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Author Topic: New Here, on Harvoni Day 5  (Read 30200 times)

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Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
New Here, on Harvoni Day 5
« on: January 11, 2015, 09:51:25 pm »
Hi there,

I finally made the choice to go for HCV TX with Harvoni and began on 1/7/15.
I'm a male and a 1a since about 1982.

I've got a bit of a headache today, off and on, but reading your replies looks encouraging.
I feel like I have a decent cold, but the fact is, I haven't had a cold in years. 

I'm on Harvoni for 8 weeks. I'll keep you updated on my progress and outcome.

Cheers,

Lukey
Logged
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #1 on: January 11, 2015, 10:52:02 pm »
I'm new here too. I began on 1/5/15! Some fatigue and digestive stuff but minor. I'm scheduled for 12 weeks and very happy that I have insurance that approved quickly!

Best,
Suki
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline Amj1951

  • Member
  • Posts: 118
Re: New Here, on Harvoni Day 5
« Reply #2 on: January 12, 2015, 09:33:28 am »
Hi Lukey and Suki, I am new too. I think in a way a lot of us are new but I am figuring out most of us are having about the same side effects.. though once in a while a new one pops up.. but so far, knock on wood they are manageable.

Water! Its all in the water. Make sure you are drinking a LOT of water. a minimum of 2 liters? Some think up to 3 liters but I think it depends on your size too? Someone said half your body weight in ounces. You might ask your doctor but 'I' am finding the more I drink the less side effects. I have also found if I want to sleep better I need to finish it by like 8 pm or I am in the bathroom thru out the night.

Lukey, I thought I was getting a cold for a couple of day and it was weird because I've not had one in YEARS but it went away. I think its all part of the Harvoni.. but you can get a cold and or flu so be careful with yourself  : )

You will find a lot of support on this site. I came here because I was afraid to take the first pill.. but I did and I am so glad I did.
Good luck to you both!
Meredith
Logged

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: New Here, on Harvoni Day 5
« Reply #3 on: January 12, 2015, 09:51:52 am »
Hi,

I had been drinking 2-3 glasses of water daily, plus I often have home made soup for meals, but I increased my water intake and it did seem to lessen SFX yesterday. I like to add Real salt to my water for minerals.  Does that sound OK?

I've cut back on supps. I only take Magnesium, 200 mg of Vit C, Vit E 400 IU, Zinc balance, and that's about it.

I still feel like I have a cold but I think that's the Harvoni kicking Hep C's butt.
I had the highest VL I've ever had at 5.1 Mil but soon I'm hoping that number will be way lower or even UD.
Logged
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #4 on: January 14, 2015, 08:44:50 pm »
I'm a newbie too, took first Harvoni dose Jan 6.  My side effects are mostly joint/muscle aches aka "flu-like symptoms".  I'm trying to drink more water in hopes it will decrease the achiness.

I'm sure glad we have this forum.  My first 2 unsuccessful tries were with interferon/ribavirin and I had no support. 
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #5 on: January 15, 2015, 05:08:07 pm »
Day 11 and I have virtually no side effects now. I did have achy and flu-like symptoms the first few days,too, but that seems to have passed :)

I can't believe I have over $11,000 worth of meds in my body already. Crazy. Lucky.
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #6 on: January 15, 2015, 07:14:47 pm »
Suki, it is mind-boggling, isn't it!?!
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: New Here, on Harvoni Day 5
« Reply #7 on: January 15, 2015, 07:32:39 pm »
Quote from: Suki123 on January 15, 2015, 05:08:07 pm
Day 11 and I have virtually no side effects now. I did have achy and flu-like symptoms the first few days,too, but that seems to have passed :)

I can't believe I have over $11,000 worth of meds in my body already. Crazy. Lucky.

Hi Suki,

I'm 63. I'll put that info in my signature.
I began Harvoni 2 days after you.
Logged
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline Yorocco25

  • Member
  • Posts: 5
New here as well
« Reply #8 on: January 15, 2015, 07:35:35 pm »
Hello everyone! I started Harvoni on January 6th, 2015. 12 week Tx. Found out about the HCV back in 2008. I went through an interferon/riva treatment back then. So today will be day 10 at about 8:30 PM eastern. I also have had flu like symptoms, mostly stuffy/runny nose. I have had minor headaches as well, not to bad. What I have noticed more than anything is my bathroom pattern has changed and my appetite has increased. I fall asleep earlier then usual but then insomnia gets the best of me throughout the night. I've always been a deep sleeper so I know for sure it is a side affect. There is another chain on this site with people on HARVONI that started back as early as October 2014. A lot of good stuff. Anyway good luck to all! We can this!
Logged
35 Male, Tx HARVONI 12 Weeks, Started 01/06/2015. The fight is all but over!

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #9 on: January 15, 2015, 08:05:22 pm »
Yo Rocco,
You and I started on the same day.
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Yorocco25

  • Member
  • Posts: 5
Re: New Here, on Harvoni Day 5
« Reply #10 on: January 15, 2015, 09:46:43 pm »
Yes we did CMT57. How many weeks is your treatment?
Logged
35 Male, Tx HARVONI 12 Weeks, Started 01/06/2015. The fight is all but over!

Offline Yorocco25

  • Member
  • Posts: 5
Re: New Here, on Harvoni Day 5
« Reply #11 on: January 15, 2015, 09:52:38 pm »
As I said previously I take my pill around 8:30PM with food. How and when do you all take it? It would be interesting to see if any side affects are related based on the way the pill is taken.
Logged
35 Male, Tx HARVONI 12 Weeks, Started 01/06/2015. The fight is all but over!

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #12 on: January 15, 2015, 10:38:47 pm »
Well, this is fun! I take my magic pill at 9 pm. Day 11 and side effects have pretty much gone away. The first few days were strange, agitation and headachy, body aches but that seems to be gone. Some nights tho I sleep like a baby and other nights bad insomnia. But that's kind of my usual state anyway.
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #13 on: January 16, 2015, 12:13:11 am »
I'm on a 24 week course.  I take mine first thing in the morning.  My joints hurt, but my doctor had said he thought the HCV had gone into my joints, causing arthritis.   That's why I opted for treatment again.
My theory is that my side effects are a result of the Harvoni attacking the virus wherever it lurks in the body, and that's why my joints and muscles hurt so much currently.   
My hands and wrists hurt but it is nothing compared to how awful I felt during my 2 previous treatments years ago.    I can handle this!  8)
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Lukey

  • Member
  • Posts: 319
  • Let Thy Food Be Thy Medicine
Re: New Here, on Harvoni Day 5
« Reply #14 on: January 16, 2015, 03:22:51 am »
Quote from: Suki123 on January 15, 2015, 10:38:47 pm
Well, this is fun! I take my magic pill at 9 pm. Day 11 and side effects have pretty much gone away. The first few days were strange, agitation and headachy, body aches but that seems to be gone. Some nights tho I sleep like a baby and other nights bad insomnia. But that's kind of my usual state anyway.

Insomnia is a symptom you accept? I'd be looking into things to balance your body and overcome that, especially after EOT.
During Tx it can be typical, I guess.
I can't sleep tonight.
« Last Edit: January 16, 2015, 03:24:55 am by Lukey »
Logged
Male -  HCV since 1982 - Born 1951 ~ Geno 1a

Did 8 weeks of Harvoni in 2015. Got normal AST & ALT and undetected VL by week 5, then relapsed 4 weeks post.
-----------------------------------------------------------
July 5, 2018 : began 12 weeks of Vosevi with a VL of 540,000 and AST & ALT of 65 and 105.
2 weeks in : AST 19, ALT 20
5 weeks in : AST 18, ALT 12, VL "<15 detected"
10 weeks in : AST 19, ALT 14, VL "<15 not detected"
4 weeks post : "<15 not detected"

Offline kate0b1

  • Member
  • Posts: 293
Re: New Here, on Harvoni Day 5
« Reply #15 on: January 16, 2015, 06:27:01 am »
agh CMT, just thinking about last tx is so awful, i'm right with you about my hands, they got so bad last tx, i'm hoping it will ease up with this tx.
kate
Logged

Offline Yorocco25

  • Member
  • Posts: 5
Re: New Here, on Harvoni Day 5
« Reply #16 on: January 17, 2015, 04:02:55 am »
Tonight was day 11 for me; one I would like to forget. My side affects have been mild up to this point, with the exception of the insomnia. Tonight was wierd because I didn't think I would have anything close to the side affects I had while in the interferon/Riva. I had really bad shakes tonight. My jaw was going a million miles a second and I was freezing yet burning up at the same time. Much better now, just wish I could sleep.
Logged
35 Male, Tx HARVONI 12 Weeks, Started 01/06/2015. The fight is all but over!

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #17 on: January 17, 2015, 08:30:28 am »
Oh no, sorry Rocco! Should you talk to a nurse about that? I had a bad night't sleep with weird dreams. No othe side effects at this point, thankfully. Hope you have a good day and better night!
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #18 on: February 02, 2015, 10:22:57 pm »
Starting week 5, doing okay, neck pain and occasional headaches.
How's everyone else?
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: New Here, on Harvoni Day 5
« Reply #19 on: February 03, 2015, 01:37:13 am »
11 weeks done 13 weeks to go

Steady as she goes
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #20 on: February 04, 2015, 12:24:35 pm »
Lynn K,  I'm curious why they added Riba to your Harvoni on the 20th?
How are you feeling?
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: New Here, on Harvoni Day 5
« Reply #21 on: February 05, 2015, 02:01:15 am »
Hi CMT57

I was a null responder to 3 interferon based treatments plus relapsed last year after treating with Sovaldi /Olysio for 12 weeks. I also have had cirrhosis for 7 years and had some esophageal varicies thet reguired banding due to my portal hypertension.

 So based on my wonderful track record I asked my doctor about adding Riba to the mix. She agreed that we should pull out the stops to give my my best chance for a cure.

Good luck on your treatment
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #22 on: February 05, 2015, 02:49:52 am »
That's understandable. I hope this does the job once and for all.
Btw, I love your quote, "Do one thing every day that scares you."
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline OO7GUY

  • Member
  • Posts: 27
Re: New Here, on Harvoni Day 5
« Reply #23 on: February 08, 2015, 09:31:11 am »
let me start off by saying Hi, and thanks, and im glad to found this place! so much good info. i was diagnosed in 08, im 1a i started Harvoni 1/22/15 im doing a 12 week trip. this will be my 3rd try to whip this dragon, first one was Boceprevir, cleared but relapse while still on TX 2nd one Telaprevir nonresponder both combination with PEG/riba. this one does feel different allot easier and i have a good feeling about this on look forword to to reading everyones journey and telling you mine. may we finally put an end to this Dragon they call hep C.   
Logged
Diagnosed in 08, 1a first TX 08 was Boceprevir, cleared but relapse while still on TX 2nd TX 2010  Telaprevir nonresponder both combination with PEG/riba. 3 TX Harvoni started 1/22/15 doing 12 weeks finished 04/16/15

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #24 on: February 08, 2015, 06:00:12 pm »
007guy,
Amen to that!
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #25 on: February 12, 2015, 06:54:06 pm »
I got the word today! :). Started Harvoni on Jan. 5 and, as of Feb 10 my viral load is UNDETECTED!!! Happy dance!  :)
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: New Here, on Harvoni Day 5
« Reply #26 on: February 12, 2015, 07:13:39 pm »
Yea, Suki!  Wonderful feeling to get that joyful word - undetected!  Congrats - doing the happy dance for you too!!!!!!!!!!  ...Islandgirl 8)
Logged
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline atomic dog

  • Member
  • Posts: 160
Re: New Here, on Harvoni Day 5
« Reply #27 on: February 12, 2015, 10:53:59 pm »
Congrats Suki123! You're an inspiration.
Logged
Infected 1969, dirty needle
Geno 1a
Stage 2 fib, some necrosis
TX naive
1/29/15 ALT61; AST43
2/16/15 Started Harvoni; VL 1.5 m;
2/19/15 ALT40; AST24
2/29/15 ALT29; AST25
3/9/15 ALT28; AST25; 
3/9/15 < 20 IU/mL (3 wks) HCV RNA remains 'detected'
3/24/15 ALT30; AST25;
3/24/15 <20 IU/mL (5 wks) HCV RNA
4/10/15 <20 IU/ml (7 weeks) HCV RNA
4/20/15 ALT36; AST27
4/20/15 UND
5/11/15 UND (EOT); ALT33; AST25
6/11/15 UND; ALT 34; AST 29
8/14/15 UND
11/15/15 SVR, 24-wk EOT

Offline harvonitoo

  • Member
  • Posts: 20
Re: New Here, on Harvoni Day 5
« Reply #28 on: February 12, 2015, 10:58:51 pm »
You shouldn't take magnesium while on harvoni! http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf

Quote from: Lukey on January 12, 2015, 09:51:52 am
Hi,

I had been drinking 2-3 glasses of water daily, plus I often have home made soup for meals, but I increased my water intake and it did seem to lessen SFX yesterday. I like to add Real salt to my water for minerals.  Does that sound OK?

I've cut back on supps. I only take Magnesium, 200 mg of Vit C, Vit E 400 IU, Zinc balance, and that's about it.

I still feel like I have a cold but I think that's the Harvoni kicking Hep C's butt.
I had the highest VL I've ever had at 5.1 Mil but soon I'm hoping that number will be way lower or even UD.
Logged

Offline harvonitoo

  • Member
  • Posts: 20
Re: New Here, on Harvoni Day 5
« Reply #29 on: February 12, 2015, 10:59:51 pm »
You shouldn't take magnesium while on harvoni! Or at least take it 4 hours before of after taking Harvoni
http://www.gilead.com/~/media/Files/pdfs/medicines/liver-disease/harvoni/harvoni_pi.pdf

Quote from: Lukey on January 12, 2015, 09:51:52 am
Hi,

I had been drinking 2-3 glasses of water daily, plus I often have home made soup for meals, but I increased my water intake and it did seem to lessen SFX yesterday. I like to add Real salt to my water for minerals.  Does that sound OK?

I've cut back on supps. I only take Magnesium, 200 mg of Vit C, Vit E 400 IU, Zinc balance, and that's about it.

I still feel like I have a cold but I think that's the Harvoni kicking Hep C's butt.
I had the highest VL I've ever had at 5.1 Mil but soon I'm hoping that number will be way lower or even UD.
Logged

Offline Sweetie1

  • Member
  • Posts: 28
Re: New Here, on Harvoni Day 5
« Reply #30 on: February 13, 2015, 09:09:08 am »
Hi everyone,

   I just received my 12 week end of Harvoni lab results. Negative, HCV undetected! I am so happy and I believe this will be the end result for all of you!   
Logged

Offline Long_Haul

  • Member
  • Posts: 161
  • Slayed the Dragon
Re: New Here, on Harvoni Day 5
« Reply #31 on: February 13, 2015, 09:24:47 am »
Hi Sweetie1, Congratulations on making it through EOT Undetected, great news! Are they going do a Viral count again before Week 12 post treatment, or just wait?
Hoping to hear you get SVR12!

HOOOORAYYYYYY


AL
Logged
Genotype 1A

Diagnosed 1989
Biopsy-cirrhosis stage 4 2000, no starting VL this round

3 rounds of Int+Rib
(Combo/48wks,Peg/26 Wks,Triple with Incivek/16wks)
UND with Incivek, Relapsed
Started 12 weeks Harvoni and Rib Jan 2nd,2015
4 weeks Undetected
8 weeks Undetected!
EOT at 12 weeks Undetected
EOT at 24 weeks STILL UNDETECTED
Completed TX Mar 26th,2015

EOT plus 4 weeks UNDETECTED
EOT plus 12 weeks UNDETECTED !!!!!!!!!!! I am DONE!

NO LONGER a member of the "WAITING GANG"

Offline Sweetie1

  • Member
  • Posts: 28
Re: New Here, on Harvoni Day 5
« Reply #32 on: February 13, 2015, 10:34:18 am »
Hi, I took Harvoni for 12 weeks, my 12 week labs were negative undetected. They will test again after 3 months and then 6 months! Waiting for liver profile to come back.   
Logged

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: New Here, on Harvoni Day 5
« Reply #33 on: February 13, 2015, 10:53:33 am »
Happy dance for you Sweetie1 :) :) :) :) :) :) :)  WOW!!!!!! Fantastic news :) :) :)

We'll be looking forward to your next posts!  I end my 12 weeks on the 25th but don't have labs until 4 weeks after, and then 6 more months after.  The waiting will be hard for me, but I will "just do it" 8)  Congrats again ....Islandgirl
Logged
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline Sweetie1

  • Member
  • Posts: 28
Re: New Here, on Harvoni Day 5
« Reply #34 on: February 13, 2015, 11:01:06 am »
Thank you so much. Harvoni is a very strong medication. I hope we are all negative at the 6 month mark! I am so different, going to bed early and waking up early, not my norm at all. I used to sleep at least 9-12 hours a night. So much more energy. That is the difference I feel! Best to all. Best to you Islandgirl!
Logged

Offline Momof3

  • Member
  • Posts: 55
Re: New Here, on Harvoni Day 5
« Reply #35 on: February 13, 2015, 11:23:20 am »
Congrats sweetie1!!!! That is awesome!!!! Glad to hear you have more energy!!! All the best to you, can't wait to hear your 12 week EOT results!
Logged
Hep c GT 1a from transfusion at birth 1986
Treatment naive
Stage f0-f1 fibroscan score 2.5kpa
Harvoni started 02/11/2015 8 weeks
Baseline VL 689,594 ALT 35 AST 25
2 weeks ALT 13 AST 16
4 weeks VL <15 detected ALT 12 AST 15
 UNDETECTED  at EOT April 7
4 weeks post Harvoni UNDETECTED ALT 10 AST 14
12 weeks post Harvoni UNDETECTED ALT 8 AST 15
24 weeks post Harvoni UNDETECTED ALT 13 AST 18

CURED!!!!

Offline Islandgirl

  • Member
  • Posts: 295
  • Started Harvoni 12/3/14 - EOT 2/25/15
Re: New Here, on Harvoni Day 5
« Reply #36 on: February 13, 2015, 01:31:14 pm »
I'm really looking forward to that energy!   8)  ...Islandgirl
Logged
1b, treatment naive, positive for Hep C since 1994; thought to be transmitted via blood transfusions in 1976
Started Harvoni 12/3/14, EOT 2/25/15
12/31/14 labs - Virus Undetected, ALT/18, AST/34
3/25/15 labs - 1 mo post 12 wk Harvoni TX Virus Undetected!!  :) ....Islandgirl

Offline davidsconfused

  • Member
  • Posts: 53
Re: New Here, on Harvoni Day 5
« Reply #37 on: February 13, 2015, 02:01:59 pm »
Quote from: Suki123 on January 15, 2015, 05:08:07 pm
Day 11 and I have virtually no side effects now. I did have achy and flu-like symptoms the first few days,too, but that seems to have passed :)

I can't believe I have over $11,000 worth of meds in my body already. Crazy. Lucky.

Every time I take one I'm thinking another $571 down.   :P
Logged

Offline OO7GUY

  • Member
  • Posts: 27
Re: New Here, on Harvoni Day 5
« Reply #38 on: February 26, 2015, 07:11:03 pm »
well im happy to say at 4 weeks i am  UNDETECTED!! ;D
Logged
Diagnosed in 08, 1a first TX 08 was Boceprevir, cleared but relapse while still on TX 2nd TX 2010  Telaprevir nonresponder both combination with PEG/riba. 3 TX Harvoni started 1/22/15 doing 12 weeks finished 04/16/15

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #39 on: February 26, 2015, 08:00:12 pm »
Woohoo!!!! How lucky are we???  :D
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline BubbaT

  • Member
  • Posts: 267
Re: New Here
« Reply #40 on: February 26, 2015, 09:11:22 pm »
Hi everybody, new here, first post, I'm waiting on the harvoni as of today, I'm not sure how to post so here goes,  dr says I have f4, after recent fibrospect, hcv 1a since 95, I'm 57 male,  prolly infected in 76,  cvs denied first request, dr sent appeal last Friday with the latest test results, had ammonia level of 222, brain fog, got some xifaxan started to lower the ammonia, have had no prior tx, ready to get started, have pain in left quadrant,




I wanted to say thank you for all the helpful articles I have read from many of you, i have just found this site recently and hope to journey with you to health, thanks again!
« Last Edit: February 26, 2015, 09:14:45 pm by BubbaT »
Logged
Age 57 male
Infected late 70's
Diagnosed 95
1a, 2 prev biopsy 95, 2004
Ct 2007, 2015
Treatment Naive
F4 A3. Fibrosure/ CT 2-5-15. Ammonia 222
VL 2.2 mil.
Started Harvoni  3-3-15. 12weeks, finished 5-26-15
4 week VL undetected
12 week EOT undetected

Offline Suki123

  • Member
  • Posts: 8
Re: New Here, on Harvoni Day 5
« Reply #41 on: February 26, 2015, 09:27:47 pm »
Prepare to be healed, BubbaT!!!
Logged
62 yo F, Hep C Genotype 1
Dx June 2014, likely contracted in 1970 via IV drug use
Clean for 40 years
Fibroscan December 2014 showed Stage 3 bridging fibrosis; Began Harvoni Jan. 5, 2015
Grateful.

Offline BubbaT

  • Member
  • Posts: 267
Re: New Here, on Harvoni Day 5
« Reply #42 on: February 26, 2015, 09:45:50 pm »
Thanks suki123, it means a lot to have a friend on this journey!
I like your spirit!
Logged
Age 57 male
Infected late 70's
Diagnosed 95
1a, 2 prev biopsy 95, 2004
Ct 2007, 2015
Treatment Naive
F4 A3. Fibrosure/ CT 2-5-15. Ammonia 222
VL 2.2 mil.
Started Harvoni  3-3-15. 12weeks, finished 5-26-15
4 week VL undetected
12 week EOT undetected

Offline OO7GUY

  • Member
  • Posts: 27
Re: New Here, on Harvoni Day 5
« Reply #43 on: February 26, 2015, 10:02:56 pm »
welcome aboard BubbaT, there's allot of help here,  just ask away and im sure someone will chime in
« Last Edit: February 26, 2015, 10:04:45 pm by OO7GUY »
Logged
Diagnosed in 08, 1a first TX 08 was Boceprevir, cleared but relapse while still on TX 2nd TX 2010  Telaprevir nonresponder both combination with PEG/riba. 3 TX Harvoni started 1/22/15 doing 12 weeks finished 04/16/15

Offline CMT57

  • Member
  • Posts: 17
  • Hopeful!
Re: New Here, on Harvoni Day 5
« Reply #44 on: February 27, 2015, 11:50:30 am »
Welcome BubbaT!

Sounds like most of us are doing pretty well on the Harvoni, I started tx on Jan 6, had labs drawn at my next appt 3 wks later.  Went from 4.5 million to under 100 !
Looking forward to next appt. and labs next month.  I'm on the 24 wk regimen, so 7 1/2 wks down, 16 1/2 wks to go.

We can do this.....
Logged
Recent MRI:
" Two LI-RADS 3 lesions in the right lobe of the liver", 24 wk Harvoni tx started 01/06/2015   
2  previous tx attempts with interferon/ribavirin -> non-responder
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