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Author Topic: hello new to the board  (Read 3874 times)

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Offline texas gal

  • Newbie
  • Posts: 1
hello new to the board
« on: February 20, 2015, 11:19:25 am »
hello,  I am genotype 1A. diagnosed in 1996. Most likely have had it since early 80's.  In 2004-2005 Interferon and ribavirin treatment.  Cleared then immediately came back,  Treatment killed me.  Recently I starting feeling way worse with  new gastro issues along with the on going fatigue, bone joint paint (trigger fingers), shortness of breath and we can go on with a long list....  So, end of 2014  Endoscope found Grade 1 Varices and Moderate Portal Hypertensive Gastropathy.   After that my dr. met with me and we discussed Harvoni and started the process for a 24 week  treatment.  I am suppose to find out soon what insurance said.    We had to fight for the interferon/ribos.   
I have some questions.   I have a new work position so....

1.  How often do you have to see Dr. or go in for blood work while on Harvoni.
2. After treatment and you have cleared do most start feeling better ? 

thank you





Offline lporterrn

  • Member
  • Posts: 1,984
  • LucindaPorterRN
    • LucindaPorterRN
Re: hello new to the board
« Reply #1 on: February 20, 2015, 01:53:02 pm »
Welcome. I think you will notice a huge difference between treatments. Here are the lab recommendations: http://www.hcvguidelines.org/full-report/monitoring-patients-who-are-starting-hepatitis-c-treatment-are-treatment-or-have

I felt better quickly, but gradually. It took awhile for the brain fog to clear. Everyone is different.
Lucinda Porter, RN
1988 Contracted HCV
1997 Interferon nonresponder
2003 PEG + ribavirin responder-relapser
2013 Cured (Harvoni + ribavirin clinical trial)
http://blogs.hepmag.com/lucindakporter/

 


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