014, 10:58:39 am »
Jill, Sunrise, Rubye,

We all need to try and stop stressing over the svr results because it's out of our hands and each one of us is stressing and guess what, there isn't a darn thing we can do about it.

I am going to try and wake up every morning and say to myself. "Live for today, feel as good as you can today and tomorrow worry about tomorrow." <~~My new chant

All this worrying can't be good for any of us and I know it's hard but we should all try to just let it go and focus on what we can do something about and that is taking care of ourselves today, eating healthy and being the sweet wonderful women we all are!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: Starting Harvoni tomorrow morning.
« Reply #14 on: December 19, 2014, 12:47:42 pm »
love your chant Mel!

I'm going for a walk.  The sun is out and I'm going to sing praises to all the good things in our lives!
And focus on gratitude
and PEACE!

no worrying' today my sista!

Jill
p.s.   as always....thanks for the great share!   I need my iPhone icons !!!
« Last Edit: December 19, 2014, 12:49:24 pm by JillLynn »

Offline sunrise

  • Member
  • Posts: 463
Re: Starting Harvoni tomorrow morning.
« Reply #15 on: December 19, 2014, 02:54:11 pm »
true true true you know though Mel its just hard sometimel its just hard sometimes. Im going to just go with it. After tpday 2 more doses! Bless ypu all for giving me the pep talk....:-)

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Starting Harvoni tomorrow morning.
« Reply #16 on: December 19, 2014, 07:06:25 pm »
true true true you know though Mel its just hard sometimel its just hard sometimes. Im going to just go with it. After tpday 2 more doses! Bless ypu all for giving me the pep talk....:-)

Sunrise, there is NOTHING easy about having Hep C and I am so grateful to have found all of you to help me. You guys are my adopted family now, the ones I can share anything with!!  Seriously I don't know where I be today without all of you helping me through the last 3 months, it's been quite the roller coaster.

It's totally out of our control if we took the meds as directed and took care of ourselves with no sabotage events then all we can do is wait and see if we are part of the 90-94%, that is all we can do. I know when the time comes for me to start that wait it's going to be worse than waiting to have my first baby, probably the longest 6 months of my life.

xoxoxo

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline sunrise

  • Member
  • Posts: 463
Re: Starting Harvoni tomorrow morning.
« Reply #17 on: December 19, 2014, 07:15:04 pm »
Thanks Mel
               I feel the same. Its been one heck of a ride. Still holding on to the wheel! Im so thanlful for alll the support. I have taken my doses everyday at the same time. Don't drink alcohol.  Doc said its good to be alittle OCD about meds. Like I told you he couldn't believe people drank . Then forgot to reorder then forgot to take everyday.  He was schocked and pissed! Told me they were wasting his and their time. That is sad to me that someone is so wrapped up on addiction that they don't care about their lives or the livea of their loved ones. Pitiful.... Sunrise

Offline frankoswife

  • Member
  • Posts: 3
Re: Starting Harvoni tomorrow morning.
« Reply #18 on: December 20, 2014, 11:09:52 pm »
Hi Everyone!! Cheers to you all and thank you again for helping us all by posting your real life stories. It helps so much for us all.

As I mentioned, I'm the partner of the one taking Harvoni.

News about him, although he said that he would join the site, and I'm sure will..

He started Nov 22nd, so we are almost one month into it. We were amazed at the no side effect thing, almost to the point of wondering 'is this working?' thoughts.

He went to the doctor a few weeks ago, and his Liver Enzymes are normal. I cried when he called to tell me, like you all know.  Jan 7th he goes back to understand what that means and also get another bloodwork done.

So far so good. Very, very mild side effects thus far are:
- wakes up in the middle of the night (but he did this before so not sure it's different)
- tired within an hour after his dose. He takes it at 8:00 pm



What I've seen different in a good way
- he's not as tired in the afternoon
- he doesn't have as bad acid reflux (noticeably better, because this was becoming a serious side effect of the HCV for him)

That's it. Hope that helps others.

Again, cheers to you all!! So so grateful.
Started Nov 22nd on Harvoni
Partner of Franko, taking it
First bloodwork one month in showed normal liver enzymes

 


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