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Author Topic: SVR/4 Sovaldi/Ribavirin  (Read 16701 times)

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Offline rainbowray

  • Member
  • Posts: 263
  • Gen 1B
SVR/4 Sovaldi/Ribavirin
« on: January 23, 2015, 11:30:59 am »
Well,
Got the first post treatment lab work. After 24 Weeks of treatment.
So Undetected at 4 weeks. Like others, am apprehensive and feel like I am still in waiting mold. I know it is effects of the drugs still weening off the body, and the typical HepC patients' status of unbelief. (Is it really gone?)
Ribavirin has taken a toll and leaving in a slow manner.
My symptoms of fatigue seemed to increase after I ended treatment. I developed a rash I think may be from cryoglobulemia but it has since subsided. I do not have a confirmed diagnosis of CRYO but tests shows it exists, and the Hepc patient may be relieved of it if the virus is eliminated. (I am waiting on this)
Still itchy in random places, but not much rash issues now.
Dealing with Peripheral Neuropotthy on my feet, but that was there before treatment and it has got no worse, can't tell if any better.
I am Genotype 1B for those on this same combo.
I am curious if DesertGuy got results back yet?

Offline lporterrn

  • Member
  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: SVR/4 Sovaldi/Ribavirin
« Reply #1 on: January 23, 2015, 04:42:28 pm »
Oh, I am hoping to hear good news. You are not alone while you wait.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline sunrise

  • Member
  • Posts: 463
Re: SVR/4 Sovaldi/Ribavirin
« Reply #2 on: January 24, 2015, 04:35:30 pm »
Best wishes Rainbowray
       I hear you when you say waiting mold. Im waiting cor my 4 week post tx. results. Anxiously.
      I think i saw desertguy post something. I will look and get back to ypu on it.

Offline sunrise

  • Member
  • Posts: 463
Re: SVR/4 Sovaldi/Ribavirin
« Reply #3 on: January 24, 2015, 04:39:40 pm »
Yes desertguy posted on the forum " on treatment". He is 4 week SVR.

Offline Francis60

  • Member
  • Posts: 61
Re: SVR/4 Sovaldi/Ribavirin
« Reply #4 on: January 24, 2015, 05:00:47 pm »
All the best rainbowray

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: SVR/4 Sovaldi/Ribavirin
« Reply #5 on: January 28, 2015, 08:12:36 pm »
You made it this far Undetected, you will make it all the way.  You are not alone in this waiting game you know.
Positive vibes is always a plus……...

Offline zeena

  • Member
  • Posts: 114
Re: SVR/4 Sovaldi/Ribavirin
« Reply #6 on: January 29, 2015, 10:32:21 pm »
going on 11 weeks post tx. and liver pains are almost non exsistant. pancreas rears its ugly head sometimes. the wierd thing about my liver , for a long time post treatment when i would get nervvous or angry . it would hurt or i would feel my liver. very wierd, since that was never an issue before. now, it doesnt happen but that was definatly a wierd feeling. my energy and thinking are pushing aside the bad ,paranoid habits i developed while the disease was expanding under my daily wine intake. i have found non alcholic beer, but can only drink one, after 2 one day i had a hangover the next morning.

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: SVR/4 Sovaldi/Ribavirin
« Reply #7 on: January 30, 2015, 12:40:43 pm »
zeena, A lot of the non alcoholic beers have too much malt and do cause headaches.  I have tried them all and the only one I find does not is Clausthaler,especially the dark. 
And I miss my glass of wine when eating out.  I hope to be able to have it again down the road………….

Offline zeena

  • Member
  • Posts: 114
Re: SVR/4 Sovaldi/Ribavirin
« Reply #8 on: January 30, 2015, 04:00:01 pm »
   thanks for the info tess

Offline Lynn K

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  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: SVR/4 Sovaldi/Ribavirin
« Reply #9 on: January 31, 2015, 01:15:32 am »
Non alcohol beer is not completely alcohol free I got this from the Clausthaler site

Clausthaler Non Alcoholic: Lager (bottom-fermented), beer style is pale gold and it’s taste is fresh and flavorful. Is Clausthaler completely alcohol-free? No, we know that a minimal quantity of alcohol must be produced to create a good tasting non-alcoholic malt beverage. The alcohol content of Clausthaler Premium is 0.45 % volume, which lies below the 0.5 % volume maximum alcohol content specified in the statutes as the definition of "non-alcoholic", (us.clausthaler.com)

This is the same for all NA beers in the US. For me with cirrhosis I have been told even this is too much alcohol.

Best to all
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: SVR/4 Sovaldi/Ribavirin
« Reply #10 on: February 02, 2015, 10:14:53 am »
This is true…….even the nonalcoholic wines are the same.  I have always in the past made a point of drinking any of these with food, especially the wine. 
Right now the only time I have drank the non beer is when at a party and then followed up with some good food.  I am such a lightweight these days. ha! 
It is by volume though so I do keep that in mind whenever I drink any which is not often at all. 
Maybe when I am ND after a year I will have a real glass of wine with my Thanksgiving meal in 2016 !!

Offline Mike

  • Member
  • Posts: 999
Re: SVR/4 Sovaldi/Ribavirin
« Reply #11 on: February 02, 2015, 10:57:22 am »
Cream soda actually has a small amount of alcohol in it.

Mike
Genotype 1a
Treated 2001 with PEG and RIBV
Treated in 2014 SOL+PEG+RIBV
Cured July 2014

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,545
  • Get tested, get treated, get cured, fight Hep c!
Re: SVR/4 Sovaldi/Ribavirin
« Reply #12 on: February 03, 2015, 04:40:59 am »
Actually from what I was reading on the Clausthauler site many common foods have trace amounts of alcohol greater than their NA beer but as much as I like beer I still think I should play it safe with the things I know have alcohol

Cheers!
« Last Edit: February 12, 2015, 03:17:25 pm by Lynn K »
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline rainbowray

  • Member
  • Posts: 263
  • Gen 1B
Re: SVR/4 Sovaldi/Ribavirin
« Reply #13 on: February 12, 2015, 02:19:52 pm »
Update

Two months Post Treatment and I feel better. The neuropothy on my feet have improved a little and I'm now able to stand on my toes. No rashes. Just got a comprehensive health panel and kidney,liver,blood counts,lipids are all in good range.
So no symptoms of relapse so far. I'm not getting PCR until June from the Doctor, but tempted to get it on my own for $325.00. at 3 Months. Tough decision cause money don't grow on trees.
If any of you had the money, would you do it a 3 months ?

On another note**    I myself will abstain from Alcohol completely. Not worth it.
Even if my liver completely rebuilds.

Offline lporterrn

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  • Posts: 1,969
  • LucindaPorterRN
    • LucindaPorterRN
Re: SVR/4 Sovaldi/Ribavirin
« Reply #14 on: February 12, 2015, 02:39:59 pm »
I wouldn't, because there are a lot of other things I'd rather spend my money on, and  the test doesn't really change anything. I could get at least 4 massages for that.  However, you can shop around for a better price, such as here: http://help4hep.org/what-we-do/ ($220)
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
https://www.hepmag.com/blogger/lucindakporter

Offline rainbowray

  • Member
  • Posts: 263
  • Gen 1B
Re: SVR/4 Sovaldi/Ribavirin
« Reply #15 on: February 12, 2015, 03:43:18 pm »
Thanks Lucinda,
I have a membership to 24 Hour
Fitness that I pay $50 a year, got a special long time ago. The hot tubs is what I like but a full massage does sound good.

Offline Tess1971

  • Member
  • Posts: 198
  • G2b, 12wk Sov/Riba, End 11/15/14 UD, SVR-5,14 & 32-UD
Re: SVR/4 Sovaldi/Ribavirin
« Reply #16 on: February 13, 2015, 10:32:31 am »
Definitely shop around for a better priced lab……….that test is under $200 here in Tennessee, it used to be over $300 years ago when they had to send out to labs that did it - now most do it.
My gastro does not check viral load during treatment at all, just at 1 month post, and 6 month then year later.  I had to ask for it to be check at 3 months - which is coming up end of this month.
Seems all doctors have their own reasoning.

 


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