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Author Topic: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)  (Read 12307 times)

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Offline Roger

  • Member
  • Posts: 171
What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« on: January 12, 2015, 04:33:24 pm »
I am going to send my hepatologist an email regarding what we are suppose to do at the end of my 12 weeks of Harvoni.  I would love input here, please. 

What "should" he do for me?  What should I be sure he is going to do?

Should the blood test be as extensive as the FibroSure blood test?
I'd like to know how "everything" looks, not just viral load.

If all I need is the blood test and no sit down with him, great - otherwise,
what should one expect if there is a sit down meeting?

I'd also like to talk about a future followup schedule.  Ideas on this anyone?

Thanks!
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Genotype 1a
2006 - Dx
2009 Biopsy      - Stage 2
2013 FibroScan - Stage 2
2014 FibroSure - Stage 3

Started Harvoni 11.21.2014 Viral Load - 313,593
12.26.2014 - UND (at 5 weeks)
At 8 Weeks - UND
EOT 02/12/15 - UND
12 Week EOT Blood Work - UND

Offline Mike

  • Member
  • Posts: 999
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #1 on: January 12, 2015, 04:58:53 pm »
 Hi Roger,

You want to have the same tests that you had when you started treatment. Complete liver panel, viral load and CBC count.

Best wishes, Mike
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Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #2 on: January 15, 2015, 09:03:22 pm »
I have not had a sit down with my doctor since before treatment.  I will not be actually seeing him until one week after my 3 month blood work is done…his reasoning is that what will be discussed or not, will be based on the results.  If all is still good, and I am SVR, not sure I see him again.  My primary can pick-up with checking when he does yearly blood work …….. they are in same network anyway.
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #3 on: January 16, 2015, 01:07:09 am »
I will be seeing my doctor what would be my regular scheduled date had I not been treating with Harvoni so sometime in June which will be 1 month after I finish the 24 weeks. Otherwise I am on an annual cycle of doctor visits 6 months for blood tests and abdominal ultrasounds
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline JillLynn

  • Member
  • Posts: 205
  • contracted 1973/ peg/rib 1999 & 2004/on harvoni
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #4 on: January 16, 2015, 11:31:09 am »
I finished Harvoni on January 7 and see my Hepatologist on January 28, 2015.   That's when he wanted to see me.

Otherwise I see him once a year, do my bloodwork 2x a year  and a yearly abdominal ultrasound.

 Still waiting on 12week great news of undetected!  It's coming I know it!  :D
« Last Edit: January 16, 2015, 11:33:07 am by JillLynn »
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Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #5 on: January 16, 2015, 01:04:15 pm »
I did see my gastro/hepato once a year to monitor the hepc prior to treatment and that is why once cured I am not sure if I will still do this.  It may be redundant if I see a primary yearly and only more often if I am sick or have an issue.  He is the one that referred me to the gastro re the hepc over a decade ago.  I dpi know there will be blood work re viral load at 6 mos then again 1 yr from treatment.  I assume this will all be discussed this March when I see him. 
Looks like doctors are not all on the same page when it comes to this - ha. I guess they are learning too……...
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Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,544
  • Get tested, get treated, get cured, fight Hep c!
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #6 on: January 16, 2015, 04:16:28 pm »
The reason I will still be seeing my hepatologist so often and having the tests every six months is because even if I beat hep c this time I still have had cirrhosis for 7 years now so will still need to be closely monitored for complications of cirrhosis.

But still great to know what is left of my liver will not be under attack so my liver might be able to heal or at least not get any more damage.
Logged
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: What to do after the 12 weeks on Harvoni? (Doctor's appts, blood tests, etc?)
« Reply #7 on: January 16, 2015, 07:10:22 pm »
The liver is an amazing organ and is known to be able to regenerate………..so it can definitely do some healing.  Positive thinking is also fuel for the body to heal.
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