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Author Topic: Ringing in the ears  (Read 10352 times)

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Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Ringing in the ears
« on: March 31, 2015, 01:25:02 pm »
Hi all
I was jus wondering if ringing in the ears is something that you all have experienced as well
I have had this on and off for a while now and yesterday it started up again.  I also feel bloated and kind of sore or "swollen" on my right side just under the rib cage.  I am not trying to put the blame on Hep C or cirrhosis for everything that I feel but was just wondering if this could be one of those common things among us.  I feel really crappy today and it is making me wonder
I am currently waiting for approval for Hervoni. I hope to know something this week
Thanks
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,346
  • Get tested, get treated, get cured, fight Hep c!
Re: Ringing in the ears
« Reply #1 on: March 31, 2015, 11:00:49 pm »
I noticed my ears ringing about 10 years ago but I work in a machine shop and have had for years so I just attribute it to noise exposure over a life time of work and play
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline Katie

  • Member
  • Posts: 784
Re: Ringing in the ears
« Reply #2 on: April 01, 2015, 02:00:32 am »
Hi Debula, WELCOME! 

 I have had tinnitus for about 10 years but had a horrible sinus infection and have been blaming that....however that was when I was diagnosed with hepC too.  Probably a coincidence.  I had total silence (first time in a decade) on day 3 & 4 of Harvoni treatment, and it was glorious...but it came back.   :-\  I miss the sound of silence but think I am stuck with this buzzing.  Some days worse than others.

I had brain fog, horrible fatigue and insomnia for years before treatment.  All have either gone away or are minimal now so hopefully your treatment will help you too.  Everyone experiences something a bit different.  I LOVE that I am sleeping and actually dreaming again.

Good luck and if you have time, check out the history on the Side Effect forum.  You can see what others have dealt with.  Lots of good information for you!

Katie
1 year post treatment blood work done and I am FREE!
GT 1a (4/1/2016)
Dx 2005
VL 2.6 million (fluctuated from 2-16 million during the 9 years)
Started Tx 12/4/2014 for 12 weeks
4 week blood work  Detected 59 IU/mL
EOT Detected <12 IU/mL
7.5 weeks post  Undetected
16 week post Undetected
24 WEEK POST UNDETECTED (I made it)
Waiting to feel good but feeling blessed!
12 month post treatment.  All blood work absolutely perfect! VL, as expected UNDETECTED!

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: Ringing in the ears
« Reply #3 on: April 01, 2015, 11:57:28 am »
Thank you very much for your replies
I have been feeling soooo sooo tired for so many years now.
For the last 5 years I thought it had to do with my Thyroid problem and now I'm finding out that all of my crappy symptoms could be from the cirrhosis or Hep c
Just the idea of one day not feeling this bad is so exciting!! 
The symptoms that have been bugging me the most are:
Fatigue
Severe Itching
Ringing in the ears
Weird fingernails that remain sharp no matter how short I clip or file them
(Really bad for my itchiness as I scratch and bleed :( and have yucky scars all over my body now :( )
Swollen ankles
Feeling bloated and pressure on my left side under my ribs
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

Offline Lynn K

  • Global Moderator
  • Member
  • Posts: 4,346
  • Get tested, get treated, get cured, fight Hep c!
Re: Ringing in the ears
« Reply #4 on: April 01, 2015, 01:31:05 pm »
I have edema swelling in lower legs this is from cirrhosis. First reduce salt below 2000 mg or better 1200 mg a day. I also take a diuretic Spironolactone check with your doctor. The itching could be also from cirrhosis I think bilirubin levels.

Same for the tiredness cirrhosis and cirrhosis can even effect nail growth.

Good luck
Genotype 1a
1978 contracted, 1990 Dx
1995 Intron A failed
2001 Interferon Riba null response
2003 Pegintron Riba trial med null response
2008 F4 Cirrhosis Bx
2014 12 week Sov/Oly relapse
10/14 fibroscan 27 PLT 96
2014 24 weeks Harvoni 15 weeks Riba
5/4/15 EOT not detected, ALT 21, AST 20
4 week post not detected, ALT 26, AST 28
12 week post NOT DETECTED (07/27/15)
ALT 29, AST 27 PLT 92
24 week post NOT DETECTED! (10/19/15)
44 weeks (3/11/16)  fibroscan 33, PLT 111, HCV NOT DETECTED!
I AM FREE!

Offline BubbaT

  • Member
  • Posts: 267
Re: Ringing in the ears
« Reply #5 on: April 03, 2015, 12:00:44 am »
Hi debula, my Gi told me my spleen was inflamed due to the cirrhosis causing the pain in my left side, and the itching can be helped by using coconut oil on the area affected
I also had swollen ankles,

Note.:    The best thing you can do for yourself is eat no salt, no sugar , low fat diet, until you can get thru treatment, this will help your current condition...
No red meat,    Google heart smart diet......

Your diet will help your symptoms more than anything right now...

I was going thru the Same things as you.... But did not have ringing ears...

Once the meds kick in and your immune response starts working you should be able to tolerate better...

I know how it feels, I have been there for a long time, but the worst is behind you!


You can make it!
Age 57 male
Infected late 70's
Diagnosed 95
1a, 2 prev biopsy 95, 2004
Ct 2007, 2015
Treatment Naive
F4 A3. Fibrosure/ CT 2-5-15. Ammonia 222
VL 2.2 mil.
Started Harvoni  3-3-15. 12weeks, finished 5-26-15
4 week VL undetected
12 week EOT undetected

Offline Debula

  • Member
  • Posts: 257
  • "Your body hears everything your mind says"
Re: Ringing in the ears
« Reply #6 on: April 05, 2015, 02:41:43 pm »
Thank you for the encouraging post! 
So weird that lately all I want to eat us junk too!  I must be in self sabotage mode or something.  :o
I will try to eat better.  I noticed that the swollen / pain-like feeling comes on stronger after I eat.  I guess that would make sense.

Ready to start this battle already!! Hopefully Monday will bring some news on the status of my Harvini approval
80's DX: NonA,B
Non responder to Interferon
3/6/2015-GT 1a
VL-1920000 IU/mL
FibroSURE: Fibrosis stage F4 (0.79)
                  Necroinflammat activity A3 Severe (0.75)
AST 88,  ALT 120, Platelets 73
4/16/2015-Started Harvoni (24 weeks)
5/13/2015-4 weeks AST 26, ALT 36 
5/22/2015-5 weeks  VL UND
6/17/2015-9 weeks  VL UND AST 28 ALT 40
7/31/2015-15 weeks VL UND AST 27 ALT 39
9/22 Diagnosed with HCC
10/1-EOT
10/29-SVR4
12/23-SVR12
I AM HEPC FREE! :)

 


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