Welcome, Guest. Please login or register.
April 09, 2020, 07:29:43 pm

Login with username, password and session length


Members
  • Total Members: 6204
  • Latest: Dadou
Stats
  • Total Posts: 54825
  • Total Topics: 4730
  • Online Today: 81
  • Online Ever: 1314
  • (June 22, 2016, 05:23:42 am)
Users Online
Users: 1
Guests: 62
Total: 63

Welcome

Welcome to the Hep Forums, a round-the-clock discussion area for people who have Hepatitis B, C or a co-infection, their friends and family and others with questions about hepatitis and liver health. Check in frequently to read what others have to say, post your comments, and hopefully learn more about how you can reach your own health goals.

Privacy Warning: Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.
  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.
  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.
  • Product advertisement (including links); banners; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from the Hep Forum Moderators.
Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Long Time Infected  (Read 7073 times)

0 Members and 1 Guest are viewing this topic.

Offline Mixer

  • Member
  • Posts: 19
Long Time Infected
« on: December 20, 2014, 08:10:47 pm »
I am 59 years old and have been infected for about 35+ years but have never been treated. I am Genotype 1 and my viral load was checked in 2011 and was 86,000 IU/ml..... ALT and AST were 79 and 111.
 I never had a biopsy because lack of treatment options till recently I really didn't want to know but now with this new treatment Havoni its starting to make me think about treatment.
Don't know with my levels being so low that I may have time to let this all play out seeing how hard it is to  approved for treatment especially if your not in a really advanced stage.
Debating on taking the next step and get a biopsy

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Long Time Infected
« Reply #1 on: December 20, 2014, 08:29:20 pm »
Hi Mixer,

I would ask if you have a Labcorp near you and if you can use them from your insurance company. They have a new blood test called Fibrosure which may not be covered by your insurance Company because they may say it's investigational but you still get the INS company discount and my cost for the test was under 100.00. With that test they were able to identify my stage and i didn't have to get a biopsy.

There's also another test called Fibroscan that's becoming more and more available. Biopsies aren't fun and if you can get by without having to have one I would take that route. Check with you doctor and see if it's an option.

If I were you I would still try and get the treatment, if your numbers are still that good then you will only need 8 weeks of Harvoni to cure it and may be approved but you don't know till you try. Having a really good doctor who will help makes a huge difference.

Wishing you good health and SVR in 2015!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline Mixer

  • Member
  • Posts: 19
Re: Long Time Infected
« Reply #2 on: December 20, 2014, 08:47:41 pm »
I have Heathspan, gonna have to check about that test......I never hit my deductible anyway so I can just pay for it if its not covered

Thanks

Offline Mixer

  • Member
  • Posts: 19
Re: Long Time Infected
« Reply #3 on: December 20, 2014, 08:51:04 pm »
By the way I apologize for posting this in this topic.....I just noticed it was Am I Infected ? and I thought it was just I am Infected

Offline BattleTheBeast

  • Member
  • Posts: 817
  • Female, 57 - SVR12 as of 7/23/15!!
Re: Long Time Infected
« Reply #4 on: December 20, 2014, 09:20:25 pm »
No big deal and no need to apologize;  the Admins will move it for us if they need to!

Mel
~Mel~
Hep C, Type 1, 10/11  viral load 8,238,340, AST-60, ALT-57 Bili .6  Stage 4 cirrhosis,
Week 4 VL <15 AST 20 - ALT 27 Bili .9
Week 9 - switched to Harvoni VL UD!! AST 20 ALT 19

EOT date is 4/30/2015,
SVR 12 is 7/23/15 ACHIEVED!!! 
and SVR 24 ACHIEVED!!

Offline HHburme

  • Member
  • Posts: 117
  • Harvoni start 12/13/14 12wks UD/24wk DET
Re: Long Time Infected
« Reply #5 on: December 20, 2014, 09:33:03 pm »
I was denied treatment at first, then my Dr ordered Fibrosure and appealed. Then I was approved. Fibrosure score was 71, not sure exactly what that means. My VL was 30,000,000 and was told VL not that important. Not sure what the criteria is for the insurance company. VL really increased the last 2-3 years as it used to fluctuate between 1-3 million.  biopsy 2004 F0, 2009 F1 and now I'm told it is F2-F4 from blood tests.
Keep trying Mixer !! I hope you are successful.
infected age 19, blood transfusion 1977, detected 2003  GT 1a, Harvoni relapse 06/15, Clinical Trial Study for SOF/VEL GS-9857 start 02/16. SVR12 Cured 08/16

Offline Mixer

  • Member
  • Posts: 19
Re: Long Time Infected
« Reply #6 on: December 20, 2014, 10:27:18 pm »
Thanks

 


© 2020 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.